Experiences with

Persistent postural-perceptual dizziness

From my reading and understanding, so far, I tick the Functional Cognitive Symptoms and Persistent Postural Perceptual Dizziness (PPPD) boxes. However, I found a study on "The characteristics of cognitive impairment in subjective chronic tinnitus".

However, became weaker still and developed alarming tremors affecting head, and whole body, double vision and was diagnosed with Persistent Postural Perceptual Dizziness. Needed wheely walker and assistance to go to loo.

From my reading and understanding, so far, Functional Cognitive Symptoms and Persistent Postural Perceptual Dizziness (PPPD) tick the boxes. However, I found this study on "The characteristics of cognitive impairment in subjective chronic tinnitus" (from which I've extracted a few excerpts below).

However I'm now on week six and have went from having a wet productive cough to an extremely dry persistent cough. My wife said I used to make bubbling and crackling sounds in between coughing when I was asleep, but now I'm whistling and have a persistent dry cough.

PPPD typically starts shortly after an event that causes acute vertigo, unsteadiness, dizziness, or disruption of balance. https://vestibular.org/article/diagnosis-treatment/types-of-vestibular-disorders/persistent-postural-perceptual-dizziness/?

The physio has added a probable diagnosis of Persistent Postural Perceptual Dizziness that is accompanying my other diagnoses.

I'll spare you the details, but in short I recently suffered a horrid spell of vertigo and a spike in my tinnitus, which was diagnosed as PPPD (Persistent Postural Perceptual Dizziness). This was related to the stress of trying to get used to hearing aids (again) and workload.

I was subsequently given a diagnosis of Persistent Postural-Perceptual Dizziness and have been doing daily physio for well over a year, but I still feel as though I'm standing on a small boat in choppy waters, trying to stay upright.

However I didn't think Meniere's disease caused constant dizziness? Please correct me if I'm wrong. I have not had vertigo since the first and only attack. I stumbled on an article around persistent postural-perceptual dizziness and the symptoms are exactly what I'm experiencing.

Doing own postural drainage together with lung slaps, helps, but can’t reach all areas!

Nothing seems to help - postural drainage, ACBT, drinking lots of water. So thought I’d contact respiratory nurse for advice and also thought I’d reach out for support to others who know what’s it like.

I have severe brochiectasis Postural drainage 3 times a day for 45 minutes. Although it clears my lungs I still get sputum being produced on the left lung which makes me cough even when sitting. Brown inhaler does not work. It is for Asthma. Aerobika is to loosen sputum. No good.

I use it for twenty minutes and it seems to compare to postural drainage for clearing mucus. However, I noticed about four weeks ago that I can drink far more water.

I think part of helping your brain detox and drain away waste is making sure all your drainage systems from your sinuses to your chest are working well. https://www.cff.org/Life-With-CF/Treatments-and-Therapies/Airway-Clearance/Basics-of-Postural-Drainage-and-Percussion/

I’ve done my own postural drainage for many years, learnt more about it when had operation for something else then saw physio at my GP surgery for short session to ensure doing it properly.

Variously it has been described by Consultants as B.P.P.V. or sometimes Persistent Postural-Perceptual Dizziness. Hearing is OK in both ears, and I've been tested by ENT and Balance Consultants. I'm told the Epley Manoeuvre is not appropriate.

It's something called Persistent postural-perceptual dizziness (PPPD). I feel a constant swaying all the time. I also think I have a hyperstimulated nervous system because I'm always in a state of worry and anxiety. Do you think this could possibly be what I'm suffering with?

I do the active breathing cycle as well as postural drainage on a night. I also clean out my sinuses twice a day using a sinus rinse which I think helps my chest as it reduces the post nasal drip. I would love to hear what everyone else does or even some tips. Best wishes Danni

He helps with my postural drainage, drives me anywhere I want to go, does all manner of little jobs around the home and keeps me sane. Then I've got a son who lives locally with his wife and three children and a daughter who lives 400 miles away with her husband and two children.

Since then I have managed pretty well with just 15-20 postural drainage every night, and around 1 infection a year that clears up quickly with antibiotics. However this year has been quite bad. I got an infection back in March while away at a conference and it took me a few days to get antibiotics.