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Time-to-progression after front-line FCR for CLL: a retrospective, multicohort study
It has been known for some time that FCR can produce very long remissions (perhaps cures) for some patients with mutated CLL. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4760129/ This study looks at unmutated patients and could be an important study for CLL patients or, on the other hand, completely
It has been known for some time that FCR can produce very long remissions (perhaps cures) for some patients with mutated CLL. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4760129/ This study looks at unmutated patients and could be an important study for CLL patients or, on the other hand, completely
Jm954
Administrator
in
CLL Support
4 years ago
Join us and spread the word about the symptoms of leukaemia
'We may be living in uncertain times, but there is one thing we are certain of: awareness of leukaemia needs to be dramatically improved.' Each year we reach millions of people with our spot leukaemia campaign but despite our efforts, awareness of blood cancer amongst the public, as well as in primary
'We may be living in uncertain times, but there is one thing we are certain of: awareness of leukaemia needs to be dramatically improved.' Each year we reach millions of people with our spot leukaemia campaign but despite our efforts, awareness of blood cancer amongst the public, as well as in primary
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
Treating Asymptomatic Patients With Polycythemia Vera
Jerry L. Spivak, MD, discusses treating patients with polycythemia vera, which is a type of myeloproliferative neoplasm that can often derive from essential thrombocythemia, particularly among women. https://www.targetedonc.com/view/treating-asymptomatic-patients-with-polycythemia-vera
Jerry L. Spivak, MD, discusses treating patients with polycythemia vera, which is a type of myeloproliferative neoplasm that can often derive from essential thrombocythemia, particularly among women. https://www.targetedonc.com/view/treating-asymptomatic-patients-with-polycythemia-vera
Manouche
in
MPN Voice
4 years ago
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Do all novel drugs "clear" CLL cells in blood, lymph nodes and bone marrow?
Do all novel drugs (non-chemotherapy) "clear" CLL cells in blood, lymph nodes and bone marrow? Or perhaps some drugs clear CLL cells only in blood, but are unable to get into bone marrow?
Do all novel drugs (non-chemotherapy) "clear" CLL cells in blood, lymph nodes and bone marrow? Or perhaps some drugs clear CLL cells only in blood, but are unable to get into bone marrow?
mantana
in
CLL Support
4 years ago
When CLL Meets COVID-19
When CLL Meets COVID-19 CLL Society is pleased to share with you the preeminent Spanish physician Prof. Dr. Emili Montserrat’s excellent commentary, recently published in BLOOD, reviewing two large studies on SARS-Cov2 infections in CLL patients. Prof. Dr. Emili Montserrat is one of the most prestigious
When CLL Meets COVID-19 CLL Society is pleased to share with you the preeminent Spanish physician Prof. Dr. Emili Montserrat’s excellent commentary, recently published in BLOOD, reviewing two large studies on SARS-Cov2 infections in CLL patients. Prof. Dr. Emili Montserrat is one of the most prestigious
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
CLL Society's October 10th Virtual Global Patient Educational Forum, featuring Dr. John Byrd speaking on Clinical Trials!
CLL Society's October 10th Virtual Global Patient Educational Forum, featuring Dr. John Byrd speaking on Clinical Trials! While Dr. John Byrd is well known for his clinical trials that have brought ground-breaking drugs to CLL and other blood cancers, he is equally well respected for always PUTTING PATIENTS
CLL Society's October 10th Virtual Global Patient Educational Forum, featuring Dr. John Byrd speaking on Clinical Trials! While Dr. John Byrd is well known for his clinical trials that have brought ground-breaking drugs to CLL and other blood cancers, he is equally well respected for always PUTTING PATIENTS
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
has anyone been on exjade
You can all see my post from 2 or so weeks ago. I knew shortly after my iron levels were elevated due to transfusions. Ferritin is also an inflammatory marker but my total iron combining capacity has also been rising steadily ( TIBC). I cannot reduce my transfusion dependency as I have gone down to 52
You can all see my post from 2 or so weeks ago. I knew shortly after my iron levels were elevated due to transfusions. Ferritin is also an inflammatory marker but my total iron combining capacity has also been rising steadily ( TIBC). I cannot reduce my transfusion dependency as I have gone down to 52
skodaguy
in
MPN Voice
4 years ago
COVID risk to CLL patients with the reopening of schools
Hello all We are wondering if any other CLL patients are having the same issue or taking the same stand as we are here in Ireland. As some of you know my wife Jan was diagnosed in 2011 age 39 after 3 years very sick she was fortunate to get on an Ibrutinib trial in Leeds in 2014. Thankfully bloods
Hello all We are wondering if any other CLL patients are having the same issue or taking the same stand as we are here in Ireland. As some of you know my wife Jan was diagnosed in 2011 age 39 after 3 years very sick she was fortunate to get on an Ibrutinib trial in Leeds in 2014. Thankfully bloods
Irishcll
in
CLL Support
4 years ago
(Imbruvica), Ibrutinib, To live or to die
Hi, I have a 50-years old friend who has had CLL since 2013. He had a relapse in early 2020. When he was close to death, he was hospitalized to a private hospital in Turkey and was prescribed Imbruvica from Janssen company. Since he does not have insurance, he bought the medicine himself and spent almost
Hi, I have a 50-years old friend who has had CLL since 2013. He had a relapse in early 2020. When he was close to death, he was hospitalized to a private hospital in Turkey and was prescribed Imbruvica from Janssen company. Since he does not have insurance, he bought the medicine himself and spent almost
Green202
in
CLL Support
4 years ago
Webinar - Living with the psychological impact of leukaemia and lymphoma in the COVID-19 era
From time to time CLL Support partner with other charities that share our aims and objectives and we are pleased to promote this webinar from Leukaemia Care and Lymphoma Action. It's their first ever joint webinar for those living with a lymphoma or leukaemia diagnosis. This webinar will explore the
From time to time CLL Support partner with other charities that share our aims and objectives and we are pleased to promote this webinar from Leukaemia Care and Lymphoma Action. It's their first ever joint webinar for those living with a lymphoma or leukaemia diagnosis. This webinar will explore the
Jm954
Administrator
in
CLL Support
4 years ago
Welcome
Welcome all the new people who joined in the last few months, I appreciate you don’t want to be here but it is a good place to get help. We have heard from a few of you but it would be great to hear from all of you in new posts. It helps us by knowing how we can help you. Key items are: Which MPN?
Welcome all the new people who joined in the last few months, I appreciate you don’t want to be here but it is a good place to get help. We have heard from a few of you but it would be great to hear from all of you in new posts. It helps us by knowing how we can help you. Key items are: Which MPN?
MFBMT2011
in
MPN Voice
4 years ago
Resistance to Ibrutinib
Hi everyone this is my first post. I'm looking for some advice, reassurance please. I'm tp53 mutated and have been on ibrutinib 7 months, which is not working.I saw my consultant on Thursday and the plan is to continue for another 3 months to see if it starts working. My lymphocytes remain at 300. Has
Hi everyone this is my first post. I'm looking for some advice, reassurance please. I'm tp53 mutated and have been on ibrutinib 7 months, which is not working.I saw my consultant on Thursday and the plan is to continue for another 3 months to see if it starts working. My lymphocytes remain at 300. Has
Reddg
in
CLL Support
4 years ago
Webinar - 4pm 27th August - Living with the psychological impact of leukaemia and lymphoma in the COVID-19 era
Good evening all, We are pleased to share information of this timely webinar. Please join us. Lymphoma Action is working with Leukaemia Care to host their first ever joint webinar that will explore the psychological impact of living with a lymphoma or leukaemia and discuss clinical care, support, coping
Good evening all, We are pleased to share information of this timely webinar. Please join us. Lymphoma Action is working with Leukaemia Care to host their first ever joint webinar that will explore the psychological impact of living with a lymphoma or leukaemia and discuss clinical care, support, coping
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
CLL Treatments Today: What Should I Know? October 3, 2020 at 9:00 AM Pacific Time / 12:00 PM Eastern Time
https://mailchi.mp/patientpower.info/your-patient-powered-cll-news-1299504?e=8acc3ddacd Saturday, October 3, 2020 at 9:00 AM Pacific Time / 12:00 PM Eastern Time This 3-hour program will take you through a CLL 101, 201 and 301 class hosted by CLL patient advocates and experts from Cleveland Clinic and
https://mailchi.mp/patientpower.info/your-patient-powered-cll-news-1299504?e=8acc3ddacd Saturday, October 3, 2020 at 9:00 AM Pacific Time / 12:00 PM Eastern Time This 3-hour program will take you through a CLL 101, 201 and 301 class hosted by CLL patient advocates and experts from Cleveland Clinic and
lankisterguy
Volunteer
in
CLL Support
4 years ago
Today is World Leukemia Day
Dear friends Today, patients, patient groups, clinical groups and organisations across the world are uniting to raise awareness of leukaemia. By publicising the signs and symptoms we are working together to help leukaemia patients get diagnosed and provide better outcomes for them. You can make
Dear friends Today, patients, patient groups, clinical groups and organisations across the world are uniting to raise awareness of leukaemia. By publicising the signs and symptoms we are working together to help leukaemia patients get diagnosed and provide better outcomes for them. You can make
HAIRBEAR_UK
Administrator
in
CLL Support
4 years ago
Newly diagnosed and hoping for a bit of advice
Hi, Thankyou to all those who have put so much into this site. Its been a huge help in the last few days since I started trying to find out more about SLL. I'm a 46 year old male in the UK who felt ill (exhausted, night sweats, generally weak and achy muscles) for around 2 years with the symptoms very
Hi, Thankyou to all those who have put so much into this site. Its been a huge help in the last few days since I started trying to find out more about SLL. I'm a 46 year old male in the UK who felt ill (exhausted, night sweats, generally weak and achy muscles) for around 2 years with the symptoms very
Pdaquinas
in
CLL Support
4 years ago
Anyone have experience with Venclexta capped at 200 mg?
I am a 62 yr old woman and will be starting Obinutuzumab in 2 days with Venclexta added my 4th week. I was diagnosed with SLL/CLL May 2019 and was watch and wait until now. It has been confined to my lymph nodes and my blood tests have been in the normal range. Treatment is starting due to increase in
I am a 62 yr old woman and will be starting Obinutuzumab in 2 days with Venclexta added my 4th week. I was diagnosed with SLL/CLL May 2019 and was watch and wait until now. It has been confined to my lymph nodes and my blood tests have been in the normal range. Treatment is starting due to increase in
Flute117
in
CLL Support
4 years ago
Ibrutinib plus fludarabine, cyclophosphamide, and rituximab as initial treatment for younger patients with CLL
This is an abstract from the Lancet article. There's a fair bit of detail missing regarding the profile of the CLL patients in terms of IgHV mutation status etc and the follow up is still very short but they are claiming that this is the best response ever published in patients with CLL unrestricted
This is an abstract from the Lancet article. There's a fair bit of detail missing regarding the profile of the CLL patients in terms of IgHV mutation status etc and the follow up is still very short but they are claiming that this is the best response ever published in patients with CLL unrestricted
Jm954
Administrator
in
CLL Support
4 years ago
MDS?
Originally diagnosed w ET. Was on HU and then taken off after 18 mos due to anemia. Platelets have remained low normal but HCT have continued to drop. Anemia not iron related. Now Dr has mentioned BMB for MDS or post ET MF? What the h**? Is MDS still a MPN? Seems like opposite?
Originally diagnosed w ET. Was on HU and then taken off after 18 mos due to anemia. Platelets have remained low normal but HCT have continued to drop. Anemia not iron related. Now Dr has mentioned BMB for MDS or post ET MF? What the h**? Is MDS still a MPN? Seems like opposite?
Kerri2
in
MPN Voice
4 years ago
CLL with CAD
CLL with Cold Agglutinin Disease New to the group, 72 yr old male, served in Vietnam from 1967 to 1970 Diagnosed in Feb 2020 Would like to hear from anyone CLL and CAD (Cold Agglutinin Disease)
CLL with Cold Agglutinin Disease New to the group, 72 yr old male, served in Vietnam from 1967 to 1970 Diagnosed in Feb 2020 Would like to hear from anyone CLL and CAD (Cold Agglutinin Disease)
Hidden
in
CLL Support
4 years ago
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