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Experiences with
Munchausen's syndrome by proxy
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methadone no longer helping
I am 87 and live in Australia I have had RLS for at least 4 decades. Only slept when on morale’s. Finally got methadone and had a heavenly 5 hours sleep for 4 years now. I had multiple pulmonary embolisms last year. No source found I needed increase of Methadone to 10 mg twice daily due to anticoagulants
I am 87 and live in Australia I have had RLS for at least 4 decades. Only slept when on morale’s. Finally got methadone and had a heavenly 5 hours sleep for 4 years now. I had multiple pulmonary embolisms last year. No source found I needed increase of Methadone to 10 mg twice daily due to anticoagulants
wairoa36
in
Restless Legs Syndrome
2 months ago
Switching to pregabalin or gabapentin from methadone
I have very much appreciated the information here over several years but never posted before. I have been able to control my RLS (which I’ve had since teen years along with several family members - I’m now 80) with a divided 10 mg daily dose of methadone, prescribed by my sympathetic GP here in Canada
I have very much appreciated the information here over several years but never posted before. I have been able to control my RLS (which I’ve had since teen years along with several family members - I’m now 80) with a divided 10 mg daily dose of methadone, prescribed by my sympathetic GP here in Canada
Cedarish
in
Restless Legs Syndrome
2 months ago
Physically cutting buprenorphine pills
After going through augmentation with pramipexole and no luck with gabapentin or lyrica, I was prescribed buprenorphine about 5 weeks ago and it has been a miracle. No RLS at all. I have found that a dose of .25 mg about 45 minutes before bed works perfectly. The problem I have is that the smallest
After going through augmentation with pramipexole and no luck with gabapentin or lyrica, I was prescribed buprenorphine about 5 weeks ago and it has been a miracle. No RLS at all. I have found that a dose of .25 mg about 45 minutes before bed works perfectly. The problem I have is that the smallest
SleeplessInNS
in
Restless Legs Syndrome
2 months ago
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DA withdrawal progress
Hi F58 UK Update on withdrawing from Ropinirole tablets. I have had RLS for over 10 yrs and tried Pramipexol, then changed to Ropinirole. After visiting consultant they recommended Gabapentin. After advice from this forum I am reducing my Ropinirole. My Ropinirole dose was 1.5mg 3 x day. Gabapentin
Hi F58 UK Update on withdrawing from Ropinirole tablets. I have had RLS for over 10 yrs and tried Pramipexol, then changed to Ropinirole. After visiting consultant they recommended Gabapentin. After advice from this forum I am reducing my Ropinirole. My Ropinirole dose was 1.5mg 3 x day. Gabapentin
Louless9
in
Restless Legs Syndrome
2 months ago
Ropinirole
Good Morning, My restless legs started in 2003 when I was pregnant with my son, after I had him they went away. Then around 2019 they came back with a vengeance. After an appointment with the Doctor I was put on Ropinirole, over the years my dose has gradually increased. I have been on 1.5mg for
Good Morning, My restless legs started in 2003 when I was pregnant with my son, after I had him they went away. Then around 2019 they came back with a vengeance. After an appointment with the Doctor I was put on Ropinirole, over the years my dose has gradually increased. I have been on 1.5mg for
deluxebar
in
Restless Legs Syndrome
2 months ago
Dr Glen Z brooks NYC
I met with Glen a couple of weeks ago , he is now 76 and no longer taking in new RLS patients It has become increasingly difficult for him to prescribe Buprenorphine the biggest problem is he cannot find doctors who will continue to prescribe for Buprenorphine when he is no longer working. Glen said
I met with Glen a couple of weeks ago , he is now 76 and no longer taking in new RLS patients It has become increasingly difficult for him to prescribe Buprenorphine the biggest problem is he cannot find doctors who will continue to prescribe for Buprenorphine when he is no longer working. Glen said
Shumbah
in
Restless Legs Syndrome
2 months ago
I need your help 😢
I have been on ropinirole for about 8 years. I started out with 1 mg at night and after a few years it progressed to 1 mg in the morning, 1 mg at 3 pm, and 2 mg at 8 pm to regulate my RLS. About 6 months ago I began to wein off the Ropinirole. About 3 months ago when I got to 1 and 1/2 mg I started
I have been on ropinirole for about 8 years. I started out with 1 mg at night and after a few years it progressed to 1 mg in the morning, 1 mg at 3 pm, and 2 mg at 8 pm to regulate my RLS. About 6 months ago I began to wein off the Ropinirole. About 3 months ago when I got to 1 and 1/2 mg I started
Hotrodder
in
Restless Legs Syndrome
2 months ago
Which treatment after dopamine agonist withdrawal?
I'm currently fighting to withdraw from dopamine agonist (DA) after a severe augmentation. I was prescribed some other drugs to help me go through this process (tramadol, pregabaline, clonazepan, wellbrutin). My plan is to get back to my pre-DA RLS baseline level, and to treat them with pregabaline only
I'm currently fighting to withdraw from dopamine agonist (DA) after a severe augmentation. I was prescribed some other drugs to help me go through this process (tramadol, pregabaline, clonazepan, wellbrutin). My plan is to get back to my pre-DA RLS baseline level, and to treat them with pregabaline only
Mikatrap
in
Restless Legs Syndrome
2 months ago
For those taking methadone, do you think it affects your sleep quality?
Having gotten rid of almost all (but not quite!) Mirapex nearly 2 years ago, my current meds are 0.125 mg Mirapx, 600 mg Horizant, and 10 mg methadone. Eventually I hope to taper the Mirapex to zero. I have a vulnerability to obstructive sleep apnea and once my specialist had transitioned me to increasing
Having gotten rid of almost all (but not quite!) Mirapex nearly 2 years ago, my current meds are 0.125 mg Mirapx, 600 mg Horizant, and 10 mg methadone. Eventually I hope to taper the Mirapex to zero. I have a vulnerability to obstructive sleep apnea and once my specialist had transitioned me to increasing
UsableThought
in
Restless Legs Syndrome
2 months ago
Off topic. This is me done with hols abroad 😔
So here I am, lying on the bed in a villa in menorca. My T9 compression fracture is back in pain with avengence! Saw doc on 2nd day here but pain killers he gave me are no good. So messaged him today asking for morphine to get me through 2 more days and flight home on Sunday. Don't know what I'll do
So here I am, lying on the bed in a villa in menorca. My T9 compression fracture is back in pain with avengence! Saw doc on 2nd day here but pain killers he gave me are no good. So messaged him today asking for morphine to get me through 2 more days and flight home on Sunday. Don't know what I'll do
Haz58
in
NRAS
2 months ago
Fantastic Improvement!
Wow! What a fantastic improvement there is so far and wanted to share in case it helps anyone else. Also thanks to the members in here who gave me advice. I’ve increased my gabapentin to 1500mg (600mg at 6pm/600mg at 8pm/300mg at10pm) and one 30 mg dihydrocodeine with the 10pm dose. Now getting to sleep
Wow! What a fantastic improvement there is so far and wanted to share in case it helps anyone else. Also thanks to the members in here who gave me advice. I’ve increased my gabapentin to 1500mg (600mg at 6pm/600mg at 8pm/300mg at10pm) and one 30 mg dihydrocodeine with the 10pm dose. Now getting to sleep
Islay9
in
Restless Legs Syndrome
2 months ago
Needing more info on Buprenorphine
hi, I’m due an appointment with consultant next Thursday , my RLS are severe and have recently been suffering anxiety and depression, my mood has now lifted , and now I need to get my RLS under control , as I feel that will help me cope better with the anxiety , I have in the past augmented on pramipexole
hi, I’m due an appointment with consultant next Thursday , my RLS are severe and have recently been suffering anxiety and depression, my mood has now lifted , and now I need to get my RLS under control , as I feel that will help me cope better with the anxiety , I have in the past augmented on pramipexole
Kiram
in
Restless Legs Syndrome
3 months ago
how to cope
I have suffered with restless legs for many years but didn’t know it was a condition until about a year or so ago then the Gp handed me a prescription for Ropinarole which at first worked but then needed increase dose. anyway I weened off them but my legs are still restless and I take magnesium glycinate
I have suffered with restless legs for many years but didn’t know it was a condition until about a year or so ago then the Gp handed me a prescription for Ropinarole which at first worked but then needed increase dose. anyway I weened off them but my legs are still restless and I take magnesium glycinate
Suzi88
in
Restless Legs Syndrome
3 months ago
Can't believe I did this
I've had RLS for 15 plus years, mainly being treated with Sinemet (1 tab 25/100) over the years, with Ropinirole and more painfully, Pramipexole which caused severe augmentation a year ago. Three weeks ago, I had surgery for right anterior tibial tendon repair on my right ankle BECAUSE I stretched it
I've had RLS for 15 plus years, mainly being treated with Sinemet (1 tab 25/100) over the years, with Ropinirole and more painfully, Pramipexole which caused severe augmentation a year ago. Three weeks ago, I had surgery for right anterior tibial tendon repair on my right ankle BECAUSE I stretched it
dickwalhout
in
Restless Legs Syndrome
3 months ago
Appreciate some guidance
Hello After MANY years, I am finally fully off pramipexole ...(Been nearly 2 months now). I find that the nasty augmentation symptoms that would start up early afternoon and go through the night have gradually subsided to the point where I can actually sit still and read a book or watch TV in the evening
Hello After MANY years, I am finally fully off pramipexole ...(Been nearly 2 months now). I find that the nasty augmentation symptoms that would start up early afternoon and go through the night have gradually subsided to the point where I can actually sit still and read a book or watch TV in the evening
Bikerguy1
in
Restless Legs Syndrome
3 months ago
some advice on Codeine and Ropinirole.
Hey guys, im after some opinions after a very disappointing call with my Drs today. After things getting very bad and down to 3/4 hours sleep on 1mg ropinirole and 450 pregabalin i found some codeine and decided to try taking 60mg at night with my meds, all at the same time apart from 150 pregab during
Hey guys, im after some opinions after a very disappointing call with my Drs today. After things getting very bad and down to 3/4 hours sleep on 1mg ropinirole and 450 pregabalin i found some codeine and decided to try taking 60mg at night with my meds, all at the same time apart from 150 pregab during
RLSAndy
in
Restless Legs Syndrome
3 months ago
hydroxyzine hydrochloride antihistamine ??? Is this safe please
hi I occasionally have to take hydroxyzine hydrochloride a prescription strength antihistamine for intersistial cystitis (non bacterial but inflammatory) when I’m in a flare I had a colonoscopy last week as a scan showed some inflammation and thickening in my descending colon they ended up removing
hi I occasionally have to take hydroxyzine hydrochloride a prescription strength antihistamine for intersistial cystitis (non bacterial but inflammatory) when I’m in a flare I had a colonoscopy last week as a scan showed some inflammation and thickening in my descending colon they ended up removing
Zenawarrior73
in
Restless Legs Syndrome
3 months ago
Edema of feet -Ropinirole and/or Gabapentin?
Do/can Ropinirole and/or Gabapentin cause edema of the feet? If yes, does edema disappear once one is off Ropinirole and/or Gabapentin? Thank you.
Do/can Ropinirole and/or Gabapentin cause edema of the feet? If yes, does edema disappear once one is off Ropinirole and/or Gabapentin? Thank you.
Palm10Tree
in
Restless Legs Syndrome
3 months ago
Diuretics
I have pretty severe edema in feet and occasionally legs.Is there a diuretic that does not trigger rls? I have tried Bumex and Metolazone. Had very bad rls soon after taking each one. I am on low dose Ropinirole -.9mg . It didn't even calm it. Appreciate any input.
I have pretty severe edema in feet and occasionally legs.Is there a diuretic that does not trigger rls? I have tried Bumex and Metolazone. Had very bad rls soon after taking each one. I am on low dose Ropinirole -.9mg . It didn't even calm it. Appreciate any input.
rmbroadh
in
Restless Legs Syndrome
3 months ago
DEXTROMETHOROHAN and RLS
I am possibly going to be taking Avuelity for MDD . I was doing some research on it because of the RLS. There was one article of a woman with RLS who was given Dextromethirphan for a cough and got significant reduction in her symptoms, to the point she stopped Gaba and kept going with the dextromethorphan
I am possibly going to be taking Avuelity for MDD . I was doing some research on it because of the RLS. There was one article of a woman with RLS who was given Dextromethirphan for a cough and got significant reduction in her symptoms, to the point she stopped Gaba and kept going with the dextromethorphan
teakabeagle
in
Restless Legs Syndrome
3 months ago
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