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First in series of webinars for different types of macular disease
We will be launching our first in a series of condition-specific webinars for patients later this month. The first event, which will take place on 30 July, will be focused on myopic macular degeneration and will be hosted by Professor Jeremy Guggenheim from the School of Optometry and Vision Sciences
We will be launching our first in a series of condition-specific webinars for patients later this month. The first event, which will take place on 30 July, will be focused on myopic macular degeneration and will be hosted by Professor Jeremy Guggenheim from the School of Optometry and Vision Sciences
Becky_MacularSociety
Administrator
in
Macular Society
4 years ago
vision drops after injection
Does anyone know why vision drops after injection? Both my eyes got injected yesterday. Left eye vision is okay but right eye vision drops significantly. Should I contact the doctor? To be precise, I am sure my vision is dropped, not blurred. Btw, what I have is myopia related wet macular degeneration
Does anyone know why vision drops after injection? Both my eyes got injected yesterday. Left eye vision is okay but right eye vision drops significantly. Should I contact the doctor? To be precise, I am sure my vision is dropped, not blurred. Btw, what I have is myopia related wet macular degeneration
myopic-related-md
in
Macular Society
4 years ago
Eylea injections and opticians
I have macular oedema and I am having Eyelea injections. I feel my eyesight would be improved if I went to the opticians for some new glasses. Has anyone done this as I believe although it has not been suggested it would help me. I have been having injections for over a year and my opticians appointment
I have macular oedema and I am having Eyelea injections. I feel my eyesight would be improved if I went to the opticians for some new glasses. Has anyone done this as I believe although it has not been suggested it would help me. I have been having injections for over a year and my opticians appointment
Koalajane
in
Macular Society
4 years ago
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Brittle eyelashes
So this is a strange question, just had my third Lucentis injection and find for days after that my eyelashes on the injected eye always go very stiff and feel brittle. Does anyone else find this? Thanks
So this is a strange question, just had my third Lucentis injection and find for days after that my eyelashes on the injected eye always go very stiff and feel brittle. Does anyone else find this? Thanks
MillieT
in
Macular Society
4 years ago
? anyone know about this?
Basel, 27 May 2020 - Roche (SIX: RO, ROG; OTCQX: RHHBY) today announced positive topline results from the phase III Archway study, evaluating Port Delivery System with ranibizumab (PDS) in people living with neovascular or “wet” age-related macular degeneration (nAMD). PDS is a permanent refillable
Basel, 27 May 2020 - Roche (SIX: RO, ROG; OTCQX: RHHBY) today announced positive topline results from the phase III Archway study, evaluating Port Delivery System with ranibizumab (PDS) in people living with neovascular or “wet” age-related macular degeneration (nAMD). PDS is a permanent refillable
rosyG
in
Macular Society
4 years ago
What assistance can my Mum get?
My fiercely independent 85-year-old Mum has deteriorating eyesight due to Wet Age-Related Macular Degeneration. Until recently she was a very active walker, knitter/crafter, involved in church etc. She's had regular injections in both eyes for > 18 months now but her vision continues to deteriorate.
My fiercely independent 85-year-old Mum has deteriorating eyesight due to Wet Age-Related Macular Degeneration. Until recently she was a very active walker, knitter/crafter, involved in church etc. She's had regular injections in both eyes for > 18 months now but her vision continues to deteriorate.
4mymum
in
Macular Society
4 years ago
Charles Bonnet Webinar - Monday 8th June 2pm
Sight and Sound + Esmee's Umbrella are hosting a webinar dedicated to Charles Bonnet Syndrome., something that can affect anyone with a sight loss condition, such as AMD. There has been a rise in the number of people experiencing hallucinations and Charles Bonnet Syndrome since the start of the Covid
Sight and Sound + Esmee's Umbrella are hosting a webinar dedicated to Charles Bonnet Syndrome., something that can affect anyone with a sight loss condition, such as AMD. There has been a rise in the number of people experiencing hallucinations and Charles Bonnet Syndrome since the start of the Covid
Becky_MacularSociety
Administrator
in
Macular Society
4 years ago
Myopic CNV long term stability outcomes?
Hi everyone, I'm new to this forum I was diagnosed with MMD in my left eye 5 years ago in my early 20's and have been receiving injections in my left eye every 4 months for the last 5 years. I was left with scar tissues that distorts the central vision in that eye but still stable and able to read somewhat
Hi everyone, I'm new to this forum I was diagnosed with MMD in my left eye 5 years ago in my early 20's and have been receiving injections in my left eye every 4 months for the last 5 years. I was left with scar tissues that distorts the central vision in that eye but still stable and able to read somewhat
Linky1
in
Macular Society
4 years ago
Diabetic Macular Edema
I started having eye problems and told my doctor who just said it was my age! I knew it was happening too quickly and went to see an optician who gave me a digital retinal scan and told me I have Macular Edema and referred me to hospital in December. I finally saw the specialist mid March and he
I started having eye problems and told my doctor who just said it was my age! I knew it was happening too quickly and went to see an optician who gave me a digital retinal scan and told me I have Macular Edema and referred me to hospital in December. I finally saw the specialist mid March and he
Gemini55
in
Macular Society
4 years ago
Macular Degeneration
how long before blindness occurs if treatment is stopped for wet macular degeneration
how long before blindness occurs if treatment is stopped for wet macular degeneration
renbarger51
in
Macular Society
5 years ago
WET AMD on a third world country
Hello, I'm from Philippines. I'm just 23 and I'm sure that I have a wet macular degeneration. On my left eye. It's totally dark or wavey on the central line. It's like there's a fluid on my eye when I look around. My right eye is starting to have the same symptoms. I've been suffering this for almost
Hello, I'm from Philippines. I'm just 23 and I'm sure that I have a wet macular degeneration. On my left eye. It's totally dark or wavey on the central line. It's like there's a fluid on my eye when I look around. My right eye is starting to have the same symptoms. I've been suffering this for almost
raylabo3
in
Macular Society
5 years ago
Injections for life? Will health insurance or NHS pay?
I am "only" 53 and have needed to have 2 Eylea injections in my left eye to resolve a slight bleed. So far, so good, but I am wondering if I will need regular injections for the rest of my life? Has anyone else found that a few injections can stop the macular degeneration in its tracks? Also, will my
I am "only" 53 and have needed to have 2 Eylea injections in my left eye to resolve a slight bleed. So far, so good, but I am wondering if I will need regular injections for the rest of my life? Has anyone else found that a few injections can stop the macular degeneration in its tracks? Also, will my
Mpatz
in
Macular Society
5 years ago
having one’s replies switched off
I was unaware I’d committed a contravention(!) and extremely relieved the only punishment was to have my replies switched off! If we’re splitting hairs about what constitutes natural, the only additives in the products prescribed to me by Dr Peatfield are: Each capsule contains: Bovine Thyroid Gland
I was unaware I’d committed a contravention(!) and extremely relieved the only punishment was to have my replies switched off! If we’re splitting hairs about what constitutes natural, the only additives in the products prescribed to me by Dr Peatfield are: Each capsule contains: Bovine Thyroid Gland
Noelnoel
in
Thyroid UK
5 years ago
Difference after injection between Lucentis & Eyelea
After having Lucentis injections monthly for most of the last 2 to 3 years it was felt that a switch to Eyelea might help. Had the second set of injections a couple of days ago and I feel that my eyesight is slightly worse after the injections which is not something I felt with the Lucentis injections
After having Lucentis injections monthly for most of the last 2 to 3 years it was felt that a switch to Eyelea might help. Had the second set of injections a couple of days ago and I feel that my eyesight is slightly worse after the injections which is not something I felt with the Lucentis injections
Sijslws
in
Macular Society
5 years ago
Ozurdex implant
Hi I have CRVO with macular oedema in my right eye, this happened when I was 46, it’s coming up to a year now and I’ve had 3 lucentis injections and 5 bouts of laser, I’ve recently had the ozurdex implant and i must say that it has improved my sight but I was just wandering if anyone else has had this
Hi I have CRVO with macular oedema in my right eye, this happened when I was 46, it’s coming up to a year now and I’ve had 3 lucentis injections and 5 bouts of laser, I’ve recently had the ozurdex implant and i must say that it has improved my sight but I was just wandering if anyone else has had this
sarahc333
in
Macular Society
5 years ago
Usability study
Hi everyone, I'm doing a study about how easy it is to use mobile phones. If you have Diabetic Macular Edema or Neovascular Age Related Macular Degeneration and would be interested in taking part please let me know. The study takes about 2hrs and we also pay for your time and expenses if you take part
Hi everyone, I'm doing a study about how easy it is to use mobile phones. If you have Diabetic Macular Edema or Neovascular Age Related Macular Degeneration and would be interested in taking part please let me know. The study takes about 2hrs and we also pay for your time and expenses if you take part
Lee_medHF
in
Macular Society
5 years ago
Macular degeneration in 2nd eye
I have wet macular degeneration in my right eye for the last 3 years and it has just now started in my left unfortunately. Three days ago I received my first Eylea injection in the left eye and since that time the vision has been worse than it was before the shot - has anyone else experienced this?
I have wet macular degeneration in my right eye for the last 3 years and it has just now started in my left unfortunately. Three days ago I received my first Eylea injection in the left eye and since that time the vision has been worse than it was before the shot - has anyone else experienced this?
Kraven
in
Macular Society
5 years ago
Tirosint users
I have been on a treatment with tirosint and cytomel. I wanted to know if anyone is taking tirosint. I had a wonderful results with the medication. I hope my success with tirosint will help someone else. I know it contains no dyes and acacia, which helps absorption.
I have been on a treatment with tirosint and cytomel. I wanted to know if anyone is taking tirosint. I had a wonderful results with the medication. I hope my success with tirosint will help someone else. I know it contains no dyes and acacia, which helps absorption.
Hidden
in
Thyroid UK
5 years ago
Anaesthesia
For those for whom the matter is of any interest, I discovered that the anaesthetic used by Manchester Royal Eye Hospital is proxymetacaine (which they generally seem to just refer to as "proxy"). They do not "stock" tetracaine. I know some people, like me, are keen to know how effective the anaesthetic
For those for whom the matter is of any interest, I discovered that the anaesthetic used by Manchester Royal Eye Hospital is proxymetacaine (which they generally seem to just refer to as "proxy"). They do not "stock" tetracaine. I know some people, like me, are keen to know how effective the anaesthetic
ironbrain
in
Macular Society
5 years ago
Eylea injections
Hi. I have just been diagnosed with wet macular degeneration. My eyesight is pretty good, just a wavy line in the corner of one eye. I was given a booklet about eylea and the side effects listed are pretty horrific, and says the odds are 1in 10!! This is very scary. My eyes are fairly sensitive at
Hi. I have just been diagnosed with wet macular degeneration. My eyesight is pretty good, just a wavy line in the corner of one eye. I was given a booklet about eylea and the side effects listed are pretty horrific, and says the odds are 1in 10!! This is very scary. My eyes are fairly sensitive at
Eyecloud
in
Macular Society
5 years ago
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