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Staying up later than usual
My hubby has a routine of about 6 madopars a day at 3 hourly intervals with a bit of Mucuna in the inbetween times. He's tired enough to go to bed about 8.45/9pm, and takes a slow release Madopar... His relationship with Madopar is getting a bit past it's best, i.e. he stiffens up alot when he wears
My hubby has a routine of about 6 madopars a day at 3 hourly intervals with a bit of Mucuna in the inbetween times. He's tired enough to go to bed about 8.45/9pm, and takes a slow release Madopar... His relationship with Madopar is getting a bit past it's best, i.e. he stiffens up alot when he wears
billyroca
in
Cure Parkinson's
2 years ago
help please PArkinson RLS, need to sleep
Dear all, I have been diagnosed with Parkinson end of 2012 and i am now 65 years old. Based on my neurologist prescription I am actually taking weekly b1 injection and 07h 1 azilect, 1 requip 2mg, 1 madopar 125mg capsule and i feel fine 12h 1 madopar 62.5mg capsule et 1/4 madopar comprimé and i feel
Dear all, I have been diagnosed with Parkinson end of 2012 and i am now 65 years old. Based on my neurologist prescription I am actually taking weekly b1 injection and 07h 1 azilect, 1 requip 2mg, 1 madopar 125mg capsule and i feel fine 12h 1 madopar 62.5mg capsule et 1/4 madopar comprimé and i feel
marcet
in
Cure Parkinson's
2 years ago
Madopar CR v Rytary
Morning all. Just trying to get my head around the difference between these two? Also, Neurologist has me on Madopar CR during the night and immediate release during the day. I’m trying to work out what the purpose of immediate release is? Why not CR twice a day? Thanks guys 💊😀
Morning all. Just trying to get my head around the difference between these two? Also, Neurologist has me on Madopar CR during the night and immediate release during the day. I’m trying to work out what the purpose of immediate release is? Why not CR twice a day? Thanks guys 💊😀
jeeves19
in
Cure Parkinson's
2 years ago
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Feeling "out of it" most of the time...
I've been on Madopar 6x25mg per day and Ipinnia XL 12mg per day for a nearly a year now and though I can physically do most things I want, like decorating a house, moving furniture etc I feel so weird and out of it most of the time. Also something horrid and weird is happening to my face - it seems my
I've been on Madopar 6x25mg per day and Ipinnia XL 12mg per day for a nearly a year now and though I can physically do most things I want, like decorating a house, moving furniture etc I feel so weird and out of it most of the time. Also something horrid and weird is happening to my face - it seems my
Nickcc
in
Cure Parkinson's
2 years ago
Madopar not agreeing
,Has anybody taken Madopar dispersible and found they felt worse after taking it.
,Has anybody taken Madopar dispersible and found they felt worse after taking it.
co-ordinator
in
Cure Parkinson's
2 years ago
Dividing the dose
There was a talk about dopamine levels and tolerance. How to avoid this by intermittent dosing. How the brain responds more strongly to surprise levels of dopamine. I've been trying this by dividing the dose of 3 madopar every 4 hours into 2s and 1s. And sometimes taking 2nd dose early before 1st
There was a talk about dopamine levels and tolerance. How to avoid this by intermittent dosing. How the brain responds more strongly to surprise levels of dopamine. I've been trying this by dividing the dose of 3 madopar every 4 hours into 2s and 1s. And sometimes taking 2nd dose early before 1st
Johnmo
in
Cure Parkinson's
2 years ago
nausea treatments
Hi All, I was hoping I could get some advice. Seems my husband who takes madopar has been battling stomach dystonia , but it's become more constant and says he feel sick alot of the time now too. Has anyone had this issue and how do you settle your nausea? TIA cheers Mel
Hi All, I was hoping I could get some advice. Seems my husband who takes madopar has been battling stomach dystonia , but it's become more constant and says he feel sick alot of the time now too. Has anyone had this issue and how do you settle your nausea? TIA cheers Mel
PDsux_10
in
Cure Parkinson's
2 years ago
nausea treatment
Hi All, I was hoping I could get some advice. Seems my husband who takes madopar has been battling stomach dystonia , but it's become more constant and says he feel sick alot of the time now too. Has anyone had this issue and how do you settle your nausea? TIA
Hi All, I was hoping I could get some advice. Seems my husband who takes madopar has been battling stomach dystonia , but it's become more constant and says he feel sick alot of the time now too. Has anyone had this issue and how do you settle your nausea? TIA
PDsux_10
in
Cure Parkinson's
2 years ago
Levodopa storage
A rather dry topic but where do people store their medication in hot weather? Apparently Madopar should not be stored above 26 deg c, (79f), Sinemet- some sources say keep below 25c. As the needle now edges 30 c in the UK, and anytime on holiday in the Mediterranean or Caribbean, not easy without AC.
A rather dry topic but where do people store their medication in hot weather? Apparently Madopar should not be stored above 26 deg c, (79f), Sinemet- some sources say keep below 25c. As the needle now edges 30 c in the UK, and anytime on holiday in the Mediterranean or Caribbean, not easy without AC.
Buckholt
in
Cure Parkinson's
2 years ago
B1 and the possibility of reducing medication…?
I had a strong positive initial response to B1 which pretty quickly turned “jittery”. After stopping and starting again a couple of times, I now take 125 mg -ish ( chop my 500 mg Solgar tabs into 4). So 125 mg once a day. I have been feeling much better but now I’m feeling over-medicated on my Madopar
I had a strong positive initial response to B1 which pretty quickly turned “jittery”. After stopping and starting again a couple of times, I now take 125 mg -ish ( chop my 500 mg Solgar tabs into 4). So 125 mg once a day. I have been feeling much better but now I’m feeling over-medicated on my Madopar
arty-fact
in
Cure Parkinson's
2 years ago
Acupuncture in "Chapter 26: Traditional Chinese Medicine: a "hidden" wonder behind a different vision".
(Taken from chapter 26: Traditional Chinese Medicine: a "hidden" wonder behind a different vision; from book "The cure for Parkinson's. Do we already know what it takes to checkmate the disease?".) I will try to finish the translation as soon as possible. Back in battle... --- "I come from the depths
(Taken from chapter 26: Traditional Chinese Medicine: a "hidden" wonder behind a different vision; from book "The cure for Parkinson's. Do we already know what it takes to checkmate the disease?".) I will try to finish the translation as soon as possible. Back in battle... --- "I come from the depths
parkinsonshereandnow
in
Cure Parkinson's
2 years ago
What happens if you alternate Kinson (ie sinemet) with madopar?
We have some Kinson tablets which can be cut up . The madopar 62.5 are too strong. What would happen if hubby took madopar capsule less frequently with a tiny piece of Kinson in between? We also have NOW MP and mucuna bean powder but I don’t know how much of those is equivalent to half a madopar 62.5
We have some Kinson tablets which can be cut up . The madopar 62.5 are too strong. What would happen if hubby took madopar capsule less frequently with a tiny piece of Kinson in between? We also have NOW MP and mucuna bean powder but I don’t know how much of those is equivalent to half a madopar 62.5
LAJ12345
in
Cure Parkinson's
2 years ago
Who wakes up “on”?
Can you please indicate if when you wake up you need a dose of levodopa to be able to move, and who feels best first thing before a dose? I just found this picture. Ignore the schitzophrenia references, I just found it interesting how dopamine levels fluctuate during the day naturally in a normal person
Can you please indicate if when you wake up you need a dose of levodopa to be able to move, and who feels best first thing before a dose? I just found this picture. Ignore the schitzophrenia references, I just found it interesting how dopamine levels fluctuate during the day naturally in a normal person
LAJ12345
in
Cure Parkinson's
2 years ago
Does anyone get a chemical smell in nose
Does anyone get a chemical smell in nose 2 hours roughly after taking madopar capsule?
Does anyone get a chemical smell in nose 2 hours roughly after taking madopar capsule?
LAJ12345
in
Cure Parkinson's
2 years ago
Temgesic hot flushes and difficult choices
Sorry I haven't been on the forum lately but my RLS has continued to be bad every day and I haven't had anything positive to say. I stopped taking pramipexole about 15 months ago and started taking Temgesic 18 months ago and started taking gabapentin 11 months ago. Currently I'm taking 1x200 Temgesic
Sorry I haven't been on the forum lately but my RLS has continued to be bad every day and I haven't had anything positive to say. I stopped taking pramipexole about 15 months ago and started taking Temgesic 18 months ago and started taking gabapentin 11 months ago. Currently I'm taking 1x200 Temgesic
puzzler1
in
Restless Legs Syndrome
2 years ago
What causes muscle spasms and twitching after meals?
Hi, my hubby has been going through a rough patch since before Christmas after a long period of doing very well. He was taking 3 madopar 62.5 per day. He had been sleeping well with 5mg melatonin but then stopped being able to sleep and became increasingly anxious dreading night, and had to pee 3-4
Hi, my hubby has been going through a rough patch since before Christmas after a long period of doing very well. He was taking 3 madopar 62.5 per day. He had been sleeping well with 5mg melatonin but then stopped being able to sleep and became increasingly anxious dreading night, and had to pee 3-4
LAJ12345
in
Cure Parkinson's
2 years ago
Sudden change of health
Hi folks. I posted a while a go about some problems i've been having since last May. Until May 2021 I was managing quite well with my medication Madopa, Ropinerole an Saffinamide. I walked 5 miles + regularly and was training as a competitive powerlifter. 24th May I went into hospital and didn't come
Hi folks. I posted a while a go about some problems i've been having since last May. Until May 2021 I was managing quite well with my medication Madopa, Ropinerole an Saffinamide. I walked 5 miles + regularly and was training as a competitive powerlifter. 24th May I went into hospital and didn't come
powerliftingtobeat
in
Cure Parkinson's
2 years ago
Third dose of levodopa on the day generally fails to work.
Hi. Im on a combination of madopar 3 tablets of 50/12.5 mg and mucuna pruriens. 325mg exttract. I alternate them one dose madopar inthe morning, 9.30, then mucuna at 1.30, then madopar at 6.30pm and mucuna at 10.30 pm before sleep. While the first two doses work perfectly ( tremor, and central pain controlled
Hi. Im on a combination of madopar 3 tablets of 50/12.5 mg and mucuna pruriens. 325mg exttract. I alternate them one dose madopar inthe morning, 9.30, then mucuna at 1.30, then madopar at 6.30pm and mucuna at 10.30 pm before sleep. While the first two doses work perfectly ( tremor, and central pain controlled
HekateMoon
in
Cure Parkinson's
2 years ago
Cases of possible healing and self-healing (chapter 7).
CHAPTER 7. CASES OF POSSIBLE HEALING AND SELF-HEALING. "Tell sick people who they have no hope (or let them find out through their families) and the will to live will be paralysed. Show them a way out, tear them away from fear and hysteria, give them even a small hope and the will to live will be stimulated
CHAPTER 7. CASES OF POSSIBLE HEALING AND SELF-HEALING. "Tell sick people who they have no hope (or let them find out through their families) and the will to live will be paralysed. Show them a way out, tear them away from fear and hysteria, give them even a small hope and the will to live will be stimulated
parkinsonshereandnow
in
Cure Parkinson's
2 years ago
RLS
I take 2 Ropinirole 0.25 mg and 2 Codeine Phosphate 15mg at bedtime and every 2-3 nights take 1 Ferro-tab 200 mg. Then about 2-3 hrs later take 2 Panadol, then about 2 hrs later take another 2 codeine Phosphate again. This allows me to get a few hours sleep!! Then I sometimes take 1 Madopar 62.5 if
I take 2 Ropinirole 0.25 mg and 2 Codeine Phosphate 15mg at bedtime and every 2-3 nights take 1 Ferro-tab 200 mg. Then about 2-3 hrs later take 2 Panadol, then about 2 hrs later take another 2 codeine Phosphate again. This allows me to get a few hours sleep!! Then I sometimes take 1 Madopar 62.5 if
Dunedinite
in
Restless Legs Syndrome
2 years ago
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