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Clinical trial
Hi everyone. I have myelofibrosis. I am on ruxolitinib at the moment but my platelets keeping dropping. My oncologist put me forward for a clinical trial I went to London talked the very nice Dr. He gave me 2 literature books to read regarding the trial. I really don't know what to do. I'm thinking
Hi everyone. I have myelofibrosis. I am on ruxolitinib at the moment but my platelets keeping dropping. My oncologist put me forward for a clinical trial I went to London talked the very nice Dr. He gave me 2 literature books to read regarding the trial. I really don't know what to do. I'm thinking
Ven61
in
MPN Voice
5 years ago
Does anybody else have Polycythaemia Vera with CAL R and TET2 mutations? My doctors seem to be very confused..
Hey everyone, My name is Erik I’m new here and if anybody has any info they could share with me about this, as I was just diagnosed in December 2018, but haven’t been feeling good for a very long time I would appreciate it!Thank you in advance.
Hey everyone, My name is Erik I’m new here and if anybody has any info they could share with me about this, as I was just diagnosed in December 2018, but haven’t been feeling good for a very long time I would appreciate it!Thank you in advance.
Emurr
in
MPN Voice
5 years ago
Ibrutinib Plus Venetoclax in Relapsed/Refractory Chronic Lymphocytic Leukemia: Update on The CLARITY Study
Published on line July 11, 2019, Accepted by JCO May 31 2019 Dr P Hillmen We have some members who are in this important CLARITY Study in UK. CLARITY is a phase II trial that combined ibrutinib with venetoclax in patients with relapsed or refractory CLL. The primary end point was eradication of MRD after
Published on line July 11, 2019, Accepted by JCO May 31 2019 Dr P Hillmen We have some members who are in this important CLARITY Study in UK. CLARITY is a phase II trial that combined ibrutinib with venetoclax in patients with relapsed or refractory CLL. The primary end point was eradication of MRD after
Jm954
Administrator
in
CLL Support
5 years ago
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Bone marrow test ?
Hi everybody My wife was diagnosed with CLL five years ago , she’s 13q delation mutated and started Imbruvica in January with excellent results since her numbers are almost back to normal. Her oncologist is in France and since diagnosis, she had two complete scans the first year ,two FISH test in all
Hi everybody My wife was diagnosed with CLL five years ago , she’s 13q delation mutated and started Imbruvica in January with excellent results since her numbers are almost back to normal. Her oncologist is in France and since diagnosis, she had two complete scans the first year ,two FISH test in all
Sergi
in
CLL Support
5 years ago
Hcl
Recently diagnosed with dle have a consultants appt in 3 weeks to hopefully start hcl. I'm assuming I'll just be given a prescription or do I get a choice of which hcl I'd prefer?? I've had the eye test plus blood /urine tests Thanks in advance for any advise I'm feeling like a little fish in a big
Recently diagnosed with dle have a consultants appt in 3 weeks to hopefully start hcl. I'm assuming I'll just be given a prescription or do I get a choice of which hcl I'd prefer?? I've had the eye test plus blood /urine tests Thanks in advance for any advise I'm feeling like a little fish in a big
Gemllo
in
LUPUS UK
5 years ago
Novel Combos Are Shaking Up the CLL Landscape but FCR still has its place
Published: Saturday, Sep 14, 2019 During a presentation at the 2019 Society of Haematological Oncology Annual Meeting, Dr Jain said recent clinical trial findings have helped clarify therapy choices based on the patient’s age, comorbid conditions, and mutation status but that questions about optimal
Published: Saturday, Sep 14, 2019 During a presentation at the 2019 Society of Haematological Oncology Annual Meeting, Dr Jain said recent clinical trial findings have helped clarify therapy choices based on the patient’s age, comorbid conditions, and mutation status but that questions about optimal
Jm954
Administrator
in
CLL Support
5 years ago
Clinical trial results & reviews of new treatments for CLL written in easy to understand terms
in the treatment of chronic
lymphocytic
leukemia
(CLL).
in the treatment of chronic
lymphocytic
leukemia
(CLL).
lankisterguy
Volunteer
in
CLL Support
5 years ago
The micro-environment and more
Wang on the micro-environment in CLL: https://cllsociety.org/2019/07/ash-2018-dr-yucai-wang-on-the-micro-environment-in-cll-chronic-
lymphocytic
-
leukemia
/ Turns out targeting it is both important and not easy to hit I also have a new blog post about being tired and a link to a CAR-T trial with JCAR
Wang on the micro-environment in CLL: https://cllsociety.org/2019/07/ash-2018-dr-yucai-wang-on-the-micro-environment-in-cll-chronic-
lymphocytic
-
leukemia
/ Turns out targeting it is both important and not easy to hit I also have a new blog post about being tired and a link to a CAR-T trial with JCAR
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
New research study reported in NEJM: Ibrutinib–Rituximab or Chemoimmunotherapy for Chronic Lymphocytic Leukemia
Found this to be a good news article. I know some will say study was funded heavily by drug companies, but so what....I base my opinion on the integrity of the researchers. https://www.nejm.org/doi/full/10.1056/NEJMoa1817073?query=oncology-hematology [i]This post by Dr Koffman provides very valuable
Found this to be a good news article. I know some will say study was funded heavily by drug companies, but so what....I base my opinion on the integrity of the researchers. https://www.nejm.org/doi/full/10.1056/NEJMoa1817073?query=oncology-hematology [i]This post by Dr Koffman provides very valuable
jdolinger
in
CLL Support
5 years ago
EU Panel Backs Expanded Indication of Ibrutinib Combos in CLL
Friday, Jun 28, 2019 The European Medicines Agency’s Committee for Medicinal Products for Human Use (CHMP) has recommended expanding the indications of ibrutinib (Imbruvica) to include use in combination with obinutuzumab (Gazyva) for adult patients with previously untreated chronic
lymphocytic
leukemia
Friday, Jun 28, 2019 The European Medicines Agency’s Committee for Medicinal Products for Human Use (CHMP) has recommended expanding the indications of ibrutinib (Imbruvica) to include use in combination with obinutuzumab (Gazyva) for adult patients with previously untreated chronic
lymphocytic
leukemia
Jm954
Administrator
in
CLL Support
5 years ago
Bone marrow
My Bone marrow biopsy showed that I have 80% cancer in the marrow. Is this rather high for people with CLL? Do all CLL patients have a bone marrow biopsy
My Bone marrow biopsy showed that I have 80% cancer in the marrow. Is this rather high for people with CLL? Do all CLL patients have a bone marrow biopsy
tootsie2
in
CLL Support
5 years ago
Chronic Lymphocytic Leukemia: USA Updates in Diagnosis and Testing
Much more here: https://www.onclive.com/publications/special-issues/2019/changing-chronic-
lymphocytic
-
leukemia
/chronic-
lymphocytic
-
leukemia
-updates-in-diagnosis-and-testing? Jackie
Much more here: https://www.onclive.com/publications/special-issues/2019/changing-chronic-
lymphocytic
-
leukemia
/chronic-
lymphocytic
-
leukemia
-updates-in-diagnosis-and-testing? Jackie
Jm954
Administrator
in
CLL Support
5 years ago
Advances in drug‐based therapies in chronic lymphocytic leukemia and future prospects
First published: 08 February 2019 in Advances in Cell and Gene Therapy Journal Chronic
lymphocytic
leukemia
(CLL) has experienced a revolution over the past few decades with a marked expansion in therapeutic options and improvement in outcomes.
First published: 08 February 2019 in Advances in Cell and Gene Therapy Journal Chronic
lymphocytic
leukemia
(CLL) has experienced a revolution over the past few decades with a marked expansion in therapeutic options and improvement in outcomes.
Jm954
Administrator
in
CLL Support
5 years ago
Long-term safety of single-agent ibrutinib in patients with chronic lymphocytic leukemia in 3 pivotal studies
I have checked but apologies if this has been posted before. Published online June 13, 2019. Key Points * In 424 patients with CLL on long-term ibrutinib, AEs were primarily grade 1/2 and manageable; the majority of patients continued therapy. * AE management requiring dose modification most commonly
I have checked but apologies if this has been posted before. Published online June 13, 2019. Key Points * In 424 patients with CLL on long-term ibrutinib, AEs were primarily grade 1/2 and manageable; the majority of patients continued therapy. * AE management requiring dose modification most commonly
Jm954
Administrator
in
CLL Support
5 years ago
Mode of Progression After Frontline Treatment Predicts Clinical Outcomes in Patients With CLL
July 15, 2019 Patients with chronic
lymphocytic
leukemia
(CLL) who progress with lymphadenopathy after frontline treatment may experience inferior clinical outcomes compared with patients who progress with increasing absolute lymphocyte count (ALC), according to recent analysis of data from the German
July 15, 2019 Patients with chronic
lymphocytic
leukemia
(CLL) who progress with lymphadenopathy after frontline treatment may experience inferior clinical outcomes compared with patients who progress with increasing absolute lymphocyte count (ALC), according to recent analysis of data from the German
Jm954
Administrator
in
CLL Support
5 years ago
Infection proneness after Imbruvica for CLL?
My chronic
lymphocytic
leukemia
(CLL) has been treated with Rituximab and Imbruvica/ ibrutinib. My B-cells are gone, the bad, cancerous, but also the good ones. My Hb is 90, thrombocytes 62 and leukocytes 9.4.
My chronic
lymphocytic
leukemia
(CLL) has been treated with Rituximab and Imbruvica/ ibrutinib. My B-cells are gone, the bad, cancerous, but also the good ones. My Hb is 90, thrombocytes 62 and leukocytes 9.4.
Veuveclique
in
CLL Support
5 years ago
Dr. Wang of Mayo on Richter's Transformation and my Irish Podcast on CAR-T
This is increasingly a problem as we are living longer with our CLL, but RT still has a dismal prognosis Here is that interview https://cllsociety.org/2019/06/ash-2018-dr-wang-on-richters-transformation-in-cll-chronic-
lymphocytic
-
leukemia
/ Also you might want to listen to my FutureProof interview in
This is increasingly a problem as we are living longer with our CLL, but RT still has a dismal prognosis Here is that interview https://cllsociety.org/2019/06/ash-2018-dr-wang-on-richters-transformation-in-cll-chronic-
lymphocytic
-
leukemia
/ Also you might want to listen to my FutureProof interview in
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
Newly diagnosed with Chronic Lymphocytic Leukemia or Small Lymphocytic Lymphoma - CLL/SLL or just found us? This post is for you!
life expectancy is no longer a given https://healthunlocked.com/cllsupport/posts/private/147856246/a-decade-of-improvement-in-chronic-
lymphocytic
-
leukemia
-treatments-means-a-shorter-life-expectancy-is-no-longer-a-given In
Towards Control Of Chronic
Leukemia
With Targeted Agents[/b
life expectancy is no longer a given https://healthunlocked.com/cllsupport/posts/private/147856246/a-decade-of-improvement-in-chronic-
lymphocytic
-
leukemia
-treatments-means-a-shorter-life-expectancy-is-no-longer-a-given In
Towards Control Of Chronic
Leukemia
With Targeted Agents[/b
AussieNeil
Partner
in
CLL Support
5 years ago
Growth dynamics in naturally progressing chronic lymphocytic leukaemia
[/i] https://www.cancertherapyadvisor.com/home/cancer-topics/chronic-
lymphocytic
-
leukemia
/chronic-leukemia-cll-pre-treatment-growth-patterns-as-a-predictor-of-disease/?
[/i] https://www.cancertherapyadvisor.com/home/cancer-topics/chronic-
lymphocytic
-
leukemia
/chronic-leukemia-cll-pre-treatment-growth-patterns-as-a-predictor-of-disease/?
Jm954
Administrator
in
CLL Support
5 years ago
Marginal zone lymphoma Facebook support group
https://www.facebook.com/groups/1734968436810226/?ref=share Hi, Hope you don’t mind my sharing a link to the marginal zone lymphoma Facebook site for the members on this site who have been diagnosed with a combo of CLL and mzl or mzl. This is a rarer lymphoma with much less research done so it is
https://www.facebook.com/groups/1734968436810226/?ref=share Hi, Hope you don’t mind my sharing a link to the marginal zone lymphoma Facebook site for the members on this site who have been diagnosed with a combo of CLL and mzl or mzl. This is a rarer lymphoma with much less research done so it is
Judyanne
in
CLL Support
5 years ago
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