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Pegasys
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Pegasys - Medicare Payment Options and Dosing Schedule
Hi Everyone, I live in Connecticut in the US , have PV (exxon 12 mutation) and have been on
pegasys
for about 3 years. I now am on an every other week dose of 45 mcg. I am in a Medicare Advantage program.
Hi Everyone, I live in Connecticut in the US , have PV (exxon 12 mutation) and have been on
pegasys
for about 3 years. I now am on an every other week dose of 45 mcg. I am in a Medicare Advantage program.
gvibes
in
MPN Voice
3 months ago
Interferon dose.
My question is was he right to immediately double the dose as everything I've read about
Pegasys
says go low and slow as it's a slow reacting drug which shows it's effectiveness over time.
My question is was he right to immediately double the dose as everything I've read about
Pegasys
says go low and slow as it's a slow reacting drug which shows it's effectiveness over time.
conno61
in
MPN Voice
3 months ago
Pregnancy and ET
I was told the only medication you can take is
Pegasys
if I want to get pregnant. Curious about the risks as well. There is little research about this.
I was told the only medication you can take is
Pegasys
if I want to get pregnant. Curious about the risks as well. There is little research about this.
Zeppelin11
in
MPN Voice
7 months ago
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Total Hip Replacement Decision
Hello Friends, I have ET-MPL 515L, and this is year 10 with the disease, and I am doing well thanks to
Pegasys
. I have been informed, due to arthritis, I need a total hip replacement. Those of us with MPN's are at increased risk of vertebrae and hip fractures, YIKES!
Hello Friends, I have ET-MPL 515L, and this is year 10 with the disease, and I am doing well thanks to
Pegasys
. I have been informed, due to arthritis, I need a total hip replacement. Those of us with MPN's are at increased risk of vertebrae and hip fractures, YIKES!
Indigo42916
in
MPN Voice
4 months ago
Aspirin Question
Does anyone happen to know if it’s ok to take Excedrin, for a bad headache, when you have Essential Thrombocythemia & on
Pegasys
? Asking because I know there’s a fairly high dosage of aspirin in Excedrin. Thank you!
Does anyone happen to know if it’s ok to take Excedrin, for a bad headache, when you have Essential Thrombocythemia & on
Pegasys
? Asking because I know there’s a fairly high dosage of aspirin in Excedrin. Thank you!
Golfersmom
in
MPN Voice
7 months ago
Peg and Ear infection
I was diagnosed with PV recently at age 53 and started a
Pegasys
a month ago, only 45 mcg every two weeks for a slow start. No initial side effects, but 10 days ago got a sudden ear infection that hasn’t responded to antibiotics.
I was diagnosed with PV recently at age 53 and started a
Pegasys
a month ago, only 45 mcg every two weeks for a slow start. No initial side effects, but 10 days ago got a sudden ear infection that hasn’t responded to antibiotics.
Fabfam5
in
MPN Voice
4 months ago
Being taking off Pegasys. :( Looking for alternatives
I have been on aspirin for over 10 years, but had to start
Pegasys
3 months ago. I haven't tolerated it well. Severe shortness of breath etc. My hematologist reduced my dose to 30 per week, but I am suffering with hypertension (150 to 69/96 on average) and arythmia.
I have been on aspirin for over 10 years, but had to start
Pegasys
3 months ago. I haven't tolerated it well. Severe shortness of breath etc. My hematologist reduced my dose to 30 per week, but I am suffering with hypertension (150 to 69/96 on average) and arythmia.
JustKeepSw1mming
in
MPN Voice
7 months ago
Tet2 allele frequency
I have been on hydroxy since diagnosis and five months ago started the transition to
Pegasys
, 45mcg every two weeks.
I have been on hydroxy since diagnosis and five months ago started the transition to
Pegasys
, 45mcg every two weeks.
Janis12
in
MPN Voice
3 months ago
Am I at a higher risk from Covid ?
I have ET which is currently being treated with
Pegasys
and Aspirin. Am I classed as vulnerable? There is an option at work to have a special risk assessment if i am. I didnt ask my consultant and now wont see him till December. Thanks
I have ET which is currently being treated with
Pegasys
and Aspirin. Am I classed as vulnerable? There is an option at work to have a special risk assessment if i am. I didnt ask my consultant and now wont see him till December. Thanks
Scarlett500
in
MPN Voice
7 months ago
On Pegasys 180 for 2 months.
At first just when I did injections now all the time Dr has taken me off
Pegasys
immediately put me back on Hu, only 500mg until Jakavi, is approved. Last time on Hu only platlet 1.99 million. Concerned that the kidneys and liver will need to recover. Has anyone else experienced this?
At first just when I did injections now all the time Dr has taken me off
Pegasys
immediately put me back on Hu, only 500mg until Jakavi, is approved. Last time on Hu only platlet 1.99 million. Concerned that the kidneys and liver will need to recover. Has anyone else experienced this?
ETMF
in
MPN Voice
6 months ago
Pegasys treatment
Hi there,I am about to start my PV treatment with
Pegasys
. My doctor says to start at 90 mg as that's minimum dosage. However, I noticed others start at 45mg due to side effects and so to let the body get use to it. How was your experience with
Pegasys
?
Hi there,I am about to start my PV treatment with
Pegasys
. My doctor says to start at 90 mg as that's minimum dosage. However, I noticed others start at 45mg due to side effects and so to let the body get use to it. How was your experience with
Pegasys
?
kamiilos
in
MPN Voice
9 months ago
Pegasys and increasingly low haemoglobin count
Has anyone else experienced a steady drop in haemoglobin counts whilst on
pegasys
, after a similar period of time (5 years)? Did reducing the dosage reverse the situation? Thanks in advance. Pete
Has anyone else experienced a steady drop in haemoglobin counts whilst on
pegasys
, after a similar period of time (5 years)? Did reducing the dosage reverse the situation? Thanks in advance. Pete
PT99
in
MPN Voice
8 months ago
2 months on pegasys - first follow up
Started
pegasys
2 months ago and platelets were in the 900 range with 2x500mg HU daily. Platelets were 1.2m before starting HU. Hoping this means I can start to ween off HU! 🎉 hope everyone is doing ok. Hang in there, good things can happen!
Started
pegasys
2 months ago and platelets were in the 900 range with 2x500mg HU daily. Platelets were 1.2m before starting HU. Hoping this means I can start to ween off HU! 🎉 hope everyone is doing ok. Hang in there, good things can happen!
dbus1417
in
MPN Voice
8 months ago
Looking for an MPN specialist near Washington DC
Currently on very low dose of
Pegasys
that might be working *too* well, and need to figure out next steps. Willing to drive a reasonable distance (4-5 hours is acceptable) for the right doc!
Currently on very low dose of
Pegasys
that might be working *too* well, and need to figure out next steps. Willing to drive a reasonable distance (4-5 hours is acceptable) for the right doc!
110srh
in
MPN Voice
7 months ago
Risks of Pegasus?
I asked my consultant about changing to
Pegasys
but she said that interferons are not advised for the over-60s. Is this right? Why would my age make any difference? And will I be risking my health if I go ahead with
Pegasys
?
I asked my consultant about changing to
Pegasys
but she said that interferons are not advised for the over-60s. Is this right? Why would my age make any difference? And will I be risking my health if I go ahead with
Pegasys
?
Sivasi
in
MPN Voice
9 months ago
Leg Cramps
Could this be a symptom of PV or a side effect of
Pegasys
? Taking extra magnesium doesn’t seem to help unfortunately. Seeing my Haematologist in 10 days so I will be asking her advice then.
Could this be a symptom of PV or a side effect of
Pegasys
? Taking extra magnesium doesn’t seem to help unfortunately. Seeing my Haematologist in 10 days so I will be asking her advice then.
21Rosie
in
MPN Voice
6 months ago
a difficult journey!!
I was first diagnosed May 2019…My first and I think the last post was when starting
Pegasys
when my platelets had reached 1100. Started on 45mg and soon increased to 90 mmg. It started working quickly on the platelets, and i still needed a phlebotomy every 6 months….
I was first diagnosed May 2019…My first and I think the last post was when starting
Pegasys
when my platelets had reached 1100. Started on 45mg and soon increased to 90 mmg. It started working quickly on the platelets, and i still needed a phlebotomy every 6 months….
AllEars
in
MPN Voice
1 month ago
Drug insurance that covers Pegasys in US
Does anyone in US on Medicare have a drug plan that covers
Pegasys
or has a low copay? I need to change my drug plan this year.
Does anyone in US on Medicare have a drug plan that covers
Pegasys
or has a low copay? I need to change my drug plan this year.
Doxy46
in
MPN Voice
9 months ago
A bit worried
I’ve been on
Pegasys
for a few years and with ET CALR2. Platelets are well controlled at 329 but these results have WBC at 10.9. This is still only just in the normal range but previous results in March this year were a WBC OF 4.9. I’m worried that it has gone up so much.
I’ve been on
Pegasys
for a few years and with ET CALR2. Platelets are well controlled at 329 but these results have WBC at 10.9. This is still only just in the normal range but previous results in March this year were a WBC OF 4.9. I’m worried that it has gone up so much.
hall2
in
MPN Voice
7 months ago
Finally failed at side-stepping the “rona”
The day before I tested positive I had my
Pegasys
injection and I am curious to see if the Peg will help once it reaches its peak of release ( from past experience with Peg first dose side effects , apparently I am textbook with 36 hours).
The day before I tested positive I had my
Pegasys
injection and I am curious to see if the Peg will help once it reaches its peak of release ( from past experience with Peg first dose side effects , apparently I am textbook with 36 hours).
Aldebaran25
in
MPN Voice
4 months ago
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