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Hi everyone,
I started olaparib 13 days ago also avastin every 3 weeks and it seems my hair is not growing back that quickly. Does your hair grow back on this stuff? Wishing everybody a merry Christmas and lots of love Sheenagh. Xx
I started olaparib 13 days ago also avastin every 3 weeks and it seems my hair is not growing back that quickly. Does your hair grow back on this stuff? Wishing everybody a merry Christmas and lots of love Sheenagh. Xx
SEckett
in
My Ovacome
3 years ago
Acupuncture
Hi all Just wanted to write a brief post about my recent experience with acupuncture. My OH booked me an appt to see if we could sort out my CIPN (thighs, hands, feet) and joint pain from Avastin and Olaparib (everywhere). I've had 4 sessions now, over 6 weeks. I'm not seeing big differences in my
Hi all Just wanted to write a brief post about my recent experience with acupuncture. My OH booked me an appt to see if we could sort out my CIPN (thighs, hands, feet) and joint pain from Avastin and Olaparib (everywhere). I've had 4 sessions now, over 6 weeks. I'm not seeing big differences in my
testarossa71
in
My Ovacome
3 years ago
Opdivo immunotherapy
Good morning everyone. Jimmy starts the immunotherapy this morning. Insurance denied the Tecentriq and Avastin combo at last minute so we're going with Opdivo instead. His insurance company is changing at end of month so Oncologist says can always try again for approval with new company. He wanted to
Good morning everyone. Jimmy starts the immunotherapy this morning. Insurance denied the Tecentriq and Avastin combo at last minute so we're going with Opdivo instead. His insurance company is changing at end of month so Oncologist says can always try again for approval with new company. He wanted to
DancingEyes63
Caregiver
in
Blue Faery Liver Cancer
3 years ago
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Hi everyone,
I am having avastin at the moment. My appointment was at 11 o’clock and the avastin is only half an hour . But there was confusion as to how much avastin I was having. One nurse thought they doubled the dose so I only come in every six weeks. I kept saying no I’m every 3 weeks and it turns out I was
I am having avastin at the moment. My appointment was at 11 o’clock and the avastin is only half an hour . But there was confusion as to how much avastin I was having. One nurse thought they doubled the dose so I only come in every six weeks. I kept saying no I’m every 3 weeks and it turns out I was
SEckett
in
My Ovacome
3 years ago
Happy vibe/ca125 predicament
I know how reading positive posts has helped me over the last 21 months since my diagnosis, so I thought I’d share my little bit of positive news in the hope that it helps lift somebody else’s spirits. I finished my year of avastin in May, after my first line treatment - 8 hour debulking surgery a
I know how reading positive posts has helped me over the last 21 months since my diagnosis, so I thought I’d share my little bit of positive news in the hope that it helps lift somebody else’s spirits. I finished my year of avastin in May, after my first line treatment - 8 hour debulking surgery a
Emmacrispins
in
My Ovacome
3 years ago
How long does it take Avastin to start working? What if it isn't working?
I finished my chemo on Sept. 17th and had 3 Avastin infusions without chemo (2 with chemo for a total of 5) I had a CA125 test yesterday before my treatment and it went up to 152 from 53!! I'm so totally freaked out. It was lower before surgery, when I had 4 chemos (45). It shot up after surgery to 125
I finished my chemo on Sept. 17th and had 3 Avastin infusions without chemo (2 with chemo for a total of 5) I had a CA125 test yesterday before my treatment and it went up to 152 from 53!! I'm so totally freaked out. It was lower before surgery, when I had 4 chemos (45). It shot up after surgery to 125
Cher96
in
My Ovacome
3 years ago
Hi everyone,
Had my last chemotherapy yesterday and feel really tired today. I had a phone call today from cns I start avastin in 3 weeks time and have been told I am hrd positive and I will be taking another drug with it. I was also told that a lot more drugs will be available to me as I’m hrd positive. Has anyone
Had my last chemotherapy yesterday and feel really tired today. I had a phone call today from cns I start avastin in 3 weeks time and have been told I am hrd positive and I will be taking another drug with it. I was also told that a lot more drugs will be available to me as I’m hrd positive. Has anyone
SEckett
in
My Ovacome
3 years ago
Re Challenge with Carboplatin after allergic reaction
Hi all, I finished my first round of chemo following radical de bulking in February. Unfortunately my Ca125 has been steadily rising since then on Avastin . It’s recently jumped up and a CT scan shows possible activity so I will now have Carboplatin and liposomal doxorubicin . The only downside is that
Hi all, I finished my first round of chemo following radical de bulking in February. Unfortunately my Ca125 has been steadily rising since then on Avastin . It’s recently jumped up and a CT scan shows possible activity so I will now have Carboplatin and liposomal doxorubicin . The only downside is that
Lookingahead
in
My Ovacome
3 years ago
CA125 rise but clear PET/CT scan
Hi everyone, I have been going through this OC journey with my partner for the past year. She was diagnosed with OC 3C in August 2020 and has been on Avastin for almost a year now after chemo. We have stopped Avastin just recently. For the last 3 CA125 checks, her levels has risen steadily from 6, 17
Hi everyone, I have been going through this OC journey with my partner for the past year. She was diagnosed with OC 3C in August 2020 and has been on Avastin for almost a year now after chemo. We have stopped Avastin just recently. For the last 3 CA125 checks, her levels has risen steadily from 6, 17
Stuee01
in
My Ovacome
3 years ago
Avastin with Olaparib dilemma. Who to go to for a 2nd opinion?
My onc. First said I could make a decision on whether I have Avastin with Olaparib or just Olaparib. Later said the group meeting advised Olaparib without Avastin best way to go for me as I have congenital Ehlers Danlos Syndrome which makes all my soft tissues too stretchy and prone to long term 2 year
My onc. First said I could make a decision on whether I have Avastin with Olaparib or just Olaparib. Later said the group meeting advised Olaparib without Avastin best way to go for me as I have congenital Ehlers Danlos Syndrome which makes all my soft tissues too stretchy and prone to long term 2 year
Trickysite
in
My Ovacome
3 years ago
Further Treatment?
Well, it looks like the Rubraca didn't work for me. I have had Carbo/Taxol, Avastin, Carbo/Caelyx then Rubraca. The oncologist is going to examine the scan and then we will be having a face to face meeting. Had anyone got any idea what they might try next? I am just hoping that there is something else
Well, it looks like the Rubraca didn't work for me. I have had Carbo/Taxol, Avastin, Carbo/Caelyx then Rubraca. The oncologist is going to examine the scan and then we will be having a face to face meeting. Had anyone got any idea what they might try next? I am just hoping that there is something else
27-359
in
My Ovacome
3 years ago
High CA-125, yet no symptoms
I was diagnosed with Ovarian serous adenocarcinoma, Grade 3c in 9/2017. I had a TOTAL hysterectomy, and debaulking. First round of chemo was carbo-taxol - responded well. Two years later I had a recurrence and had a second round of carbon-gemzar and avastin and responded well. In March of 2020 I started
I was diagnosed with Ovarian serous adenocarcinoma, Grade 3c in 9/2017. I had a TOTAL hysterectomy, and debaulking. First round of chemo was carbo-taxol - responded well. Two years later I had a recurrence and had a second round of carbon-gemzar and avastin and responded well. In March of 2020 I started
lucybake
in
SHARE Ovarian Cancer Support
3 years ago
Silicone lubricant "seeks its own"
Immediately after my first injection from a new injector, at a new practice, (inj of Eylea), I saw my bubble of silicone (which was originally from an Avastin inj, using a stick-on needle type syringe , I had received years ago) larger and more dramatically than ever before. This large black disc
Immediately after my first injection from a new injector, at a new practice, (inj of Eylea), I saw my bubble of silicone (which was originally from an Avastin inj, using a stick-on needle type syringe , I had received years ago) larger and more dramatically than ever before. This large black disc
Jihm
in
Macular Society
3 years ago
Rucaparib.....what's it like to take
Hi all I'm new to the forum I'm hoping I can get support and offer support to others. My query is I'm just about to start Rucaparib and was wondering how people who are also taking this get on with it. I'm aware that there can be side effects, how common are these. Any tips for managing these? How long
Hi all I'm new to the forum I'm hoping I can get support and offer support to others. My query is I'm just about to start Rucaparib and was wondering how people who are also taking this get on with it. I'm aware that there can be side effects, how common are these. Any tips for managing these? How long
Rubymurray55
in
My Ovacome
3 years ago
Advice on making an individual funding request
Hi, Has anyone successfully made an NHS England individual funding request? My Mum has had a reoccurance of her stage 3 ovarian cancer. For some reason she was not offered Avastin as first line treatment, which is funded on the NHS. There is strong evidence it works for second line, but its not NHS
Hi, Has anyone successfully made an NHS England individual funding request? My Mum has had a reoccurance of her stage 3 ovarian cancer. For some reason she was not offered Avastin as first line treatment, which is funded on the NHS. There is strong evidence it works for second line, but its not NHS
starfivebyfive
in
My Ovacome
3 years ago
Leg cramps
Does anyone here get leg cramps that wake you up from sleep. I’m now taking Avastin only and I’ve been having pains in my calves as well as my neck but only at night. What do you do about it. ?
Does anyone here get leg cramps that wake you up from sleep. I’m now taking Avastin only and I’ve been having pains in my calves as well as my neck but only at night. What do you do about it. ?
Cher96
in
My Ovacome
3 years ago
Scan Results .
Just a quick update . I had a cat scan last week and as usual had the usual anxiety waiting for the results . Unlike , many of you , I wait for my appointment so my Dr can read them first . , happy 😊 to report it was a good one . I am maintenance chemo with Avastin and Lynparza. I leave all of the decisions
Just a quick update . I had a cat scan last week and as usual had the usual anxiety waiting for the results . Unlike , many of you , I wait for my appointment so my Dr can read them first . , happy 😊 to report it was a good one . I am maintenance chemo with Avastin and Lynparza. I leave all of the decisions
MOOKIE-FOX1234
in
My Ovacome
3 years ago
Avastin query
Hi there, I have stage 3c high grade epithelial. Had surgery 7 weeks ago debulking. Due to start chemotherapy on Friday. Have been positive up to now. My Oncologist said I will then start Avastin but the side effects look so bad and so I’m wondering whether it’s even worth having it . Maybe it’s just
Hi there, I have stage 3c high grade epithelial. Had surgery 7 weeks ago debulking. Due to start chemotherapy on Friday. Have been positive up to now. My Oncologist said I will then start Avastin but the side effects look so bad and so I’m wondering whether it’s even worth having it . Maybe it’s just
Helvelyn
in
My Ovacome
3 years ago
Hi everyone
I have just been to see one of the oncologists she is based in Southampton. The first thing she said was how great I looked. My surgery was 3 and half weeks ago. She also said I could eat a normal diet. I still have microscopic bits of the disease but still have 2 chemotherapy’s left. I would go avastin
I have just been to see one of the oncologists she is based in Southampton. The first thing she said was how great I looked. My surgery was 3 and half weeks ago. She also said I could eat a normal diet. I still have microscopic bits of the disease but still have 2 chemotherapy’s left. I would go avastin
SEckett
in
My Ovacome
3 years ago
2nd Recurrence
Hello Angels, A big thank you for putting up your stories out here. It really gives me hope everyday that we can beat this disease. So, now here I am, bit afraid, on my mom's OC 2nd Recurrence. She was diagnosed with 3C OC in 2016. First recurrence was in 2018, nearly after 3.5 years. Now, its increasing
Hello Angels, A big thank you for putting up your stories out here. It really gives me hope everyday that we can beat this disease. So, now here I am, bit afraid, on my mom's OC 2nd Recurrence. She was diagnosed with 3C OC in 2016. First recurrence was in 2018, nearly after 3.5 years. Now, its increasing
HealthyBeing
in
My Ovacome
3 years ago
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