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Pegasys
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Just saw MPN Specialist | ET+CALR
He agreed that Interferon (
Pegasys
) is the best treatment at this point. I asked him about Besremi and he said that only people with PV have this option (from insurance companies) but he doesn't prefer one over the other. So
Pegasys
is fine.
He agreed that Interferon (
Pegasys
) is the best treatment at this point. I asked him about Besremi and he said that only people with PV have this option (from insurance companies) but he doesn't prefer one over the other. So
Pegasys
is fine.
Zeppelin11
in
MPN Voice
2 years ago
Hair Loss on Hydrea
After starting to an MPN Specialist almost 2 yrs ago & switching to
Pegasys
, my hair is coming back in. My hair dresser is amazed at how much regrowth I’ve had. It’s still fairly thin on top, but slowly filling back in. Good luck!
After starting to an MPN Specialist almost 2 yrs ago & switching to
Pegasys
, my hair is coming back in. My hair dresser is amazed at how much regrowth I’ve had. It’s still fairly thin on top, but slowly filling back in. Good luck!
Golfersmom
in
MPN Voice
2 years ago
Update on appointments
Hi guys , got my letter threw post today with my results which was from 6th of March that would of been 4 weeks then off
pegasys
interferon, Hb - 127 WBC-5.1 Neutrophils-2.9 Platelets-475 Am due back on 17th of April to let them know in-between if I need too.
Hi guys , got my letter threw post today with my results which was from 6th of March that would of been 4 weeks then off
pegasys
interferon, Hb - 127 WBC-5.1 Neutrophils-2.9 Platelets-475 Am due back on 17th of April to let them know in-between if I need too.
Jody00
in
MPN Voice
2 years ago
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Pegasys injection
Hi, i have a
pegasys
injection every week into lower tummy for two years, i alternate either side. Last week the injection site is quite red and sore, has anyone experienced this and could recommend anything to help. Thank you.
Hi, i have a
pegasys
injection every week into lower tummy for two years, i alternate either side. Last week the injection site is quite red and sore, has anyone experienced this and could recommend anything to help. Thank you.
Robeets_33
in
MPN Voice
2 years ago
Urgent! Help deciding on Pegasys dose today
Hi gang, I have an appointment with my Haem in a couple of hours to prescribe
pegasys
and I’m trying to decide what the best starting dose will be. Would appreciate any input/advice you guys can give!
Hi gang, I have an appointment with my Haem in a couple of hours to prescribe
pegasys
and I’m trying to decide what the best starting dose will be. Would appreciate any input/advice you guys can give!
IrishSarah
in
MPN Voice
2 years ago
Hydroxy v Interferon
I have had a pack of
Pegasys
in my fridge since November and TODAY is the day that have decided to start taking it! I’ll let you know how I get on….💪🙏🤞
I have had a pack of
Pegasys
in my fridge since November and TODAY is the day that have decided to start taking it! I’ll let you know how I get on….💪🙏🤞
RazB
in
MPN Voice
2 years ago
Pegasys starting dose
I got my prescription to start
Pegasys
due to my platelets being in the 1.5M range. I haven’t discussed the dose with my hematologist (not an MPN specialist) but I see now that she wants me to start with 90 mcg weekly.
I got my prescription to start
Pegasys
due to my platelets being in the 1.5M range. I haven’t discussed the dose with my hematologist (not an MPN specialist) but I see now that she wants me to start with 90 mcg weekly.
Aelle
in
MPN Voice
2 years ago
LDH Levels
I'm going on three weeks with
Pegasys
(90mcg once per week) and still taking two pills of Hydrea as well as an aspirin per day. My platelets continue to go down and are at 780,000 as if yesterday. However my LDH level is at 359 which is concerning me.
I'm going on three weeks with
Pegasys
(90mcg once per week) and still taking two pills of Hydrea as well as an aspirin per day. My platelets continue to go down and are at 780,000 as if yesterday. However my LDH level is at 359 which is concerning me.
Zeppelin11
in
MPN Voice
2 years ago
Pegasys Delay
I'm currently taking 1500mg of Hydrea and my Hematologist wants me to keep taking it while starting a
Pegasys
dose of 180mcg. I told him I thought that was too high and prefer to start with 45mcg and work my way up if need be. So I will continue the 3 pills of Hydrea with 45mcg of
Pegasys
.
I'm currently taking 1500mg of Hydrea and my Hematologist wants me to keep taking it while starting a
Pegasys
dose of 180mcg. I told him I thought that was too high and prefer to start with 45mcg and work my way up if need be. So I will continue the 3 pills of Hydrea with 45mcg of
Pegasys
.
Zeppelin11
in
MPN Voice
2 years ago
What does remission look like?
Had to stop
Pegasys
4 months ago because of liver issues. This is after being on it 8 years. Since then my platelets have remained at around 550. Liver enzymes continue to drop. Could this possibly constitute remission?
Had to stop
Pegasys
4 months ago because of liver issues. This is after being on it 8 years. Since then my platelets have remained at around 550. Liver enzymes continue to drop. Could this possibly constitute remission?
Mountainbiker12
in
MPN Voice
2 years ago
New treatment
Hi ,started My new treatment yesterday 90mg
pegasys
interferon alpha injection in my stomach still take 1 aspirin aday,my platelets count just below 900 at moment says will take a,few weeks for it to work got few symptoms nothing major so far,going see me once a week for now to take bloods and see Dr
Hi ,started My new treatment yesterday 90mg
pegasys
interferon alpha injection in my stomach still take 1 aspirin aday,my platelets count just below 900 at moment says will take a,few weeks for it to work got few symptoms nothing major so far,going see me once a week for now to take bloods and see Dr
Jody00
in
MPN Voice
2 years ago
Real world experience with Besremi in ET and PV following exposure to Pegasys.
Abstract Despite widespread use of Pegylated forms of Inteferon in the management of Myeloproliferative Neoplasms (MPN), most clinicians have experience predominantly with peginterferon alfa-2a (
Pegasys
).
Abstract Despite widespread use of Pegylated forms of Inteferon in the management of Myeloproliferative Neoplasms (MPN), most clinicians have experience predominantly with peginterferon alfa-2a (
Pegasys
).
Manouche
in
MPN Voice
2 years ago
Pegasys Dosage Waste
I am starting
Pegasys
next week to treat my polycythemia vera. HU was discussed, but not a great choice for me to start on. My dosage is 90mcg from a 180mcg vial, the remainder is thrown away. At approximately $1,000 a vial I will be flushing $500 down the drain a week! Truly disgusting.
I am starting
Pegasys
next week to treat my polycythemia vera. HU was discussed, but not a great choice for me to start on. My dosage is 90mcg from a 180mcg vial, the remainder is thrown away. At approximately $1,000 a vial I will be flushing $500 down the drain a week! Truly disgusting.
BadgerPV
in
MPN Voice
2 years ago
Biddy Platelets
I started on
pegasys
in October low dose 45mgmy Platelets are going up at each appointment. I went onto 90mg.last appointment they are up again so increases to 135mg.i seemed to be coping on 90mg but started high dose and Wham feel dreadful.
I started on
pegasys
in October low dose 45mgmy Platelets are going up at each appointment. I went onto 90mg.last appointment they are up again so increases to 135mg.i seemed to be coping on 90mg but started high dose and Wham feel dreadful.
JeniMac
in
MPN Voice
2 years ago
Starting Pegasys Friday
Currently on Hydroxurea (1500mg per day) and transitioning to interferon on Friday. The plan is to still take one pill of Hydrea a day and start with an interferon dose of 45mcg. I'm staying positive because I'm 38 years old and I think this will benefit me in the long run when it comes to side effects
Currently on Hydroxurea (1500mg per day) and transitioning to interferon on Friday. The plan is to still take one pill of Hydrea a day and start with an interferon dose of 45mcg. I'm staying positive because I'm 38 years old and I think this will benefit me in the long run when it comes to side effects
Zeppelin11
in
MPN Voice
2 years ago
Recombinant Interferon-β in the Treatment of Polycythemia Vera
The novel rIFN-α2b Besremi seems to be less toxic and perhaps also more effective than treatment with
Pegasys
, which is the only alternative today.
The novel rIFN-α2b Besremi seems to be less toxic and perhaps also more effective than treatment with
Pegasys
, which is the only alternative today.
Manouche
in
MPN Voice
2 years ago
dizzy, ET , aspirin and Peg interferon
I am on Aspirin and
pegasys
. I have MPL ET. Could it be ET related ?? Any ideas.
I am on Aspirin and
pegasys
. I have MPL ET. Could it be ET related ?? Any ideas.
Sprat19
in
MPN Voice
2 years ago
would it matter if
hi everyone, we are spending Xmas in Italy for a couple of days, and just wondering…..if our flight back hits and cancellations coming back, would it matter if my interferon
pegasys
injections was delayed by a day or so? have a great Christmas everyone….
hi everyone, we are spending Xmas in Italy for a couple of days, and just wondering…..if our flight back hits and cancellations coming back, would it matter if my interferon
pegasys
injections was delayed by a day or so? have a great Christmas everyone….
Yvette49
in
MPN Voice
2 years ago
Guidance on % Allele Burden test
I hope you’re all happy and and feeling reasonably well 💚 I’m about to restart
pegasys
after a 1 year break and it’s reignited my niggling desire to know my MAB % I’ve no doubt we’ll take this post down a rabbit hole discussion about all sorts (as our community of smart cookies tends to do 😂) BUT
I hope you’re all happy and and feeling reasonably well 💚 I’m about to restart
pegasys
after a 1 year break and it’s reignited my niggling desire to know my MAB % I’ve no doubt we’ll take this post down a rabbit hole discussion about all sorts (as our community of smart cookies tends to do 😂) BUT
IrishSarah
in
MPN Voice
2 years ago
Prescription denied • Pegasys 180MCG
For anyone one taking
Pegasys
, what dosage did you start off with? Is 180MCG a low dose?
For anyone one taking
Pegasys
, what dosage did you start off with? Is 180MCG a low dose?
Zeppelin11
in
MPN Voice
2 years ago
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