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Restless Legs and Sleeping Tablets?
Tried the usual meds, Ropinirole, Amtriphyline, Pregabalin and Gabapentin - all useless. Having to stop one and gradually increase of the other has been tortuous. Hell. My mental health is suffering with the nightly and now early evening frequent, wired, compulsive urge to move. Also affecting my arm
Tried the usual meds, Ropinirole, Amtriphyline, Pregabalin and Gabapentin - all useless. Having to stop one and gradually increase of the other has been tortuous. Hell. My mental health is suffering with the nightly and now early evening frequent, wired, compulsive urge to move. Also affecting my arm
Springfiel1
in
Restless Legs Syndrome
1 year ago
HELP, PLEASE??!!
I just had a total knee replacement. For 3 years now buprenorphine has helped, but today I took hydromorphone for pain that my surgeon prescribed, Nexium that my family doctor recommended to take to keep the aspirin I have to take postop to keep from getting ulcers, and cyclobenzaprine. Unfortunately
I just had a total knee replacement. For 3 years now buprenorphine has helped, but today I took hydromorphone for pain that my surgeon prescribed, Nexium that my family doctor recommended to take to keep the aspirin I have to take postop to keep from getting ulcers, and cyclobenzaprine. Unfortunately
LanaCSR
in
Restless Legs Syndrome
1 year ago
Augmentation
Hi all , Im slowly weaning off Ropinirole and it has been hell with lots of sleepless nights , I even fell asleep walking and fell , bruising all my back .Im down to 1mg now from 6mg taking the immediate release. Last night my legs were fine until I took my tablet at 20.00 and by 20.15 they were going
Hi all , Im slowly weaning off Ropinirole and it has been hell with lots of sleepless nights , I even fell asleep walking and fell , bruising all my back .Im down to 1mg now from 6mg taking the immediate release. Last night my legs were fine until I took my tablet at 20.00 and by 20.15 they were going
Huntingleroy
in
Restless Legs Syndrome
1 year ago
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Opioid induced loss of appetite
I'm currently taking Buprenorphine, but it seems to be causing a major loss of my appetite. Does anyone know if either Suboxone or Methadone are better in regard to appetite suppression? I can't tell you how important you all are to all of us trying to deal with titration off of these terrible DA's
I'm currently taking Buprenorphine, but it seems to be causing a major loss of my appetite. Does anyone know if either Suboxone or Methadone are better in regard to appetite suppression? I can't tell you how important you all are to all of us trying to deal with titration off of these terrible DA's
climber54
in
Restless Legs Syndrome
1 year ago
I don't actually know what to do now.
I spoke to my GP this afternoon as I'm really struggling with what I believe is severe augmentation. I'm on pramipexole 2 tablets and 2 x 30/500g cocodamol each evening and have been taking cocodamol for years. The pramipexole was introduced last year as my GP ideally wanted me to stop taking the cocodamol
I spoke to my GP this afternoon as I'm really struggling with what I believe is severe augmentation. I'm on pramipexole 2 tablets and 2 x 30/500g cocodamol each evening and have been taking cocodamol for years. The pramipexole was introduced last year as my GP ideally wanted me to stop taking the cocodamol
MillieBerlin
in
Restless Legs Syndrome
1 year ago
Hi, I'm New - and so sick of RLS!
Hello Everyone, I've been lurking off and on but have not posted until today. I'm really glad to have found this group and am thankful to see so much information. I've been dealing with rls for years. I'm 57 and have been on ropinirole for over 10 years now. I started out on 2mg and for the last
Hello Everyone, I've been lurking off and on but have not posted until today. I'm really glad to have found this group and am thankful to see so much information. I've been dealing with rls for years. I'm 57 and have been on ropinirole for over 10 years now. I started out on 2mg and for the last
Moonmyst
in
Restless Legs Syndrome
1 year ago
morphine alternative- any thoughts?
had a review with my GP and mentioned that I am still waking up around 2am with RLS, albeit more manageable than before. She gave me prescription for 'MORPHINE 5MG MODIFIED-RELEASE TABLETS' and said to give this a try to get me through the night. Anybody tried these and are they going to cause me issues
had a review with my GP and mentioned that I am still waking up around 2am with RLS, albeit more manageable than before. She gave me prescription for 'MORPHINE 5MG MODIFIED-RELEASE TABLETS' and said to give this a try to get me through the night. Anybody tried these and are they going to cause me issues
Phantom38
in
Restless Legs Syndrome
1 year ago
Sore tongue
Hi folks, is a sore tongue part of UCTD? I've had sore patches (which grow and change shape, and are smooth in the middle) for some years, more on than off. I've assumed it is geographic tongue but that's supposed to be painless from what I've read. I also have a moderately dry mouth and wondering
Hi folks, is a sore tongue part of UCTD? I've had sore patches (which grow and change shape, and are smooth in the middle) for some years, more on than off. I've assumed it is geographic tongue but that's supposed to be painless from what I've read. I also have a moderately dry mouth and wondering
redmaggie
in
LUPUS UK
1 year ago
Starting pregabalin
I have received a letter from Leicester hospital following my consultation with a neurology Registrar. I am on 1100mg of Gabapentin suggested dose of Pregabalin is 75mg at 6.00pm and 75mg 30 minutes before bedtime, can be uptitrated as required. Does this sound right? I have zero confidence in registrar
I have received a letter from Leicester hospital following my consultation with a neurology Registrar. I am on 1100mg of Gabapentin suggested dose of Pregabalin is 75mg at 6.00pm and 75mg 30 minutes before bedtime, can be uptitrated as required. Does this sound right? I have zero confidence in registrar
Elsie77
in
Restless Legs Syndrome
1 year ago
Clonazepam with Gabapentin
I've been following this forum for years. Thank you for your guidance. Years ago, a doctor prescribed pramipexole. It worked until it didn't. Weaned off and started Gabapentin. It helps somewhat. I take 600 + 600 three hours later, before bed, as suggested here. I recently met with a pulmonologist
I've been following this forum for years. Thank you for your guidance. Years ago, a doctor prescribed pramipexole. It worked until it didn't. Weaned off and started Gabapentin. It helps somewhat. I take 600 + 600 three hours later, before bed, as suggested here. I recently met with a pulmonologist
bbullions
in
Restless Legs Syndrome
1 year ago
which Magnesium?
I have read here of several different types of Magnesium to take for RLS. In my case it is Periodic Limb Movement as well. I take Magnesium Citrate 2x 100 mg. But I have heard people mention Magnesium Malate and Glycinate. Could Sue Johnson or anyone tell me which they think is best?
I have read here of several different types of Magnesium to take for RLS. In my case it is Periodic Limb Movement as well. I take Magnesium Citrate 2x 100 mg. But I have heard people mention Magnesium Malate and Glycinate. Could Sue Johnson or anyone tell me which they think is best?
Ruffabug
in
Restless Legs Syndrome
1 year ago
Methadone and cognition
I just had a cognition test and came out "low normal". I have felt the last couple years that my memory is not what it used to be so this is confirmation. However, I feel much more stupid on methadone. Could this be related to my dose? Take 10 mg around 10 pm, and then another 5 mg in the middle
I just had a cognition test and came out "low normal". I have felt the last couple years that my memory is not what it used to be so this is confirmation. However, I feel much more stupid on methadone. Could this be related to my dose? Take 10 mg around 10 pm, and then another 5 mg in the middle
ratfancy
in
Restless Legs Syndrome
1 year ago
Helpful information on Potassium for RLS relief
Here is a link on Potassium to help with the symptoms of RLS. I hope this is helpful for some. I take my dose along with Magnesium Glycinate around 8 pm, along with Magnesium oil on my legs. I’m also prescribed Oxycodone 5 mg every 6 hours, along with Baclofen for PLMD. Sometimes, I need to use compression
Here is a link on Potassium to help with the symptoms of RLS. I hope this is helpful for some. I take my dose along with Magnesium Glycinate around 8 pm, along with Magnesium oil on my legs. I’m also prescribed Oxycodone 5 mg every 6 hours, along with Baclofen for PLMD. Sometimes, I need to use compression
Wanman4
in
Restless Legs Syndrome
1 year ago
Altruist
My story won't apply to everyone, of course, but you may find a nugget worth considering. I've had mild RLS intermittently for forty years until it recently worsened. I'd always managed it with weighted heat, L-Tryptophan, magnesium glycinate, L-Theanine, and if necessary, a little pacing. At age 36,
My story won't apply to everyone, of course, but you may find a nugget worth considering. I've had mild RLS intermittently for forty years until it recently worsened. I'd always managed it with weighted heat, L-Tryptophan, magnesium glycinate, L-Theanine, and if necessary, a little pacing. At age 36,
Altruist
in
Restless Legs Syndrome
1 year ago
Methadone bliss
From feeling suicidal after so many years of unremitting RLS I’m without pain or discomfort for many hours. I have a wonderful team of consultants who understand and are so supportive brought me to tears My life has improved beyond I would have ever thought it could be. It’s taken for a while so I
From feeling suicidal after so many years of unremitting RLS I’m without pain or discomfort for many hours. I have a wonderful team of consultants who understand and are so supportive brought me to tears My life has improved beyond I would have ever thought it could be. It’s taken for a while so I
Nightwalker999
in
Restless Legs Syndrome
1 year ago
RLS and Adenomyosis
I have had RLS for 30+ years and was also diagnosed with Adenomyosis in 2019. The pain in my legs has increased in the past 6 months to an unbelievable level and I wonder if there is any information/research on having both of these conditions as I'm wondering if the adenomyosis exacerbates the RLS?
I have had RLS for 30+ years and was also diagnosed with Adenomyosis in 2019. The pain in my legs has increased in the past 6 months to an unbelievable level and I wonder if there is any information/research on having both of these conditions as I'm wondering if the adenomyosis exacerbates the RLS?
samd5555
in
Restless Legs Syndrome
1 year ago
Restless leg syndrome
Rls started when I was 7 months pregnant with my first child and has been rearing it’s head since 1973, 50 years. The past few months I have been taking 3gr of red vein kratom and it was helping. Lately it doesn’t seem to control it at bedtime. I spend a couple of hours exercising, stretching and
Rls started when I was 7 months pregnant with my first child and has been rearing it’s head since 1973, 50 years. The past few months I have been taking 3gr of red vein kratom and it was helping. Lately it doesn’t seem to control it at bedtime. I spend a couple of hours exercising, stretching and
Texas71
in
Restless Legs Syndrome
1 year ago
Clonazepam instead of Pregabalin?
I have just had a telephone appointment with a Neurologist which lasted all of 90 seconds, part of which he spent looking through my notes and came to the conclusion that I should try Clonazepam instead of Pregabalin for 6 months. He wasn't interested in listening to anything I had to say about iron
I have just had a telephone appointment with a Neurologist which lasted all of 90 seconds, part of which he spent looking through my notes and came to the conclusion that I should try Clonazepam instead of Pregabalin for 6 months. He wasn't interested in listening to anything I had to say about iron
oldfidgetlegs
in
Restless Legs Syndrome
1 year ago
females & prednisone
does anybody notice vaginal odor while taking prednisone & methotrexate? I remember when on chemotherapy years ago I had a body odor. your thoughts? My gynecologist suggested probiotics with Lactobacillus acidophilus.
does anybody notice vaginal odor while taking prednisone & methotrexate? I remember when on chemotherapy years ago I had a body odor. your thoughts? My gynecologist suggested probiotics with Lactobacillus acidophilus.
Pass7
in
PMRGCAuk
1 year ago
Restless Legs Syndrome
Is anyone else experiencing a shortage of Ropinirole for restless legs? Yet again my usual pharmacy has run out of this drug and it’s the only drug I’ve found so far, that works for me. I can’t work out if it’s my pharmacy not ordering in enough or whether the pharmaceutical company isn’t manufacturing
Is anyone else experiencing a shortage of Ropinirole for restless legs? Yet again my usual pharmacy has run out of this drug and it’s the only drug I’ve found so far, that works for me. I can’t work out if it’s my pharmacy not ordering in enough or whether the pharmaceutical company isn’t manufacturing
Titbit
in
Restless Legs Syndrome
1 year ago
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