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PSA keeps rising
My PCa timeline:April 2022 - DX with PCa, Gleason 3+4, PSA 18 Jun 2022 - PSA 28, given 3 month shot of lupron Aug 2022 - 20 sessions of IGRT Sep 2022 - PSA 0.56 Dec 2022 - PSA 1.6 Feb 2023 - PSA 5.3 Mar 4, 2023 - PSMA PET scan shows a single spot ("moderately tracer-avid focus at 6th rib ... suspicious
My PCa timeline:April 2022 - DX with PCa, Gleason 3+4, PSA 18 Jun 2022 - PSA 28, given 3 month shot of lupron Aug 2022 - 20 sessions of IGRT Sep 2022 - PSA 0.56 Dec 2022 - PSA 1.6 Feb 2023 - PSA 5.3 Mar 4, 2023 - PSMA PET scan shows a single spot ("moderately tracer-avid focus at 6th rib ... suspicious
John347
in
Advanced Prostate Cancer
1 year ago
Stopping medication
Hi everyone, I am really desperate with what to do next as nothing works for me. I was finally getting NDT and had so much expectation from it. I was fine for few days and then my stomach started to hurt that bad that I couldn't bed down. I email my specialist and ask what to do . He said to stop and
Hi everyone, I am really desperate with what to do next as nothing works for me. I was finally getting NDT and had so much expectation from it. I was fine for few days and then my stomach started to hurt that bad that I couldn't bed down. I email my specialist and ask what to do . He said to stop and
Mackanzie0
in
Thyroid UK
1 year ago
Next Move?
Briefly, I had Radical Prostatectomy in February of 2018, ADT with Salvage Radiation ending in September of 2019 and undetectable PSA until August of 2022 when it increased to .09, then .12 in October, and .22 in December. Finally, .34 in March 2023. I just received this message from my Oncologist
Briefly, I had Radical Prostatectomy in February of 2018, ADT with Salvage Radiation ending in September of 2019 and undetectable PSA until August of 2022 when it increased to .09, then .12 in October, and .22 in December. Finally, .34 in March 2023. I just received this message from my Oncologist
Imp4t
in
Advanced Prostate Cancer
1 year ago
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Energy and weight
Really struggling with fatigue and this weight. Up 20 lb..I think its a mental block..hard to get to the gym even though that is the answer. Ran 1,100 miles in 2019, backed off due to foot nerve operation..now 20 minutes in gym and I am exhausted. Just a couple months post radiation after failed surgery
Really struggling with fatigue and this weight. Up 20 lb..I think its a mental block..hard to get to the gym even though that is the answer. Ran 1,100 miles in 2019, backed off due to foot nerve operation..now 20 minutes in gym and I am exhausted. Just a couple months post radiation after failed surgery
runtrails
in
Advanced Prostate Cancer
1 year ago
Symptoms when ADT no longer works?
Hello, everyone! I have begun year two of stage 4 metastatic prostate cancer and I have BRCA2. Taking abiraterone + prednisone daily and Lupron shots twice a year. I am doing my best to live one day at a time but wonder what things will look like when the cancer becomes resistant. Does anybody know?
Hello, everyone! I have begun year two of stage 4 metastatic prostate cancer and I have BRCA2. Taking abiraterone + prednisone daily and Lupron shots twice a year. I am doing my best to live one day at a time but wonder what things will look like when the cancer becomes resistant. Does anybody know?
SandyBear2023
in
Advanced Prostate Cancer
1 year ago
Bone Health issues re:Bisphosphonnates, etc. ????
I'm back again for further research about the bone density medications, and now wondering about the use of bisphosphonates, denosumab and teriparatide? My PCP is suggesting these, but he's not current with the research about estrogen and testosterone use for PCa care. My backstory is that I'm suffering
I'm back again for further research about the bone density medications, and now wondering about the use of bisphosphonates, denosumab and teriparatide? My PCP is suggesting these, but he's not current with the research about estrogen and testosterone use for PCa care. My backstory is that I'm suffering
ragnar2020
in
Fight Prostate Cancer
1 year ago
Hormonal therapy and pain
Do you have experiences that hormonal therapy (ADT, Erleada etc) cause pain? What kind is it and have you stopped drugs? Or have you had a break and started it again? Or what has helped? My dad has been on ADT and Erleada for couple of months. Everything went fine but now he has quite bad pain ecpecially
Do you have experiences that hormonal therapy (ADT, Erleada etc) cause pain? What kind is it and have you stopped drugs? Or have you had a break and started it again? Or what has helped? My dad has been on ADT and Erleada for couple of months. Everything went fine but now he has quite bad pain ecpecially
Daughter17
in
Advanced Prostate Cancer
1 year ago
NDT blood test timing
Good morning all My understanding is when on NDT you should test 12 hours after your dose. Is that correct? If so at that point is the blood test more realistic as an indication of how well you are doing? I ask this because at my last one I was only a third way through the range of T3.
Good morning all My understanding is when on NDT you should test 12 hours after your dose. Is that correct? If so at that point is the blood test more realistic as an indication of how well you are doing? I ask this because at my last one I was only a third way through the range of T3.
Jodypody
in
Thyroid UK
1 year ago
proving hypothyroidism
is this enough to prove hypothyroidism to nhs like a GP? My t4 was 16.9 with no treatment a few years ago but I was still having hypothyroid symptoms so started on NDT. It’s got worse in last year and a half and this are my recent results whilst on 160 of NDT- if I wasn’t on it, my t4 would be too low
is this enough to prove hypothyroidism to nhs like a GP? My t4 was 16.9 with no treatment a few years ago but I was still having hypothyroid symptoms so started on NDT. It’s got worse in last year and a half and this are my recent results whilst on 160 of NDT- if I wasn’t on it, my t4 would be too low
Kitkat1982
in
Thyroid UK
1 year ago
Stage 4 ~ Now Losing Blood Somewhere
Hi, my husband was diagnosed stage 4 with lymph node and bladder neck margins involvement 3/2018. He has done chemo, radiation, and hormone therapy over the past 5 years. His PSA increased quickly starting in October 2022 and by December it was 27. Hormone therapy isn’t working as before, it appears
Hi, my husband was diagnosed stage 4 with lymph node and bladder neck margins involvement 3/2018. He has done chemo, radiation, and hormone therapy over the past 5 years. His PSA increased quickly starting in October 2022 and by December it was 27. Hormone therapy isn’t working as before, it appears
drb1966
in
Advanced Prostate Cancer
1 year ago
Testosterone Replacement Therapy
Testosterone level seems to have plateaued at 250 post 2018-19 IMRT, ADT and brachyboost; was never more than 270 pre-treatment. Criteria for starting/stopping TRT? What are its pros and cons? Responses to it from men here? Many thanks, EdinBaltimore
Testosterone level seems to have plateaued at 250 post 2018-19 IMRT, ADT and brachyboost; was never more than 270 pre-treatment. Criteria for starting/stopping TRT? What are its pros and cons? Responses to it from men here? Many thanks, EdinBaltimore
EdinBmore
in
Prostate Cancer And Gay Men
1 year ago
Testosterone Replacement Therapy
Testosterone level seems to have plateaued at 250 post 2018-19 IMRT, ADT and brachyboost; was never more than 270 pre-treatment. Criteria for starting/stopping TRT? What are its pros and cons? Responses to it from men here? Many thanks, EdinBaltimore
Testosterone level seems to have plateaued at 250 post 2018-19 IMRT, ADT and brachyboost; was never more than 270 pre-treatment. Criteria for starting/stopping TRT? What are its pros and cons? Responses to it from men here? Many thanks, EdinBaltimore
EdinBmore
in
Advanced Prostate Cancer
1 year ago
Incontinence after RP and ADT
I had a RO approximately 2 1/2 years ago with a recurrence 12 months later. I have had 37 sessions of radiotherapy and am in month 16 of 18 hormone therapy in the UK. My incontinence seemed to solve itself around 12 months after RP but never fully. In the past 12 months I still suffer from minor involuntary
I had a RO approximately 2 1/2 years ago with a recurrence 12 months later. I have had 37 sessions of radiotherapy and am in month 16 of 18 hormone therapy in the UK. My incontinence seemed to solve itself around 12 months after RP but never fully. In the past 12 months I still suffer from minor involuntary
Runner1957
in
Advanced Prostate Cancer
1 year ago
Minor incontinence
I had a RO approximately 2 1/2 years ago with a recurrence 12 months later. I have had 37 sessions of radiotherapy and am in month 16 of 18 hormone therapy in the UK. My incontinence seemed to solve itself around 12 months after RP but never fully. In the past 12 months I still suffer from minor involuntary
I had a RO approximately 2 1/2 years ago with a recurrence 12 months later. I have had 37 sessions of radiotherapy and am in month 16 of 18 hormone therapy in the UK. My incontinence seemed to solve itself around 12 months after RP but never fully. In the past 12 months I still suffer from minor involuntary
Runner1957
in
Prostate Cancer Network
1 year ago
blood test timings
just a quickie. As I’m on NDT I believe my blood test needs to be 12 hours after my dose. If the blood test came back a third through the range was I right to increase? I did this test on a non training day for worst case scenario.
just a quickie. As I’m on NDT I believe my blood test needs to be 12 hours after my dose. If the blood test came back a third through the range was I right to increase? I did this test on a non training day for worst case scenario.
Jodypody
in
Thyroid UK
1 year ago
Enzalutamide or Darolutamide
Hi, I have advanced metastatic hormone sensitive prostate cancer and as well as my usual three monthly ADT (Lucrin-Depot) injection, I have been offered either Enzalutamide (Xtandi) or Darolutamide (Nubeqa). My PSA is currently below 0.1 due to the Lucrin-Depot. I am a bit nervous at taking additional
Hi, I have advanced metastatic hormone sensitive prostate cancer and as well as my usual three monthly ADT (Lucrin-Depot) injection, I have been offered either Enzalutamide (Xtandi) or Darolutamide (Nubeqa). My PSA is currently below 0.1 due to the Lucrin-Depot. I am a bit nervous at taking additional
x-rays1
in
Advanced Prostate Cancer
1 year ago
If all treatment has failed do you continue with ADT?
Now that all treatment has failed to stop the beast do you continue ADT ? Husband has failed out of 6 pluvicto and now 6 Jevtana. No further treatment is planned. Any reason to continue?
Now that all treatment has failed to stop the beast do you continue ADT ? Husband has failed out of 6 pluvicto and now 6 Jevtana. No further treatment is planned. Any reason to continue?
Cynthgob
in
Advanced Prostate Cancer
1 year ago
Blood test results in advance of endo appointment + what are the MHRA guidelines for NDT?
Thank you SO SO much everyone who responded to my post last week about NDT absorption and how I should approach my endo to ask for NDT rather than synthetic T4/T3 therapy. Your responses have made the world of difference. I have my blood test results taken last Friday ready for endo this Thursday (
Thank you SO SO much everyone who responded to my post last week about NDT absorption and how I should approach my endo to ask for NDT rather than synthetic T4/T3 therapy. Your responses have made the world of difference. I have my blood test results taken last Friday ready for endo this Thursday (
Reefseeker
in
Thyroid UK
1 year ago
NDT from Germany or Denmark
Hi all, After a disastrous health meltdown on levothyroxine I've been very happy on Armour NDT for several years - except now I can't afford it. Can anyone explain how to get comparable NDT medication within the EU? How good are they and what kind of cost? Do I need a prescription and if so how do I
Hi all, After a disastrous health meltdown on levothyroxine I've been very happy on Armour NDT for several years - except now I can't afford it. Can anyone explain how to get comparable NDT medication within the EU? How good are they and what kind of cost? Do I need a prescription and if so how do I
HattieLouise22
in
Thyroid UK
1 year ago
Followup on friend I mentioned.
He just got biopsy back. Lotta 4+3. His wife however, is telling me the Doc is saying it's Stage 1., which is absurd unless I'm woefully ill-informed. There is a good chance of miscommunication here. They go back to Urologist Thursday, so perhaps I'm posting this prematurely. (I have their permission
He just got biopsy back. Lotta 4+3. His wife however, is telling me the Doc is saying it's Stage 1., which is absurd unless I'm woefully ill-informed. There is a good chance of miscommunication here. They go back to Urologist Thursday, so perhaps I'm posting this prematurely. (I have their permission
WhatHump
in
Prostate Cancer Network
1 year ago
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