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Question about clinical trials
Just started my treatment for my condition last Thursday. Was given Degarelix and Zometa. The Apalutamide pills were due today by FedEx but was contacted by my oncologist to wait before taking as she wants to discuss a clinical trial with me. In opinions out there, are clinical trials a Good or
Just started my treatment for my condition last Thursday. Was given Degarelix and Zometa. The Apalutamide pills were due today by FedEx but was contacted by my oncologist to wait before taking as she wants to discuss a clinical trial with me. In opinions out there, are clinical trials a Good or
PARKER3237
in
Advanced Prostate Cancer
2 days ago
Tagrisso + Carboplatin and pemetrexed
Hi all, I'm pretty new to this. Had a thoracotomy in July to remove a 1.6cm(ish) tumour from my upper left lobe. Upon investigation my surgeon found unexpected lesions on the lower left lobe (that did not show up on the PET scan) and it seems that there are 'snowflakes' in my right lung too. Anyhow
Hi all, I'm pretty new to this. Had a thoracotomy in July to remove a 1.6cm(ish) tumour from my upper left lobe. Upon investigation my surgeon found unexpected lesions on the lower left lobe (that did not show up on the PET scan) and it seems that there are 'snowflakes' in my right lung too. Anyhow
SwimmingInTheSun
in
The Roy Castle Lung Cancer Foundation
2 days ago
Liver nodules
Hello. Just wanting to see if anyone's had similar. My brother has recently been diagnosed with stage 4 kidney cancer... they say its a genetic mutation from a certain gene which causes paraganglioma... my mum died from paraganglioma cancer when I was small. So I had a ct scan recently to check myself
Hello. Just wanting to see if anyone's had similar. My brother has recently been diagnosed with stage 4 kidney cancer... they say its a genetic mutation from a certain gene which causes paraganglioma... my mum died from paraganglioma cancer when I was small. So I had a ct scan recently to check myself
Kjs1993
in
British Liver Trust
3 days ago
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Secondary cancer
Hello all, Due to some vomiting I was experiencing, seemingly out of nowhere, I had an upper endoscopy last week. Still no word from anyone on the results, but I read them on the portal. Apparently, I now have signet ring carcinoma in my stomach. From what I have read, this is completely unrelated
Hello all, Due to some vomiting I was experiencing, seemingly out of nowhere, I had an upper endoscopy last week. Still no word from anyone on the results, but I read them on the portal. Apparently, I now have signet ring carcinoma in my stomach. From what I have read, this is completely unrelated
Nocillo
in
SHARE Metastatic Breast Cancer
3 days ago
Secondary cancer
Hello all, Due to some vomiting I was experiencing, seemingly out of nowhere, I had an upper endoscopy last week. Still no word from anyone on the results, but I read them on the portal. Apparently, I now have signet ring carcinoma in my stomach. From what I have read, this is completely unrelated
Hello all, Due to some vomiting I was experiencing, seemingly out of nowhere, I had an upper endoscopy last week. Still no word from anyone on the results, but I read them on the portal. Apparently, I now have signet ring carcinoma in my stomach. From what I have read, this is completely unrelated
Nocillo
in
SHARE Metastatic Breast Cancer
3 days ago
Do I need an MRI with Contrast or without?
Soon will get a Prostate MRI done and I am worried about possible side effects of the gadolinium based contrast agent (dye). Can I decline the dye and ask for a MRI without contrast? I don't have any prior cancer diagnosis, but my PSA is 10.9 and 12.15 (two readings, 5 days apart, different labs)
Soon will get a Prostate MRI done and I am worried about possible side effects of the gadolinium based contrast agent (dye). Can I decline the dye and ask for a MRI without contrast? I don't have any prior cancer diagnosis, but my PSA is 10.9 and 12.15 (two readings, 5 days apart, different labs)
cederpicket
in
Prostate Cancer Network
4 days ago
Proton Therapy Had PT Therapy 15 years (2009) ago 5 year follow Up No Cancer Just Diagnosed with Mets in Bone/Pelvic Lymph Nodes in 2024
Had PT Therapy at MD Anderson 15 years ago with Pencil beam radiation. Gleason at the time 2009 was 6 (3 +3) and PSA was 5.9. I am now 73. Successfully treated and follow up every year for 5 years showed my PSA at between .2-.4. For 15 years up untiil now, no symptoms. According to MD Anderson,
Had PT Therapy at MD Anderson 15 years ago with Pencil beam radiation. Gleason at the time 2009 was 6 (3 +3) and PSA was 5.9. I am now 73. Successfully treated and follow up every year for 5 years showed my PSA at between .2-.4. For 15 years up untiil now, no symptoms. According to MD Anderson,
Rcole727
in
Advanced Prostate Cancer
4 days ago
Eribulin/ Halaven experiences.
starting Eribulin after trodelvy did the trick for 6 months. I’m beet nervous and scared as you all know when starting anew chemo. Scared it won’t work and scared of side effects. I now have liver Mets🥹. I’m devastated. Can someone share some experiences with this drug? Side effects? How long they
starting Eribulin after trodelvy did the trick for 6 months. I’m beet nervous and scared as you all know when starting anew chemo. Scared it won’t work and scared of side effects. I now have liver Mets🥹. I’m devastated. Can someone share some experiences with this drug? Side effects? How long they
Maraki
in
SHARE Metastatic Breast Cancer
5 days ago
Is it Prostate Metastases or Lung cancer
Brief background- Current age 75. Prostate cancer 8 years ago. Gleason 4+3 Radiation and Eligard shots for six months. All good until 6/2023 when PSA went to .6. On 1/2024 went to 1.0 then 1.6 on 6/2024. During the last year I have had many scans. 8/23 - Pet/PSMA - Multiple right lung nodules but
Brief background- Current age 75. Prostate cancer 8 years ago. Gleason 4+3 Radiation and Eligard shots for six months. All good until 6/2023 when PSA went to .6. On 1/2024 went to 1.0 then 1.6 on 6/2024. During the last year I have had many scans. 8/23 - Pet/PSMA - Multiple right lung nodules but
wpeebles
in
Advanced Prostate Cancer
5 days ago
Life after ADT
Hello, I finished my ADT treatment 7 months ago ( ORGOVYX for 22 months . Still having emotional rollercoaster. Held my own during the cancer journey ( Brachy therapy, 25 sessions of IMRT, then ORGOVYX. I guess I was lucky only mind numbing, soul crushing fatigue, bad brain fog/confusion, shrunken
Hello, I finished my ADT treatment 7 months ago ( ORGOVYX for 22 months . Still having emotional rollercoaster. Held my own during the cancer journey ( Brachy therapy, 25 sessions of IMRT, then ORGOVYX. I guess I was lucky only mind numbing, soul crushing fatigue, bad brain fog/confusion, shrunken
watertender
in
Advanced Prostate Cancer
5 days ago
Getting 2024 off to the right start
Hello everyone, Some of the activity on our NRAS HealthUnlocked platform has recently caused us distress at NRAS and as we are still at the start of a new year, I thought I would write a post to remind us all of the purpose of this forum and press re-set. I recall clearly the first time the original
Hello everyone, Some of the activity on our NRAS HealthUnlocked platform has recently caused us distress at NRAS and as we are still at the start of a new year, I thought I would write a post to remind us all of the purpose of this forum and press re-set. I recall clearly the first time the original
Ailsa-NRAS
NRAS
in
NRAS
7 months ago
Lost my lovely Dad 48 hours ago....want to thank you all.
Dad had another spinal cord compression at C2. PSA at this point was 3700. Radiotherapy was out of the question; having had treatment there before. Came home from hospital, and we tried desperately to take him to Istanbul for Lu177. We even booked the tickets. Sadly, 24 hours later, he deteriorated
Dad had another spinal cord compression at C2. PSA at this point was 3700. Radiotherapy was out of the question; having had treatment there before. Came home from hospital, and we tried desperately to take him to Istanbul for Lu177. We even booked the tickets. Sadly, 24 hours later, he deteriorated
kikinini
in
Advanced Prostate Cancer
6 days ago
Calquence
I just was diagnosed with sll after getting an mri on my back for back pain showed a swollen lymph node on my spine. Ct and biopsy showed sll. I am supposed to get a pet scan this week and then start calquence. I am normally a very active person and am wondering what my tolerance to physical activity
I just was diagnosed with sll after getting an mri on my back for back pain showed a swollen lymph node on my spine. Ct and biopsy showed sll. I am supposed to get a pet scan this week and then start calquence. I am normally a very active person and am wondering what my tolerance to physical activity
1reb
in
CLL Support
6 days ago
recently diagnosed with 3.5cm acoustic neuroma
Hello, I’m new here 😀 in July 2024, I was diagnosed with a 3.5cm Acoustic Neuroma after having some CT scans at the hospital. I noticed my hearing was going in my right ear a couple of years ago, and thought nothing of it, until now. The ringing, buzzing and sounds of crickets is getting slightly worse
Hello, I’m new here 😀 in July 2024, I was diagnosed with a 3.5cm Acoustic Neuroma after having some CT scans at the hospital. I noticed my hearing was going in my right ear a couple of years ago, and thought nothing of it, until now. The ringing, buzzing and sounds of crickets is getting slightly worse
Longtallsally22
in
Acoustic Neuroma Support
7 days ago
FDA approved Inavolisib for PIK3 mutation
I am back on here and I wanted to share that my blood biopsy last month showed a PIK3 mutation. Then, since I am a reader, I found out that Inavolisib has just been approved to be taken with ibrance and fulvestrant I currently take ibrance and letrozole. It seems the Inavolisib has less side effects
I am back on here and I wanted to share that my blood biopsy last month showed a PIK3 mutation. Then, since I am a reader, I found out that Inavolisib has just been approved to be taken with ibrance and fulvestrant I currently take ibrance and letrozole. It seems the Inavolisib has less side effects
Godbeforme
in
SHARE Metastatic Breast Cancer
7 days ago
Seeking guidance with different Prostate Cancer biopsy results
My urologist had a local pathology laboratory perform the analysis of my biopsy and it resulted in a 4+3=7. I chose radiation therapy and went to a center of excellence and they performed another assessment of the biopsy which resulted in a 4+5=9. Finally we had Joh Hopkins assess the slides and they
My urologist had a local pathology laboratory perform the analysis of my biopsy and it resulted in a 4+3=7. I chose radiation therapy and went to a center of excellence and they performed another assessment of the biopsy which resulted in a 4+5=9. Finally we had Joh Hopkins assess the slides and they
Larry954
in
Prostate Cancer Network
7 days ago
First post
I joined the community over a year ago when i got a routine blood test back that was a bit high but below the threshold for further tests. Continued that way for 18 months until last week CLL was confirmed while doing a biopsy for a suspect mole and having a melanoma removed. So a double whammy. More
I joined the community over a year ago when i got a routine blood test back that was a bit high but below the threshold for further tests. Continued that way for 18 months until last week CLL was confirmed while doing a biopsy for a suspect mole and having a melanoma removed. So a double whammy. More
Mokoia
in
CLL Support
7 days ago
lynparza
my dad failed zytiga and xtandi- he has a somatic BRCa 2 mutation and they are switching him To lynpraza- I am a nervous wreck and just wondering if anyone has a positive experience with a parp - he’s 81 some normal heart issues that are stable- he has bone mets and the last two Years they were stable
my dad failed zytiga and xtandi- he has a somatic BRCa 2 mutation and they are switching him To lynpraza- I am a nervous wreck and just wondering if anyone has a positive experience with a parp - he’s 81 some normal heart issues that are stable- he has bone mets and the last two Years they were stable
Chris52981
in
Advanced Prostate Cancer
8 days ago
Pet scan shows stage 4
I just got diagnosis last week of prostrate cancer. My psa was 5.25. Had slight blood in pee sometimes. Major constipation in April 25. Went to er. They saw a 1.9 cm nodule on right lung. got biopsy. Cancer in 6 samples. One was Gleason 9. Another showed intraductal component. I always said if
I just got diagnosis last week of prostrate cancer. My psa was 5.25. Had slight blood in pee sometimes. Major constipation in April 25. Went to er. They saw a 1.9 cm nodule on right lung. got biopsy. Cancer in 6 samples. One was Gleason 9. Another showed intraductal component. I always said if
Cp014
in
Advanced Prostate Cancer
8 days ago
Pet scan shows stage 4
I just got diagnosis last week of prostrate cancer. My psa was 5.25. Had slight blood in pee sometimes. Major constipation in April 25. Went to er. They saw a 1.9 cm nodule on right lung. got biopsy. Cancer in 6 samples. One was Gleason 9. Another showed intraductal component. I always said if
I just got diagnosis last week of prostrate cancer. My psa was 5.25. Had slight blood in pee sometimes. Major constipation in April 25. Went to er. They saw a 1.9 cm nodule on right lung. got biopsy. Cancer in 6 samples. One was Gleason 9. Another showed intraductal component. I always said if
Cp014
in
Advanced Prostate Cancer
8 days ago
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