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Nurtec ODT
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x Summer of 2020.59 yr old. Spent 2021 on AS eventually psa went from 6.5 to 10 day of RALP. 2/14/22 GL 7a T3aN0M0 post psa at 3 months .04. Stayed until at one year .08 . At 18 months .1 now 2 years out .22 I had a neg psma scan but psa is low so false neg is very real. I have continually asked
x Summer of 2020.59 yr old. Spent 2021 on AS eventually psa went from 6.5 to 10 day of RALP. 2/14/22 GL 7a T3aN0M0 post psa at 3 months .04. Stayed until at one year .08 . At 18 months .1 now 2 years out .22 I had a neg psma scan but psa is low so false neg is very real. I have continually asked
Elbers123
in
Advanced Prostate Cancer
4 months ago
On treating micro-metastatic disease
I watched a video posted by PCRI recently on YouTube. In the video entitled "Treating micro-metastatic disease", Dr Mark Scholz mentioned that undergoing one year of ADT is sufficient post radiation. Thereafter just monitor the PSA for any rise, and use PSMA PET scan to locate any cancer and to radiate
I watched a video posted by PCRI recently on YouTube. In the video entitled "Treating micro-metastatic disease", Dr Mark Scholz mentioned that undergoing one year of ADT is sufficient post radiation. Thereafter just monitor the PSA for any rise, and use PSMA PET scan to locate any cancer and to radiate
John347
in
Advanced Prostate Cancer
4 months ago
PSA uptick
Quick background, my dad was diagnosed with metastatic PCa in 2018. Initially treated with docetaxel + ADT. His PSA has been at/near undetected (<0.01-0.02) for several years, but recently there has been an uptick to 0.08 (similar on a recheck, so not lab error). Obviously still low-level, but concerning
Quick background, my dad was diagnosed with metastatic PCa in 2018. Initially treated with docetaxel + ADT. His PSA has been at/near undetected (<0.01-0.02) for several years, but recently there has been an uptick to 0.08 (similar on a recheck, so not lab error). Obviously still low-level, but concerning
mediocra
in
Advanced Prostate Cancer
4 months ago
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Reason for ADT
Why is ADT used after SBRT? If radiation kills the cancer or makes it impossible to reproduce, then why do some doctors recommend ADT?
Why is ADT used after SBRT? If radiation kills the cancer or makes it impossible to reproduce, then why do some doctors recommend ADT?
Victor615
in
Prostate Cancer Network
4 months ago
biochemical recurrence after RP. +post leukemia
RP surgery 3/2020. Psa levels stable less than .01 for two years. 6/23 thru 12/23 levels have been .18 to .41. Complication 8/22 diagnosed with AML Leukemia. 5 rounds of chemo and a bone marrow transplant on 1/5/2023. Leukemia is now in complete remission, my blood dna is my donor’s - 40 year
RP surgery 3/2020. Psa levels stable less than .01 for two years. 6/23 thru 12/23 levels have been .18 to .41. Complication 8/22 diagnosed with AML Leukemia. 5 rounds of chemo and a bone marrow transplant on 1/5/2023. Leukemia is now in complete remission, my blood dna is my donor’s - 40 year
junkwerc
in
Prostate Cancer Network
4 months ago
6 months after MRI Guided SBRT at MSK
After a year and a half of Active Surveillance, my cancer progressed to GL 4+3 and I decided to have MRI Guided SBRT in August at Memorial Sloan Kettering in NYC under the care of Dr. Sean McBride. I had 5 sessions over 10 days and each lasted about an hour. The entire team at MSK was wonderful and
After a year and a half of Active Surveillance, my cancer progressed to GL 4+3 and I decided to have MRI Guided SBRT in August at Memorial Sloan Kettering in NYC under the care of Dr. Sean McBride. I had 5 sessions over 10 days and each lasted about an hour. The entire team at MSK was wonderful and
rosenjpj
in
Advanced Prostate Cancer
4 months ago
Advice please - Is this potential dose increase a bad idea?
Just wanted to ask for opinions and wisdom regarding my NDT dose. Never had thyroid treatment before, and just got prescribed 50mg NDT as a trial by my doctor. Being super cautious, I decided to start at 1/4 of that dose (12.5mg) per day, then build up by another 1/4 each week until I hit the prescribed
Just wanted to ask for opinions and wisdom regarding my NDT dose. Never had thyroid treatment before, and just got prescribed 50mg NDT as a trial by my doctor. Being super cautious, I decided to start at 1/4 of that dose (12.5mg) per day, then build up by another 1/4 each week until I hit the prescribed
Overlooked
in
Thyroid UK
4 months ago
A Clinical Trial saved my Life ..12 years a Survivor of Advanced Metastatic Prostate Cancer, Stage 4.
When Alfred Samuels was diagnosed with advanced prostate cancer in 2012, it felt as if his world had fallen apart overnight. Doctors said surgery wasn’t an option for him because the cancer had spread beyond his prostate, and he started to lose hope. But then he joined a clinical trial and began treatment
When Alfred Samuels was diagnosed with advanced prostate cancer in 2012, it felt as if his world had fallen apart overnight. Doctors said surgery wasn’t an option for him because the cancer had spread beyond his prostate, and he started to lose hope. But then he joined a clinical trial and began treatment
alsam
in
Understanding Clinical Trials
4 months ago
NDT woop woop
Back on thyroid-s thanks to this blog. 180mcg at bedtime as knowledgable NZ medic prescribed 12 yrs ago & said to never change!!! Only problem thus far is peeing up to 3x at night - thought 2 months of M stuf had cleared my system of any excess but no, thrilled it’s liquid not alternate. Everything
Back on thyroid-s thanks to this blog. 180mcg at bedtime as knowledgable NZ medic prescribed 12 yrs ago & said to never change!!! Only problem thus far is peeing up to 3x at night - thought 2 months of M stuf had cleared my system of any excess but no, thrilled it’s liquid not alternate. Everything
joydot
in
Thyroid UK
4 months ago
New NDT? Niva Thyroid
Anyone taking it? Just found out about it.It's produced in the US by Nivagen Thanks!
Anyone taking it? Just found out about it.It's produced in the US by Nivagen Thanks!
Incoguto
in
Thyroid UK
4 months ago
NDT UK
Can anyone advise where I can get NDT in UK? I was taking Thiroid by Nature Pharma which worked well for me, but they stopped making it a few years back. I got as batch of Thyroid-S (4 x 500) which does not agree with me as well but still way better than Levo. My supplies are running low and I am struggling
Can anyone advise where I can get NDT in UK? I was taking Thiroid by Nature Pharma which worked well for me, but they stopped making it a few years back. I got as batch of Thyroid-S (4 x 500) which does not agree with me as well but still way better than Levo. My supplies are running low and I am struggling
manmandan
in
Thyroid UK
4 months ago
What else to increase T3? Tried everything ...
Hello beautiful people, My latest TSH is 0.66 and had to lower thyroxine just a bit (from 100/88 to just 88) as was getting some hyper symptoms and felt way better with a lower dose, finally have energy and drive again! My T4 is healthy range, 60% through. However, my T3 dropped to just 10% of the range
Hello beautiful people, My latest TSH is 0.66 and had to lower thyroxine just a bit (from 100/88 to just 88) as was getting some hyper symptoms and felt way better with a lower dose, finally have energy and drive again! My T4 is healthy range, 60% through. However, my T3 dropped to just 10% of the range
Juliet_22
in
Thyroid UK
4 months ago
Cortisol tests
Hi, I just had my cortisol retested to see if there had been any improvement from February 2023. Since August 2023, I have been slowly titrating NDT Armour and taking vitamins, minerals and amino acids prescribed by a private thyroid Dr. My iron & B12 are good, working on increasing vit D. I'm still
Hi, I just had my cortisol retested to see if there had been any improvement from February 2023. Since August 2023, I have been slowly titrating NDT Armour and taking vitamins, minerals and amino acids prescribed by a private thyroid Dr. My iron & B12 are good, working on increasing vit D. I'm still
Insomania
in
Thyroid UK
4 months ago
Natural thyroid specialist London
Hi all, I was diagnosed underactive in April last year. Started on 25 levo and reffered to endo. I started experiencing pain in both knees, and later both hands around summer last year. I only just got the endo referral in January where I mentioned the joint pain but he didn't seem fussed, but due to
Hi all, I was diagnosed underactive in April last year. Started on 25 levo and reffered to endo. I started experiencing pain in both knees, and later both hands around summer last year. I only just got the endo referral in January where I mentioned the joint pain but he didn't seem fussed, but due to
Joinneed
in
Thyroid UK
5 months ago
Shytomel duo
Hi guys has anyone heard of or used Shytomel NDT? I'm currently on Armour buy it's very expensive and looking fir an alternative. I have previously tried Thyroid S but I'd get bad palpitations on it when I'd need to increase the dose. The best that ever worked was TR Man but unfortunately they stopped
Hi guys has anyone heard of or used Shytomel NDT? I'm currently on Armour buy it's very expensive and looking fir an alternative. I have previously tried Thyroid S but I'd get bad palpitations on it when I'd need to increase the dose. The best that ever worked was TR Man but unfortunately they stopped
Mitch27
in
Thyroid UK
5 months ago
Targeting Mets w SBRT- what’s your experience?
Have any of you guys had any luck targeting distant metastases with SBRT after your mets remained small or dormant while on ADT but after PSMA scans had showed more in number than olago (more than five mets)? My PSMA scan in January 2022 showed 10 scattered small mets so our area SBRT (Cyberknife) radiation
Have any of you guys had any luck targeting distant metastases with SBRT after your mets remained small or dormant while on ADT but after PSMA scans had showed more in number than olago (more than five mets)? My PSMA scan in January 2022 showed 10 scattered small mets so our area SBRT (Cyberknife) radiation
SeattleDan
in
Advanced Prostate Cancer
5 months ago
Erfa to Liothyronine Thybon Henning Dose Conversion
Hello, I used to take ERFA and levothyroxine but as my T3 was slightly high, my new Dr has put me on Thybon Henning so it will be a bit easier to manage T3 and T4 dosing (it's difficult to cut down on NDT as if I lower it I'm also lowering my total T4 dose, and I run low in T4). I have a feeling he
Hello, I used to take ERFA and levothyroxine but as my T3 was slightly high, my new Dr has put me on Thybon Henning so it will be a bit easier to manage T3 and T4 dosing (it's difficult to cut down on NDT as if I lower it I'm also lowering my total T4 dose, and I run low in T4). I have a feeling he
hormonaljunkie
in
Thyroid UK
5 months ago
What category of Intermediate Risk Am I?
I am trying to make a decision regarding HT with RT. I am 78. I have CKD 3b, and a solitary kidney. I am 6.5 years in remission from UTUC kidney cancer. A number of papers indicate that HT could be detrimental to my kidney. Those with FIR PCa could avoid HT with little risk. The following is defined
I am trying to make a decision regarding HT with RT. I am 78. I have CKD 3b, and a solitary kidney. I am 6.5 years in remission from UTUC kidney cancer. A number of papers indicate that HT could be detrimental to my kidney. Those with FIR PCa could avoid HT with little risk. The following is defined
Nordman
in
Advanced Prostate Cancer
5 months ago
Natural Desiccated Thyroid, NDT, Sources
Hi everyone, I have been on NDT from Thailand for over a decade and I have only just ordered Thyroid-S. The price has gone up and I was a bit worried because I wasn't sure if the supplier would still be available. There used to be so many suppliers and with more competitive prices over there. Now, this
Hi everyone, I have been on NDT from Thailand for over a decade and I have only just ordered Thyroid-S. The price has gone up and I was a bit worried because I wasn't sure if the supplier would still be available. There used to be so many suppliers and with more competitive prices over there. Now, this
Isilune77
in
Thyroid UK
5 months ago
IS THIS A PATTERN???? Thoughts and helpful ideas to guide a path
Diagnosed Gleason 9 advanced, PSA 19, mets in pelvis(maybe more???)Had 6 x chemo ,5 X radio to prostate, ADT through out.PSA was down to 0.08 at one point.1 MARCH23 0.29 25 MAY23 0.08 NOV23 0.12 05 DEC23 0.25 12 FEB24 0.44 started feeling bouts of unreasonable tiredness, think maybe active cancer???
Diagnosed Gleason 9 advanced, PSA 19, mets in pelvis(maybe more???)Had 6 x chemo ,5 X radio to prostate, ADT through out.PSA was down to 0.08 at one point.1 MARCH23 0.29 25 MAY23 0.08 NOV23 0.12 05 DEC23 0.25 12 FEB24 0.44 started feeling bouts of unreasonable tiredness, think maybe active cancer???
Mrtroxely
in
Advanced Prostate Cancer
5 months ago
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