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Hypothyroid muscle aches
I have been sub-clinically hypothyroid for at least 14 years, based on my medical records, and was was treated for hypothyroid when my T4 dipped below range for a short while. Stopped when back into bottom of range and T4 always remained low. My TSH was normally around 4.5 - 5. When I asked for treatment
I have been sub-clinically hypothyroid for at least 14 years, based on my medical records, and was was treated for hypothyroid when my T4 dipped below range for a short while. Stopped when back into bottom of range and T4 always remained low. My TSH was normally around 4.5 - 5. When I asked for treatment
Philogden6
in
Thyroid UK
4 months ago
What to expect with mets and no treatment
4 months of study everywhere online- future life reading all the suffering here on this forum with side effects, impotence, recurrence, hormone therapy, other side effects, etc. My heart goes out to all of you, and my hats off to you warriors, who have chosen to fight this battle with conventional
4 months of study everywhere online- future life reading all the suffering here on this forum with side effects, impotence, recurrence, hormone therapy, other side effects, etc. My heart goes out to all of you, and my hats off to you warriors, who have chosen to fight this battle with conventional
Nwdx
in
Advanced Prostate Cancer
4 months ago
Eliminating ADT.
Is there ANY PC Therapy that does not use ADT ? I have been on ADT implants for over 2 years and will start Xtandi due to increased PSA's. I would love to stop ADT due to SE.
Is there ANY PC Therapy that does not use ADT ? I have been on ADT implants for over 2 years and will start Xtandi due to increased PSA's. I would love to stop ADT due to SE.
Stevegr
in
Advanced Prostate Cancer
4 months ago
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Treatment Recommendation for father with advanced PCA to regional lymph nodes
Hi All, I was hoping for some feedback on the treatment schedule advised for my father. All the details for his diagnosis are in my bio. We met with the radio oncologist last week and he suggested the following 1. Start cosudex tablets now for 28 days and then stop 2. Start Zoladex injection within
Hi All, I was hoping for some feedback on the treatment schedule advised for my father. All the details for his diagnosis are in my bio. We met with the radio oncologist last week and he suggested the following 1. Start cosudex tablets now for 28 days and then stop 2. Start Zoladex injection within
MissMel2024
in
Advanced Prostate Cancer
4 months ago
Experiencing possible neuropathy in my trunk
I had had 10 rounds of radiation to treat two spinal bone mets back in March. I am on Lupron (first shot was in March) and abiraterone and prednisone daily. PSA has plummeted and doing good. Prepping for chemo in May. This past Wednesday I started feeling some discomfort in my front and back. It's hard
I had had 10 rounds of radiation to treat two spinal bone mets back in March. I am on Lupron (first shot was in March) and abiraterone and prednisone daily. PSA has plummeted and doing good. Prepping for chemo in May. This past Wednesday I started feeling some discomfort in my front and back. It's hard
4tunate1
in
Advanced Prostate Cancer
4 months ago
Watching and waiting
My 78 year old husband was diagnosed with prostate cancer Gleason 8 two years ago. ( Urologist noticed a very slight rise in psa and located a tumor after dre. Biopsy showed cancerous cells in Only in three cores. Bone scan clean. Subsequently had 28 rounds of radiation and three rounds of CyberKnife
My 78 year old husband was diagnosed with prostate cancer Gleason 8 two years ago. ( Urologist noticed a very slight rise in psa and located a tumor after dre. Biopsy showed cancerous cells in Only in three cores. Bone scan clean. Subsequently had 28 rounds of radiation and three rounds of CyberKnife
Pastaking
in
Advanced Prostate Cancer
4 months ago
NDT Advice
My consultant has given me a private prescription for NDT Armour one and a half grains at 7.30 am then one grain at 12.00pm i currently take levo 125 and t3 10 every morning. Is this a high dose of NDT compared to the synthetic i am taking i wonder also why he splits the dose am very nervous about switching
My consultant has given me a private prescription for NDT Armour one and a half grains at 7.30 am then one grain at 12.00pm i currently take levo 125 and t3 10 every morning. Is this a high dose of NDT compared to the synthetic i am taking i wonder also why he splits the dose am very nervous about switching
starbuck10
in
Thyroid UK
4 months ago
Starting Chemo in May via trial
Thanks to everyone for all of their great questions and converstions on this site. Check my bio for background. 2 months into ADT therapy after diagnosis in January. I am starting docetaxyl chemo via an NIH trial in May. M9241 - https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10230972/. We are hopeful
Thanks to everyone for all of their great questions and converstions on this site. Check my bio for background. 2 months into ADT therapy after diagnosis in January. I am starting docetaxyl chemo via an NIH trial in May. M9241 - https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10230972/. We are hopeful
4tunate1
in
Advanced Prostate Cancer
4 months ago
Following SOC here in BC Canada
I am currently at the CRPC stage of my disease. About 7 years since diagnosis. Started with ADT and Docetaxel. Was able to be castrate sensitive for 4.5 years. Tried to add Abiraterone and it failed after a couple of months. Had Radium 223 and it was okay but did nothing to the PSA. Cancer kept progressing
I am currently at the CRPC stage of my disease. About 7 years since diagnosis. Started with ADT and Docetaxel. Was able to be castrate sensitive for 4.5 years. Tried to add Abiraterone and it failed after a couple of months. Had Radium 223 and it was okay but did nothing to the PSA. Cancer kept progressing
Islandboy2021
in
Advanced Prostate Cancer
4 months ago
Effectiveness of ADT
Hii , I am here and posting on behalf of my father . He is 69 year old and is diagnosed with metastatic prostate cancer with mets to spinal cord . His PSA was 79.5 and Gleason 5+5. One month earlier doctors started hormone therapy (Lupron 22.5 mg along with Abiraterone and iron and calcium tablets
Hii , I am here and posting on behalf of my father . He is 69 year old and is diagnosed with metastatic prostate cancer with mets to spinal cord . His PSA was 79.5 and Gleason 5+5. One month earlier doctors started hormone therapy (Lupron 22.5 mg along with Abiraterone and iron and calcium tablets
jeetu_g27
in
Advanced Prostate Cancer
4 months ago
Sourcing NDT medication
Hi, I’d appreciate anyone who can PM me with their current source for thyroid medication. I’m in the UK and managed to get Thyroid-s from a thailand shop a few years back, which was much better value than the US pharmacy I was using before that, but I’ve discovered they no longer exist. Hope you can
Hi, I’d appreciate anyone who can PM me with their current source for thyroid medication. I’m in the UK and managed to get Thyroid-s from a thailand shop a few years back, which was much better value than the US pharmacy I was using before that, but I’ve discovered they no longer exist. Hope you can
littlemissmartha1979
in
Thyroid UK
4 months ago
Newly Diagnosed
Hi. Thanks for allowing me into the forum. I was diagnosed on Monday that I have 2 anterior tumours. My PSA scores were 9.92 & 10.42. Gleason score of 7 (3 + 4) T3a. No cancer seen in the Lymph nodes. 7 in 11 cores , 5 out of 6 sites with maximum 90% core involvement. It is breaking into the outer casing
Hi. Thanks for allowing me into the forum. I was diagnosed on Monday that I have 2 anterior tumours. My PSA scores were 9.92 & 10.42. Gleason score of 7 (3 + 4) T3a. No cancer seen in the Lymph nodes. 7 in 11 cores , 5 out of 6 sites with maximum 90% core involvement. It is breaking into the outer casing
Tulile
in
Prostate Cancer Network
4 months ago
Update recent PSMA
Docs did it to me again with the usual bad news. Uptake in new lymph node locations in pelvis. the radiotherapy failed, and preclude more treatment on new nodal areas. (according to Docs.) So expect to add to ADT, abi or enza or darolutamide in a short while, with PSA going up on a fast double.
Docs did it to me again with the usual bad news. Uptake in new lymph node locations in pelvis. the radiotherapy failed, and preclude more treatment on new nodal areas. (according to Docs.) So expect to add to ADT, abi or enza or darolutamide in a short while, with PSA going up on a fast double.
kainasar
in
Advanced Prostate Cancer
4 months ago
CV and Bone Health when ADT is a treatment option.
Thought this provided a useful framework to guide discussion with my medical team when discussing whether or not and what to do about CV and bone health when starting on ADT. https://www.urotoday.com/conference-highlights/eau-2024/eau-2024-prostate-cancer/151136-eau-2024-synchronous-mhspc-what-are-the-treatment-options-and-what-are-the-goals-of-treatment-what-to-test-before-start-of-hormonal-treatment-and-what-to-monitor.html
Thought this provided a useful framework to guide discussion with my medical team when discussing whether or not and what to do about CV and bone health when starting on ADT. https://www.urotoday.com/conference-highlights/eau-2024/eau-2024-prostate-cancer/151136-eau-2024-synchronous-mhspc-what-are-the-treatment-options-and-what-are-the-goals-of-treatment-what-to-test-before-start-of-hormonal-treatment-and-what-to-monitor.html
Hawk56
in
Advanced Prostate Cancer
4 months ago
Can someone pm me re sourcing NDT, much appreciated
I have hashimotos and currently taking NDT, finding it difficult to source.
I have hashimotos and currently taking NDT, finding it difficult to source.
RedShells
in
Thyroid UK
4 months ago
Treatment options
I am 47 years old diagnosed with PC last month with Gleason score 9(5,4) and was advised ADT treatment with Bicalutamide and followed by Lupron 30 mg after two weeks. PSA was 77 in Jan and dropped to 23 after starting ADT treatment and already feeling better with much less urinary symptoms. I was advised
I am 47 years old diagnosed with PC last month with Gleason score 9(5,4) and was advised ADT treatment with Bicalutamide and followed by Lupron 30 mg after two weeks. PSA was 77 in Jan and dropped to 23 after starting ADT treatment and already feeling better with much less urinary symptoms. I was advised
mtechguy
in
Advanced Prostate Cancer
4 months ago
What is done in this case ? ADT not working
In may of 2011 the PSA and Biopsy showed that I had an agressive cancer with Gleason 8 so my prostate was extracted and after this I received radiotherapy. Since during the following 9 years my psa continued very low, I suspended checking it and last september I received the surprise that it had increased
In may of 2011 the PSA and Biopsy showed that I had an agressive cancer with Gleason 8 so my prostate was extracted and after this I received radiotherapy. Since during the following 9 years my psa continued very low, I suspended checking it and last september I received the surprise that it had increased
Alfy47
in
Prostate Cancer Network
4 months ago
XTANDI(Enzalutamide) Granted European Commission Approval for Use in Additional Recurrent Early Prostate Cancer Treatment Setting
...well...the title speaks for itself XTANDI is now the first and only novel hormone therapy available for the treatment of high-risk biochemical recurrent non-metastatic hormone-sensitive prostate cancer in the European Union (EU) XTANDI can be given alone or in combination with androgen deprivation
...well...the title speaks for itself XTANDI is now the first and only novel hormone therapy available for the treatment of high-risk biochemical recurrent non-metastatic hormone-sensitive prostate cancer in the European Union (EU) XTANDI can be given alone or in combination with androgen deprivation
Maxone73
in
Advanced Prostate Cancer
4 months ago
Getting Desiccated Thyroid Prescribed on NHS - and how YOU did it?
I have been nudged to create a blog article about getting desiccated Thyroid (NDT) prescribed through the NHS. However, I have no personal experience of this and am asking for help. I’m moderately aware of what has happened in the past. But what I want is to describe the steps to getting a prescription
I have been nudged to create a blog article about getting desiccated Thyroid (NDT) prescribed through the NHS. However, I have no personal experience of this and am asking for help. I’m moderately aware of what has happened in the past. But what I want is to describe the steps to getting a prescription
helvella
Thyroid UK
in
Thyroid UK
4 months ago
How do I get my NDT on the NHS
I was diagnosed with Hashimotos hypothyroidism 3 years ago. have had 3 years of feeling terrible, weight gain, hair loss, pains, high BP, high. Cholesterol and now stage 3 CKD. I am in 63 but have always looked after myself but all I was getting your TSH is good so it's not your thyroid, it's just your
I was diagnosed with Hashimotos hypothyroidism 3 years ago. have had 3 years of feeling terrible, weight gain, hair loss, pains, high BP, high. Cholesterol and now stage 3 CKD. I am in 63 but have always looked after myself but all I was getting your TSH is good so it's not your thyroid, it's just your
MAIZIEP
in
Thyroid UK
4 months ago
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