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Pegasys Journey
I started
Pegasys
45mcg 14wks ago and my platelet count was stabilised at 10wks (age 66yrs). I was given the option of Hydroxy or
Pegasys
, for me
Pegasys
was the right decision. The only change I could report yesterday at my FU was increased muscle pain.
I started
Pegasys
45mcg 14wks ago and my platelet count was stabilised at 10wks (age 66yrs). I was given the option of Hydroxy or
Pegasys
, for me
Pegasys
was the right decision. The only change I could report yesterday at my FU was increased muscle pain.
Carol0925
in
MPN Voice
2 months ago
Pegasys side effects
I was switched from 500 Hydroxyurea/day to 90mg
Pegasys
every two weeks. The pain in hips and thighs is substantial - headache also, but not as bothersome as the muscle pain. Has anyone else experience this on
Pegasys
. Also, has anyone tried CoQ10 for muscle pain and has it work? Thanks
I was switched from 500 Hydroxyurea/day to 90mg
Pegasys
every two weeks. The pain in hips and thighs is substantial - headache also, but not as bothersome as the muscle pain. Has anyone else experience this on
Pegasys
. Also, has anyone tried CoQ10 for muscle pain and has it work? Thanks
Dusty777
in
MPN Voice
2 months ago
How much daily water should I drink on Pegasys?
Hi everyone I will be starting
Pegasys
in 10 days time and see that the MPN Voice leaflet says to drink 3 litres of water daily. I do drink a lot of water but that amount seems huge. Do you
Pegasys
veterans drink that every day or just on injection day? I would appreciate your advice.
Hi everyone I will be starting
Pegasys
in 10 days time and see that the MPN Voice leaflet says to drink 3 litres of water daily. I do drink a lot of water but that amount seems huge. Do you
Pegasys
veterans drink that every day or just on injection day? I would appreciate your advice.
Na56
in
MPN Voice
2 months ago
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Cataract surgery?
Has anyone had any cataract surgery while taking
Pegasys
? Is there a problem with eye surgery while taking Interferon? I'm about to be changed over to
Pegasys
from Hydrea, and also about to have cataract surgery. Some of the things I've read seem to indicate that may be a problem.
Has anyone had any cataract surgery while taking
Pegasys
? Is there a problem with eye surgery while taking Interferon? I'm about to be changed over to
Pegasys
from Hydrea, and also about to have cataract surgery. Some of the things I've read seem to indicate that may be a problem.
dogsandhorses
in
MPN Voice
3 months ago
Pegasys
Haematologist has started him on
Pegasys
45mcg once weekly and also continued with Rux 5mg [to see how he copes]. He has coped really well having nausea and headache within 24hrs but then ok .
Haematologist has started him on
Pegasys
45mcg once weekly and also continued with Rux 5mg [to see how he copes]. He has coped really well having nausea and headache within 24hrs but then ok .
waddles22
in
MPN Voice
3 months ago
Interferon and the liver
My blood numbers actually look decent and I want to keep taking
pegasys
but I am nervous because my last ALT number was like 80 with the top of range being <41..
My blood numbers actually look decent and I want to keep taking
pegasys
but I am nervous because my last ALT number was like 80 with the top of range being <41..
dbus1417
in
MPN Voice
1 month ago
Airport travel with Injections
Can some experienced travellers who use
Pegasys
give me some advice please. I am travelling this week from the UK to Mexico, and have bought a Disoncare insulin cooler to keep my
Pegasys
syringes in whilst travelling.
Can some experienced travellers who use
Pegasys
give me some advice please. I am travelling this week from the UK to Mexico, and have bought a Disoncare insulin cooler to keep my
Pegasys
syringes in whilst travelling.
swimswam
in
MPN Voice
8 days ago
Pegasys & Hydrea
I am wondering if anyone is taking both in combination? I am not getting the results from PEG and I don't want to increase my dose above 115 mcgs. I asked my doctor if we could try a small dose of Hydrea maybe 500 twice a week to see if this will lower my HCT so I can go more than 2 months without a
I am wondering if anyone is taking both in combination? I am not getting the results from PEG and I don't want to increase my dose above 115 mcgs. I asked my doctor if we could try a small dose of Hydrea maybe 500 twice a week to see if this will lower my HCT so I can go more than 2 months without a
russkatt
in
MPN Voice
1 month ago
Is it ok to alter Pegasys dosage interval if going on holiday?
I have an appointment at Guy’s in three weeks time to discuss changing from hydroxycarbemide to
Pegasys
. I have a few one week holidays booked for this Spring and Summer .
I have an appointment at Guy’s in three weeks time to discuss changing from hydroxycarbemide to
Pegasys
. I have a few one week holidays booked for this Spring and Summer .
Na56
in
MPN Voice
4 months ago
Hyperthyroidism and Pegasys
Hi everyone, I have been on
Pegasys
for my ET for about 5 months and have now found out I have very low TSG levels and too high t4, i.e. hyperthyroidism. Has anyone else experienced thyroid problems and did they have to come off IFN? Thanks!
Hi everyone, I have been on
Pegasys
for my ET for about 5 months and have now found out I have very low TSG levels and too high t4, i.e. hyperthyroidism. Has anyone else experienced thyroid problems and did they have to come off IFN? Thanks!
ts75
in
MPN Voice
1 month ago
Travelling with interferon/pegasys
Hi , I have just recently started on the
pegasys
weekly injections . I am travelling to Greece and wonder if anyone can recomend the best way to keep the medication at the correct temperature whilst flying and travelling.
Hi , I have just recently started on the
pegasys
weekly injections . I am travelling to Greece and wonder if anyone can recomend the best way to keep the medication at the correct temperature whilst flying and travelling.
Sunnyhunny
in
MPN Voice
1 month ago
Pegasys is applying for formal approval in MPN treatment
Dear friends, I came across a EMA document recently and found that
Pegasys
is applying for indication extension to PV and ET.
Dear friends, I came across a EMA document recently and found that
Pegasys
is applying for indication extension to PV and ET.
TimothyHLuff
in
MPN Voice
4 months ago
Reducing Pegasys
Hi folks Has anyone who has reduced
pegasys
dose seen an increase in spleen size? Thanks Pete
Hi folks Has anyone who has reduced
pegasys
dose seen an increase in spleen size? Thanks Pete
PT99
in
MPN Voice
5 months ago
Pegasys for MF transitioning from hydroxycarbamide
Does anyone have any experience of losing hair with
pegasys
? The internet says it will grow back once the treatment is ceased, but as it's for an MPN we don't expect it to finish.
Does anyone have any experience of losing hair with
pegasys
? The internet says it will grow back once the treatment is ceased, but as it's for an MPN we don't expect it to finish.
jointpain
in
MPN Voice
4 months ago
Questions about pegasys please
Would I have to have hydroxycarbemide and
pegasys
until the
pegasys
starts to work which I understood can take quite a long time? How long does it take for the body to be rid of the hydroxycarbemide drug?
Would I have to have hydroxycarbemide and
pegasys
until the
pegasys
starts to work which I understood can take quite a long time? How long does it take for the body to be rid of the hydroxycarbemide drug?
Na56
in
MPN Voice
5 months ago
PV fatigue
I have just started
Pegasys
interferon after failed treatments of phlebotomies and Hydroxyurea. My fatigue since diagnosis and treatments starting 2021 is all consuming. I don’t know how to deal or cope with the tiredness, lack of energy, and overall feeling unwell.
I have just started
Pegasys
interferon after failed treatments of phlebotomies and Hydroxyurea. My fatigue since diagnosis and treatments starting 2021 is all consuming. I don’t know how to deal or cope with the tiredness, lack of energy, and overall feeling unwell.
CherokeeBlue
in
MPN Voice
1 month ago
Recent appointment
I’ve been on
Pegasys
for five and half years and my bloods have been largely stable apart from a dip in HGB to 116 which has now recovered to 123 in the last two weeks. Platelets hover around 300. Five months ago he reduced
pegasys
from 90mcgs once a week, to every 2 weeks .
I’ve been on
Pegasys
for five and half years and my bloods have been largely stable apart from a dip in HGB to 116 which has now recovered to 123 in the last two weeks. Platelets hover around 300. Five months ago he reduced
pegasys
from 90mcgs once a week, to every 2 weeks .
PT99
in
MPN Voice
5 months ago
Pegasys and Sun
Hello, while on
Pegasys
do we still have to avoid or minimise sun exposure like on Hydrea? Or that's okay to hike in sunny days ?Just wondering as I live in Australia where most of the year is really hot and sunny. Thank you
Hello, while on
Pegasys
do we still have to avoid or minimise sun exposure like on Hydrea? Or that's okay to hike in sunny days ?Just wondering as I live in Australia where most of the year is really hot and sunny. Thank you
kamiilos
in
MPN Voice
4 months ago
Whooshing in right ear
I have MF and take 90mg of
Pegasys
weekly. I have called consultant and left a message as I am quite worried, and made the mistake of Googling. Thanks.
I have MF and take 90mg of
Pegasys
weekly. I have called consultant and left a message as I am quite worried, and made the mistake of Googling. Thanks.
Robeets_33
in
MPN Voice
3 months ago
Jakafi out of stock
Hi all fellows in MPN, I just met my doc and informed that Malaysia especially Kuala Lumpur hospitals out of stock for Jakafi and
Pegasys
. If you have a plan to see your doc in very near time, pls ensure to ask more for your buffer stock. Cheers
Hi all fellows in MPN, I just met my doc and informed that Malaysia especially Kuala Lumpur hospitals out of stock for Jakafi and
Pegasys
. If you have a plan to see your doc in very near time, pls ensure to ask more for your buffer stock. Cheers
william-Indo
in
MPN Voice
3 months ago
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