Search
Search
About
Log in
Join
Experiences with
Lymphocytic leukemia
Posts
Communities
3,089 public posts
Filter results
CLL/SLL Roundtable: Updates on Patient Management (including low dose radiation treatment for early stage SLL)
Joshua Brody, MD, Richard Bakst, MD, and Amir Steinberg, MD, of the Icahn School of Medicine at Mount Sinai, New York City, discuss updates on the management of patients with small
lymphocytic
lymphoma (SLL) and chronic
lymphocytic
leukemia
(CLL).
Joshua Brody, MD, Richard Bakst, MD, and Amir Steinberg, MD, of the Icahn School of Medicine at Mount Sinai, New York City, discuss updates on the management of patients with small
lymphocytic
lymphoma (SLL) and chronic
lymphocytic
leukemia
(CLL).
AussieNeil
Partner
in
CLL Support
4 years ago
Unmutated patients on venetoclax?
I just watched the video "Evolving Front-Line Therapy in Chronic
Lymphocytic
Leukemia
" posted by EugeneL2. In it, she refers to the trial where patients on venetoclax + obinutuzumab had much better results than those on chlorambucil + obinutuzumab.
I just watched the video "Evolving Front-Line Therapy in Chronic
Lymphocytic
Leukemia
" posted by EugeneL2. In it, she refers to the trial where patients on venetoclax + obinutuzumab had much better results than those on chlorambucil + obinutuzumab.
HikerBiker
in
CLL Support
4 years ago
Stem Cell Transplant
I heard this can cure PV. Why the he is this not legal in the USA?! Obviously I can't fly to Panama to get this done and can't afford it. I'm sick of being fatigued!
I heard this can cure PV. Why the he is this not legal in the USA?! Obviously I can't fly to Panama to get this done and can't afford it. I'm sick of being fatigued!
lebowski42
in
MPN Voice
4 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Cytogenetics showed dup(1q)
Have just received a copy of the last phone consultation under diagnosis: polycythemia vera 1997 JAK2 V617F positive/Post polycythemia myelofibrosis 2019, came this it wasn't mentioned in the call. Cytogenetics showed dup(1q) anyone know what it means as my next phone consultant is not till the end of
Have just received a copy of the last phone consultation under diagnosis: polycythemia vera 1997 JAK2 V617F positive/Post polycythemia myelofibrosis 2019, came this it wasn't mentioned in the call. Cytogenetics showed dup(1q) anyone know what it means as my next phone consultant is not till the end of
Kabuki
in
MPN Voice
4 years ago
NIGHT SWEATS
I would appreciate input from members on Night Sweats. Although I am a little over two years in W&W, and I understand very well the symptoms my Hematologist/Oncologist will look for regarding triggers for treatment (RBC count, Platelet Count, increased infections, and Night Sweats) I am uncertain if
I would appreciate input from members on Night Sweats. Although I am a little over two years in W&W, and I understand very well the symptoms my Hematologist/Oncologist will look for regarding triggers for treatment (RBC count, Platelet Count, increased infections, and Night Sweats) I am uncertain if
wizzard166
in
CLL Support
4 years ago
Aussies, please consider enrolling in this study into the personal impact of CLL and help our world wide CLL/SLL community
Australians diagnosed with chronic lymphocytic leukaemia/small lymphocytic lymphoma (CLL/SLL), whether in watch and wait or in treatment:- [i]- Are you ready to have your say on the support, care & information patients need? - Are you ready for your experience to help others in the future? - Are you
Australians diagnosed with chronic lymphocytic leukaemia/small lymphocytic lymphoma (CLL/SLL), whether in watch and wait or in treatment:- [i]- Are you ready to have your say on the support, care & information patients need? - Are you ready for your experience to help others in the future? - Are you
AussieNeil
Partner
in
CLL Support
4 years ago
Towards personalised management of CLL? Ibrutinib study reveals new way to gauge patients’ response to treatment
Excerpts from https://www.genengnews.com/topics/omics/cll-drug-study-finds-single-cell-analysis-can-gauge-response-rate/ *** Ibrutinib, a Bruton tyrosine kinase (BTK) inhibitor, has remarkable efficacy in most patients with CLL. It is becoming the standard of care for most patients requiring treatment
Excerpts from https://www.genengnews.com/topics/omics/cll-drug-study-finds-single-cell-analysis-can-gauge-response-rate/ *** Ibrutinib, a Bruton tyrosine kinase (BTK) inhibitor, has remarkable efficacy in most patients with CLL. It is becoming the standard of care for most patients requiring treatment
bennevisplace
in
CLL Support
4 years ago
Join us tomorrow at 4.00pm 5th August for the launch of the AML Virtual Support Group (South UK)
Our friendly virtual support group is open to anybody from the south of the UK that has been affected by a acute myeloid leukaemia diagnosis. This is a great opportunity to meet new people and share in real time your experiences. Also you will gain insights from a leading AML specialist haematologist
Our friendly virtual support group is open to anybody from the south of the UK that has been affected by a acute myeloid leukaemia diagnosis. This is a great opportunity to meet new people and share in real time your experiences. Also you will gain insights from a leading AML specialist haematologist
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
4 years ago
UK CLL Forum - updated post lockdown guidance for the management of CLL
During the height of the COVID19 pandemic the UK CLL Forum issued guidance on managing CLL patients. This guidance has now been updated with post lockdown guidance. Many of us will be disappointed to see that the first point is to continue to 'consider telephone or video conference appointments if feasible
During the height of the COVID19 pandemic the UK CLL Forum issued guidance on managing CLL patients. This guidance has now been updated with post lockdown guidance. Many of us will be disappointed to see that the first point is to continue to 'consider telephone or video conference appointments if feasible
Jm954
Administrator
in
CLL Support
4 years ago
How to tell young children
Hi, my husband is in the stages of being confirmed to have CLL. He already has CML which he is in remission with, and was diagnosed with when he 25 (now 38). We have a 3.5yrs son, and I was wondering if anyone has any tips how to approach the subject with him. He knows things are not right at home, and
Hi, my husband is in the stages of being confirmed to have CLL. He already has CML which he is in remission with, and was diagnosed with when he 25 (now 38). We have a 3.5yrs son, and I was wondering if anyone has any tips how to approach the subject with him. He knows things are not right at home, and
Savage27
in
CLL Support
4 years ago
CLL life prognosis
I would like to ask you what is the prognosis for life of a poor prognosis Chronic
Lymphocytic
Leukemia
. The doctors never informed me that I had a bad prognosis and I recently found out from a friend who looked at my medical reports. Greetings to all. My IGHV is not mutated.
I would like to ask you what is the prognosis for life of a poor prognosis Chronic
Lymphocytic
Leukemia
. The doctors never informed me that I had a bad prognosis and I recently found out from a friend who looked at my medical reports. Greetings to all. My IGHV is not mutated.
Priss69
in
CLL Support
4 years ago
Anyone know of links between MPN’s and working on military radars?
Hi, I got diagnosed in April this year with ET with Jak2 mutation. Up until the discovery I was fit and healthy. I understood that MPN’s were rare and weren’t related to lifestyle choices. But I had a sudden moment of “what if” whilst at work today. I’ve served over 14 years in the RAF as a comms
Hi, I got diagnosed in April this year with ET with Jak2 mutation. Up until the discovery I was fit and healthy. I understood that MPN’s were rare and weren’t related to lifestyle choices. But I had a sudden moment of “what if” whilst at work today. I’ve served over 14 years in the RAF as a comms
MadamCholet1
in
MPN Voice
4 years ago
FCR oral versus iv
Hi I have read that cyclophosphamide and fludarabine can be given orally instead of IV. Is oral better tolerated in terms side effects? I guess oral formulation avoids need to attend hospital more frequently for infusions too. Is there anything else I should consider if needing tx with FCR? Thanks
Hi I have read that cyclophosphamide and fludarabine can be given orally instead of IV. Is oral better tolerated in terms side effects? I guess oral formulation avoids need to attend hospital more frequently for infusions too. Is there anything else I should consider if needing tx with FCR? Thanks
CarpeDiem03
in
CLL Support
4 years ago
Worried About Your CLL? A CLL EXPERT PHYSICIAN CAN GIVE YOU A 2nd OPINION ONLINE AT NO COST TO YOU! (Applies to USA Residents only)
https://cllsociety.org/cll-society-expert-access/ CLL Society Expert Access™ Program ( Unfortunately this is available to USA Residents only - Sorry) - We believe that access to CLL expert care is critical for every patient to receive his or her best possible care. Access to a CLL expert provides proven
https://cllsociety.org/cll-society-expert-access/ CLL Society Expert Access™ Program ( Unfortunately this is available to USA Residents only - Sorry) - We believe that access to CLL expert care is critical for every patient to receive his or her best possible care. Access to a CLL expert provides proven
lankisterguy
Volunteer
in
CLL Support
4 years ago
25 with ET
Hello all, I am new here. I am 25, got diagnosed with ET with JAK2 mutation positive. The funny part is I am doctor myself, just got my general physician degree after 6 years of hard work. Now it is 3 more years to complete the specialty of my choice, then I will be a specialist doctor. So, being from
Hello all, I am new here. I am 25, got diagnosed with ET with JAK2 mutation positive. The funny part is I am doctor myself, just got my general physician degree after 6 years of hard work. Now it is 3 more years to complete the specialty of my choice, then I will be a specialist doctor. So, being from
DoctorWithET
in
MPN Voice
4 years ago
CAR-NK and using Interlukin-27 to boost the cytotoxic effect of NK cells on CLL in the bone marrow
[/i](My emphasis) [i]However, the use of recombinant human interleukin-27 (IL-27) was able to increase cytotoxic effects of bone marrow natural killer cells in chronic
lymphocytic
leukemia
(CLL).
[/i](My emphasis) [i]However, the use of recombinant human interleukin-27 (IL-27) was able to increase cytotoxic effects of bone marrow natural killer cells in chronic
lymphocytic
leukemia
(CLL).
AussieNeil
Partner
in
CLL Support
4 years ago
ASH 2019: Dr. Jennifer Brown on Using Ibrutinib After Progressing on Venetoclax for Ibrutinib-Naïve Patients with CLL
https://cllsociety.org/2020/05/ash-2019-dr-jennifer-brown-on-using-ibrutinib-after-progressing-on-venetoclax-for-ibrutinib-naive-patients-with-chronic-
lymphocytic
-
leukemia
-cll/
https://cllsociety.org/2020/05/ash-2019-dr-jennifer-brown-on-using-ibrutinib-after-progressing-on-venetoclax-for-ibrutinib-naive-patients-with-chronic-
lymphocytic
-
leukemia
-cll/
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
Haematocrit
Hi all I haven't posted for a while but am interested how many have a high red blood count (HCT) when diagnosed with ET or MF Thanks in advance Graham
Hi all I haven't posted for a while but am interested how many have a high red blood count (HCT) when diagnosed with ET or MF Thanks in advance Graham
Graham7694
in
MPN Voice
4 years ago
Painful hands
I have had Lupus SLE for 16 years. My main problems are skin related. At the moment I am not on any medication as all of the ones I have tried ( and there have been many) seem to have unpleasant side effects. My Rhemy now wants me to try Rituximab which I am scared to try but will probably end up having
I have had Lupus SLE for 16 years. My main problems are skin related. At the moment I am not on any medication as all of the ones I have tried ( and there have been many) seem to have unpleasant side effects. My Rhemy now wants me to try Rituximab which I am scared to try but will probably end up having
littlemissp
in
LUPUS UK
4 years ago
Three-drug GIV combo promising against high-risk CLL - Patients with deletion 17p or TP53 (from EHA Congress)
[i]For patients with high-risk chronic
lymphocytic
leukemia
(CLL), first-line therapy with a triple combination of targeted agents obinutuzumab (Gazyva), ibrutinib (Imbruvica), and venetoclax (Venclexta) showed encouraging response rates in the phase 2 CLL2-GIVe trial.
[i]For patients with high-risk chronic
lymphocytic
leukemia
(CLL), first-line therapy with a triple combination of targeted agents obinutuzumab (Gazyva), ibrutinib (Imbruvica), and venetoclax (Venclexta) showed encouraging response rates in the phase 2 CLL2-GIVe trial.
AussieNeil
Partner
in
CLL Support
4 years ago
1
...
57
58
59
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1939 results
MPN Voice
789 results
Leukaemia CARE
168 results
View top 10 communities
Sort by
Most Relevant
Newest