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ALTERNATIVE THERAPIES
I WOULD LIKE TO KNOW if there are il neurologits who TRY THERAPIES different of levodopa (
modopar
) ) or 5sinemet . Wh ere in France ? THANKS A LOT;; Desperate parkinsonian .
I WOULD LIKE TO KNOW if there are il neurologits who TRY THERAPIES different of levodopa (
modopar
) ) or 5sinemet . Wh ere in France ? THANKS A LOT;; Desperate parkinsonian .
PARKINPONS2
in
Cure Parkinson's
4 years ago
How much CL is too much?
Hi all. I had a phone appointment with my nurse yesterday. I told her that I was having severe off times and needed a revised regime. She noted that I was on 8mg of Requip and proposed increasing this to 14mg (Fine by me, I never had the bad side effects that this drug can bring). Then she asks me
Hi all. I had a phone appointment with my nurse yesterday. I told her that I was having severe off times and needed a revised regime. She noted that I was on 8mg of Requip and proposed increasing this to 14mg (Fine by me, I never had the bad side effects that this drug can bring). Then she asks me
jeeves19
in
Cure Parkinson's
4 years ago
Apomorphine pump; does anyone have any experience?
Hi Everyone This is my first post, we live in the UK and my husband (age 69) was first diagnosed as probable akinetic rigid Parkinson late 2018. He was prescribed Madopar, then Pramipexole and finally Sinemet but none gave any significant improvement and he was then referred to a neurologist who thinks
Hi Everyone This is my first post, we live in the UK and my husband (age 69) was first diagnosed as probable akinetic rigid Parkinson late 2018. He was prescribed Madopar, then Pramipexole and finally Sinemet but none gave any significant improvement and he was then referred to a neurologist who thinks
novagayfox
in
Multiple System Atrophy Trust
4 years ago
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Mucuna Dyskinesia Shocker!
Hi gang. Sorry for the long post but something has happened that has somewhat surprised me and I need both to share to provide others with information, offer - whilst not an apology - at least make an admission - and lastly ask for advice. Here goes: Dxed 5 years ago. Started on Azilect and then added
Hi gang. Sorry for the long post but something has happened that has somewhat surprised me and I need both to share to provide others with information, offer - whilst not an apology - at least make an admission - and lastly ask for advice. Here goes: Dxed 5 years ago. Started on Azilect and then added
jeeves19
in
Cure Parkinson's
4 years ago
Temgesic - letter to the Consultant - raising the profile
If you take a look at my post 'Thought for the Day' you'll understand the context of this letter we sent to Mrs P's consultant. I'm urging suffers to write down their experiences and send it to their doctors. We sent this as an email together with the evidence for Temgesic success stories. I'm hoping
If you take a look at my post 'Thought for the Day' you'll understand the context of this letter we sent to Mrs P's consultant. I'm urging suffers to write down their experiences and send it to their doctors. We sent this as an email together with the evidence for Temgesic success stories. I'm hoping
puzzler1
in
Restless Legs Syndrome
4 years ago
Should I be taking this.
Hi everyone I’ve had loads of advice from this site and I’m still seeking it. I’ll give you a quick synopsis of what I’ve been going through and where I am now. I have had RLS what seems like forever. I took Ropinirole for 10 years, went through augmentation, developed a gambling problem and managed
Hi everyone I’ve had loads of advice from this site and I’m still seeking it. I’ll give you a quick synopsis of what I’ve been going through and where I am now. I have had RLS what seems like forever. I took Ropinirole for 10 years, went through augmentation, developed a gambling problem and managed
Scattypatty
in
Restless Legs Syndrome
4 years ago
Madopar plus Mucuna
How best to combine Madopar with Mucuna? My husband has been using Mucuna (99% L-dopa) fairly successfully over the past 3 or so years, and only recently added Madopar. Our own consultant is ok with us using Mucuna, but doesn't really give much advice about how to best use it. So my question is? Should
How best to combine Madopar with Mucuna? My husband has been using Mucuna (99% L-dopa) fairly successfully over the past 3 or so years, and only recently added Madopar. Our own consultant is ok with us using Mucuna, but doesn't really give much advice about how to best use it. So my question is? Should
billyroca
in
Cure Parkinson's
4 years ago
Hi everyone, we're new and looking for help, advice and any nuggets of info to help us work through the possible challenges ahead..cheers!
Hopefully our profile blurb outlines who we are, but to flesh it out a tad... J was diagnosed approx' 5 yrs ago with Parkinson's, which was obviously a blow as she's always been very physically active and at 55yrs old it was a million miles from what we had thought might be ahead of us...but that's probably
Hopefully our profile blurb outlines who we are, but to flesh it out a tad... J was diagnosed approx' 5 yrs ago with Parkinson's, which was obviously a blow as she's always been very physically active and at 55yrs old it was a million miles from what we had thought might be ahead of us...but that's probably
Boyyo
in
Multiple System Atrophy Trust
4 years ago
What meds good on tremors
Hi does anyone know what meds really work to reduce tremors... I am on Madopa but not having much joy
Hi does anyone know what meds really work to reduce tremors... I am on Madopa but not having much joy
Dholplayer
in
Cure Parkinson's
4 years ago
Hubby is feeling like he can’t get comfortable
He is increasingly saying he can’t get comfortable and can’t do anything as he can’t find a comfortable position. This is distressing him. What causes this? Last night his arms became very stiff and he felt like they were being pulled in. Is this over or under medication? Is it wearing off? It seems
He is increasingly saying he can’t get comfortable and can’t do anything as he can’t find a comfortable position. This is distressing him. What causes this? Last night his arms became very stiff and he felt like they were being pulled in. Is this over or under medication? Is it wearing off? It seems
LAJ12345
in
Cure Parkinson's
4 years ago
I hope this can assist
So about 2 months ago I wrote a post about neuroplastisity and wondered if it had any merit to it. I had some wonderful comments from people on this forum to which I was grateful, so since the gyms opened up about 6-8 weeks ago after quarantine I thought I'd give it a go. So I'm not on any supplements
So about 2 months ago I wrote a post about neuroplastisity and wondered if it had any merit to it. I had some wonderful comments from people on this forum to which I was grateful, so since the gyms opened up about 6-8 weeks ago after quarantine I thought I'd give it a go. So I'm not on any supplements
AaronS
in
Cure Parkinson's
4 years ago
Jerks and Depression
He has jerks which can be quite severe, the Consultant has tried sodium valproate which made him ill,
modopar
which had no effect and recently Topiramate which again made him ill. Does anyone have any experience of this please? Also he is very low and teary.
He has jerks which can be quite severe, the Consultant has tried sodium valproate which made him ill,
modopar
which had no effect and recently Topiramate which again made him ill. Does anyone have any experience of this please? Also he is very low and teary.
Northstar1
in
PSP Association
4 years ago
Hello, I rejoin you all.
I'm taking actually 3 x
modopar
125 and one Rasagaline each day. My right leg is troubled and my right arm doesn't balance normally, this gives me difficulties to walk more than two km. And I have urinary and digestive difficulties.
I'm taking actually 3 x
modopar
125 and one Rasagaline each day. My right leg is troubled and my right arm doesn't balance normally, this gives me difficulties to walk more than two km. And I have urinary and digestive difficulties.
Hidden
in
Cure Parkinson's
4 years ago
Trial and error
He's 58, dx 5 years ago and for last 6 months he started
Modopar
(50mg levodopa / 12.5mg benserazide) 1 caps 3 times a day (6am - 12- 6 pm) taken with 1 x ropinirole (12mg) at 6am. He also takes B1 500mg.
He's 58, dx 5 years ago and for last 6 months he started
Modopar
(50mg levodopa / 12.5mg benserazide) 1 caps 3 times a day (6am - 12- 6 pm) taken with 1 x ropinirole (12mg) at 6am. He also takes B1 500mg.
Vik38
in
Cure Parkinson's
4 years ago
Help. Suddenly much worse
My husband was doing really well pre lock down and now even though in NZ we are back to normal he has taken a big step backwards with symptoms. He had been getting stiffer so has tried to take the C/L kinson which made him very nauseous so he was unable to take enough to do anything. He has just changed
My husband was doing really well pre lock down and now even though in NZ we are back to normal he has taken a big step backwards with symptoms. He had been getting stiffer so has tried to take the C/L kinson which made him very nauseous so he was unable to take enough to do anything. He has just changed
LAJ12345
in
Cure Parkinson's
4 years ago
Advice on Rotigotine Patches
Advice on medication gratefully received. Hi all, first time poster, please be kind! PD diagnosed in 2017, various meds since then. Currently on 5 x daily madopar 100/25, and until recently rotigotine patches. Recently the patches have produced a massive skin reaction, pure solid blister and pus (sorry
Advice on medication gratefully received. Hi all, first time poster, please be kind! PD diagnosed in 2017, various meds since then. Currently on 5 x daily madopar 100/25, and until recently rotigotine patches. Recently the patches have produced a massive skin reaction, pure solid blister and pus (sorry
Shipbuilder
in
Cure Parkinson's
4 years ago
How long before levodopa starts working when first introduced?
I was diagnosed at age 70 about a year ago and prescribed Madopar 50/12.5, but resisted taking it until about 5 weeks ago by when a left hand tremor had developed to supplement the Bradykinesia, stiffness, awkward walking etc. Until now nothing’s happened. I was wondering whether it’s normal to take
I was diagnosed at age 70 about a year ago and prescribed Madopar 50/12.5, but resisted taking it until about 5 weeks ago by when a left hand tremor had developed to supplement the Bradykinesia, stiffness, awkward walking etc. Until now nothing’s happened. I was wondering whether it’s normal to take
Slobber1
in
Cure Parkinson's
4 years ago
Madopar for RLS
I have had RLS since childhood and self diagnosed in 2000 when I was on Pergolide which was discontinued. They then put me into Madopar which was ineffective unless I combined it with Pramipexole 0.088. Having read all the dreadful things on this site for Pramipexole I have now changed to Pregabalin
I have had RLS since childhood and self diagnosed in 2000 when I was on Pergolide which was discontinued. They then put me into Madopar which was ineffective unless I combined it with Pramipexole 0.088. Having read all the dreadful things on this site for Pramipexole I have now changed to Pregabalin
Jeverleybane
in
Restless Legs Syndrome
4 years ago
Advice
I was told two and a half years ago I had essential tremors but have been diagnosed with Parkinson's and just been on new tablets Madopar for four weeks still building up to a higher dose how long before I see a difference
I was told two and a half years ago I had essential tremors but have been diagnosed with Parkinson's and just been on new tablets Madopar for four weeks still building up to a higher dose how long before I see a difference
lucrob1971
in
National Tremor Foundation
4 years ago
Madopa kicks in
How long does it take Madopa to start being affective? I've just started on 62.5mg dose yesterday
How long does it take Madopa to start being affective? I've just started on 62.5mg dose yesterday
Dholplayer
in
Cure Parkinson's
4 years ago
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