Hello everyone it is Fancy1959. I had my second initial half dose of Ocrevus on October the 2nd. Please remember that each individual response to every therapy differently and results can vary greatly from Patient to Patient. Over the past month I have had no negative side effects from the Ocrevus infusion. On the positive side I have noticed two definite improvements. The first thing my spasticity has calmed down quite a bit. It's not as severe now and when it does strike I am able to regain control of my muscles much quicker and bend my legs and work through spacidic episodes.
Over the past week I have noticed a new improvement. I have had for over a year difficulty walking very fast even with my rollator in front of me. When my phone would ring if it wasn't right with me I very seldom was able to answer it before thee voice message picked up on it because I could not stride out and walk at any speed. My steps were very short, choppy and very uncoordinated. It didn't even dawn on me at first that I was getting to the phone before the voicemail picked up more and more often. Then I started to pay attention and noticed I was walking stronger with longer, more coordinated strides. That is of course when I'm fresh in the mornings. When I get tired in the afternoons all bets are off and I find I'm just plodding along again with short uncoordinated steps. But at least I've seen signs of improvement. Pray they keep increasing and the walking become stronger and stronger. Still no improvement in my balance but here's hoping it will gradually start to improve sometime in the future.
I encourage everyone who have started Ocrevus share their Ocrevus story, both positive and negative, with the chat room to provide everyone with as much information on his new therapy as possible. Keep your fingers crossed that this therapy continues to show signs of Hope for more and more MS patients.😊