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Pegasys
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Possible side effect?
I started
Pegasys
just about 2.5 months ago. Dose 45 mcg. per week. No real side effects. Then just increased to 60 mcg. per week. Injected on Friday, and Saturday felt sore throat, difficulty swallowing, swollen feet, and labored breathing. Also super gassy and diarrhea.
I started
Pegasys
just about 2.5 months ago. Dose 45 mcg. per week. No real side effects. Then just increased to 60 mcg. per week. Injected on Friday, and Saturday felt sore throat, difficulty swallowing, swollen feet, and labored breathing. Also super gassy and diarrhea.
dogsandhorses
in
MPN Voice
4 months ago
Hyperthyroidism and Pegasys
Hi everyone, I have been on
Pegasys
for my ET for about 5 months and have now found out I have very low TSG levels and too high t4, i.e. hyperthyroidism. Has anyone else experienced thyroid problems and did they have to come off IFN? Thanks!
Hi everyone, I have been on
Pegasys
for my ET for about 5 months and have now found out I have very low TSG levels and too high t4, i.e. hyperthyroidism. Has anyone else experienced thyroid problems and did they have to come off IFN? Thanks!
ts75
in
MPN Voice
6 months ago
Cataract surgery?
Has anyone had any cataract surgery while taking
Pegasys
? Is there a problem with eye surgery while taking Interferon? I'm about to be changed over to
Pegasys
from Hydrea, and also about to have cataract surgery. Some of the things I've read seem to indicate that may be a problem.
Has anyone had any cataract surgery while taking
Pegasys
? Is there a problem with eye surgery while taking Interferon? I'm about to be changed over to
Pegasys
from Hydrea, and also about to have cataract surgery. Some of the things I've read seem to indicate that may be a problem.
dogsandhorses
in
MPN Voice
8 months ago
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Pegasys
Haematologist has started him on
Pegasys
45mcg once weekly and also continued with Rux 5mg [to see how he copes]. He has coped really well having nausea and headache within 24hrs but then ok .
Haematologist has started him on
Pegasys
45mcg once weekly and also continued with Rux 5mg [to see how he copes]. He has coped really well having nausea and headache within 24hrs but then ok .
waddles22
in
MPN Voice
8 months ago
Travelling with interferon/pegasys
Hi , I have just recently started on the
pegasys
weekly injections . I am travelling to Greece and wonder if anyone can recomend the best way to keep the medication at the correct temperature whilst flying and travelling.
Hi , I have just recently started on the
pegasys
weekly injections . I am travelling to Greece and wonder if anyone can recomend the best way to keep the medication at the correct temperature whilst flying and travelling.
Sunnyhunny
in
MPN Voice
6 months ago
Starting dose for pegasys?
My illness is showing symptoms of masked PV and we are now starting
pegasys
interferon, as i have had severe depression all my life and still as moderate im worried about the possibility of some risks in mental and other issues.
My illness is showing symptoms of masked PV and we are now starting
pegasys
interferon, as i have had severe depression all my life and still as moderate im worried about the possibility of some risks in mental and other issues.
Ninete
in
MPN Voice
5 months ago
New member - Post ET MF (Australia)
I started Jakavi in September 2023, and due to poor response, I was also put on Hydrea and
Pegasys
to slow disease progression. After my platelets dropped below 1000, I stopped the
Pegasys
.
I started Jakavi in September 2023, and due to poor response, I was also put on Hydrea and
Pegasys
to slow disease progression. After my platelets dropped below 1000, I stopped the
Pegasys
.
Hatchie
in
MPN Voice
5 months ago
Hrt and pegasys. Is it a good idea?
Just wondered what the advice is. My pv is well controlled but hot flushes getting a bit much. I take 90 mcg every fortnight.
Just wondered what the advice is. My pv is well controlled but hot flushes getting a bit much. I take 90 mcg every fortnight.
Looolooo
in
MPN Voice
2 months ago
Treatment Change, question
I'm in the process in changing my medication from hydroxycarbamide to
Pegasys
. I'm currently on both whilst still taking the hydroxycarbamide I am introducing the interferon at 45mg every 2 weeks, for 8 weeks, I'm into my 7th week, so far so good.
I'm in the process in changing my medication from hydroxycarbamide to
Pegasys
. I'm currently on both whilst still taking the hydroxycarbamide I am introducing the interferon at 45mg every 2 weeks, for 8 weeks, I'm into my 7th week, so far so good.
Swim360
in
MPN Voice
6 months ago
PV fatigue
I have just started
Pegasys
interferon after failed treatments of phlebotomies and Hydroxyurea. My fatigue since diagnosis and treatments starting 2021 is all consuming. I don’t know how to deal or cope with the tiredness, lack of energy, and overall feeling unwell.
I have just started
Pegasys
interferon after failed treatments of phlebotomies and Hydroxyurea. My fatigue since diagnosis and treatments starting 2021 is all consuming. I don’t know how to deal or cope with the tiredness, lack of energy, and overall feeling unwell.
CherokeeBlue
in
MPN Voice
6 months ago
Ruxinitlib
I have been given an option of taking this instead of
Pegasys
interferon . However I have been advised of the side effects of it and wondered what other people’s experience of it is.
I have been given an option of taking this instead of
Pegasys
interferon . However I have been advised of the side effects of it and wondered what other people’s experience of it is.
Nerjalover
in
MPN Voice
2 months ago
JAK2 results
venesection couple weeks prior to that as was almost 43 then too so Guys asked to increase dosage Last month had my 3rd JAK2 Blood test and results back today and are 44.07 which is good news my question is could this be just luck on the day and results lower or is this a definite decrease due to
Pegasys
venesection couple weeks prior to that as was almost 43 then too so Guys asked to increase dosage Last month had my 3rd JAK2 Blood test and results back today and are 44.07 which is good news my question is could this be just luck on the day and results lower or is this a definite decrease due to
Pegasys
Cityreach
in
MPN Voice
3 months ago
First Injection of Pegasys
I FINALLY got approved for
Pegasys
, and am to pick it up at the pharmacy by Wednesday. My question is does the first injection happen in the Drs. office, or at home?? Were you given physical instructions for how to give the injection?
I FINALLY got approved for
Pegasys
, and am to pick it up at the pharmacy by Wednesday. My question is does the first injection happen in the Drs. office, or at home?? Were you given physical instructions for how to give the injection?
dogsandhorses
in
MPN Voice
7 months ago
Is it ok to alter Pegasys dosage interval if going on holiday?
I have an appointment at Guy’s in three weeks time to discuss changing from hydroxycarbemide to
Pegasys
. I have a few one week holidays booked for this Spring and Summer .
I have an appointment at Guy’s in three weeks time to discuss changing from hydroxycarbemide to
Pegasys
. I have a few one week holidays booked for this Spring and Summer .
Na56
in
MPN Voice
9 months ago
Jakavi advice please
I'm on
Pegasys
135ml at the moment but platelets are 729 (going up) and not well controlled. The consultant suggests moving to Ruxolitinib and stopping the Peg, which I've been taking for 9 months now and doesn't appear to be effective.
I'm on
Pegasys
135ml at the moment but platelets are 729 (going up) and not well controlled. The consultant suggests moving to Ruxolitinib and stopping the Peg, which I've been taking for 9 months now and doesn't appear to be effective.
Sivasi
in
MPN Voice
5 months ago
When on a weekly dose of Pegasys is it ok to occasionally alter the day you inject?
Hi everyone, I’m about to try
Pegasys
in a few weeks time on a weekly dose of 45. If I get any unpleasant side effects I wondered if occasionally it’s ok to put back the usual day of injecting by 24 hours if I had something special on the day of the injection.
Hi everyone, I’m about to try
Pegasys
in a few weeks time on a weekly dose of 45. If I get any unpleasant side effects I wondered if occasionally it’s ok to put back the usual day of injecting by 24 hours if I had something special on the day of the injection.
Na56
in
MPN Voice
8 months ago
Whooshing in right ear
I have MF and take 90mg of
Pegasys
weekly. I have called consultant and left a message as I am quite worried, and made the mistake of Googling. Thanks.
I have MF and take 90mg of
Pegasys
weekly. I have called consultant and left a message as I am quite worried, and made the mistake of Googling. Thanks.
Robeets_33
in
MPN Voice
8 months ago
Jakafi out of stock
Hi all fellows in MPN, I just met my doc and informed that Malaysia especially Kuala Lumpur hospitals out of stock for Jakafi and
Pegasys
. If you have a plan to see your doc in very near time, pls ensure to ask more for your buffer stock. Cheers
Hi all fellows in MPN, I just met my doc and informed that Malaysia especially Kuala Lumpur hospitals out of stock for Jakafi and
Pegasys
. If you have a plan to see your doc in very near time, pls ensure to ask more for your buffer stock. Cheers
william-Indo
in
MPN Voice
8 months ago
Pegasys Update 1.0
In spring 2023 my consultant asked if I'd consider Hydroxy or
Pegasys
to see if it helped. Being a relative youngster I didn't expect this due to age and risk. I certainly didn't expect
Pegasys
to be on the table. Like many MPNers we do our research. Even if it's years down the line.
In spring 2023 my consultant asked if I'd consider Hydroxy or
Pegasys
to see if it helped. Being a relative youngster I didn't expect this due to age and risk. I certainly didn't expect
Pegasys
to be on the table. Like many MPNers we do our research. Even if it's years down the line.
Crossefield
in
MPN Voice
8 months ago
Pegasys for MF transitioning from hydroxycarbamide
Does anyone have any experience of losing hair with
pegasys
? The internet says it will grow back once the treatment is ceased, but as it's for an MPN we don't expect it to finish.
Does anyone have any experience of losing hair with
pegasys
? The internet says it will grow back once the treatment is ceased, but as it's for an MPN we don't expect it to finish.
jointpain
in
MPN Voice
9 months ago
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