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Experiences with
Natural desiccated thyroid (NDT)
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Hope For All
Cindy, I am sorry for your loss and wanted to share the prayers of myself and my wife. I, too, have a great caregiver, my wife Lyna, in this my 8th year of the prostate cancer battle; I was originally diagnosed at age 57 with stage 2a. In 2019, it became stage 4 and radiation/chemo/ADT. Thanks be
Cindy, I am sorry for your loss and wanted to share the prayers of myself and my wife. I, too, have a great caregiver, my wife Lyna, in this my 8th year of the prostate cancer battle; I was originally diagnosed at age 57 with stage 2a. In 2019, it became stage 4 and radiation/chemo/ADT. Thanks be
fmh1
in
Advanced Prostate Cancer
1 year ago
28 day versus 3 monthly Zoladex side effect -
I am wondering about the different side effects experienced by any others here on 28 day monthly goselerin (Zoladex) implants as opposed to the 3 monthly version. I have had 5 monthly implants and note that the fatigue and muscle aches seem to subside somewhat 2 and a bit weeks after the implant. It’
I am wondering about the different side effects experienced by any others here on 28 day monthly goselerin (Zoladex) implants as opposed to the 3 monthly version. I have had 5 monthly implants and note that the fatigue and muscle aches seem to subside somewhat 2 and a bit weeks after the implant. It’
SimMartin
in
Advanced Prostate Cancer
1 year ago
Has anyone had a hysterectomy early 30s
I'm 31 years old I've had 3 surgeries in the last 8 years most recent surgery 2021. I know a hysterectomy is not a cure but I wanted to see if anyone had had one early and felt it was actual worth it. I don't have any children nor do I want to try to have a child. I've tried every hormone treatment possible
I'm 31 years old I've had 3 surgeries in the last 8 years most recent surgery 2021. I know a hysterectomy is not a cure but I wanted to see if anyone had had one early and felt it was actual worth it. I don't have any children nor do I want to try to have a child. I've tried every hormone treatment possible
Rach1701
in
Endometriosis UK
1 year ago
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Ferritin higher, Folate lower even though supplementing with B Complex what’s going on?!
Since taking
NDT
my gut issues have noticeably improved. I have always had a lowish Folate level but I think this the worst I’ve had even though I have recently been supplementing with Thorne B Complex. I took 1 capsule on average alternate days.
Since taking
NDT
my gut issues have noticeably improved. I have always had a lowish Folate level but I think this the worst I’ve had even though I have recently been supplementing with Thorne B Complex. I took 1 capsule on average alternate days.
SmPea
in
Thyroid UK
2 years ago
Orgovyx denied by insurance, husband has heart failure
My husband recently had RALP and unfortunately the PSA didn’t drop and PSMA scan revealed a few lymph nodes in the pelvis. He will be having 39 sessions of radiation and ADT. He has early stages of heart failure and the doctor wants him on Orgovyx due to fewer cardiac effects. Our insurance has
My husband recently had RALP and unfortunately the PSA didn’t drop and PSMA scan revealed a few lymph nodes in the pelvis. He will be having 39 sessions of radiation and ADT. He has early stages of heart failure and the doctor wants him on Orgovyx due to fewer cardiac effects. Our insurance has
JLR65
in
Advanced Prostate Cancer
1 year ago
rising psa but scans are clear
I had brachytherapy 6 years ago for prostate cancer, Gleason score 6. PSA went down to under 1. Now it has risen over the years to 10.8 but all scans, PET, CT, and biopsy of prostate are totally clear. My urologist want to put me on Elegard (hormone therapy) that will make my quality of life terrible
I had brachytherapy 6 years ago for prostate cancer, Gleason score 6. PSA went down to under 1. Now it has risen over the years to 10.8 but all scans, PET, CT, and biopsy of prostate are totally clear. My urologist want to put me on Elegard (hormone therapy) that will make my quality of life terrible
planetman
in
Advanced Prostate Cancer
1 year ago
Viagra
Is it worth trying viagra now I had my last ADT injection 3 months ago.
Is it worth trying viagra now I had my last ADT injection 3 months ago.
Coggeshall
in
Prostate Cancer Network
1 year ago
Pain near groin, but no PSA detected?
MyGuy is having severe pain low, just left of his groin. It’s not always there, but today it was bad for quite a while. He had a bone scan of his pelvis and an mri last June and nothing was noted. His three PSA tests since June (with the last in January) have been undetectable. When pain was mentioned
MyGuy is having severe pain low, just left of his groin. It’s not always there, but today it was bad for quite a while. He had a bone scan of his pelvis and an mri last June and nothing was noted. His three PSA tests since June (with the last in January) have been undetectable. When pain was mentioned
VeeBeez
in
Advanced Prostate Cancer
1 year ago
To treat or not to treat
In 2017 and 2019 I had SBRT to two bone metastases identified using a PSMA scan. No other sites were identified. By March 2020 this had caused my PSA to drop to virtually undetectable and I decided to come off ADT which I had been on (with some breaks) since April 2011 after RRP and RT to the prostate
In 2017 and 2019 I had SBRT to two bone metastases identified using a PSMA scan. No other sites were identified. By March 2020 this had caused my PSA to drop to virtually undetectable and I decided to come off ADT which I had been on (with some breaks) since April 2011 after RRP and RT to the prostate
AgedTenor
in
Advanced Prostate Cancer
1 year ago
Newly diagnosed Prostate Cancer
71 years old in Canada. I was just diagnosed Gleason 8 (10 cores out of12 pos. with 5- Grade group 1, 3 -GG4 and 2 -GG3). Mostly on the left side and shallow. CT was normal, no enlarged lymph nodes or any other problems. Bone scan to come in 2 days. My PSA was initially 16 (5 years after my
71 years old in Canada. I was just diagnosed Gleason 8 (10 cores out of12 pos. with 5- Grade group 1, 3 -GG4 and 2 -GG3). Mostly on the left side and shallow. CT was normal, no enlarged lymph nodes or any other problems. Bone scan to come in 2 days. My PSA was initially 16 (5 years after my
Wicker12
in
Advanced Prostate Cancer
1 year ago
Interesting paper summarising state of art (2022) for ADT
The paper below gives a useful summary of the history and state of the art (2022) for ADT. No mention of BAT though. A few snippets from the paper are given below. Evolution of Androgen Deprivation Therapy (ADT) and Its New Emerging Modalities in Prostate Cancer: An Update for Practicing Urologists
The paper below gives a useful summary of the history and state of the art (2022) for ADT. No mention of BAT though. A few snippets from the paper are given below. Evolution of Androgen Deprivation Therapy (ADT) and Its New Emerging Modalities in Prostate Cancer: An Update for Practicing Urologists
Graham49
in
Advanced Prostate Cancer
1 year ago
Online consultation
Would love to switch meds from levothroxine to
NDT
but I need guidance. It's impossible to find guidance in Malta so I am wondering if anyone can help by recommending someone in the UK who can do online consultations? Many thanks in advance
Would love to switch meds from levothroxine to
NDT
but I need guidance. It's impossible to find guidance in Malta so I am wondering if anyone can help by recommending someone in the UK who can do online consultations? Many thanks in advance
MalteserDingli
in
Thyroid UK
2 years ago
Beat Prostate Cancer
I was reading some clinical trial data the other day. To summarize, the treatment being tested did not pass muster. It worked marginally better than standard of care but not well enough to change standard of care. The irony of the study concerned overall survival and progression free survival. The control
I was reading some clinical trial data the other day. To summarize, the treatment being tested did not pass muster. It worked marginally better than standard of care but not well enough to change standard of care. The irony of the study concerned overall survival and progression free survival. The control
Todd1963
in
Advanced Prostate Cancer
1 year ago
How to swap on ndt
Last time I was on
ndt
I took 3.5 gr.
Last time I was on
ndt
I took 3.5 gr.
hipolion
in
Thyroid UK
2 years ago
PSA Rising While on ADT and Abiraterone
I started Abiraterone in November 2022 and my PSA was 3.83. Over the last few months it dropped to 2.71, 2.50 and then 3.02 and now 3.28. Does this mean I am not responding to the Abiraterone any longer. I have only been on it for 3.5 months. Am I doing something that is interfering with the drug.
I started Abiraterone in November 2022 and my PSA was 3.83. Over the last few months it dropped to 2.71, 2.50 and then 3.02 and now 3.28. Does this mean I am not responding to the Abiraterone any longer. I have only been on it for 3.5 months. Am I doing something that is interfering with the drug.
Islandboy2021
in
Advanced Prostate Cancer
1 year ago
Input Needed.
Hi, Looking for some communal input from this knowledgeable forum. First, some bullet point history to help fine tune the responses: • I was diagnosed with advanced stage, mPC in mid-2020. I have a rare type of PC that does not exhibit elevated PSA. It’s very aggressive and difficult to treat. My PSA
Hi, Looking for some communal input from this knowledgeable forum. First, some bullet point history to help fine tune the responses: • I was diagnosed with advanced stage, mPC in mid-2020. I have a rare type of PC that does not exhibit elevated PSA. It’s very aggressive and difficult to treat. My PSA
Blue6199
in
Advanced Prostate Cancer
1 year ago
ASCO 23 - Transdermal square-wave testosterone therapy
This might interest followers of BAT. As you no doubt know, Denmeade's BAT cycle is a 28-day modulation of testosterone [T] from ~2,000 ng/dL down to near castrate. The BAT cycle typically begins with a T-cypionate injection into muscle. In the new pilot study, T was delivered daily, transdermally
This might interest followers of BAT. As you no doubt know, Denmeade's BAT cycle is a 28-day modulation of testosterone [T] from ~2,000 ng/dL down to near castrate. The BAT cycle typically begins with a T-cypionate injection into muscle. In the new pilot study, T was delivered daily, transdermally
pjoshea13
in
Fight Prostate Cancer
1 year ago
useful 'Evidence' that TSH between 0.04 - 0.4 has no increased risk to patients on Levothyroxine (UPDATED~new study does show small risk)
This paper forms part of the evidence base for the current NHS thyroid treatment guidelines , it was referenced as evidence to back up their concerns about "low TSH /overtreatment with levo/ risk to bones and heart" ( so they cannot say it is 'not good enough evidence' when you put it under their
This paper forms part of the evidence base for the current NHS thyroid treatment guidelines , it was referenced as evidence to back up their concerns about "low TSH /overtreatment with levo/ risk to bones and heart" ( so they cannot say it is 'not good enough evidence' when you put it under their
tattybogle
in
Thyroid UK
1 year ago
Duration of ADT needed with salvage radiation
6 months? 24 months? New data from the "Formula 509" trial shows that hormone intensification with adjuvant apalutamide+abiraterone+ADT for just 6 months with salvage radiation therapy (SRT) may be all that's needed: https://www.prostatecancer.news/2023/02/duration-of-adt-needed-with-salvage.html
6 months? 24 months? New data from the "Formula 509" trial shows that hormone intensification with adjuvant apalutamide+abiraterone+ADT for just 6 months with salvage radiation therapy (SRT) may be all that's needed: https://www.prostatecancer.news/2023/02/duration-of-adt-needed-with-salvage.html
Tall_Allen
in
Advanced Prostate Cancer
1 year ago
POST PROSTATECTOMY RECURRING PSA DIAGNOSED BY PSMA PET #1: ARE PSMA PETS #2+ THEN LIMITED OR DENIED TO CONFIRM CONTINUED PSA RECURRANCE?
POST PROSTATECTOMY RECURRING PSA DIAGNOSED BY PSMA PET #1: ARE PSMA PETS #2+ THEN LIMITED OR DENIED TO CONFIRM CONTINUED PSA RECURRANCE? Does anyone have experience receiving a total of 2 or more PSMA PETs to confirm PSA recurrance as evidence of the rate of prostate cancer metastisis prior to a
POST PROSTATECTOMY RECURRING PSA DIAGNOSED BY PSMA PET #1: ARE PSMA PETS #2+ THEN LIMITED OR DENIED TO CONFIRM CONTINUED PSA RECURRANCE? Does anyone have experience receiving a total of 2 or more PSMA PETs to confirm PSA recurrance as evidence of the rate of prostate cancer metastisis prior to a
Johnnyred
in
Advanced Prostate Cancer
1 year ago
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