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Living Beyond Lymphoma: Mindfulness Teleconference Wednesday, July 31, 2019 1:30 PM -- 2:30 PM ET
Teleconference - Living Beyond Lymphoma: Mindfulness http://support.lymphoma.org/site/MessageViewer;jsessionid=00000000.app30116b?em_id=4128.0&dlv_id=7636&NONCE_TOKEN=3BD44384886320C15278EFEE84201187 The Lymphoma Research Foundation's (LRF) Living Beyond Lymphoma: Mindfulness teleconference explores
Teleconference - Living Beyond Lymphoma: Mindfulness http://support.lymphoma.org/site/MessageViewer;jsessionid=00000000.app30116b?em_id=4128.0&dlv_id=7636&NONCE_TOKEN=3BD44384886320C15278EFEE84201187 The Lymphoma Research Foundation's (LRF) Living Beyond Lymphoma: Mindfulness teleconference explores
lankisterguy
Volunteer
in
CLL Support
5 years ago
CLL Society Tribune!
Welcome to the Second 2019 Issue of The CLL Society Tribune. https://cllsociety.org/quarter-2-2019-volume-5-issue-2/?utm_source=CLL+Tribune+Q2+2019&utm_campaign=Quarter+2+2019%3A+Volume+5+Issue+2&utm_medium=email Dear Friends and Supporters of the CLL Society. Welcome to the growing and evolving
Welcome to the Second 2019 Issue of The CLL Society Tribune. https://cllsociety.org/quarter-2-2019-volume-5-issue-2/?utm_source=CLL+Tribune+Q2+2019&utm_campaign=Quarter+2+2019%3A+Volume+5+Issue+2&utm_medium=email Dear Friends and Supporters of the CLL Society. Welcome to the growing and evolving
lankisterguy
Volunteer
in
CLL Support
5 years ago
Clinical trial results & reviews of new treatments for CLL written in easy to understand terms
Anyone interested in reading a weekly update of the latest breaking news for CLL may want to sign up to get emails from this source: https://medivizor.com/?login=2 Here are the three links for the articles mentioned in the picture above: https://medivizor.com/view_article/29947395?id=31210 https://
Anyone interested in reading a weekly update of the latest breaking news for CLL may want to sign up to get emails from this source: https://medivizor.com/?login=2 Here are the three links for the articles mentioned in the picture above: https://medivizor.com/view_article/29947395?id=31210 https://
lankisterguy
Volunteer
in
CLL Support
5 years ago
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Pre Fibrotic Myelodibrosis
Just wondered if there was anyone else in this group who has been diagnosed with prefibrotic Myelofibrosis . It was only discovered in 2016 and when I found I had it my platelets were 1600 and I had a low amount of fibrosis in my bone marrow. Apparently it may or may not develop into full Myelofibrosis
Just wondered if there was anyone else in this group who has been diagnosed with prefibrotic Myelofibrosis . It was only discovered in 2016 and when I found I had it my platelets were 1600 and I had a low amount of fibrosis in my bone marrow. Apparently it may or may not develop into full Myelofibrosis
kiwitraveller
in
MPN Voice
5 years ago
Dr. Wang of Mayo on Richter's Transformation and my Irish Podcast on CAR-T
Hi, This week we published my interview with Dr. Wang from Mayo about Richter’s Transformation. This is increasingly a problem as we are living longer with our CLL, but RT still has a dismal prognosis Here is that interview https://cllsociety.org/2019/06/ash-2018-dr-wang-on-richters-transformation-in-cll-chronic-lymphocytic-leukemia
Hi, This week we published my interview with Dr. Wang from Mayo about Richter’s Transformation. This is increasingly a problem as we are living longer with our CLL, but RT still has a dismal prognosis Here is that interview https://cllsociety.org/2019/06/ash-2018-dr-wang-on-richters-transformation-in-cll-chronic-lymphocytic-leukemia
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
CLL, Bone Marrow Transplant and Hodgkin’s Lymphoma
Can’t really answer this as I haven’t had one for my CLL. Am 76 years old. Issue of bone marrow transplant has been raised several times in my CLL “career” ( 16 years ). My specialists have told me that I am too old for such a procedure. In fact one of them said it would probably kill me. And that response
Can’t really answer this as I haven’t had one for my CLL. Am 76 years old. Issue of bone marrow transplant has been raised several times in my CLL “career” ( 16 years ). My specialists have told me that I am too old for such a procedure. In fact one of them said it would probably kill me. And that response
leopardo
in
CLL Support
5 years ago
More CAR-T: Looking Back to Go Forward in CAR-T Cell Therapy in R/R CLL
Long-term data from a phase 1 study investigating anti-CD19 chimeric antigen receptor (CAR) T-cell (CAR-T) therapy in patients with R/R CLL showed that the product appeared to be safe, and that prior lymphodepleting chemotherapy is necessary. The data, published in JCI Insight, also brought to the forefront
Long-term data from a phase 1 study investigating anti-CD19 chimeric antigen receptor (CAR) T-cell (CAR-T) therapy in patients with R/R CLL showed that the product appeared to be safe, and that prior lymphodepleting chemotherapy is necessary. The data, published in JCI Insight, also brought to the forefront
Jm954
Administrator
in
CLL Support
5 years ago
Zanubrutinib-Gazyva Shows Promise for CLL/SLL
June 25, 2019 Zanubrutinib (BGB-3111) is an investigational small molecule inhibitor of Bruton’s tyrosine kinase (BTK). Gazyva is a monoclonal antibody designed to bind to CD20, a protein found on the surface of certain types of B cells, including malignant CLL or SLL cells. The safety and efficacy
June 25, 2019 Zanubrutinib (BGB-3111) is an investigational small molecule inhibitor of Bruton’s tyrosine kinase (BTK). Gazyva is a monoclonal antibody designed to bind to CD20, a protein found on the surface of certain types of B cells, including malignant CLL or SLL cells. The safety and efficacy
Jm954
Administrator
in
CLL Support
5 years ago
Dr Brian Koffman recent Irish radio interview about CAR T
Dr Brian Koffman and his wife Patty have been very busy over the last few weeks with talks at EHA and for CLL Ireland national information day on June 8th. He also gave his time to be interviewed in Dublin with Newstalk radio to talk about his CLL and CAR T treatment. I'm delighted to be able to share
Dr Brian Koffman and his wife Patty have been very busy over the last few weeks with talks at EHA and for CLL Ireland national information day on June 8th. He also gave his time to be interviewed in Dublin with Newstalk radio to talk about his CLL and CAR T treatment. I'm delighted to be able to share
Irishcll
in
CLL Support
5 years ago
The Summer edition of Leukaemia Matters is now on its way to doorsteps and inboxes!
Welcome to the Summer issue of our magazine!
Read more about the activities of Leukaemia Care and patients over the past months and plans moving forward here: https://www.leukaemiacare.org.uk/wp-content/uploads/Leukaemia-Matters-Summer-2019-Web-Version.pdf From the Chair: [i]Here at
Welcome to the Summer issue of our magazine!
Read more about the activities of Leukaemia Care and patients over the past months and plans moving forward here: https://www.leukaemiacare.org.uk/wp-content/uploads/Leukaemia-Matters-Summer-2019-Web-Version.pdf From the Chair: [i]Here at
HAIRBEAR_UK
in
Leukaemia Support
5 years ago
Stem Cells!
My 22 year old son has Primary MF and one of his sisters is a 10/10 stem cell match for him - a wonderful thing for us all to hear after we discovered that a stem cell transplant is currently his only avenue for cure. My daughter is keen to raise awareness of the need for more people to register as
My 22 year old son has Primary MF and one of his sisters is a 10/10 stem cell match for him - a wonderful thing for us all to hear after we discovered that a stem cell transplant is currently his only avenue for cure. My daughter is keen to raise awareness of the need for more people to register as
christiev
in
MPN Voice
5 years ago
Chronic Lymphocytic Leukemia: USA Updates in Diagnosis and Testing
Over the past decade, diagnosis, testing, and prognostic stratification have substantially improved, leading to revisions in guidelines from both the International Workshop on CLL and the National Comprehensive Cancer Network (NCCN). Among the most significant changes is the increasing essential prognostic
Over the past decade, diagnosis, testing, and prognostic stratification have substantially improved, leading to revisions in guidelines from both the International Workshop on CLL and the National Comprehensive Cancer Network (NCCN). Among the most significant changes is the increasing essential prognostic
Jm954
Administrator
in
CLL Support
5 years ago
New Directions in CLL: A Review of 2019 Treatment Guideline Updates in USA
In December 2018, pivotal trial data were presented at the American Society of Hematology Annual Meeting that demonstrated promising results for the first-line treatment of patients with CLL and SLL. In particular, new courses of CLL care in several patient populations emerged from the findings of 3
In December 2018, pivotal trial data were presented at the American Society of Hematology Annual Meeting that demonstrated promising results for the first-line treatment of patients with CLL and SLL. In particular, new courses of CLL care in several patient populations emerged from the findings of 3
Jm954
Administrator
in
CLL Support
5 years ago
Exposure to Glyphosate (Round Up)? Any one believe this could be a factor in developing Non Hodgkins Lymphoma?
In my 20s, 30s, 40s and early 50s, I used Round Up intermittently in my gardens as Round Up was my go to treatment for controlling weeds. In hindsight, not such a good choice. But at the time, I thought this product is great! I just spray it on the weeds and in the next days the weeds die. Easy Peezy
In my 20s, 30s, 40s and early 50s, I used Round Up intermittently in my gardens as Round Up was my go to treatment for controlling weeds. In hindsight, not such a good choice. But at the time, I thought this product is great! I just spray it on the weeds and in the next days the weeds die. Easy Peezy
MrsMaggoo
in
CLL Support
5 years ago
Move over MRD Negative and make way for uMRD - Undetectable Minimal Residual Disease
As Dr Brian Koffman mentioned here: https://healthunlocked.com/cllsupport/posts/141000734/eha part of his contribution to the European Hematology Association (EHA) 2019 Amsterdam congress https://ehaweb.org was as a panel member on a satellite event sponsored by the MRD Testing Collaborative, namely
As Dr Brian Koffman mentioned here: https://healthunlocked.com/cllsupport/posts/141000734/eha part of his contribution to the European Hematology Association (EHA) 2019 Amsterdam congress https://ehaweb.org was as a panel member on a satellite event sponsored by the MRD Testing Collaborative, namely
AussieNeil
Partner
in
CLL Support
5 years ago
Good news!
So I went to the hematologist today and for the first time in years my platelets were at normal levels. But my anemia is getting worse. He took me off hydroxyurea which I’ve been taking every day for over over 11 years. I also take 20 mgs of Jakafi every day. I have ET Jak2 positive and PV. Any thoughts
So I went to the hematologist today and for the first time in years my platelets were at normal levels. But my anemia is getting worse. He took me off hydroxyurea which I’ve been taking every day for over over 11 years. I also take 20 mgs of Jakafi every day. I have ET Jak2 positive and PV. Any thoughts
Cja1956
in
MPN Voice
5 years ago
Diagnosis for insurance
Hi all I've been trying to sort insurance for my holiday. I explained I have Essential thrombocytosis jak2 +. I tried to explain it comes under the unbrella of a myeloproliferative neoplasm which the operator didn't understand? He asked me if I had essential thromobythaemia and I said my diagnosis is
Hi all I've been trying to sort insurance for my holiday. I explained I have Essential thrombocytosis jak2 +. I tried to explain it comes under the unbrella of a myeloproliferative neoplasm which the operator didn't understand? He asked me if I had essential thromobythaemia and I said my diagnosis is
Camelian
in
MPN Voice
5 years ago
POST BMT 1-Year & 7 Months, BOY OH BOY!!!
“Ring the bells that still can ring Forget your perfect offering There is a crack, a crack in everything That’s how the light gets in.” Leonard Cohen “Anthem,” The Future album 1992 It has been far to long since my last post but boy have we been through the ringer!! I do want to apologize for
“Ring the bells that still can ring Forget your perfect offering There is a crack, a crack in everything That’s how the light gets in.” Leonard Cohen “Anthem,” The Future album 1992 It has been far to long since my last post but boy have we been through the ringer!! I do want to apologize for
NMMP
in
CLL Support
5 years ago
Efficacy of venetoclax monotherapy in patients with relapsed CLL in the post‐BCR inhibitor setting: a UK wide analysis
Feb 2019 Venetoclax is a BCL2 inhibitor with activity in relapsed/refractory (R/R) chronic lymphocytic leukaemia (CLL). We conducted a multi‐centre retrospective analysis of 105 R/R CLL patients who received venetoclax pre‐National Health Service commissioning. The median age was 67 years and median
Feb 2019 Venetoclax is a BCL2 inhibitor with activity in relapsed/refractory (R/R) chronic lymphocytic leukaemia (CLL). We conducted a multi‐centre retrospective analysis of 105 R/R CLL patients who received venetoclax pre‐National Health Service commissioning. The median age was 67 years and median
Jm954
Administrator
in
CLL Support
5 years ago
ASH 2018: Dr. Lindsey Roeker, on real world use of venetoclax for CLL (chronic lymphocytic leukemia)
Is venetoclax as safe and effective in the real world as compared to clinical trials? Read my ASH interview with Dr. Roeker to get the comforting news: https://cllsociety.org/2019/06/ash-2018-dr-lindsey-roeker-on-real-world-use-of-venetoclax-for-cll-chronic-lymphocytic-leukemia/
Is venetoclax as safe and effective in the real world as compared to clinical trials? Read my ASH interview with Dr. Roeker to get the comforting news: https://cllsociety.org/2019/06/ash-2018-dr-lindsey-roeker-on-real-world-use-of-venetoclax-for-cll-chronic-lymphocytic-leukemia/
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
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