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My letter to all powers-that-be, following my desperation for urgent need for improvements in education of medics an in management of RLS
For moderate or severely affected patients— FULLY discuss treatment options - intravenous iron, alpha 2 delta ligands,
opioids
, methadone and only if absolutely necessary……………… and after logical, careful treatments by doctors, and failure of these treatments, and probable subsequent referral to secondary
For moderate or severely affected patients— FULLY discuss treatment options - intravenous iron, alpha 2 delta ligands,
opioids
, methadone and only if absolutely necessary……………… and after logical, careful treatments by doctors, and failure of these treatments, and probable subsequent referral to secondary
Kakally
in
Restless Legs Syndrome
1 year ago
Targin and nausea
Are there other
opioids
that are less likely to cause nausea?
Are there other
opioids
that are less likely to cause nausea?
Walmer3463
in
Restless Legs Syndrome
2 years ago
Lessons from last Dr. appt: drug testing for kratom and a Suboxone issue
I said it was because of the teeth issue, the surgery issue, the way I am treated, wanting to find my rls baseline, and also hating how I feel on
opioids
. Also-I was instructed to take 1/2 of the film-so each film would be TWO doses, which she didn't know.
I said it was because of the teeth issue, the surgery issue, the way I am treated, wanting to find my rls baseline, and also hating how I feel on
opioids
. Also-I was instructed to take 1/2 of the film-so each film would be TWO doses, which she didn't know.
TeddiJ
in
Restless Legs Syndrome
2 years ago
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Mean GPs or Doctors.
Recently I had a male GP tell me that he was reducing down my
opioids
and I "would just have to learn to live with the pain"! Excuse me? What??
Recently I had a male GP tell me that he was reducing down my
opioids
and I "would just have to learn to live with the pain"! Excuse me? What??
Brighteyedbabe78
in
Fibromyalgia Action UK
2 years ago
All regular use sublingual opioid medications etc how to protect your teeth.
RLS suffers hate taking medication we are the least likely cohort to abuse
opioids
. People who suffer addiction no they do and avoid
opioids
.
RLS suffers hate taking medication we are the least likely cohort to abuse
opioids
. People who suffer addiction no they do and avoid
opioids
.
Shumbah
in
Restless Legs Syndrome
2 years ago
New US CDC Guidance for prescribing Opioids ( finally )
This is the first update since 2016 when they started abruptly stopping peoples
Opioids
without care factor or tapering. The new guidelines explicitly advises against abrupt discontinuation or rapid reductions of
opioids
.
This is the first update since 2016 when they started abruptly stopping peoples
Opioids
without care factor or tapering. The new guidelines explicitly advises against abrupt discontinuation or rapid reductions of
opioids
.
Shumbah
in
Restless Legs Syndrome
2 years ago
New CDC Guidelines on Opioids
The CDC has released new guidelines on prescribing
opioids
which are much less stringent and emphasize returning the focus to the caregiver and patient deciding on the best course of treatment, This should help make it more likely your doctor will be willing to prescribe
opioids
when needed. https:/
The CDC has released new guidelines on prescribing
opioids
which are much less stringent and emphasize returning the focus to the caregiver and patient deciding on the best course of treatment, This should help make it more likely your doctor will be willing to prescribe
opioids
when needed. https:/
SueJohnson
in
Restless Legs Syndrome
2 years ago
Maybe now the cruelty can stop
It is a diagnosis that is given when a patient develops tolerance and dependence to
opioids
, which are known characteristics of using
opioids
(and most other medications as well), not a description of a disease process.
It is a diagnosis that is given when a patient develops tolerance and dependence to
opioids
, which are known characteristics of using
opioids
(and most other medications as well), not a description of a disease process.
ircam2112
in
Restless Legs Syndrome
2 years ago
HIP REPLACEMENT SURGERY
Were you prescribed
opioids
for a short period of time? - when were you able to drive again? - when were you able to cook a meal from scratch for yourself, how many weeks post operation? I know we’re all different but I look forward to hearing from your experiences and tips.
Were you prescribed
opioids
for a short period of time? - when were you able to drive again? - when were you able to cook a meal from scratch for yourself, how many weeks post operation? I know we’re all different but I look forward to hearing from your experiences and tips.
JGBH
in
NRAS
2 years ago
Alternative/Natural therapies for RLS
I'm too far down the medication route but for those newly diagnosed or with milder RLS or those who do not want to take Alpha2Delta ligands or
opioids
, it may help. If anyone does try it, do let us know the results.
I'm too far down the medication route but for those newly diagnosed or with milder RLS or those who do not want to take Alpha2Delta ligands or
opioids
, it may help. If anyone does try it, do let us know the results.
Joolsg
in
Restless Legs Syndrome
2 years ago
Anyone interested in tackling RLS with me in 2023?
Most recently iron infusions have not improved my symptoms and even
opioids
are not working any longer. I am finally at the end of the road as far as treatments go. Now it’s up to me to try and get some control over this demon on my own through diet. I am not the healthiest of eaters.
Most recently iron infusions have not improved my symptoms and even
opioids
are not working any longer. I am finally at the end of the road as far as treatments go. Now it’s up to me to try and get some control over this demon on my own through diet. I am not the healthiest of eaters.
DataRN
in
Restless Legs Syndrome
2 years ago
Pregabalin + Ropinirole or Opioids
After a recent post from Amrob explaining that they add 0.125mg or 0.25mg Clonazepam to 300 mg Pregabalin when the Pregabalin does not cut ... I do the same with Ropinirole, adding 0.125mg nightly to 300 mg Pregabalin, because I will never get to sleep otherwise ..... I wonder what the thoughts are
After a recent post from Amrob explaining that they add 0.125mg or 0.25mg Clonazepam to 300 mg Pregabalin when the Pregabalin does not cut ... I do the same with Ropinirole, adding 0.125mg nightly to 300 mg Pregabalin, because I will never get to sleep otherwise ..... I wonder what the thoughts are
67Waterman
in
Restless Legs Syndrome
2 years ago
Frustration with Pregabalin
Walker at Queen Square for RLS is not until February next year, so moving to
opioids
is not an option until then.
Walker at Queen Square for RLS is not until February next year, so moving to
opioids
is not an option until then.
67Waterman
in
Restless Legs Syndrome
2 years ago
NEURO LIFE NOW SURVEY UK
Mention if you have had blood tests refused or if you have failed dopaminergic drugs and pregabalin/gabapentin and have been refused low dose
opioids
. If you're experiencing augmentation, set out exactly what you're experiencing and whether you're receiving any help. https://neurolifenow.org/
Mention if you have had blood tests refused or if you have failed dopaminergic drugs and pregabalin/gabapentin and have been refused low dose
opioids
. If you're experiencing augmentation, set out exactly what you're experiencing and whether you're receiving any help. https://neurolifenow.org/
Joolsg
in
Restless Legs Syndrome
2 years ago
Which iron supplement is the best and what dose?
But had a blood test this morning and my ferritin levels are 48ug/L, serum iron is 14.1 and serum TIBC 53.7 and the transferring sat index 26% When I talked to my doctor last week, having sent her 5 articles and a video about the new iron approach to RLS, she would not agree to giving me
opioids
.
But had a blood test this morning and my ferritin levels are 48ug/L, serum iron is 14.1 and serum TIBC 53.7 and the transferring sat index 26% When I talked to my doctor last week, having sent her 5 articles and a video about the new iron approach to RLS, she would not agree to giving me
opioids
.
Jukebox55
in
Restless Legs Syndrome
2 years ago
Attn US RLS Opioid patients
By now you have likely heard that new guidelines on prescribing
opioids
have been released. Unfortunately, RLS was not considered in the update. This change will fuel the RLS Foundation’s advocacy work to ensure a carve-out for RLS in the future.
By now you have likely heard that new guidelines on prescribing
opioids
have been released. Unfortunately, RLS was not considered in the update. This change will fuel the RLS Foundation’s advocacy work to ensure a carve-out for RLS in the future.
DataRN
in
Restless Legs Syndrome
2 years ago
Gabapentin
Sue, my GP is away on maternity leave so I cannot yet talk to him about opioids.In the meantime would you recommend I up my dose of 2,100mg gabapentin to slightly higher, doing the 100mg at a time to see if that brings me some relief?
Sue, my GP is away on maternity leave so I cannot yet talk to him about opioids.In the meantime would you recommend I up my dose of 2,100mg gabapentin to slightly higher, doing the 100mg at a time to see if that brings me some relief?
Simkin
in
Restless Legs Syndrome
1 year ago
Help from those taking Methadone
My understanding is that if you take methadone other
opioids
won’t work for pain. Is this correct?? If that is true, if I go back to oxycodone for RLS wouldn’t that solve the problem? I just don’t know. I have to have something for pain after this procedure.
My understanding is that if you take methadone other
opioids
won’t work for pain. Is this correct?? If that is true, if I go back to oxycodone for RLS wouldn’t that solve the problem? I just don’t know. I have to have something for pain after this procedure.
Merny5
in
Restless Legs Syndrome
2 years ago
2022 Top Story in Metastatic Breast Cancer: Improving Discussions of Palliative Care
Palliative care should be introduced before it is even needed in order that the patient is aware of a specialist who would be comfortable talking to her about what lies ahead, who would be able to control her symptoms and side effects without using
, and who would be an excellent listener so
Palliative care should be introduced before it is even needed in order that the patient is aware of a specialist who would be comfortable talking to her about what lies ahead, who would be able to control her symptoms and side effects without using
, and who would be an excellent listener so
Hazelgreen
in
SHARE Metastatic Breast Cancer
2 years ago
Problems in U.S.A. Refilling Opioids/other controlled substances
They’ve tightened up their policies re:
opioids
so much, it’s putting patients at risk. Last month, I submitted refill requests every day for 3 days prior (what I’ve always done) but got the message “ this is an early refill request & what’s the reason for the early refill?”
They’ve tightened up their policies re:
opioids
so much, it’s putting patients at risk. Last month, I submitted refill requests every day for 3 days prior (what I’ve always done) but got the message “ this is an early refill request & what’s the reason for the early refill?”
ircam2112
in
Restless Legs Syndrome
2 years ago
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