I have been several IV meds over the yrs. I have MS, rheumatoid arthritis and lastly Cyclic Vomiting Syndrome, which started for me right after one of my infusions of Rituxan. It was in 11/2018.I said that was the last time I would take Rituxan. I have been off any I V meds of any kind. I developed the CVS in November 2018 and it is really rare. Went from Minneapolis to Milwaukee in 2021 and saw a specialist for CVS. The doctor agreed that it was Cyclic Vomiting. I lost several teeth which I may need a bridge or dentures now. I have had more aching in bones and have days here and there, where my fingers are really sore, or I start having trouble with my feet moving or legs giving out. I live alone and get a b I t scared since I do live alone. I have had sores on my legs as well, which sounds like what others may be going through. I know my neurologist felt that Ocrevus was what I might need to have. My rheumatologist suggested going back on Orencia for my RA. I would now be more thoughtful about trying Ocrevus and returning to my Orencia, after all the issues you guys have had with Ocrevus. The things we go through on our journeys with our diseases we live with. I'm 72, and I thought that symptoms were not supposed to really increase as we age???
Hang in there everyone who are dealing with after issues from Ocrevus!!
14 year old daughter starting Ocrevus
Ocrevus disappointing up to now
A Bump in the Road, Ocrevus Update (Long!)
Levothyroxine and Ocrevus
