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Pain everywhere.
I've been 10+ yrs searching for answers. I had some bladder problems in 2013. Doctors did surgery. I almost died. Apparently they told me my blood vessels looked funny. They didn't know if they "knicked " me or what but I lost 8 pints of blood very quickly. They barely got me transfusion in time. I chalked
I've been 10+ yrs searching for answers. I had some bladder problems in 2013. Doctors did surgery. I almost died. Apparently they told me my blood vessels looked funny. They didn't know if they "knicked " me or what but I lost 8 pints of blood very quickly. They barely got me transfusion in time. I chalked
CountryGirl9636
in
Partners for Behcet's
5 months ago
How you can help make ibrutinib plus venetoclax fixed duration therapy a reality for Australians with previously untreated CLL
In Australia, no new medicine can be listed on the Pharmaceutical Benefits Scheme (PBS) unless it has first been recommended by the Pharmaceutical Benefits Advisory Committee (PBAC). In March 2024, PBAC will again consider a submission to recommend a 15-month combination therapy of ibrutinib plus venetoclax
In Australia, no new medicine can be listed on the Pharmaceutical Benefits Scheme (PBS) unless it has first been recommended by the Pharmaceutical Benefits Advisory Committee (PBAC). In March 2024, PBAC will again consider a submission to recommend a 15-month combination therapy of ibrutinib plus venetoclax
CLLerinOz
Volunteer
in
CLL Support
5 months ago
FDA Investigating 'Serious Risk' of Malignancy After CAR-T Therapy - Applies to all approved therapies, but benefits still outweigh risks
From MedPage Today, by Charles Bankhead, Senior Editor, MedPage Today November 28, 2023, Last Updated November 29, 2023. Posted FYI without comment: [i]
FDA Investigating 'Serious Risk' of Malignancy After CAR-T Therapy - Applies to all approved therapies, but benefits still outweigh risks, agency
From MedPage Today, by Charles Bankhead, Senior Editor, MedPage Today November 28, 2023, Last Updated November 29, 2023. Posted FYI without comment: [i]
FDA Investigating 'Serious Risk' of Malignancy After CAR-T Therapy - Applies to all approved therapies, but benefits still outweigh risks, agency
cujoe
in
CLL Support
6 months ago
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Cerelle desogestrel
I've been taking 2x desogestrl tablets daily since January and have noticed the past few months cramping but no period, I've had to go to hospital for morphine to calm this, could this mean my endo has grown back even thought i only had a lap in March 22?
I've been taking 2x desogestrl tablets daily since January and have noticed the past few months cramping but no period, I've had to go to hospital for morphine to calm this, could this mean my endo has grown back even thought i only had a lap in March 22?
Surfingblue
in
Endometriosis UK
9 months ago
Genetic therapy: for solid malignancy hopefully soon
ok, I post them also because they are fellow Italians! But the platform is very promising even if clinical use has been approved only for glioma and glioblastoma at the moment. But there are clinical trials going on for solid tumors, prostate included. https://www.genenta.com/wp-content/uploads/2021
ok, I post them also because they are fellow Italians! But the platform is very promising even if clinical use has been approved only for glioma and glioblastoma at the moment. But there are clinical trials going on for solid tumors, prostate included. https://www.genenta.com/wp-content/uploads/2021
Maxone73
in
Advanced Prostate Cancer
6 months ago
Input on Timing of Initial ADT after RP/SRT Failed
After surgery and salvage radiation therapy (SRT) have failed, it appears I'm headed for androgen deprivation therapy. Like many things in the world of prostate cancer, the recommendations as to when to start ADT seem to be all over the place, so I'm seeking any insights folks may have based on your
After surgery and salvage radiation therapy (SRT) have failed, it appears I'm headed for androgen deprivation therapy. Like many things in the world of prostate cancer, the recommendations as to when to start ADT seem to be all over the place, so I'm seeking any insights folks may have based on your
dans_journey
in
Advanced Prostate Cancer
13 days ago
coming off rotigotine patches
Hello, First post… Could someone please share their experience coming off rotigotine patches, and what helped you throughout this experience? Been on rotigotine for 4 or so years, and more recently started experiencing augmentation. Was on 2mg, in August GP suggested increasing to 3mg but that hardly
Hello, First post… Could someone please share their experience coming off rotigotine patches, and what helped you throughout this experience? Been on rotigotine for 4 or so years, and more recently started experiencing augmentation. Was on 2mg, in August GP suggested increasing to 3mg but that hardly
Artifcial
in
Restless Legs Syndrome
6 months ago
Where Are My People?
I was diagnosed with major depressive disorder over 5 years ago. It started with speech therapy but didn’t seem to help. I’ve been medicated since then but it doesn’t feel like it’s doing its job anymore. The last couple years have been a rollercoaster with changing meds multiple times, worsening depression
I was diagnosed with major depressive disorder over 5 years ago. It started with speech therapy but didn’t seem to help. I’ve been medicated since then but it doesn’t feel like it’s doing its job anymore. The last couple years have been a rollercoaster with changing meds multiple times, worsening depression
RottieFlood37
in
Major Depressive Disorder (MDD) Support
6 months ago
COMBINATION THERAPY IS NOW UNDER REVIEW
This review indicates how and why combination therapy may be used in treatment. Interesting in itself, but another example of cherry-picking evidence ( we aren't mentioned in spite of starting this concept in 2012. Good cliquish admission where the "nonprofessionals"are best kept well out of the limelight
This review indicates how and why combination therapy may be used in treatment. Interesting in itself, but another example of cherry-picking evidence ( we aren't mentioned in spite of starting this concept in 2012. Good cliquish admission where the "nonprofessionals"are best kept well out of the limelight
diogenes
in
Thyroid UK
6 months ago
tramadol
I was on tramadol for at least 10 years----100 mg. then my doc took me off because a neurologist put me on Clonazepam for REM/SBD (rapid eye movement sleep behavior disorder.) But I was also getting cervical and lumbar rhizotomies...and still do every 12-14 months or so. I am now working with the VA
I was on tramadol for at least 10 years----100 mg. then my doc took me off because a neurologist put me on Clonazepam for REM/SBD (rapid eye movement sleep behavior disorder.) But I was also getting cervical and lumbar rhizotomies...and still do every 12-14 months or so. I am now working with the VA
Shadowperson
in
Pain Concern
10 months ago
Low B6... taking a complex with pyridoxine which obviously doesn't suit
Back to the search for the best B complex (Thorne being elusive at the moment and didn't do particularly well at keeping my B12 up)... one which contains pyridoxal 5' phosphate Does anyone rate Igennus Super B Complex? All suggestions welcome 🤗
Back to the search for the best B complex (Thorne being elusive at the moment and didn't do particularly well at keeping my B12 up)... one which contains pyridoxal 5' phosphate Does anyone rate Igennus Super B Complex? All suggestions welcome 🤗
TiggerMe
in
Thyroid UK
10 months ago
some great news….
My son will be turning 4 this January and that in and of itself is great news. Nothing is scarier than having just given birth and not knowing what the future of your precious new child will hold, like simply living. my son was born with PUV and severe reflux bilaterally. Of course there was renal
My son will be turning 4 this January and that in and of itself is great news. Nothing is scarier than having just given birth and not knowing what the future of your precious new child will hold, like simply living. my son was born with PUV and severe reflux bilaterally. Of course there was renal
MotherofBarbearians
in
Parents of Children with Kidney Disease
6 months ago
What are the most promising drugs/treatments on the horizon for PD symptom relief,slowing progression?
I see Buntanetap,Celeste light therapy and Cue1 as potentials. anyone have any thoughts? i dont know how much longer I can hang on.
I see Buntanetap,Celeste light therapy and Cue1 as potentials. anyone have any thoughts? i dont know how much longer I can hang on.
Jmellano
in
Cure Parkinson's
6 months ago
Newly diagnosed metastatic PC treatment options
Hi, I'm 68 years old. Here are the key points in my story so far: In July 2023 a blood test showed a PSA value of 45. On September 26 2023, prostate MRI showed a dominant tumor in the prostate with extension into the right seminal vesicle. Also the fat plane between the rectum and prostate is lost
Hi, I'm 68 years old. Here are the key points in my story so far: In July 2023 a blood test showed a PSA value of 45. On September 26 2023, prostate MRI showed a dominant tumor in the prostate with extension into the right seminal vesicle. Also the fat plane between the rectum and prostate is lost
ShorePine
in
Advanced Prostate Cancer
6 months ago
LDH high
Looking back, my specialist tested my LDH at diagnosis and it was in fact elevated. He told me that it’s very common for MPN’s to cause elevated LDH levels and said with treatment we can correct them.. is that true? I was worried for a second about any organ or tissue damage, but he reassured and said
Looking back, my specialist tested my LDH at diagnosis and it was in fact elevated. He told me that it’s very common for MPN’s to cause elevated LDH levels and said with treatment we can correct them.. is that true? I was worried for a second about any organ or tissue damage, but he reassured and said
JAKboy
in
MPN Voice
10 months ago
Light Therapy Celeste
Photopharmics is getting ready to recruit for phase 3. For those interested: https://photopharmics.com/innovative-research-inclusive-trials-and-new-funding-drives-hope-for-people-with-parkinsons-disease/
Photopharmics is getting ready to recruit for phase 3. For those interested: https://photopharmics.com/innovative-research-inclusive-trials-and-new-funding-drives-hope-for-people-with-parkinsons-disease/
Pegcity
in
Cure Parkinson's
6 months ago
Care Home response
Please can I thank everyone who sent a response to my original post. It is encouraging to hear from so many of you who have similar stories. My husband is responding well to the care home and the staff are lovely. I have had a lot of support from the health professionals , consultant, physio, speech
Please can I thank everyone who sent a response to my original post. It is encouraging to hear from so many of you who have similar stories. My husband is responding well to the care home and the staff are lovely. I have had a lot of support from the health professionals , consultant, physio, speech
Wybert
in
PSP Association
6 months ago
Extremely interesting....
The Swinging Pendulum in Treatment for Hypothyroidism: From (and Toward?) Combination Therapy - PMC https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6629976/
The Swinging Pendulum in Treatment for Hypothyroidism: From (and Toward?) Combination Therapy - PMC https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6629976/
Easylover
in
Thyroid UK
6 months ago
Combination therapy T4 + T3
Hi, since 2 weeks I started to take 10 mcg T3/ 2 days on top of my daily levothyroxine. I remember my periodic cycle was 24 days instead of 28 days when TSH was rising before. Today I was surprised to get my period at d23?! I am confused again. Was expecting the opposite.
Hi, since 2 weeks I started to take 10 mcg T3/ 2 days on top of my daily levothyroxine. I remember my periodic cycle was 24 days instead of 28 days when TSH was rising before. Today I was surprised to get my period at d23?! I am confused again. Was expecting the opposite.
Balou23
in
Thyroid UK
6 months ago
Recording available for NoSilverBullet interview of Dr Wayne Markman, CEO of SYMBYX, on "Light therapy for Parkinson's".
Thank you to Dr Wayne Markman for this very detailed interview on the topic of "Light Therapy for Parkinson's". It was a fascinating presentation with an excellent Q&A afterwards. It is available now on our YouTube channel so please take a look: https://youtu.be/E9XSIzblucc?feature=shared It is also
Thank you to Dr Wayne Markman for this very detailed interview on the topic of "Light Therapy for Parkinson's". It was a fascinating presentation with an excellent Q&A afterwards. It is available now on our YouTube channel so please take a look: https://youtu.be/E9XSIzblucc?feature=shared It is also
Michel0220
in
Cure Parkinson's
6 months ago
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