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Experiences with
Permanent atrial fibrillation
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Anyone with heart scar tissue?
I have been in the Afib forum for a year and half. Thanks to what I learned in this wonderful forum, I made some lifestyle adjustmemts that kept me out of Afib. I found out I had some scar tissue after a heart MRI following a sustained ventricular tachycardia cardiac arrest in 2021, I am on beta blocker
I have been in the Afib forum for a year and half. Thanks to what I learned in this wonderful forum, I made some lifestyle adjustmemts that kept me out of Afib. I found out I had some scar tissue after a heart MRI following a sustained ventricular tachycardia cardiac arrest in 2021, I am on beta blocker
Sustainedvtach270
in
Atrial Fibrillation Support
2 years ago
Update on Annovis Buntanetap
Update from Annovis We are excited to announce two significant advances in our progress in developing a novel therapy for Parksinon’s, Alzheimer’s, and other neurodegenerative diseases. Annovis Files a Groundbreaking Composition of Matter Patent Annovis Bio has developed a new crystalline form of
Update from Annovis We are excited to announce two significant advances in our progress in developing a novel therapy for Parksinon’s, Alzheimer’s, and other neurodegenerative diseases. Annovis Files a Groundbreaking Composition of Matter Patent Annovis Bio has developed a new crystalline form of
Imaparky
in
Cure Parkinson's
1 year ago
Abilation
Hi allI had my AVR done in May this year, initially I had issues with heart rate jumping around 147. My medications were Bisoprolol 7.5 mg along with standard water tablets and blood thinners.Couple of months after the procedure I had to go A&E for this heart rate procedure but I was either given digoxin
Hi allI had my AVR done in May this year, initially I had issues with heart rate jumping around 147. My medications were Bisoprolol 7.5 mg along with standard water tablets and blood thinners.Couple of months after the procedure I had to go A&E for this heart rate procedure but I was either given digoxin
Devaprinters
in
Arrhythmia Alliance
2 years ago
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Where to go after Lutetium 177?
Spouse has had a wonderful run on Lu177. Is now about to get his final infusion this week. PSA was dropping fast (down to 185) up until the supply issues struck; he missed one complete cycle which was stuck on the end. Since then, PSA has dropped to around 345 at the 5 week mark following the infusion
Spouse has had a wonderful run on Lu177. Is now about to get his final infusion this week. PSA was dropping fast (down to 185) up until the supply issues struck; he missed one complete cycle which was stuck on the end. Since then, PSA has dropped to around 345 at the 5 week mark following the infusion
Biobro
in
Advanced Prostate Cancer
1 year ago
next treatment Doxil
hello everyone In July 1st 2022 I enrolled in a clinical trial with AZD (Faslodex in pills) and Capivasertib. Unfortunately last PET scan is showing progression on my liver. Options are Everolimus or Abemaciclib and IV chemo: Doxil. My onc strongly recommends Doxil. Obviously I am scared of IV
hello everyone In July 1st 2022 I enrolled in a clinical trial with AZD (Faslodex in pills) and Capivasertib. Unfortunately last PET scan is showing progression on my liver. Options are Everolimus or Abemaciclib and IV chemo: Doxil. My onc strongly recommends Doxil. Obviously I am scared of IV
Lna21
in
SHARE Metastatic Breast Cancer
1 year ago
Running out of road....
... I've got a consultation with my oncologist tomorrow. I've huge respect for him - he's been with me throughout this 'journey' from initial diagnosis 14 yrs ago. But, he tends to follow SOC (although will support me in straying from the path. I'd welcome some suggestions before I talk to him. My situation
... I've got a consultation with my oncologist tomorrow. I've huge respect for him - he's been with me throughout this 'journey' from initial diagnosis 14 yrs ago. But, he tends to follow SOC (although will support me in straying from the path. I'd welcome some suggestions before I talk to him. My situation
CrocodileShoes
in
Advanced Prostate Cancer
1 year ago
INTERCEPT IS ENDING CLINICAL TRIAL
I have been participating in Intercept's clinical trial for Ocaliva's use for the improvement of liver fibrosis. When the FDA voted against the approval of the drug last week, Intercept announced it will be discontinuing all R&D for NASH treatment. This is a grave disappointment.
I have been participating in Intercept's clinical trial for Ocaliva's use for the improvement of liver fibrosis. When the FDA voted against the approval of the drug last week, Intercept announced it will be discontinuing all R&D for NASH treatment. This is a grave disappointment.
NYLassie
in
Living with Fatty Liver and NASH
1 year ago
Sister likely has endometrial cancer
Hello everyone, I have been a member of healthunlocked since 2014 when I was diagnosed with CLL. I noticed that my sister's belly was getting quite big so I made her get an ultrasound. She had a CT scan on Thursday night and although we haven't received the results yet, it is more than likely that
Hello everyone, I have been a member of healthunlocked since 2014 when I was diagnosed with CLL. I noticed that my sister's belly was getting quite big so I made her get an ultrasound. She had a CT scan on Thursday night and although we haven't received the results yet, it is more than likely that
fell
in
SHARE Uterine Cancer Support
1 year ago
Oral NT-0796 for Parkinson’s shows promise in early clinical trials
https://parkinsonsnewstoday.com/news/nodthera-nt-0796-shows-promise-early-parkinsons-clinical-trials/
https://parkinsonsnewstoday.com/news/nodthera-nt-0796-shows-promise-early-parkinsons-clinical-trials/
Farooqji
in
Cure Parkinson's
1 year ago
OVM 200 clinical trial on TV
https://www.newscientist.com/article/2375922-advancing-immunology-the-future-of-vaccine-innovations/ at 6.25 mins is a bit of info about the trial I volunteered for. The ‘shout out’ is for ovarian cancers so I may not have had an immune response but I have heard nothing formally except last weeks scans
https://www.newscientist.com/article/2375922-advancing-immunology-the-future-of-vaccine-innovations/ at 6.25 mins is a bit of info about the trial I volunteered for. The ‘shout out’ is for ovarian cancers so I may not have had an immune response but I have heard nothing formally except last weeks scans
Brysonal
in
Fight Prostate Cancer
1 year ago
My brother has advanced Prostate cancer
Hi everyone, I attached previous post about my brother. Since then he had one more PSA test which came back at 17! He has CT scan and bone scan, he had some new mets on his bones(spine) and they are suspected to some lymph nodes of chest. Currently he has hormone therapy every 3 months and Nubeqa
Hi everyone, I attached previous post about my brother. Since then he had one more PSA test which came back at 17! He has CT scan and bone scan, he had some new mets on his bones(spine) and they are suspected to some lymph nodes of chest. Currently he has hormone therapy every 3 months and Nubeqa
rasher1
in
Advanced Prostate Cancer
1 year ago
Reminder: The virtual LiveLung SCLC group meeting is TONIGHT, June 20th at 7 pm ET.
This month's expert speaker is Fox Chase Cancer Center Chief of Thoracic Oncology, Dr. Hossein Borghaei. Dr. Borghaei will discuss immunotherapy and SCLC. Attendees will receive a $15 Grubhub credit.
Register HERE:
https://us02web.zoom.us/meeting/register/tZcoceqtqTsuGtQLZRWg56NWyuLdozBKybPJ
This month's expert speaker is Fox Chase Cancer Center Chief of Thoracic Oncology, Dr. Hossein Borghaei. Dr. Borghaei will discuss immunotherapy and SCLC. Attendees will receive a $15 Grubhub credit.
Register HERE:
https://us02web.zoom.us/meeting/register/tZcoceqtqTsuGtQLZRWg56NWyuLdozBKybPJ
AmyKamp
Partner
in
Small Cell Lung Cancer Support
1 year ago
So now I'm a bit scared.
I posted about deciding to do an ablation consult the other day, I have that scheduled for Dec 30th. Well that evening the 23rd I had a new arrhythmia show up. I sent it to Kardia clinician review, and they said it was ventricular tachycardia. The sort of rhythm that when sustained can lead to ventricular
I posted about deciding to do an ablation consult the other day, I have that scheduled for Dec 30th. Well that evening the 23rd I had a new arrhythmia show up. I sent it to Kardia clinician review, and they said it was ventricular tachycardia. The sort of rhythm that when sustained can lead to ventricular
ChasMartin
in
AF Association
2 years ago
Afib worse than before ablation
I had the most glorious day in 3 years on the 4th day after my first ablation, which the doc said went great. The first three days were tougher because I had a sort throat, fever, then a migraine. But on day 4 I felt incredible…until about 9:30pm when my watch told me I was in afib again. And then
I had the most glorious day in 3 years on the 4th day after my first ablation, which the doc said went great. The first three days were tougher because I had a sort throat, fever, then a migraine. But on day 4 I felt incredible…until about 9:30pm when my watch told me I was in afib again. And then
UnhappyAF
in
AF Association
2 years ago
”Aggressive” AF
Does anybody on here have experience or encouraging stories about Atrial Fibrillation especially the aggressive kind. I'm 43 and diagnosed with AF in March '21. I've had a cardioversion, 2 ablations in the upper chamber and 1 ablation in a lower chamber. The last ablation was in June then in July, I
Does anybody on here have experience or encouraging stories about Atrial Fibrillation especially the aggressive kind. I'm 43 and diagnosed with AF in March '21. I've had a cardioversion, 2 ablations in the upper chamber and 1 ablation in a lower chamber. The last ablation was in June then in July, I
BeeBee79
in
AF Association
2 years ago
Any ideas/stories about treating PAC’s??
Had ablation in May of this year for lone AFib. Structurally normal heart. Had mild runs of PACs prior to the procedure that would come and go. Now going on 7 months after procedure and they are more bothersome than the AFib was. Last for hours and/or days on end. It’s really wearing me down. I’ve tried
Had ablation in May of this year for lone AFib. Structurally normal heart. Had mild runs of PACs prior to the procedure that would come and go. Now going on 7 months after procedure and they are more bothersome than the AFib was. Last for hours and/or days on end. It’s really wearing me down. I’ve tried
Golf1515
in
AF Association
2 years ago
A-Flutter Ablation Success
How many have had an a-flutter ablation and it lasted? My doctor made it sound like its one and done for a long time to come but the more I read, the more it makes me think it's just temporary and a way of life to have to keep going in or then possibly have to get another one for Afib very soon after
How many have had an a-flutter ablation and it lasted? My doctor made it sound like its one and done for a long time to come but the more I read, the more it makes me think it's just temporary and a way of life to have to keep going in or then possibly have to get another one for Afib very soon after
Aflutter1
in
AF Association
2 years ago
New shooting pain in left breast
So today I have another strange new symptom - quick shooting pain from my left side across/through my left breast. Its happened 3 times today and each time its been about 6 quick pains then went away, all times I have been relaxed and at rest. I have done an ECG on my Apple Watch, checked my heart
So today I have another strange new symptom - quick shooting pain from my left side across/through my left breast. Its happened 3 times today and each time its been about 6 quick pains then went away, all times I have been relaxed and at rest. I have done an ECG on my Apple Watch, checked my heart
HappyDiamonds
in
PMRGCAuk
2 years ago
Cox maze: anyone had this procedure?
Hi all just booked for a private consult with cardiothoraticic surgeon in northwest, hopefully for Cox maze procedure for afib. Was in a+e for 14 hours yesterday on monitors...sent me home, still in AFib. Long story, but bit by bit I am finding out that treatment for my AFib is very limited due to other
Hi all just booked for a private consult with cardiothoraticic surgeon in northwest, hopefully for Cox maze procedure for afib. Was in a+e for 14 hours yesterday on monitors...sent me home, still in AFib. Long story, but bit by bit I am finding out that treatment for my AFib is very limited due to other
DizzyD
in
Atrial Fibrillation Support
2 years ago
I am back again sorry if I wrote this last night.
almost a month ago I had a cardioversion and it was amazing. I have been dealing with a heart rate in the 150s since the end of April. When I woke up from the CV it was 82. I actually had a smile as I awoke. I did not even know my heart rate was down yet so maybe it was the drugs lol but I felt happier
almost a month ago I had a cardioversion and it was amazing. I have been dealing with a heart rate in the 150s since the end of April. When I woke up from the CV it was 82. I actually had a smile as I awoke. I did not even know my heart rate was down yet so maybe it was the drugs lol but I felt happier
DawnTX
in
AF Association
2 years ago
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