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Orserdu
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Anybody with good results on Xeloda?
I was on Ibrance and Letrozole, then Verzenio and Faslodex and then
Orserdu
. Since
Orserdu
now failed, the next plan is Xeloda. I read here some reports about some bad side effects. My oncologist at Dana Farber gave me some choices and indicated that in my situation, Xeloda might be best.
I was on Ibrance and Letrozole, then Verzenio and Faslodex and then
Orserdu
. Since
Orserdu
now failed, the next plan is Xeloda. I read here some reports about some bad side effects. My oncologist at Dana Farber gave me some choices and indicated that in my situation, Xeloda might be best.
SMPG
in
SHARE Metastatic Breast Cancer
3 months ago
Bone Mets on Skull
Newly on
Orserdu
after Ibrance/Faslodex.
Newly on
Orserdu
after Ibrance/Faslodex.
Elle713
in
SHARE Metastatic Breast Cancer
16 days ago
leg and foot numbness and skin turns bright red in shower/heat
recently on
Orserdu
. Weird things happening. legs and feet very numb. And I have hands , feet and legs turning off color in warm shower. Feel completely off. Did great on Ibrance/Fulvesyrant. But not sure if we are too focused on cancer and missing a possible underlying cause. Anyone?
recently on
Orserdu
. Weird things happening. legs and feet very numb. And I have hands , feet and legs turning off color in warm shower. Feel completely off. Did great on Ibrance/Fulvesyrant. But not sure if we are too focused on cancer and missing a possible underlying cause. Anyone?
Elle713
in
SHARE Metastatic Breast Cancer
15 days ago
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Feedback on ORSERDU (elacestrant)
Feedback on
ORSERDU
(Elacestrant) Good afternoon! I just got my GUARDANT360 Test back and tested positive for the ESR1 gene mutation.
Feedback on
ORSERDU
(Elacestrant) Good afternoon! I just got my GUARDANT360 Test back and tested positive for the ESR1 gene mutation.
PlutosNose
in
SHARE Metastatic Breast Cancer
3 months ago
I have 3 weeks worth of Verzenio to give away
I am changing to
Orserdu
. Contact me if you want the Verzenio.
I am changing to
Orserdu
. Contact me if you want the Verzenio.
SMPG
in
SHARE Metastatic Breast Cancer
6 months ago
Mutations
I am on
Orserdu
(elacestrant) for a ESR1 mutation and feeling great but my CA27-29 tumor marker numbers continue to rise. Prior to this medication I was on Capecitabine for a PIC3 mutation and prior to that Piqray. Does any one know what meds work to target both mutations simultaneously?
I am on
Orserdu
(elacestrant) for a ESR1 mutation and feeling great but my CA27-29 tumor marker numbers continue to rise. Prior to this medication I was on Capecitabine for a PIC3 mutation and prior to that Piqray. Does any one know what meds work to target both mutations simultaneously?
Healthplus1
in
SHARE Metastatic Breast Cancer
4 months ago
Orserdu
I might start taking
orserdu
if I have the mutation: ESR1. Does anyone know if Medicare part D covers this drug? Thank you, Mary. 🌺
I might start taking
orserdu
if I have the mutation: ESR1. Does anyone know if Medicare part D covers this drug? Thank you, Mary. 🌺
NPmary
in
SHARE Metastatic Breast Cancer
6 months ago
orserdu experiences
i am soon to start on this med since apparently Verzenio failed. Anybody has any experience with this?
i am soon to start on this med since apparently Verzenio failed. Anybody has any experience with this?
SMPG
in
SHARE Metastatic Breast Cancer
6 months ago
Elacestrant/Orserdu
Has anyone had any experience with Elacestrant? It appears this will be my next line of treatment. Xeloda has stopped working. I know this is a newly approved drug.
Has anyone had any experience with Elacestrant? It appears this will be my next line of treatment. Xeloda has stopped working. I know this is a newly approved drug.
DinNorCal
in
SHARE Metastatic Breast Cancer
6 months ago
bone marrow
Stopped working and was switched to
Orserdu
. I’ve been on this drug for almost 4 months. Tumor markers down and natera results trending down as well. I had a PET scan yesterday and it showed improvement to the Mets in my lung but also showed where one had increased and a few smaller ones.
Stopped working and was switched to
Orserdu
. I’ve been on this drug for almost 4 months. Tumor markers down and natera results trending down as well. I had a PET scan yesterday and it showed improvement to the Mets in my lung but also showed where one had increased and a few smaller ones.
1glajon
in
SHARE Metastatic Breast Cancer
4 months ago
bone pain relief?
Just started
Orserdu
and doc says it takes time to work. Anyone have any suggestions for pain management other than ibuprofen?
Just started
Orserdu
and doc says it takes time to work. Anyone have any suggestions for pain management other than ibuprofen?
pinkbody2
in
SHARE Metastatic Breast Cancer
7 months ago
Piqray and Truqap
We decided to switch course and moved to
Orserdu
. My tumor markers are still climbing and we will scan in April. I saw my oncologist yesterday. My bloodwork from yesterday showed that my tumor markers are still climbing. She said that we could try Truqap as my last oral option.
We decided to switch course and moved to
Orserdu
. My tumor markers are still climbing and we will scan in April. I saw my oncologist yesterday. My bloodwork from yesterday showed that my tumor markers are still climbing. She said that we could try Truqap as my last oral option.
mountainwoman1
in
SHARE Metastatic Breast Cancer
2 months ago
Afinitor +ESR1 mutation for the hive mind.
Hi I am starting Afinitor on Wednesday after a mixed scan a few weeks ago after 6 months on
Orserdu
. It suddenly dawned on me that Afinitor is combined with estrogen therapy, likely an AI. But doesn't the ESR1 mutation cause AI resistance? In which case does that make Afinitor less effective?
Hi I am starting Afinitor on Wednesday after a mixed scan a few weeks ago after 6 months on
Orserdu
. It suddenly dawned on me that Afinitor is combined with estrogen therapy, likely an AI. But doesn't the ESR1 mutation cause AI resistance? In which case does that make Afinitor less effective?
Pbsoup
in
SHARE Metastatic Breast Cancer
5 months ago
May be deciding between Afinitor and Enhertu. Thoughts?
I had a mixd scan, so may be moving on from
Orserdu
. A shame as I feel great. I am on the fence between Afinitor and Enhertu. I am HER2Low. I know Enhertu is supposed to be very effective, but I am concerned about side effects (nausea, fatigue, hair loss etc.)
I had a mixd scan, so may be moving on from
Orserdu
. A shame as I feel great. I am on the fence between Afinitor and Enhertu. I am HER2Low. I know Enhertu is supposed to be very effective, but I am concerned about side effects (nausea, fatigue, hair loss etc.)
Pbsoup
in
SHARE Metastatic Breast Cancer
6 months ago
low blood glucose liver Mets
I’m on
Orserdu
w Mets to bone and liver. I googled
Orserdu
side effects and low blood glucose doesn’t seem to be one. But in the rabbit hole I found all sorts of scary things. Including an extremely rare type of tumor that has only affected one or two MBC patients.
I’m on
Orserdu
w Mets to bone and liver. I googled
Orserdu
side effects and low blood glucose doesn’t seem to be one. But in the rabbit hole I found all sorts of scary things. Including an extremely rare type of tumor that has only affected one or two MBC patients.
Pbsoup
in
SHARE Metastatic Breast Cancer
8 months ago
Piqray mixed results after 3 months
We’re testing to see if I’m qualified to take
Orserdu
, and if so that will be my last oral option. So the IV’s are coming sooner or later. I’m burning through all these treatment options way faster than I’d like :-( :-(.
We’re testing to see if I’m qualified to take
Orserdu
, and if so that will be my last oral option. So the IV’s are coming sooner or later. I’m burning through all these treatment options way faster than I’d like :-( :-(.
LDR1
in
SHARE Metastatic Breast Cancer
7 months ago
What after Xeloda
We live in Europe (Croatia), so some newer treatments are not available (for example
orserdu
). I'm asking for your experiences because the doctor mentioned that there is nothing more to give. Thank you all!
We live in Europe (Croatia), so some newer treatments are not available (for example
orserdu
). I'm asking for your experiences because the doctor mentioned that there is nothing more to give. Thank you all!
Goga156
in
SHARE Metastatic Breast Cancer
3 months ago
Orserdu
There is a site specifically for
Orserdu
and I am now a member. It seems to be well tolerated. Good news for all of us that new treatments are becoming more available!!!!
There is a site specifically for
Orserdu
and I am now a member. It seems to be well tolerated. Good news for all of us that new treatments are becoming more available!!!!
HopeinNJ
in
SHARE Metastatic Breast Cancer
9 months ago
Ibrance
I'm starting on a very new medication called
Orserdu
. After 6 years on Ibrance and letrozole I have some progression into my hips. I have quite a few sealed packets of Ibrance (due to expire the end of 2024) . Any suggestions on how to get them to someone in need?
I'm starting on a very new medication called
Orserdu
. After 6 years on Ibrance and letrozole I have some progression into my hips. I have quite a few sealed packets of Ibrance (due to expire the end of 2024) . Any suggestions on how to get them to someone in need?
HopeinNJ
in
SHARE Metastatic Breast Cancer
10 months ago
About to start Orserdu (elacestrant)
Orserdu
is in the same class as Faslodex (they’re both SERDs), but the study didn’t show any benefit to patients who did not acquire the ESR1 mutation. Is anyone on
Orserdu
? If so, how has your cancer responded?
Orserdu
is in the same class as Faslodex (they’re both SERDs), but the study didn’t show any benefit to patients who did not acquire the ESR1 mutation. Is anyone on
Orserdu
? If so, how has your cancer responded?
MJ_Michigan38
in
SHARE Metastatic Breast Cancer
11 months ago
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