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Dr Maksoud
Has anyone seen a Dr Maksoud, I know I’ve asked this question before but did not get any replies. I’m particularly interested to know if he prescribes t3 or ndt. Obviously only pms please
Has anyone seen a Dr Maksoud, I know I’ve asked this question before but did not get any replies. I’m particularly interested to know if he prescribes t3 or ndt. Obviously only pms please
Dizzy444
in
Thyroid UK
1 year ago
NUBEQA (darolutimide) as MONOTHERAPY (no lupron or similar)?
I’ve seen two posts today in a couple of threads stating that they’re currently on NUBEQA, or will soon be as a monotherapy without first line ADT like casodex or Lupron. One gent says after 7 months he’s got testosterone levels of 700 with undetectable PSA and no progression on scans. Another says
I’ve seen two posts today in a couple of threads stating that they’re currently on NUBEQA, or will soon be as a monotherapy without first line ADT like casodex or Lupron. One gent says after 7 months he’s got testosterone levels of 700 with undetectable PSA and no progression on scans. Another says
Gl448
in
Advanced Prostate Cancer
1 year ago
Success or otherwise of Taking Levothyroxine Plus Metavive ?
Does anyone have experience of taking these two to get and stay well ? Or was it a disaster? As someone who just CANNOT get well on Thyroxine alone.. And having tried NDT at length.. For about 8 months been on a mix of Metavive and Levo.. I only take 25 mcg Levo..clearly not enough in itself…
Does anyone have experience of taking these two to get and stay well ? Or was it a disaster? As someone who just CANNOT get well on Thyroxine alone.. And having tried NDT at length.. For about 8 months been on a mix of Metavive and Levo.. I only take 25 mcg Levo..clearly not enough in itself…
Jollypolly
in
Thyroid UK
1 year ago
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Treatment Options Analysis Paralysis
Currently suffering from "analysis paralysis" as I go back and forth between radiation (Cyberknife) and Surgery. I was set to go with Cyberknife at Georgetown which is a high volume center with tons of experience and then my Decipher test came back as High Risk which adds 6 months of Orgovyx to the
Currently suffering from "analysis paralysis" as I go back and forth between radiation (Cyberknife) and Surgery. I was set to go with Cyberknife at Georgetown which is a high volume center with tons of experience and then my Decipher test came back as High Risk which adds 6 months of Orgovyx to the
BMT07
in
Prostate Cancer Network
1 year ago
Triplet Therapy Failed. Now what?
I've posted about my father here before - you can check my post history for my older posts. To keep it brief: 60 years old, diagnosed with metastatic prostate cancer in June of last year (at 59). Doctor started with hormonal treatment while waiting for him to regain some strength, added Abiraterone (
I've posted about my father here before - you can check my post history for my older posts. To keep it brief: 60 years old, diagnosed with metastatic prostate cancer in June of last year (at 59). Doctor started with hormonal treatment while waiting for him to regain some strength, added Abiraterone (
Worriedson9
in
Advanced Prostate Cancer
1 year ago
<0.03 for the 9th month
Very pleased to see my undetectable PSA blood test for the ninth time but also that I had a great consult with my London MO and onco nurse where he said he would support me on a decision to come off ADT if this continues to June 23.. BUT he recommends I stay on to July 24. Hmmm .. to be honest I
Very pleased to see my undetectable PSA blood test for the ninth time but also that I had a great consult with my London MO and onco nurse where he said he would support me on a decision to come off ADT if this continues to June 23.. BUT he recommends I stay on to July 24. Hmmm .. to be honest I
Brysonal
in
Fight Prostate Cancer
1 year ago
Does this say abi and Lupron is as good as it gets.
I can’t get the full text, but the abstract seems to contradict the idea of triplet as better than abi and adt. What did I miss? https://jamanetwork.com/journals/jamaoncology/fullarticle/2802132
I can’t get the full text, but the abstract seems to contradict the idea of triplet as better than abi and adt. What did I miss? https://jamanetwork.com/journals/jamaoncology/fullarticle/2802132
Papa1
in
Advanced Prostate Cancer
1 year ago
T3/NDT costs; for comparison/discussion
Hi all, Have recently contacted all the pharmacies on the Thyroid UK list to quote me for 1grain (60mg) Erfa NDT and 10mcg T3. Above are the prices - I've not included the pharmacy name but I can pass that on via PM if you're interested. I find it fascinating that effectively the same product can
Hi all, Have recently contacted all the pharmacies on the Thyroid UK list to quote me for 1grain (60mg) Erfa NDT and 10mcg T3. Above are the prices - I've not included the pharmacy name but I can pass that on via PM if you're interested. I find it fascinating that effectively the same product can
Hidden
in
Thyroid UK
1 year ago
Dr Tara Kearney any feedback please
I've booked to see her mid April but just trying to make sure it's good fit for me.I have low thyroid but never been tested for Hashimoto's and 11 years ago at the age of 33 was diagnosed with POI (premature ovarian failure) I wonder what's her opinion on full panel testing (Hashimoto's not only T's
I've booked to see her mid April but just trying to make sure it's good fit for me.I have low thyroid but never been tested for Hashimoto's and 11 years ago at the age of 33 was diagnosed with POI (premature ovarian failure) I wonder what's her opinion on full panel testing (Hashimoto's not only T's
Gabi_
in
Thyroid UK
1 year ago
Low blood pressure and pulse -Orgovyx and flomax -AND CIALIS?
I just finished 20 IMRT at UCLA. I am also on Orgovyx for a month.( 3 months to go) I am also taking flomax . I am supposed to start taking Cialis .5 mg per day to keep the muscle strong. I am now starting to have major fatigue from the ADT and Low BP 96/49 , and low pulse 48. (having headaches, and
I just finished 20 IMRT at UCLA. I am also on Orgovyx for a month.( 3 months to go) I am also taking flomax . I am supposed to start taking Cialis .5 mg per day to keep the muscle strong. I am now starting to have major fatigue from the ADT and Low BP 96/49 , and low pulse 48. (having headaches, and
JWS13
in
Prostate Cancer Network
1 year ago
Zytiga failed, Xtandi next
2/21/23 blood test shows PSA went up from 0.253 to 0.309 Testosterone unchanged at 45 since 1/23/23 test. B12 260. MO ordered 2500mcg B12 which I read helps bone health, energy and red blood cells. Pylarify PET scan shows numerous stable non tracer avid sclerotic osseous lesions on the CT portion of
2/21/23 blood test shows PSA went up from 0.253 to 0.309 Testosterone unchanged at 45 since 1/23/23 test. B12 260. MO ordered 2500mcg B12 which I read helps bone health, energy and red blood cells. Pylarify PET scan shows numerous stable non tracer avid sclerotic osseous lesions on the CT portion of
alperk
in
Advanced Prostate Cancer
1 year ago
Testosterone level while on ADT plus Xtandi
I've been on ADT (Prostap) since last July and Xtandi since October and my T has remained hovering around 30 ng/dL. Although this is technically castrate level (<50), I've seen several other posts of guys on various hormone therapies with much lower T. Is it normal/typical for T to stay at 30 when on
I've been on ADT (Prostap) since last July and Xtandi since October and my T has remained hovering around 30 ng/dL. Although this is technically castrate level (<50), I've seen several other posts of guys on various hormone therapies with much lower T. Is it normal/typical for T to stay at 30 when on
Benkaymel
in
Advanced Prostate Cancer
1 year ago
fatigue after eating with ADT luprion and Erleada
Anyone get wiped out after meals ..been on same meds for two years (LUPRION ERLEADA) it’s starting to really become significant everyday .
Anyone get wiped out after meals ..been on same meds for two years (LUPRION ERLEADA) it’s starting to really become significant everyday .
Nite-owl
in
Advanced Prostate Cancer
1 year ago
For my fellow Restless Leg Syndrome sufferers
Hi everyone. Just thought I would share this info with you all, in case it helps. Just had a sleep lab done for disability pension process here in Switzerland, due to Chronic Fatigue from Hashis and MCAS. At follow up appointment to discuss results with Neurologist I mentioned that my RLS symptoms had
Hi everyone. Just thought I would share this info with you all, in case it helps. Just had a sleep lab done for disability pension process here in Switzerland, due to Chronic Fatigue from Hashis and MCAS. At follow up appointment to discuss results with Neurologist I mentioned that my RLS symptoms had
Swissgirl
in
Thyroid UK
1 year ago
How many 3-months injections of lupron for 2-year-long ADT
Please warriors, help me to finding the right answers. According to my bio and studies I shall be under ADT for two years. I started 01/2022. How many 3-months-injections should I go for? When I get my last one in October 2023, I would have full cover until 01/2024. But last time my testosterone recovery
Please warriors, help me to finding the right answers. According to my bio and studies I shall be under ADT for two years. I started 01/2022. How many 3-months-injections should I go for? When I get my last one in October 2023, I would have full cover until 01/2024. But last time my testosterone recovery
Nusch
in
Advanced Prostate Cancer
1 year ago
ART Management BCR : PSA n PSA Doubling Time Feb23 Commentary
ART Management BCR PSA n PSA Doubling Time Commentary Summary: Phoenix consensus (PSA of 2.0 ng/ml over nadir post RT) is challenged by results showing MET in men testing below this threshold. Use of PSMA PET is suggested to establish MET after BCR after surpassing the Phoenix threshold. Most important
ART Management BCR PSA n PSA Doubling Time Commentary Summary: Phoenix consensus (PSA of 2.0 ng/ml over nadir post RT) is challenged by results showing MET in men testing below this threshold. Use of PSMA PET is suggested to establish MET after BCR after surpassing the Phoenix threshold. Most important
RMontana
in
Active Surveillance - Prostate Cancer
1 year ago
Private NDT source please
Hi allI've been a member here for many years but my tablet accounts keep being hacked, due to ongoing domestic violence, so I am here under a new name. I've been on privately sourced NDT for some 21 years. I currently take Thailand Thiroyd but am running out. I see it's no longer made and my current
Hi allI've been a member here for many years but my tablet accounts keep being hacked, due to ongoing domestic violence, so I am here under a new name. I've been on privately sourced NDT for some 21 years. I currently take Thailand Thiroyd but am running out. I see it's no longer made and my current
BreatheHelen
in
Thyroid UK
1 year ago
Update after 9 months on Daro, Orgo, and SARMS
Hello all, i want to continue to update my experiment on SARMS and ADT. Currently on darolutamide and Orgovyx + Osterine 10mg/day. I stopped Carderine for now to see if my next lipid profile goes from good to bad. Just wanted to see if carderine was responsible for my improvements from previous numbers
Hello all, i want to continue to update my experiment on SARMS and ADT. Currently on darolutamide and Orgovyx + Osterine 10mg/day. I stopped Carderine for now to see if my next lipid profile goes from good to bad. Just wanted to see if carderine was responsible for my improvements from previous numbers
KocoPr
in
Fight Prostate Cancer
1 year ago
Latest blood results and thyroid scan
Hi all,I had a comprehensive list of blood test and a thyroid scan just 2 weeks ago when travelling abroad. Treatment has not been given there but I had a private appointment and waiting to start NDT soon once I have the report from the doctor ( private one). Don't know what to expect and read various
Hi all,I had a comprehensive list of blood test and a thyroid scan just 2 weeks ago when travelling abroad. Treatment has not been given there but I had a private appointment and waiting to start NDT soon once I have the report from the doctor ( private one). Don't know what to expect and read various
Mackanzie0
in
Thyroid UK
1 year ago
#1: The Start
Following the example of Clarebear I've decided to document my thyroid-adrenal journey on here in hopes it'll keep me accountable, and also may serve some after me. After a long, complicated history of no diagnosis, followed by lithium treatment, then prolonged time spent on T4 with no improvement,
Following the example of Clarebear I've decided to document my thyroid-adrenal journey on here in hopes it'll keep me accountable, and also may serve some after me. After a long, complicated history of no diagnosis, followed by lithium treatment, then prolonged time spent on T4 with no improvement,
Hidden
in
Thyroid UK
1 year ago
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