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Experience with Fludarabine & Rituximab?
Hi, My mom (now 62 yrs old) was diagnosed with CLL about 5+ yrs ago, and her doctor recently told her that she needs to begin treatment. He recommended her to begin with combination of Rituximab + Fludarabine (in-patient treatment, via injections). I just wanted to know if anyone else has received this
Hi, My mom (now 62 yrs old) was diagnosed with CLL about 5+ yrs ago, and her doctor recently told her that she needs to begin treatment. He recommended her to begin with combination of Rituximab + Fludarabine (in-patient treatment, via injections). I just wanted to know if anyone else has received this
Dolce1
in
CLL Support
5 years ago
Tiredness
Hi have had Myelofibrosis for 10 years I donāt know anyone else who has this feel so tired my legs ache feel as if I have the flu all the time š©thanks Diana
Hi have had Myelofibrosis for 10 years I donāt know anyone else who has this feel so tired my legs ache feel as if I have the flu all the time š©thanks Diana
D1i2a3
in
MPN Voice
5 years ago
What is CAR-T therapy? An expert explains in simple terms
Not specific to CLL but informative. CAR-T therapy is a completely new type of therapy that uses the immune system to kill cancer cells. In some cases it has cured people where all other treatments have failed. Professor Karl Peggs, Scientific Director of the National Institute for Health Research (NIHR
Not specific to CLL but informative. CAR-T therapy is a completely new type of therapy that uses the immune system to kill cancer cells. In some cases it has cured people where all other treatments have failed. Professor Karl Peggs, Scientific Director of the National Institute for Health Research (NIHR
Jm954
Administrator
in
CLL Support
5 years ago
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Association of gene mutations with timeātoāfirst treatment in 384 treatmentānaive chronic lymphocytic leukaemia patients
First published: 26 June 2019 in BJH - full paper behind a paywall unfortunately This study correlated somatic mutation results and known prognostic factors with timeātoāfirst treatment (TTFT) in 384 treatmentānaĆÆve (TN) chronic lymphocytic leukaemia (CLL) patients to help determine diseaseāspecific
First published: 26 June 2019 in BJH - full paper behind a paywall unfortunately This study correlated somatic mutation results and known prognostic factors with timeātoāfirst treatment (TTFT) in 384 treatmentānaĆÆve (TN) chronic lymphocytic leukaemia (CLL) patients to help determine diseaseāspecific
Jm954
Administrator
in
CLL Support
5 years ago
War in the blood - BBC iPlayer
Hi all, Just wondering whether any of you had managed to catch the BBC documentary War in the blood which was shown Sunday night? It's on repeat on iPlayer for the rest of the month. The documentary tells the story of Graham and Mahmoud, two individuals with acute lymphoblastic leukaemia who opted to
Hi all, Just wondering whether any of you had managed to catch the BBC documentary War in the blood which was shown Sunday night? It's on repeat on iPlayer for the rest of the month. The documentary tells the story of Graham and Mahmoud, two individuals with acute lymphoblastic leukaemia who opted to
NicoleLeukaemiaCare
in
Leukaemia Support
5 years ago
The Force is Strong in This One
Hi Forum Friends , , I had notification of a new follower on here today and I realised how much time has elapsed since I posted an update. Time flies when you're enjoying yourself eh. As you will no doubt have guessed by now I'm a Star Wars fan , I even put my religion down as Jedi on one or 2 of the
Hi Forum Friends , , I had notification of a new follower on here today and I realised how much time has elapsed since I posted an update. Time flies when you're enjoying yourself eh. As you will no doubt have guessed by now I'm a Star Wars fan , I even put my religion down as Jedi on one or 2 of the
JediReject
in
MPN Voice
5 years ago
Stem Cell Transplant That didnāt put cancer in remission
Has anyone gone through a stem cell transplant that did not put the cancer in remission? What medications did they suggest for you?
Has anyone gone through a stem cell transplant that did not put the cancer in remission? What medications did they suggest for you?
seaturtle2
in
Myeloma America Support
5 years ago
New to it all
62 yo male here; was diagnosed with CLL in November of 2018. After three sets of bloodwork, a CT and a boner marrow biopsy Im told I continue on watch and wait. My only symptom is extreme fatigue which precludes me from working 8 hours a day. I should note that Iām also a long time bariatric patient.
62 yo male here; was diagnosed with CLL in November of 2018. After three sets of bloodwork, a CT and a boner marrow biopsy Im told I continue on watch and wait. My only symptom is extreme fatigue which precludes me from working 8 hours a day. I should note that Iām also a long time bariatric patient.
Pokerguy
in
CLL Support
5 years ago
What questions should I ask the consultant?
I have an appointment this afternoon. The Drs suspect that I have Essential Thrombocythemia but I have not had a diagnosis. I have had a bone marrow biopsy but have not yet had the results, I should be getting them later today. Any advice on questions that I should ask? Thank you in advance
I have an appointment this afternoon. The Drs suspect that I have Essential Thrombocythemia but I have not had a diagnosis. I have had a bone marrow biopsy but have not yet had the results, I should be getting them later today. Any advice on questions that I should ask? Thank you in advance
Notenoughbluefood
in
MPN Voice
5 years ago
CLL and Medical Marijuana
Has anyone found Medical marijuana CBD/THC tincture to be helpful with sleep and anxiety due to watch and wait stage? Injesting anything foreign is a concern with a compromised immune system but the same can be said for Chemo. ?
Has anyone found Medical marijuana CBD/THC tincture to be helpful with sleep and anxiety due to watch and wait stage? Injesting anything foreign is a concern with a compromised immune system but the same can be said for Chemo. ?
Madprofessor22
in
CLL Support
5 years ago
Mode of Progression After Frontline Treatment Predicts Clinical Outcomes in Patients With CLL
Not only is CLL heterogeneous in watch and wait, that's also the case after treatment. An analysis of over 2,000 patients from three German CLL Study Group clinical trials has identified that unfit patients developing lymphadenopathy (swelling nodes) have a significantly lower median overall survival
Not only is CLL heterogeneous in watch and wait, that's also the case after treatment. An analysis of over 2,000 patients from three German CLL Study Group clinical trials has identified that unfit patients developing lymphadenopathy (swelling nodes) have a significantly lower median overall survival
AussieNeil
Partner
in
CLL Support
5 years ago
cll/sll or MZL? & Rituxan
I'm month three of trying to get properly diagnosed. Initial cll/sll diagnosis now in doubt at two leading cancer centers because I am cd20 bright. So MZL or some other type of small b cell lymphoma is hypothesized. Yesterday I saw a lymphoma specialist who recommended rituxan now even though I don't
I'm month three of trying to get properly diagnosed. Initial cll/sll diagnosis now in doubt at two leading cancer centers because I am cd20 bright. So MZL or some other type of small b cell lymphoma is hypothesized. Yesterday I saw a lymphoma specialist who recommended rituxan now even though I don't
Sunfishjoy
in
CLL Support
5 years ago
Discontinuation of ibrutinib
Hi everyone! ItĀ“s been a while since my last post. My mother continues taking ibrutinib, almost 3 years now and doing fine. But right now she has to prepare for a digestive endoscopy, which is ineluctable, so she has to discontinue ibrutinib treatment. My mother is very sensitive to these kind of discontinuations
Hi everyone! ItĀ“s been a while since my last post. My mother continues taking ibrutinib, almost 3 years now and doing fine. But right now she has to prepare for a digestive endoscopy, which is ineluctable, so she has to discontinue ibrutinib treatment. My mother is very sensitive to these kind of discontinuations
nicolas_12
in
CLL Support
5 years ago
Growth dynamics in naturally progressing chronic lymphocytic leukaemia
Abstract from Nature, 29/5/19 - Unfortunately the whole article is behind a paywall. [i]"We used the indolent growth dynamics of chronic lymphocytic leukaemia (CLL) to analyse the growth rates and corresponding genomic patterns of leukaemia cells from 107 patients with CLL, spanning decades-long disease
Abstract from Nature, 29/5/19 - Unfortunately the whole article is behind a paywall. [i]"We used the indolent growth dynamics of chronic lymphocytic leukaemia (CLL) to analyse the growth rates and corresponding genomic patterns of leukaemia cells from 107 patients with CLL, spanning decades-long disease
Jm954
Administrator
in
CLL Support
5 years ago
Newbie to mpd/et
Hi I've recently been diagnosed with mpd et and looking to learn more about it and how it could affect my life,lifestyle and longevity ,also as I'm on hydroxacarbomide was wondering if anyone on here their mpd/et had turned into leukaemia because of the medication used? Strange thing I've had bmb which
Hi I've recently been diagnosed with mpd et and looking to learn more about it and how it could affect my life,lifestyle and longevity ,also as I'm on hydroxacarbomide was wondering if anyone on here their mpd/et had turned into leukaemia because of the medication used? Strange thing I've had bmb which
Jackybuckley
in
MPN Voice
5 years ago
Major breakthrough in the treatment of leukemia
[i]Bone marrow aspirate showing Acute Myeloid Leukaemia (AML). Several blasts have Auer rods. Wikipedia [/i] [i] [/i] This article out of the University of Montreal seems to hold some promise for the treatment of AML. Rather than just posting a link I thought it might be easier for all to read this extract
[i]Bone marrow aspirate showing Acute Myeloid Leukaemia (AML). Several blasts have Auer rods. Wikipedia [/i] [i] [/i] This article out of the University of Montreal seems to hold some promise for the treatment of AML. Rather than just posting a link I thought it might be easier for all to read this extract
socrates_8
in
MPN Voice
5 years ago
No comfort from Insurance Cos while suffering from Cancer
Itās 3 years since I was diagnosed with CLL stage 0 and got another set back yesterday Turned down for LTC policy While I did not ask for this cancer yet I feel like a second class citizen I understand there is risk to the insurance company and underwriters but during times of suffering one of the
Itās 3 years since I was diagnosed with CLL stage 0 and got another set back yesterday Turned down for LTC policy While I did not ask for this cancer yet I feel like a second class citizen I understand there is risk to the insurance company and underwriters but during times of suffering one of the
Hidden
in
CLL Support
5 years ago
Newly diagnosed with Chronic Lymphocytic Leukemia or Small Lymphocytic Lymphoma - CLL/SLL or just found us? This post is for you!
Welcome to the CLL Support community on HealthUnlocked, a very active community with over 22,000 members. This pinned post is specifically for new members, in particular those that have been recently diagnosed with Chronic Lymphocytic Leukaemia/Small Lymphocytic Lymphoma CLL/SLL. (CLL and SLL are the
Welcome to the CLL Support community on HealthUnlocked, a very active community with over 22,000 members. This pinned post is specifically for new members, in particular those that have been recently diagnosed with Chronic Lymphocytic Leukaemia/Small Lymphocytic Lymphoma CLL/SLL. (CLL and SLL are the
AussieNeil
Partner
in
CLL Support
5 years ago
MRD-U Baby your one of four in two million!
So had a consultation with the amazing Prof Hillmen who is based in Leeds, but occasionally sees patients in Harley Street. He is great as a second opinion and to talk about odd things or decision points with. He explained that one of the tests that had been done in my bone marrow had a sensitivity
So had a consultation with the amazing Prof Hillmen who is based in Leeds, but occasionally sees patients in Harley Street. He is great as a second opinion and to talk about odd things or decision points with. He explained that one of the tests that had been done in my bone marrow had a sensitivity
AdrianUK
in
CLL Support
5 years ago
Living Beyond Lymphoma: Mindfulness Teleconference Wednesday, July 31, 2019 1:30 PM -- 2:30 PM ET
Teleconference - Living Beyond Lymphoma: Mindfulness http://support.lymphoma.org/site/MessageViewer;jsessionid=00000000.app30116b?em_id=4128.0&dlv_id=7636&NONCE_TOKEN=3BD44384886320C15278EFEE84201187 The Lymphoma Research Foundation's (LRF) Living Beyond Lymphoma: Mindfulness teleconference explores
Teleconference - Living Beyond Lymphoma: Mindfulness http://support.lymphoma.org/site/MessageViewer;jsessionid=00000000.app30116b?em_id=4128.0&dlv_id=7636&NONCE_TOKEN=3BD44384886320C15278EFEE84201187 The Lymphoma Research Foundation's (LRF) Living Beyond Lymphoma: Mindfulness teleconference explores
lankisterguy
Volunteer
in
CLL Support
5 years ago
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