Search
Search
About
Log in
Join
Experiences with
Ocrevus
Posts
Communities
831 public posts
Filter results
No News Is Good News
I've seen specialists at U of Mich, had my first course of
Ocrevus
, gone through physical therapy and joined an on-line support group. Trying to educate myself alone is a big job given how much information is available and the wide variety of symptoms.
I've seen specialists at U of Mich, had my first course of
Ocrevus
, gone through physical therapy and joined an on-line support group. Trying to educate myself alone is a big job given how much information is available and the wide variety of symptoms.
alsorenson
in
My MSAA Community
8 months ago
let Genetech know if you’ve had adverse immune effects from Ocrevus
And my concerns that
Ocrevus
dosing should be weight based. The universal 600mg dose may be overdosing for people with low body weight. I mentioned that there were others in this chat room that had similar immune issues and they would like to hear from you.
And my concerns that
Ocrevus
dosing should be weight based. The universal 600mg dose may be overdosing for people with low body weight. I mentioned that there were others in this chat room that had similar immune issues and they would like to hear from you.
erash
in
My MSAA Community
11 months ago
Further delays in next Ocrevus infusion
Bottom line, be diligent about blood tests prior to
Ocrevus
infusion so that your immune system remains capable of protecting you from the nasty infections going around.
Bottom line, be diligent about blood tests prior to
Ocrevus
infusion so that your immune system remains capable of protecting you from the nasty infections going around.
anaishunter
in
My MSAA Community
11 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
hair shedding/breaking
Besides getting off
Ocrevus
(which I believe is also the cause after going to several doctors to rule anything else out?) My doctor suggested Nutrafol vitamins, has anyone tried them?
Besides getting off
Ocrevus
(which I believe is also the cause after going to several doctors to rule anything else out?) My doctor suggested Nutrafol vitamins, has anyone tried them?
Plantmom15
in
My MSAA Community
11 months ago
Ocrevus and gynecological side effects?
just wondering if any women who are on
Ocrevus
have had any gynecological infections (not asking about UTIs)? I’ve had an infection since January that my local gynecologist hasn’t been able to successfully treat.
just wondering if any women who are on
Ocrevus
have had any gynecological infections (not asking about UTIs)? I’ve had an infection since January that my local gynecologist hasn’t been able to successfully treat.
Elizt3
in
My MSAA Community
11 months ago
Newly diagnosed
Going to be starting
Ocrevus
soon and was wondering who has been on it? Are you seeing any improvements?
Going to be starting
Ocrevus
soon and was wondering who has been on it? Are you seeing any improvements?
ShayWelch
in
My MSAA Community
1 year ago
9 Oct 2023
Take a Disease Modifying Therapy (DMT)
Ocrevus
is my preference, 2 times per year keep the SCARS DOWN. Have a good day, live your life and be happy. Royce
Take a Disease Modifying Therapy (DMT)
Ocrevus
is my preference, 2 times per year keep the SCARS DOWN. Have a good day, live your life and be happy. Royce
RoyceNewton
in
My MSAA Community
11 months ago
Breast Cancer and MS
I have been on
Ocrevus
since 2020, and am aware of the potential increased risk, knowing that risk, I am struggling to find data on risk of recurrence, which is something I would be very interested in. Also wondering if there is anyone else is the same situation -
I have been on
Ocrevus
since 2020, and am aware of the potential increased risk, knowing that risk, I am struggling to find data on risk of recurrence, which is something I would be very interested in. Also wondering if there is anyone else is the same situation -
mintlatte
in
My MSAA Community
11 months ago
I am not sure about Ocrevus
I was for 2 years with pain and at ER they did a CT scan and was kidney stones 😒Dr said last MRIs my lessons were good and no new ones in fact one disappeared… so new doctor did new MRIs and found new lessons and wants me to start on
OCREVUS
.
I was for 2 years with pain and at ER they did a CT scan and was kidney stones 😒Dr said last MRIs my lessons were good and no new ones in fact one disappeared… so new doctor did new MRIs and found new lessons and wants me to start on
OCREVUS
.
Marlennewilliamson
in
My MSAA Community
1 year ago
Ocrevus support
I am on the Genentech patient foundation program and was recently informed that I will no longer qualify under new program criteria, wondering if anyone here has stopped
Ocrevus
, and how that went? Thank you in advance for your help
I am on the Genentech patient foundation program and was recently informed that I will no longer qualify under new program criteria, wondering if anyone here has stopped
Ocrevus
, and how that went? Thank you in advance for your help
Hidden
in
My MSAA Community
7 months ago
20 Sept 2023 Only an OPINION
Get on a DMT, I do not care which one, though my preference is for
OCREVUS
. Get on a DMT and start to look after yourself for when it comesdown to it. YOU and nobody else have your ms. Act like YOU care about yourself. Royce
Get on a DMT, I do not care which one, though my preference is for
OCREVUS
. Get on a DMT and start to look after yourself for when it comesdown to it. YOU and nobody else have your ms. Act like YOU care about yourself. Royce
RoyceNewton
in
My MSAA Community
11 months ago
EU Approves Subcutaneous Formulation of Ocrelizumab for Multiple Sclerosis Treatment
According to a recent announcement, the European Commission (EU) has granted market authorization for a new subcutaneous formulation of ocrelizumab (
; Roche), administered twice-yearly as a 10-minute injection for patients with multiple sclerosis (MS).
According to a recent announcement, the European Commission (EU) has granted market authorization for a new subcutaneous formulation of ocrelizumab (
; Roche), administered twice-yearly as a 10-minute injection for patients with multiple sclerosis (MS).
BettysMom
in
My MSAA Community
22 days ago
16 Oct 2023 Nothing to extravagant
It is possible and honestly not hard, Firstly, take a Disease Modifying Therapy (DMT), yes
OCREVUS
is my therapy OF CHOICE. Years of doing every other day shots left my little fat quite lumpy and that iras not a good feel.
It is possible and honestly not hard, Firstly, take a Disease Modifying Therapy (DMT), yes
OCREVUS
is my therapy OF CHOICE. Years of doing every other day shots left my little fat quite lumpy and that iras not a good feel.
RoyceNewton
in
My MSAA Community
10 months ago
Tecfedira as first DMT?
I have had a few folks tell me
Ocrevus
.... But I honestly have no idea whether that would even be an option. Just curious what you all w
I have had a few folks tell me
Ocrevus
.... But I honestly have no idea whether that would even be an option. Just curious what you all w
Szs3eb
in
My MSAA Community
1 year ago
New Here, but 30-ish Years with MS
Currently I'm on
Ocrevus
and just had my most recent infusion last week. I've been on it for several years now. The last three have been on the 2.5 hour infusion plan. Even though I've had them at home, it's nice not to be connected to an IV.
Currently I'm on
Ocrevus
and just had my most recent infusion last week. I've been on it for several years now. The last three have been on the 2.5 hour infusion plan. Even though I've had them at home, it's nice not to be connected to an IV.
Angler_Eric
in
My MSAA Community
11 months ago
Recently Diagnosed with RRMS
He is recommending me to be on
Ocrevus
hopefully if it goes well for 7-10 yrs. Would this treatment really help me to prevent progression of MS? I’m worried of how MS is going to affect me work and personal life.
He is recommending me to be on
Ocrevus
hopefully if it goes well for 7-10 yrs. Would this treatment really help me to prevent progression of MS? I’m worried of how MS is going to affect me work and personal life.
MeloLeo
in
My MSAA Community
8 months ago
First Ocrevus Infusion <3
Hi all! Just came to update that my partner got his first infusion yesterday! He was there for 6 long hours, but it went better than expected. The place he went to had two really nice rooms, and he got to be alone for the most part so that was comforting to him where he has really bad anxiety already
Hi all! Just came to update that my partner got his first infusion yesterday! He was there for 6 long hours, but it went better than expected. The place he went to had two really nice rooms, and he got to be alone for the most part so that was comforting to him where he has really bad anxiety already
cosmicwanderer
in
MS Society
1 year ago
19 Sept 2023 Smile
Start taking a Disease Modifying Therapy (DMT), my drug of choice is
OCREVUS
but YOU may want to try something else, do not worry YOU will come back to it. Always remember YOU are the person with m.s. (Multiple Sclerosis), YOU and nobody else. Ask lots and lots of questions.
Start taking a Disease Modifying Therapy (DMT), my drug of choice is
OCREVUS
but YOU may want to try something else, do not worry YOU will come back to it. Always remember YOU are the person with m.s. (Multiple Sclerosis), YOU and nobody else. Ask lots and lots of questions.
RoyceNewton
in
My MSAA Community
11 months ago
7 September 2023 YOU are going to be okay
How soon can YOU get your first
Ocrevus
infusion and why can't YOU get it sooner? The rest will fall in line as time goes by. Do Not fall for any scams. There is no cure, and there is no magic treatment that YOU CAN take.
How soon can YOU get your first
Ocrevus
infusion and why can't YOU get it sooner? The rest will fall in line as time goes by. Do Not fall for any scams. There is no cure, and there is no magic treatment that YOU CAN take.
RoyceNewton
in
My MSAA Community
1 year ago
25 Aug 2023 What I know about Ocrevus
I have learned this about
Ocrevus
. Your pee (urine) is going to smell, it is going to smell and a scary shade of yellow. YOU can dilute it a little by drinking lots of water. I mean 6 to 8 cups per day. That is around 1.5 litres.
I have learned this about
Ocrevus
. Your pee (urine) is going to smell, it is going to smell and a scary shade of yellow. YOU can dilute it a little by drinking lots of water. I mean 6 to 8 cups per day. That is around 1.5 litres.
RoyceNewton
in
My MSAA Community
1 year ago
1
2
3
4
...
42
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
My MSAA Community
819 results
MS Society
4 results
NRAS
3 results
View top 10 communities
Sort by
Most Relevant
Newest