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Mast cell leukaemia
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Options other than transplant?
Hi, I'm new to the forum and was wondering if anybody has chosen not to go for stem cell transplant after getting good bone marrow results after the consolidation phase of chemo? I'm also struggling to find other people who have been diagnosed with A.L.L. in their 50s like me as it seems to usually bea
Hi, I'm new to the forum and was wondering if anybody has chosen not to go for stem cell transplant after getting good bone marrow results after the consolidation phase of chemo? I'm also struggling to find other people who have been diagnosed with A.L.L. in their 50s like me as it seems to usually bea
Gemini1967
in
Leukaemia Support
4 years ago
Bloodwork on imbruvica
Hi all!! Just got my bloodwork back My WBC WAS 230,000 On imbruvica for three months My WBC IS 21,000 Lymphocytes were 51,000 now 20,000 in one month... Beside the side affects imbruvica is truly a miracle pill!! I am so happy 😀 Thanks for taking the time out reading this great news!! 🧡💪🏻 kicking
Hi all!! Just got my bloodwork back My WBC WAS 230,000 On imbruvica for three months My WBC IS 21,000 Lymphocytes were 51,000 now 20,000 in one month... Beside the side affects imbruvica is truly a miracle pill!! I am so happy 😀 Thanks for taking the time out reading this great news!! 🧡💪🏻 kicking
littledab
in
CLL Support
4 years ago
Questions about Richter Syndrome
Hi. I would like to ask you some important questions. 1-Before being diagnosed with chronic lymphocytic leukemia, did you constantly have herpes? 2- Have you received treatment for chronic lymphocytic leukemia with chemotherapy? 3- When he was diagnosed with Ricther transformation, had he been previously
Hi. I would like to ask you some important questions. 1-Before being diagnosed with chronic lymphocytic leukemia, did you constantly have herpes? 2- Have you received treatment for chronic lymphocytic leukemia with chemotherapy? 3- When he was diagnosed with Ricther transformation, had he been previously
Priss69
in
CLL Support
4 years ago
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Richter Transformation Survival in CLL Appears Better Among Treatment-Naive
A new nationwide study showed that the 5-year cumulative incidence of Richter transformation (RT) among patients with chronic lymphocytic leukemia (CLL) was 2.8%. Of those patients whose disease transformed, about half (49%) were treatment-naive prior to transformation. The researchers identified 3
A new nationwide study showed that the 5-year cumulative incidence of Richter transformation (RT) among patients with chronic lymphocytic leukemia (CLL) was 2.8%. Of those patients whose disease transformed, about half (49%) were treatment-naive prior to transformation. The researchers identified 3
Jm954
Administrator
in
CLL Support
4 years ago
Confused /scared about Covid 19
Hi there I’m guessing that a lot of people are in the same boat about Covid19. My husband recently underwent a stem cell transplant for ALL and is now taking immunosuppressant medication. I currently work part time in the retail sector and I’m really confused and anxious about what to do for the best
Hi there I’m guessing that a lot of people are in the same boat about Covid19. My husband recently underwent a stem cell transplant for ALL and is now taking immunosuppressant medication. I currently work part time in the retail sector and I’m really confused and anxious about what to do for the best
Clarence45
in
Leukaemia Support
4 years ago
CLL Treatment Advice/Recommendations/Etc For Newbie
After monitoring for 1 year, my doc has recommended that I participate in Trial #EA9161, a 19-month program using ibrutinib, obinutuzumab, & venetoclax. I am a 52-yr-old male with no experience in this arena and am seeking all the advice/info I can get (especially first-hand, or very close to it).
After monitoring for 1 year, my doc has recommended that I participate in Trial #EA9161, a 19-month program using ibrutinib, obinutuzumab, & venetoclax. I am a 52-yr-old male with no experience in this arena and am seeking all the advice/info I can get (especially first-hand, or very close to it).
username-the-dude
in
CLL Support
4 years ago
Government Advice on Coronavirus
In a nutshell...keep smiling. Government Advice in the UK as at 12th March 2020 · All people with flu-like symptoms – a fever above 37.8C or a persistent cough- should stay at home, away from other people, for seven days. · Schools should not take trips abroad. · Older people
In a nutshell...keep smiling. Government Advice in the UK as at 12th March 2020 · All people with flu-like symptoms – a fever above 37.8C or a persistent cough- should stay at home, away from other people, for seven days. · Schools should not take trips abroad. · Older people
Kevin53
in
LUPUS UK
4 years ago
Mutated and unmutated cll for dummies
When told I had chronic lymphocytic leukemia (cll) four years ago, all I heard was "leukemia". Google soon became my best friend and worst enemy. I just wanted to find out how long I had to live. My travels on the learning curve of cll were slow with many wrong turns. I figured out chronic leukemia
When told I had chronic lymphocytic leukemia (cll) four years ago, all I heard was "leukemia". Google soon became my best friend and worst enemy. I just wanted to find out how long I had to live. My travels on the learning curve of cll were slow with many wrong turns. I figured out chronic leukemia
cajunjeff
in
CLL Support
4 years ago
Sarcomatoid SCCs and ruxolitinib BMB
Hi As I posted here, I had a BMB a couple of weeks ago. Unfortunately the first part of the sample that was analysed had been badly taken and couldn’t be fully analysed. What a bummer. So I’ll have to wait for the trephine ( bony core) part of the biopsy to be analysed. I’m still hoping that I can
Hi As I posted here, I had a BMB a couple of weeks ago. Unfortunately the first part of the sample that was analysed had been badly taken and couldn’t be fully analysed. What a bummer. So I’ll have to wait for the trephine ( bony core) part of the biopsy to be analysed. I’m still hoping that I can
Rachelthepotter
in
MPN Voice
4 years ago
Comparative analysis of targeted novel therapies (ibrutinib vs. venetoclax) in relapsed, refractory CLL (Feb 2020)
"To date, no prospective trials have directly compared ibrutinib with venetoclax as NA1 in R/R CLL. It remains a key unanswered question as to which of these two NAs optimises the balance of safety and efficacy when utilized as the NA1 in R/R CLL. To address this, we report a large, international study
"To date, no prospective trials have directly compared ibrutinib with venetoclax as NA1 in R/R CLL. It remains a key unanswered question as to which of these two NAs optimises the balance of safety and efficacy when utilized as the NA1 in R/R CLL. To address this, we report a large, international study
avzuclav
in
CLL Support
4 years ago
Here are 6 cancer articles from the European Molecular Biology Laboratory.
Rather than clutter the forum I have lumped them altogether within the same post, as they are all from the same source
.
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[u]Finding genetic cancer risks.[/u]
EMBL scientists describe how our genetic background
Rather than clutter the forum I have lumped them altogether within the same post, as they are all from the same source
.
------------------------------------------------------------------------------
[u]Finding genetic cancer risks.[/u]
EMBL scientists describe how our genetic background
2greys
in
Lung Conditions Community Forum
4 years ago
Life with cll. Another new concern.
Hi everyone, My last post was three weeks ago just after I had my tonsillectomy. And unfortunately today I got the results. It turns out my abnormal tonsils were full of cll cells. Or as my surgeon said loaded with cancer cells. Has anyone else here had the same experience or results? He recommended
Hi everyone, My last post was three weeks ago just after I had my tonsillectomy. And unfortunately today I got the results. It turns out my abnormal tonsils were full of cll cells. Or as my surgeon said loaded with cancer cells. Has anyone else here had the same experience or results? He recommended
Suzuki1000
in
CLL Support
4 years ago
March 7 2020 CLL PATIENT AND CAREGIVER EDUCATIONAL FORUM Saturday 8:00am - 12:30pm Rockefeller Auditorium 430 East 67th St Manhattan
To register: https://newyork2020.questionpro.com CLL Society Inc. • P. O. Box 1390 • Claremont CA 91711 • https://cllsociety.org 2019-2020 CLL PATIENT AND CAREGIVER EDUCATIONAL FORUM In partnership with Memorial Sloan Kettering Cancer Center, the CLL Society invites you to attend our informational CLL
To register: https://newyork2020.questionpro.com CLL Society Inc. • P. O. Box 1390 • Claremont CA 91711 • https://cllsociety.org 2019-2020 CLL PATIENT AND CAREGIVER EDUCATIONAL FORUM In partnership with Memorial Sloan Kettering Cancer Center, the CLL Society invites you to attend our informational CLL
lankisterguy
Volunteer
in
CLL Support
4 years ago
Essential thrombocytosis leg pain
I think I may have asked before i cant even remember. I have been having leg cramps/ pain around knee joints not severe my haematologist said it could be et related not sure? Should I push it with my gp. Does anyone else with et get this.
I think I may have asked before i cant even remember. I have been having leg cramps/ pain around knee joints not severe my haematologist said it could be et related not sure? Should I push it with my gp. Does anyone else with et get this.
Irishgal12
in
MPN Voice
4 years ago
Mutation's role in blood cancers revealed by ideal team-up
Post by MPN-MATE Admin » Sat Feb 01, 2020 4:35 am Hey everyone... :D Just thought that I would share this one with all of you... When we are diagnosed, our prognosis usually depends upon which MPN condition, (which are believed to be caused by our 'DRIVER' mutations), however what other more adverse
Post by MPN-MATE Admin » Sat Feb 01, 2020 4:35 am Hey everyone... :D Just thought that I would share this one with all of you... When we are diagnosed, our prognosis usually depends upon which MPN condition, (which are believed to be caused by our 'DRIVER' mutations), however what other more adverse
socrates_8
in
MPN Voice
4 years ago
War on blood Car -t cells
Did any one watch BBC war on blood and see how incredible brave the two unsuccessful patient faced their pain and subsequent deaths from Leukaemia . Certainly made me appreciate how fortunate my ET never developed into AML. So get on with life now. town Crier Et for 30 years.
Did any one watch BBC war on blood and see how incredible brave the two unsuccessful patient faced their pain and subsequent deaths from Leukaemia . Certainly made me appreciate how fortunate my ET never developed into AML. So get on with life now. town Crier Et for 30 years.
catkinspolymer
in
MPN Voice
4 years ago
What causes these horrific night sweats and does everyone get them ?
Hi All, 3 years on W&W and finally my time has arrived for treatment within the next 5 to 6 weeks. Chemo. Not really shocked just a bit numb really as just got used to the W&W scenario if you ever can. Positive about my treatment anxious about how it will feel. However I’ll be glad to get on with it
Hi All, 3 years on W&W and finally my time has arrived for treatment within the next 5 to 6 weeks. Chemo. Not really shocked just a bit numb really as just got used to the W&W scenario if you ever can. Positive about my treatment anxious about how it will feel. However I’ll be glad to get on with it
Roseneath69
in
CLL Support
4 years ago
Diagnosed essential thrombocytosis new
Hi guys so today I just got new am jak2 positive I am devastated crying o dont know what to think What does jak2 positive mean. An worrying about life expectancy and progression what life can I expect? Am 32
Hi guys so today I just got new am jak2 positive I am devastated crying o dont know what to think What does jak2 positive mean. An worrying about life expectancy and progression what life can I expect? Am 32
Irishgal12
in
MPN Voice
4 years ago
Ongoing Research Poised to Add Options for Myelofibrosis Treatment
Post by MPN-MATE Admin » Wed Jan 29, 2020 10:14 am Hey all... :D I simply found this an optimistic and encouraging from the perspective of MF sufferers, and especially if & when their Ruxolitinib (aka Jakafi), loses some of its efficacy, which it tends to do after circa 3.2 years... It talks a little
Post by MPN-MATE Admin » Wed Jan 29, 2020 10:14 am Hey all... :D I simply found this an optimistic and encouraging from the perspective of MF sufferers, and especially if & when their Ruxolitinib (aka Jakafi), loses some of its efficacy, which it tends to do after circa 3.2 years... It talks a little
socrates_8
in
MPN Voice
4 years ago
Australians have your say in getting CLL medicines approved
Hi everyone, I am just reaching out to Aussies on this site to let you know that the following 2 treatments are being considered in March for public funding in Australia. If you would like to make a carer or patient submission about how important the availability of these therapies are for all eligible
Hi everyone, I am just reaching out to Aussies on this site to let you know that the following 2 treatments are being considered in March for public funding in Australia. If you would like to make a carer or patient submission about how important the availability of these therapies are for all eligible
lymphomaoz
in
CLL Support
4 years ago
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