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Experiences with
Paroxysmal atrial fibrillation
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Has anyone started V-0 treatment recently with positive results?
I am due to start OBIMUTUZUMAB & VENETOCLAX it next week after Acalabrutinib caused afib and I am on it 1/2 dose with 1 beta blocker and blood thinner that cause stress and fatigue. I would like to be reassured as at the moment I am a nervous wreck. Thank you.
I am due to start OBIMUTUZUMAB & VENETOCLAX it next week after Acalabrutinib caused afib and I am on it 1/2 dose with 1 beta blocker and blood thinner that cause stress and fatigue. I would like to be reassured as at the moment I am a nervous wreck. Thank you.
unairdefamille
in
CLL Support
11 months ago
AF at night
hi, a brief history, I have Paroxysymal Attial fibrillation which started 2 and a half years ago. I had an ablation in December and since then I have had two episodes waking me up in the middle of the night which have lasted 40 and 20 minutes respectively and gone back into sinus rhythm without intervention
hi, a brief history, I have Paroxysymal Attial fibrillation which started 2 and a half years ago. I had an ablation in December and since then I have had two episodes waking me up in the middle of the night which have lasted 40 and 20 minutes respectively and gone back into sinus rhythm without intervention
Jcvi
in
AF Association
1 year ago
just saying hi
I folks , I’ve just joined this group as I feel not really anywhere to go to talk about this stuff. Albeit I have been volunteering for British heart and stroke foundation. Been helping people who have suffered strokes. well l I had a cardiac arrest just after my 50th birthday , I had never been ill
I folks , I’ve just joined this group as I feel not really anywhere to go to talk about this stuff. Albeit I have been volunteering for British heart and stroke foundation. Been helping people who have suffered strokes. well l I had a cardiac arrest just after my 50th birthday , I had never been ill
Cagney31
in
British Heart Foundation
3 months ago
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Bisoprolol to Diltiazem
So I've been put on Diltiazem (120mg per day PR) after being on Bisoprolol for 4 months, change of meds due to the horrible side effects of bisoprolol . So took my last bisoprolol Sunday evening as usual then stopped and took my first diltiazem yesterday evening. Had the best nights sleep for ages and
So I've been put on Diltiazem (120mg per day PR) after being on Bisoprolol for 4 months, change of meds due to the horrible side effects of bisoprolol . So took my last bisoprolol Sunday evening as usual then stopped and took my first diltiazem yesterday evening. Had the best nights sleep for ages and
tealdozer
in
AF Association
1 year ago
Having a STEMI in mid 40's...the search for underlying causes / answers for premature CHD.
Hi Everyone, My husband had a major STEMI in March 2023 with a full blockage of his circumflex artery. He was 44 years old and playing 5-a-side football in a local sports centre when he collapsed without warning. Thank goodness it happened there of all places however, as the swift actions of his team
Hi Everyone, My husband had a major STEMI in March 2023 with a full blockage of his circumflex artery. He was 44 years old and playing 5-a-side football in a local sports centre when he collapsed without warning. Thank goodness it happened there of all places however, as the swift actions of his team
Fortunate1
in
British Heart Foundation
3 months ago
Stress test and Afib
Anyone with experience on a stress test with afib?When afib starts I can't breath. I've had several treadmill stress tests over the years. Just wondering if anyone has had an episode during stress rest.
Anyone with experience on a stress test with afib?When afib starts I can't breath. I've had several treadmill stress tests over the years. Just wondering if anyone has had an episode during stress rest.
Hidden
in
AF Association
1 year ago
11 hours Paroxysmal AFIB episode
I was diagnosed with paroxysmal AFIB 11years ago and was prescribed diltiazem and a regular size Aspirin . I was AFIB free for five years then I had my second episode followed couple more episodes months apart. Then on the seventh year of diagnosis with AFIB my episodes became more frequent at which
I was diagnosed with paroxysmal AFIB 11years ago and was prescribed diltiazem and a regular size Aspirin . I was AFIB free for five years then I had my second episode followed couple more episodes months apart. Then on the seventh year of diagnosis with AFIB my episodes became more frequent at which
execz1
in
AF Association
1 year ago
Smartwatch - A Useful Tool or Not?
Hi all. Smartwatches. Can I make clear, at this point that I have no affiliation with any technology company that makes, sells or designs mobile phones or smartwatches. With the latest and greatest fitness technology, users can be warned about early illnesses, symptoms of serious conditions such
Hi all. Smartwatches. Can I make clear, at this point that I have no affiliation with any technology company that makes, sells or designs mobile phones or smartwatches. With the latest and greatest fitness technology, users can be warned about early illnesses, symptoms of serious conditions such
Bcol
in
PMRGCAuk
1 year ago
Low blood pressure
I was diagnosed with AF in October ( now permanent but controlled)and heart failure in December(EF 32). I am now on Bisoprolol 2.5mg, Edoxaban60mg, Entresto24mg twice daily,and new one Spironolactone25g. My problem is that my already low BP plummets every time a new drug is introduced or an increase
I was diagnosed with AF in October ( now permanent but controlled)and heart failure in December(EF 32). I am now on Bisoprolol 2.5mg, Edoxaban60mg, Entresto24mg twice daily,and new one Spironolactone25g. My problem is that my already low BP plummets every time a new drug is introduced or an increase
Poorlizzie
in
AF Association
1 year ago
BNP levels raised
Hello everybody I had to have a blood test recently as have been getting slightly more short of breath (SOB) on stairs and slopes. may have been due to some other meds I was prescribed. The GP phoned me and said i have a slightly raised BNP level and i have a face to face appointment with her on Wednesday
Hello everybody I had to have a blood test recently as have been getting slightly more short of breath (SOB) on stairs and slopes. may have been due to some other meds I was prescribed. The GP phoned me and said i have a slightly raised BNP level and i have a face to face appointment with her on Wednesday
Wightbaby
in
Atrial Fibrillation Support
1 year ago
Very Nervous of Flying ✈️
Hi folks, Was at the nurse having blood taken yesterday and she asked where had I been on holiday as I was a nice colour. I told her I wasn’t going until September but was heading for Rhodes. As my Afib had been mentioned she said ‘how are you feeling about flying’. I just looked at her and said why
Hi folks, Was at the nurse having blood taken yesterday and she asked where had I been on holiday as I was a nice colour. I told her I wasn’t going until September but was heading for Rhodes. As my Afib had been mentioned she said ‘how are you feeling about flying’. I just looked at her and said why
Ailsablue
in
AF Association
1 year ago
Should I live with it?
I am 60 years old and diagnosed with persistent Afib this past November. Probably had it more than a year prior as it is asymptomatic being the type with irregular rhythm with my resting heart rate at 50-60 bpm. Went on Eliquis and have been cardioverted three times- first with no meds and NSF only
I am 60 years old and diagnosed with persistent Afib this past November. Probably had it more than a year prior as it is asymptomatic being the type with irregular rhythm with my resting heart rate at 50-60 bpm. Went on Eliquis and have been cardioverted three times- first with no meds and NSF only
Pairodime
in
AF Association
1 year ago
My AF Journey and Statins ?
I started getting palpitations in Jul/Aug 2017 and was diagnosed with af, however it was only occasional ie 2-3 times per year for the next couple of years. Gradually got worse and eventually was getting af attacks every couple of days and last year was put on 1.25 mg of Bisoprolol which I hated, extreme
I started getting palpitations in Jul/Aug 2017 and was diagnosed with af, however it was only occasional ie 2-3 times per year for the next couple of years. Gradually got worse and eventually was getting af attacks every couple of days and last year was put on 1.25 mg of Bisoprolol which I hated, extreme
tealdozer
in
AF Association
1 year ago
Cardioversion NHS waiting time.
Newbie here. Persistent AFib for 3m. Echocardiogram done. Cardioversion likely to be recommended. Wondered what waiting times people were experiencing? Thanks for any contributions.
Newbie here. Persistent AFib for 3m. Echocardiogram done. Cardioversion likely to be recommended. Wondered what waiting times people were experiencing? Thanks for any contributions.
Hallane
in
AF Association
1 year ago
just had a pacemaker cardioverter defibrillator fitted
hi I’m 18 years old and I’ve been fitted with a new pacemaker defibrillator fitted I was vvvvrushed in because my old pacemaker got infected I’ve also had a mechanical valve fitted can anyone advise me can you live a normal life
hi I’m 18 years old and I’ve been fitted with a new pacemaker defibrillator fitted I was vvvvrushed in because my old pacemaker got infected I’ve also had a mechanical valve fitted can anyone advise me can you live a normal life
Sweetgabby
in
British Heart Foundation
3 months ago
Personal advice.
I’ve recently been diagnosed with
Paroxysmal
atrial
fibrillation
which has come as a shock. I’m now faced with the dilemma of being prescribed Apixaban plus Rampiril. The thought of anticoagulants concern as I have no experience of this.
I’ve recently been diagnosed with
Paroxysmal
atrial
fibrillation
which has come as a shock. I’m now faced with the dilemma of being prescribed Apixaban plus Rampiril. The thought of anticoagulants concern as I have no experience of this.
Buck136
in
British Heart Foundation
1 year ago
Arrhythmia after open heart surgery - any others with similiar experiences?
Hi there, I'm new to this forum and looking forward to learning from you all. 8 weeks ago I had open heart surgey to correct a large atrial septal defect (hole in the heart). It was diagnosed at Christmas. Prior to this I had no cardiac symptoms at all - I was power lifting in the gym, cycling a 20km
Hi there, I'm new to this forum and looking forward to learning from you all. 8 weeks ago I had open heart surgey to correct a large atrial septal defect (hole in the heart). It was diagnosed at Christmas. Prior to this I had no cardiac symptoms at all - I was power lifting in the gym, cycling a 20km
LadyZ13
in
AF Association
1 year ago
Amiodarone
I just wanted to clear up such negative responses to amiodarone. What is the mortality rate for amiodarone? In unadjusted analysis, amiodarone recipients had a slightly higher risk of death compared to non-recipients in the full cohort (87 vs 73 deaths per 1,000 person-years; P<0.001) but not in the
I just wanted to clear up such negative responses to amiodarone. What is the mortality rate for amiodarone? In unadjusted analysis, amiodarone recipients had a slightly higher risk of death compared to non-recipients in the full cohort (87 vs 73 deaths per 1,000 person-years; P<0.001) but not in the
kocoach
in
Atrial Fibrillation Support
1 year ago
I/V ICD update on query 15 days ago
I posted a query on experience of having a Boston Instruments I/V cardioverter defibrillator fitted as I was getting bumps and beats since the implant three weeks ago. I gave feedback following contact with the hospital who advised me no issues and I needed to let it settle down.Today I took a call
I posted a query on experience of having a Boston Instruments I/V cardioverter defibrillator fitted as I was getting bumps and beats since the implant three weeks ago. I gave feedback following contact with the hospital who advised me no issues and I needed to let it settle down.Today I took a call
Chinkoflight
in
Atrial Fibrillation Support
4 months ago
2 years
Very happy to hit 2 year mark from last AFIB incident. I was 48 when I had my first episode which terrified me, and the second episode was 9 months later. Both resolved on their own. I started working on lifestyle changes from the first incident. I focused on dropping milk from my diet and keeping
Very happy to hit 2 year mark from last AFIB incident. I was 48 when I had my first episode which terrified me, and the second episode was 9 months later. Both resolved on their own. I started working on lifestyle changes from the first incident. I focused on dropping milk from my diet and keeping
msc667
in
AF Association
1 year ago
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