Search
Search
About
Log in
Join
Experiences with
Lymphocytic leukemia
Posts
Communities
3,090 public posts
Filter results
Front-Runners Emerge in the Race for a Covid-19 Vaccine
Herd immunity via a vaccine that produces a good immune response is the best way forward for CLL and other immunocompromised patients all over the world. From WIRED Science Science 05.08.2020 Two leading candidates are headed for mass clinical trials, and everything’s on the table—including deliberately
Herd immunity via a vaccine that produces a good immune response is the best way forward for CLL and other immunocompromised patients all over the world. From WIRED Science Science 05.08.2020 Two leading candidates are headed for mass clinical trials, and everything’s on the table—including deliberately
Jm954
Administrator
in
CLL Support
4 years ago
Opportunity to support the listing of Acalabrutinib and Venetoclax for the treatment of Australians with CLL
No matter where you live, you can support the access of Australians with CLL to Acalabrutinib or Venetoclax treatment. Australia's Pharmaceutical Benefits Advisory Committee (PBAC) is soon assessing Acalabrutinib or Venetoclax for listing - which would make them an affordable treatment for Australians
No matter where you live, you can support the access of Australians with CLL to Acalabrutinib or Venetoclax treatment. Australia's Pharmaceutical Benefits Advisory Committee (PBAC) is soon assessing Acalabrutinib or Venetoclax for listing - which would make them an affordable treatment for Australians
AussieNeil
Partner
in
CLL Support
4 years ago
An Early Look at When CAR-T Therapy Fails Patients With CLL
More here: https://www.cancertherapyadvisor.com/home/cancer-topics/chronic-
lymphocytic
-
leukemia
/chronic-leukemia-cll-early-look-cart-therapy-patients/ Jackie
More here: https://www.cancertherapyadvisor.com/home/cancer-topics/chronic-
lymphocytic
-
leukemia
/chronic-leukemia-cll-early-look-cart-therapy-patients/ Jackie
Jm954
Administrator
in
CLL Support
4 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Stopping ibrutinib and imaging in CLL
Lamanna explains at iwCLL 2019 in Scotland in the article by Tom Henry, the CLL Society’s Ask the Pharmacist expert: https://cllsociety.org/2020/03/iwcll-2019-dr-lamana-discusses-the-appropriateness-of-imaging-in-cll-chronic-
lymphocytic
-
leukemia
/ Stay strong. We are all in this together.
Lamanna explains at iwCLL 2019 in Scotland in the article by Tom Henry, the CLL Society’s Ask the Pharmacist expert: https://cllsociety.org/2020/03/iwcll-2019-dr-lamana-discusses-the-appropriateness-of-imaging-in-cll-chronic-
lymphocytic
-
leukemia
/ Stay strong. We are all in this together.
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
Analysing and Resequencing Gene Panels from the UK CLL4 trial (1999-2004) is helping patients today.
More here; https://www.nature.com/articles/s41375-020-0723-2 https://www.hematologyadvisor.com/home/topics/
leukemia
/prognostic-and-clinical-significance-of-genes-in-chronic-
lymphocytic
-
leukemia
/ Jackie
More here; https://www.nature.com/articles/s41375-020-0723-2 https://www.hematologyadvisor.com/home/topics/
leukemia
/prognostic-and-clinical-significance-of-genes-in-chronic-
lymphocytic
-
leukemia
/ Jackie
Jm954
Administrator
in
CLL Support
4 years ago
good news and bad news
Good news & bad news today . I had my rutine blood sample taken yesterday and Dr called me today instead going to the Clinic .My inmunoglobulins have risen ( specially IGA which was a little low and now close to normal ) WCC is normal as it has been for several months...... but my hematocrit and Hemglobin
Good news & bad news today . I had my rutine blood sample taken yesterday and Dr called me today instead going to the Clinic .My inmunoglobulins have risen ( specially IGA which was a little low and now close to normal ) WCC is normal as it has been for several months...... but my hematocrit and Hemglobin
antonb
in
CLL Support
4 years ago
Sheilding letter - I got one
Hi All I received this email see below - then forwarded it to my Dr surgery and they confirmed i should off had a letter and one arrived the next day. Covid-19 We are aware from feedback from patients that there is confusion over whether they should be shielding and what this means. In addition, many
Hi All I received this email see below - then forwarded it to my Dr surgery and they confirmed i should off had a letter and one arrived the next day. Covid-19 We are aware from feedback from patients that there is confusion over whether they should be shielding and what this means. In addition, many
TheFlyer
in
CLL Support
4 years ago
Covid-19: What, if anything, can we learn from integrative oncology experts?
I have just read a long article addressing possible concrete responses to Covid-19 by a doc specializing in integrative oncology. It was written for lay people (thank goodness!). Is there anyone in this group who sees an integrative oncologist for CLL? If there is, I would be interested in hearing
I have just read a long article addressing possible concrete responses to Covid-19 by a doc specializing in integrative oncology. It was written for lay people (thank goodness!). Is there anyone in this group who sees an integrative oncologist for CLL? If there is, I would be interested in hearing
hsouter
in
CLL Support
4 years ago
Videos now available - Webinar talks and Q&A sessions - leukaemia and COVID - 19
Yesterday, we hosted two webinars on coronavirus, featuring two specialists. These webinars on acute leukaemia and chronic lymphocytic leukaemia (CLL) can now be found on our YouTube > In the videos leading consultants are joined by patients as they discuss and answer questions about how COVID-19
Yesterday, we hosted two webinars on coronavirus, featuring two specialists. These webinars on acute leukaemia and chronic lymphocytic leukaemia (CLL) can now be found on our YouTube > In the videos leading consultants are joined by patients as they discuss and answer questions about how COVID-19
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
Richter's transformation.
Hello everyone. Been a little out of the way this month. The news of Dave's death left me very emotionally ill. I got to know him and currently I still don't understand his sudden death. I want to update my health status. As you know with the coronavirus problem they have canceled all visits. My doctor
Hello everyone. Been a little out of the way this month. The news of Dave's death left me very emotionally ill. I got to know him and currently I still don't understand his sudden death. I want to update my health status. As you know with the coronavirus problem they have canceled all visits. My doctor
Priss69
in
CLL Support
4 years ago
UK CLL Forum *Follow-Up Survey for UK CLL Patients regarding the support you're getting- Please complete if you can.
The UK CLL Forum is the special interest group for medical doctors in UK with an interest and working in the clinical field of CLL management. They have partnered with CLL Support (who moderate this site) and Leukaemia Care to promote a survey which will inform future planning . This is their message
The UK CLL Forum is the special interest group for medical doctors in UK with an interest and working in the clinical field of CLL management. They have partnered with CLL Support (who moderate this site) and Leukaemia Care to promote a survey which will inform future planning . This is their message
Jm954
Administrator
in
CLL Support
4 years ago
Jakafi for Patients with COVID-19
« Incyte announced that they are working in partnership with the FDA to initiate a phase III clinical trial to evaluate the efficacy and safety of ruxolitinib (Jakafi) plus standard-of-care (SoC), compared to SoC therapy alone, in patients with coronavirus disease 2019 (COVID-19) induced cytokine storm
« Incyte announced that they are working in partnership with the FDA to initiate a phase III clinical trial to evaluate the efficacy and safety of ruxolitinib (Jakafi) plus standard-of-care (SoC), compared to SoC therapy alone, in patients with coronavirus disease 2019 (COVID-19) induced cytokine storm
Manouche
in
MPN Voice
4 years ago
Dr. Mato on Sequencing and what is CLLAN
Mato presents some reassuring data that when we use venetoclax, namely that we still have some good options when it stops working in this interview from ASH 2019 (https://cllsociety.org/2020/02/ash-2019-dr-mato-on-sequencing-of-chronic-
lymphocytic
-
leukemia
-cll-therapies-after-venetoclax/).
Mato presents some reassuring data that when we use venetoclax, namely that we still have some good options when it stops working in this interview from ASH 2019 (https://cllsociety.org/2020/02/ash-2019-dr-mato-on-sequencing-of-chronic-
lymphocytic
-
leukemia
-cll-therapies-after-venetoclax/).
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
Essential thrombocytosis
I have been dx with essential thrombocytosis. I have went for a year with a high wbc of 12.44 (or higher) and platelets of 513 (or higher). I have had a bone biopsy and it came back no cancer. I also run a low grade fever of around 99.8 every day. My joints ache all the time. My oncologist said I'm
I have been dx with essential thrombocytosis. I have went for a year with a high wbc of 12.44 (or higher) and platelets of 513 (or higher). I have had a bone biopsy and it came back no cancer. I also run a low grade fever of around 99.8 every day. My joints ache all the time. My oncologist said I'm
Kimsteff
in
MPN Voice
4 years ago
Naked Scientist Podcast: COVID- 19 mutations - 25 min -
https://podcasts.apple.com/us/podcast/naked-genetics-from-the-naked-scientists/id527187069?i=1000471544600 From Naked Scientist series - the Naked Geneticist April15,2020. Several discussions w international scientist working w the virus using different approaches. (January 9,2020 is one of the dates
https://podcasts.apple.com/us/podcast/naked-genetics-from-the-naked-scientists/id527187069?i=1000471544600 From Naked Scientist series - the Naked Geneticist April15,2020. Several discussions w international scientist working w the virus using different approaches. (January 9,2020 is one of the dates
db601
in
CLL Support
4 years ago
Marginal Zone Lymphoma (MZL) or Aggressive/Transformed CLL?
Hi everyone, What are the key markers for MZL? So far I have CD23-, CD43-, CD5-. Are these accurate, and what are other key markers, including genetic phenotype? Pathologists (both are highly respected institutions--CLL society approved) are conflicted about my dad's diagnosis--whether it is aggressive
Hi everyone, What are the key markers for MZL? So far I have CD23-, CD43-, CD5-. Are these accurate, and what are other key markers, including genetic phenotype? Pathologists (both are highly respected institutions--CLL society approved) are conflicted about my dad's diagnosis--whether it is aggressive
Phs2385
in
CLL Support
4 years ago
Webinar - Coronavirus and acute leukaemia
Leukaemia Care will be joined by Dr Amit Patel, consultant in cellular therapies and stem cell transplantation, haematology and transplant unit from the Christie NHS foundation trust. Dr Patel will discuss the potential changes to your care as a result of the coronavirus outbreak as well as providing
Leukaemia Care will be joined by Dr Amit Patel, consultant in cellular therapies and stem cell transplantation, haematology and transplant unit from the Christie NHS foundation trust. Dr Patel will discuss the potential changes to your care as a result of the coronavirus outbreak as well as providing
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
FISH Results
The report goes on to say “Deletion of ATM is associated with marked lymphadenopathy and rapid disease progression in chronic
lymphocytic
leukemia
(CLL/SLL).” Can anyone tell me what this means?
The report goes on to say “Deletion of ATM is associated with marked lymphadenopathy and rapid disease progression in chronic
lymphocytic
leukemia
(CLL/SLL).” Can anyone tell me what this means?
DylanPxxx
in
CLL Support
4 years ago
Sign up to our weekly newsletter and get all our advice and recommendations for self-isolation straight to your inbox
Stay informed about all our latest activities, events and news on our quest to support anyone affected by a blood cancer.
Sign up to our newsletter and keep up-to-date with what's happening at Leukaemia Care
https://www.leukaemiacare.org.uk/communication-preferences/ Read our regularly updated
Stay informed about all our latest activities, events and news on our quest to support anyone affected by a blood cancer.
Sign up to our newsletter and keep up-to-date with what's happening at Leukaemia Care
https://www.leukaemiacare.org.uk/communication-preferences/ Read our regularly updated
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
Covid-19 help get food
A lot of people are posting about difficulty and worry over getting food / delivery slots ... I hope this helps... 1. Contact your local council Local U.K. councils are working to link people who can’t shop with volunteers who can shop for you. 2. Contact Local age concern branch as they are organising
A lot of people are posting about difficulty and worry over getting food / delivery slots ... I hope this helps... 1. Contact your local council Local U.K. councils are working to link people who can’t shop with volunteers who can shop for you. 2. Contact Local age concern branch as they are organising
Laax
in
MPN Voice
4 years ago
1
...
62
63
64
...
100
Next page
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1940 results
MPN Voice
789 results
Leukaemia Support
168 results
View top 10 communities
Sort by
Most Relevant
Newest