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Experiences with
Natural desiccated thyroid (NDT)
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Getting Slightly Concerned
In November having been on ADT for 4 months and Xtandi for just 1 month, things were looking pretty good – PSA dropped from 13 at dx to 0.33 (although I was getting a little more pain from some bone mets). Then with December’s blood test, PSA has stalled at 0.34 and the bone pain continues to increase
In November having been on ADT for 4 months and Xtandi for just 1 month, things were looking pretty good – PSA dropped from 13 at dx to 0.33 (although I was getting a little more pain from some bone mets). Then with December’s blood test, PSA has stalled at 0.34 and the bone pain continues to increase
Benkaymel
in
Advanced Prostate Cancer
1 year ago
Should I put my NDT down, since putting up my Adrenal capsules ?
Hello everybody, I’m looking for some help and reassurance for my current predicament. Presently, I take Nutri Adrenal Glandular capsules for my adrenals , they have been low for a while and i’ve slowly been raising the dosage level from 500mg in the mornings to 575 mg. At one stage, I did try
Hello everybody, I’m looking for some help and reassurance for my current predicament. Presently, I take Nutri Adrenal Glandular capsules for my adrenals , they have been low for a while and i’ve slowly been raising the dosage level from 500mg in the mornings to 575 mg. At one stage, I did try
C70rol
in
Thyroid UK
2 years ago
First ever PSMA scan shows two small bone lesions
I recently posted about my father who had just completed IMRT and three years of Lupron (no mets seen on bone/CT scans). At the time his MO was suggesting adding Zytiga per studies showing its effectiveness with ADT at diagnosis for localized high grade cancer (he is Gleason 9). MO also ordered PSMA
I recently posted about my father who had just completed IMRT and three years of Lupron (no mets seen on bone/CT scans). At the time his MO was suggesting adding Zytiga per studies showing its effectiveness with ADT at diagnosis for localized high grade cancer (he is Gleason 9). MO also ordered PSMA
mooman80
in
Advanced Prostate Cancer
1 year ago
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Prostate removal after radiation??
Since diagnosis (2016) I've had chemo (taxotere), 25 radiation sessions on my prostate, along with regular shots of ADT (Eligard). I currently have a PSA of .7 I recently had a PSMA scan, and the only cancer in my body at this point is in the prostate gland itself. The scans were sent to my urologist
Since diagnosis (2016) I've had chemo (taxotere), 25 radiation sessions on my prostate, along with regular shots of ADT (Eligard). I currently have a PSA of .7 I recently had a PSMA scan, and the only cancer in my body at this point is in the prostate gland itself. The scans were sent to my urologist
NIKKIWOOD
in
Advanced Prostate Cancer
1 year ago
Father completed 6 Docetaxel cycle among triplet therapy , Will 3 more cycles beneficial or not ? PSA -2.287
Hi everyone , Father , 56 age ,completed 6 docetaxel 3 weekly cycles (dose75mg/m2 , his total dose -135mg ), his blood reports are HB-8.7 , Platlets - 160, Alkaline Phosphate - 865 , PSA - 2.287 All other test like liver ,kidney profile , glucose within normal range . (Diagnostic PSA-385 , Alk phosphate
Hi everyone , Father , 56 age ,completed 6 docetaxel 3 weekly cycles (dose75mg/m2 , his total dose -135mg ), his blood reports are HB-8.7 , Platlets - 160, Alkaline Phosphate - 865 , PSA - 2.287 All other test like liver ,kidney profile , glucose within normal range . (Diagnostic PSA-385 , Alk phosphate
Helllfire
in
Advanced Prostate Cancer
1 year ago
NDT sourcing
I just wondered if anyone could PM me where they get their
NDT
from? My usual supplier has become incredibly expensive since Naturethroid (and the others) became unavailable. I remember someone mentioning Thai
NDT
being cheaper? I'm really struggling to afford Armour. Thanks in advance.
I just wondered if anyone could PM me where they get their
NDT
from? My usual supplier has become incredibly expensive since Naturethroid (and the others) became unavailable. I remember someone mentioning Thai
NDT
being cheaper? I'm really struggling to afford Armour. Thanks in advance.
TEGS
in
Thyroid UK
2 years ago
RADIOTHERAPY to prostate. Nearly finished chemo/doxetaxel, am on ADT injections PSA 0.11,
oncologist recomends 6 radiotherapy to the prostate in march. Gleason 9, PCA mets in hip DX July ish. .Would any one mind giving experience and opinions on taking radiotherapy. I've said yes, but know it's 50/50 for any benifit, but realise there's a possible price to pay with side effects short and
oncologist recomends 6 radiotherapy to the prostate in march. Gleason 9, PCA mets in hip DX July ish. .Would any one mind giving experience and opinions on taking radiotherapy. I've said yes, but know it's 50/50 for any benifit, but realise there's a possible price to pay with side effects short and
Mrtroxely
in
Advanced Prostate Cancer
1 year ago
PSA and CT Questions -- 15 Months Following Diagnosis
I would appreciate your feedback on whether the recent small increase in PSA from 0.06 to 0.08 ng/mL for my 90-year-old dad is potentially significant. He is one year into ADT. Also, a CT abdomen/pelvis scan conducted yesterday revealed "sclerotic bony lesions". There was no mention of sclerotic bony
I would appreciate your feedback on whether the recent small increase in PSA from 0.06 to 0.08 ng/mL for my 90-year-old dad is potentially significant. He is one year into ADT. Also, a CT abdomen/pelvis scan conducted yesterday revealed "sclerotic bony lesions". There was no mention of sclerotic bony
Merlot1
in
Advanced Prostate Cancer
1 year ago
Ring the bell day tomorrow!!
35 rounds of IMRT and in month 3 of 6 ADT after failed RALP. Glad to put the daily trips in the rear view mirror. Head to Mexico in a couple months to celebrate. Fingers crossed for a long time to any new BCR. My hats off to all you warriors enduring your journey.
35 rounds of IMRT and in month 3 of 6 ADT after failed RALP. Glad to put the daily trips in the rear view mirror. Head to Mexico in a couple months to celebrate. Fingers crossed for a long time to any new BCR. My hats off to all you warriors enduring your journey.
runtrails
in
Advanced Prostate Cancer
1 year ago
BAT Question
I would like to know for those folks experimenting with BAT or actively doing so with their MO once your T rises again and then when you reinitiate ADT do you go through the whole hot flash cycle again? Is it the constant back and forth feeling of feeling great and then like crap? I am still hormone
I would like to know for those folks experimenting with BAT or actively doing so with their MO once your T rises again and then when you reinitiate ADT do you go through the whole hot flash cycle again? Is it the constant back and forth feeling of feeling great and then like crap? I am still hormone
watertender
in
Advanced Prostate Cancer
1 year ago
Had to Laugh
Just recently started Orgavyx. Soon after got an email entitled: >>>>>>>>>>>>>> Welcome to ADT >>>>>>>>>>>>>>> ...for their security systems, of course. I've seen their signs. Always has a "different" meaning for me... SIGH... Mel
Just recently started Orgavyx. Soon after got an email entitled: >>>>>>>>>>>>>> Welcome to ADT >>>>>>>>>>>>>>> ...for their security systems, of course. I've seen their signs. Always has a "different" meaning for me... SIGH... Mel
compiler
in
Advanced Prostate Cancer
1 year ago
bone pain
I have stage 4 with spot on pelvic bone. My psa has gone down to .1 with hormone therapy. My question is why would my bone hurt worse with such a low psa Thanks Bill
I have stage 4 with spot on pelvic bone. My psa has gone down to .1 with hormone therapy. My question is why would my bone hurt worse with such a low psa Thanks Bill
bill1029384756
in
Advanced Prostate Cancer
1 year ago
Hoping for Urologist Recommendations/Referrals in the LA/OC CA area.
4 years post Proton Radiation and ADT. I’m now having a few urination issues. Current urologist seems stumped. Hoping to find a new urologist in the LA/OC CA area that might have more experience with post radiation issues and treatment. Any names would be appreciated.
4 years post Proton Radiation and ADT. I’m now having a few urination issues. Current urologist seems stumped. Hoping to find a new urologist in the LA/OC CA area that might have more experience with post radiation issues and treatment. Any names would be appreciated.
Tristag
in
Advanced Prostate Cancer
1 year ago
First Post
I have been reading everything I can here, but still feel a little terminology and technically lacking. What would be helpful in helping new members is very very basic terms until they get up to speed. I have several questions. I am gleason 8, de novo, lymph node involvement in pelvic region, and one
I have been reading everything I can here, but still feel a little terminology and technically lacking. What would be helpful in helping new members is very very basic terms until they get up to speed. I have several questions. I am gleason 8, de novo, lymph node involvement in pelvic region, and one
Sam2346
in
Advanced Prostate Cancer
1 year ago
Testosterone gradually going down while PSA gradually going up (I'm not currently on any treatment)
Hello folks! I checked my blood results today (and I have an appointment next week with the oncologist to discuss them.) Basically, I had an RP in the summer of 2019 with a Gleason of 4 + 3. I had follow-up radiation and hormone therapy for 9 months. Both testosterone and PSA went to and stayed
Hello folks! I checked my blood results today (and I have an appointment next week with the oncologist to discuss them.) Basically, I had an RP in the summer of 2019 with a Gleason of 4 + 3. I had follow-up radiation and hormone therapy for 9 months. Both testosterone and PSA went to and stayed
Terry33
in
Advanced Prostate Cancer
1 year ago
PSA increase with anxiety
Dx 2012 at age 58 ,RP(2012). G(3+4). SRT (2017) to prostate bed only with No ADT. Psa continued to rise to 1.5. Psma scan showed many small LN lesions in pelvic and abdomen. Nothing showed on usual CT&Bone scans. Started ADT(monthly Firmogon ) on 11/20 Current psa is undetectable on 11/21 Stopped ADT
Dx 2012 at age 58 ,RP(2012). G(3+4). SRT (2017) to prostate bed only with No ADT. Psa continued to rise to 1.5. Psma scan showed many small LN lesions in pelvic and abdomen. Nothing showed on usual CT&Bone scans. Started ADT(monthly Firmogon ) on 11/20 Current psa is undetectable on 11/21 Stopped ADT
Ahk1
in
Advanced Prostate Cancer
1 year ago
Gut Microbiome, ADT & Doxycycline
In recent years there has been increased awareness of the importance of the gut microbiome for good health. I stopped Minocycline when I decided to give Akkermansia a try. It's been a while since my Akkermansia supply ran out. I have just begun using Doxycycline & pondering the implications. One
In recent years there has been increased awareness of the importance of the gut microbiome for good health. I stopped Minocycline when I decided to give Akkermansia a try. It's been a while since my Akkermansia supply ran out. I have just begun using Doxycycline & pondering the implications. One
pca2004
in
Fight Prostate Cancer
1 year ago
Estrogen , progesterone , Drugs that suppress immune system may protect against Parkinson’s
Drugs that suppress immune system may protect against Parkinson’s People taking corticosteroids such as prednisone were 20 percent less likely to be diagnosed with Parkinson's, while those on inosine monophosphate dehydrogenase (IMDH) inhibitors were about one-third less likely https://medicine.wustl.edu
Drugs that suppress immune system may protect against Parkinson’s People taking corticosteroids such as prednisone were 20 percent less likely to be diagnosed with Parkinson's, while those on inosine monophosphate dehydrogenase (IMDH) inhibitors were about one-third less likely https://medicine.wustl.edu
Little_apple
in
Cure Parkinson's
1 year ago
SUCCESS! Thank you everyone!
A few of you voiced concerns that she had asked me to come off my
NDT
for 6 weeks to do testing and putting my health at risk. I really hit rock bottom with self doubt and I was in a really really dark place.
A few of you voiced concerns that she had asked me to come off my
NDT
for 6 weeks to do testing and putting my health at risk. I really hit rock bottom with self doubt and I was in a really really dark place.
Beau55
in
Thyroid UK
2 years ago
How content should I be with my current treatment 🤷
Yay, I finally expanded my treatment history into a useful document! Just did the update. The dust seems to have settled into my current treatment of Lupron, Abiraterone, and Prednisone. And I have to admit I'm enjoying riding that path quietly for a while. On the other hand I'm still confused about
Yay, I finally expanded my treatment history into a useful document! Just did the update. The dust seems to have settled into my current treatment of Lupron, Abiraterone, and Prednisone. And I have to admit I'm enjoying riding that path quietly for a while. On the other hand I'm still confused about
Lewellen
in
Advanced Prostate Cancer
1 year ago
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