A rough few days, not feeling my best but could not define anything specific. Went for breathing tests at hospital and when I asked about results was told my results were not as good as last time but the consultant would explain more at next appointment. End of May. Felt a bit down after 5 months of Mycophenolate I hoped I would be stable . Then on Friday afternoon suddenly felt unwell. SOB big time - sats unstable. Called 111 to ask for a GP assessment. Ambulance was with me in 15 mins. Oxygen and into hospital. Xray showed LRTI. Couldn’t talk by this time, just sounded like a Hubble bubble pipe! All I can say is thank goodness for antibiotics. After 3 days in hospital I am now home as a patient of a virtual ward. I send in my obs twice a day by a nifty bit of kit and someone reviews them. Happy to be home but the Drs in respiratory unit said I probably need to go onto the next tablet- Nintedanib but they would leave that for the ILD team to decide.
I know I am fortunate, loving family and supportive friends but sometimes life can be such a blooming challenge!!! Sorry for my 😞
Stay well everyone X