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Hydroxychloroquine toxic retinopathy
Hi. I have had Lupus for 22 years and been on Hydroxychloroquine 400mg daily since then plus 2mg Prednisolone. Recent eye tests have shown that the Hydroxy is affecting the retina. I was warned at the outset, that it can affect eyes, but it still a bit of a shock. Opthamology Consultant says I must
Hi. I have had Lupus for 22 years and been on Hydroxychloroquine 400mg daily since then plus 2mg Prednisolone. Recent eye tests have shown that the Hydroxy is affecting the retina. I was warned at the outset, that it can affect eyes, but it still a bit of a shock. Opthamology Consultant says I must
Juniperm
in
LUPUS UK
3 months ago
Cholesterol level and Q Risk
I don't remember seeing any discussions about the Q Risk with relation to a stroke or heart attack. My last bloods came back normal, no action. My cholesterol was 5.3 and I'm on 2mg pred.I asked the nurse what the Q risk was and it came up as 25% chance of a stroke or heart attack within the next 10
I don't remember seeing any discussions about the Q Risk with relation to a stroke or heart attack. My last bloods came back normal, no action. My cholesterol was 5.3 and I'm on 2mg pred.I asked the nurse what the Q risk was and it came up as 25% chance of a stroke or heart attack within the next 10
diana1998
in
PMRGCAuk
1 month ago
heart rate 134 when out walking
Hi all, I have PAF diagnosed Sept 23, I’m taking 1.25 Bisoprolol and 5mg x 2. I recently had my Bisoprolol reduced from 2.50 as it was making me very lacking in energy. I’m 73. We went out for a walk today, it involved a couples of inclines but nothing major, we stopped for lunch after about two miles
Hi all, I have PAF diagnosed Sept 23, I’m taking 1.25 Bisoprolol and 5mg x 2. I recently had my Bisoprolol reduced from 2.50 as it was making me very lacking in energy. I’m 73. We went out for a walk today, it involved a couples of inclines but nothing major, we stopped for lunch after about two miles
Crumbling
in
Atrial Fibrillation Support
1 month ago
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`psa level
I have now been on Firmagon (hormone therapy) for 23 months .I have stage 4+4 with an original PSA of 375.I had 6 rounds of chemo which killed off the majority of the cancer in bones and lungs.Only a couple of tiny spots in the lungs. My professor tells me i have had a very good result on many trips
I have now been on Firmagon (hormone therapy) for 23 months .I have stage 4+4 with an original PSA of 375.I had 6 rounds of chemo which killed off the majority of the cancer in bones and lungs.Only a couple of tiny spots in the lungs. My professor tells me i have had a very good result on many trips
Brianne07
in
Advanced Prostate Cancer
6 months ago
Trigeminy and Flecainide
I’m a female, 72 and have been in constant Trigeminy for a week now. Can someone tell me if taking 100 mg of Flecainide twice a day will help with the Trigeminy? My EP doctor prescribed the Flecainide in March for Afib however I haven’t started taking it yet because I have not been having problems with
I’m a female, 72 and have been in constant Trigeminy for a week now. Can someone tell me if taking 100 mg of Flecainide twice a day will help with the Trigeminy? My EP doctor prescribed the Flecainide in March for Afib however I haven’t started taking it yet because I have not been having problems with
Debjimmay
in
Atrial Fibrillation Support
1 month ago
Paul's last day today
Today is Paul Howard's last day at LUPUS UK after 13 years at the charity. Please join us in sending him our very best wishes for the future. Thank you for everything you have done for the lupus community. You will be very much missed!
Today is Paul Howard's last day at LUPUS UK after 13 years at the charity. Please join us in sending him our very best wishes for the future. Thank you for everything you have done for the lupus community. You will be very much missed!
Debbie_kinsey
Administrator
in
LUPUS UK
3 months ago
Atrial Fibrillation
Hi, I have suffered with AF since 2018 resulting in 4 cardioversions and 3 ablations (the last was on Friday 17th May and was an AV node ablation linked with connection of a previously implanted Pacemaker. I had hoped that I would be feeling great, no breathlessness. Unfortunately that is not the case
Hi, I have suffered with AF since 2018 resulting in 4 cardioversions and 3 ablations (the last was on Friday 17th May and was an AV node ablation linked with connection of a previously implanted Pacemaker. I had hoped that I would be feeling great, no breathlessness. Unfortunately that is not the case
hollyandivy
in
Atrial Fibrillation Support
1 month ago
Exercise induced AF
I’ve had a great 4 years since my AF diagnosis, able to live pretty normally in terms of my choice of exercise with 3 years AF free following my cardioversion and just a few increasing episodes of paroxysmal AF in the last year. Recently I felt that a triathlon bike/run training session set off my AF
I’ve had a great 4 years since my AF diagnosis, able to live pretty normally in terms of my choice of exercise with 3 years AF free following my cardioversion and just a few increasing episodes of paroxysmal AF in the last year. Recently I felt that a triathlon bike/run training session set off my AF
Daisy2908
in
Atrial Fibrillation Support
1 month ago
Statins
I had a call from my GP surgery about taking statins.Apparently my cholesterol is okay but I have a 38% risk of having a stroke or heart attack. Even though I take anticoagulant statins work in a different way and are recommended for me as I am in persistent afib I do not want to take statins but wondered
I had a call from my GP surgery about taking statins.Apparently my cholesterol is okay but I have a 38% risk of having a stroke or heart attack. Even though I take anticoagulant statins work in a different way and are recommended for me as I am in persistent afib I do not want to take statins but wondered
Swimsyroke
in
Atrial Fibrillation Support
1 month ago
digoxin
Have been on Digoxin now for 6/12 and it has had a profound effect. Unable to take more modern drugs because I have Asthma. I am certainly much better than I was. I think it’s probably your hypotension drug causing your problems and have a consultation with your Gp.
Have been on Digoxin now for 6/12 and it has had a profound effect. Unable to take more modern drugs because I have Asthma. I am certainly much better than I was. I think it’s probably your hypotension drug causing your problems and have a consultation with your Gp.
Decrepit
in
Atrial Fibrillation Support
1 month ago
"Failed" exercise stress test
I have AF, gradually worsening, with chest and throat pain during episodes. Cardiologist did an exercise stress test on Tuesday and stopped the test after 3 minutes. He told me I have ischaemic heart disease - which is a bit galling as I have never smoked and do not eat red meat, cheese, eggs etc. -
I have AF, gradually worsening, with chest and throat pain during episodes. Cardiologist did an exercise stress test on Tuesday and stopped the test after 3 minutes. He told me I have ischaemic heart disease - which is a bit galling as I have never smoked and do not eat red meat, cheese, eggs etc. -
Singingforever
in
Atrial Fibrillation Support
1 month ago
Travel with Afib
Plan to travel overseas in July. Permanent afib trying to adjust meds now to minimize side effects. On Digoxin, Lopressor, Eliquis. Any thoughts etc.
Plan to travel overseas in July. Permanent afib trying to adjust meds now to minimize side effects. On Digoxin, Lopressor, Eliquis. Any thoughts etc.
farewelltoarms
in
Atrial Fibrillation Support
1 month ago
Bisoprolol
Hello, The cardiologist has swapped my medication from Verapamil to Bisoprolol, 2.5mg/day. So far so good as far as side effects go 👍 but there is one thing. I can't seem to get warm since the swap. The temperature here in the north east has dropped since our couple of days of summer but it's more than
Hello, The cardiologist has swapped my medication from Verapamil to Bisoprolol, 2.5mg/day. So far so good as far as side effects go 👍 but there is one thing. I can't seem to get warm since the swap. The temperature here in the north east has dropped since our couple of days of summer but it's more than
Ilovedogs12
in
Atrial Fibrillation Support
1 month ago
Oximeters
I have just been diagnosed with a fib, after years of suspecting something was amiss, but never having episodes when a doctor, and even a cardiologist, was seeing me. I bought a Kardia6L, which showed many afib episodes. I took that to my GP of 13 years, and he immediately swung into impressive action
I have just been diagnosed with a fib, after years of suspecting something was amiss, but never having episodes when a doctor, and even a cardiologist, was seeing me. I bought a Kardia6L, which showed many afib episodes. I took that to my GP of 13 years, and he immediately swung into impressive action
Corazon17
in
Atrial Fibrillation Support
1 month ago
Permanent AFib
Started on Digoxin .25 daily for past six days and cut Lopressor down to 25 twice a day. Am going to try to wean off. HR 80-110. Generally do not feel well and am going to revisit ablation. I had blurring of vision and dizziness on higher doses of Lopressor alone. Last cardioversion only lasted
Started on Digoxin .25 daily for past six days and cut Lopressor down to 25 twice a day. Am going to try to wean off. HR 80-110. Generally do not feel well and am going to revisit ablation. I had blurring of vision and dizziness on higher doses of Lopressor alone. Last cardioversion only lasted
farewelltoarms
in
Atrial Fibrillation Support
1 month ago
Experience, thus far with Lupron and Abiraterone
I am 78 years old. I was diagnosed in May 2022 with PCa after my PSA was measured at 23.79. I have no other health issues. Following the determination that PCa was still within the prostrate capsule and had not spread to any other organ, I was placed on Lupron (6 monthly IM injections for 2 years). Clinically
I am 78 years old. I was diagnosed in May 2022 with PCa after my PSA was measured at 23.79. I have no other health issues. Following the determination that PCa was still within the prostrate capsule and had not spread to any other organ, I was placed on Lupron (6 monthly IM injections for 2 years). Clinically
Sanctus
in
Advanced Prostate Cancer
6 months ago
Plant-based raw food diet eases symptoms of SLE, Sjögren’s: Report
More research needed into diet's role in autoimmune disease Three women with the autoimmune conditions systemic lupus erythematosus (SLE) and Sjögren’s syndrome saw their symptoms ease after starting a diet rich in plant-based raw foods, according to a recent case series report. The diet included
More research needed into diet's role in autoimmune disease Three women with the autoimmune conditions systemic lupus erythematosus (SLE) and Sjögren’s syndrome saw their symptoms ease after starting a diet rich in plant-based raw foods, according to a recent case series report. The diet included
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 months ago
Cholesterol and QRISK score
My GP has just completed my annual review and has referred me to the GP specialist Pharmacist to discuss statins. My cholesterol has always been well controlled with a reading of around 5 (I was told my good cholesterol was excellent). This year it has increased to 5.16 and he has also completed a QRISK
My GP has just completed my annual review and has referred me to the GP specialist Pharmacist to discuss statins. My cholesterol has always been well controlled with a reading of around 5 (I was told my good cholesterol was excellent). This year it has increased to 5.16 and he has also completed a QRISK
Karendeena
in
Atrial Fibrillation Support
1 month ago
supplements for a fibs???
Has anyone here used magnesium or L arginine for atrial fibrillations? If yes, and you had good results, what were the dosages and how often daily? Thank you.
Has anyone here used magnesium or L arginine for atrial fibrillations? If yes, and you had good results, what were the dosages and how often daily? Thank you.
peachtreepiggy
in
Atrial Fibrillation Support
1 month ago
CABG recovery
Evening all, hope everyone is having a good day. Can I ask anyone who has had bypass surgery their experience of the level of pain when you come round ? I hear everything from virtually zero to the worst pain you can experience, some people saying that they wouldnt have gone through with the procedure
Evening all, hope everyone is having a good day. Can I ask anyone who has had bypass surgery their experience of the level of pain when you come round ? I hear everything from virtually zero to the worst pain you can experience, some people saying that they wouldnt have gone through with the procedure
Stevie335
in
British Heart Foundation
9 months ago
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