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NHS sending out a PCR test to all CLL patients
I've just read Leukaemia Care's latest email newsletter. In their advice about these new Covid treatments for the likes of us, they say: "If you have symptoms of COVID-19, you should take a PCR test. If you are eligible for the COVID-19 treatments,
you will soon be sent a PCR test in the post
I've just read Leukaemia Care's latest email newsletter. In their advice about these new Covid treatments for the likes of us, they say: "If you have symptoms of COVID-19, you should take a PCR test. If you are eligible for the COVID-19 treatments,
you will soon be sent a PCR test in the post
flyhigher
in
CLL Support
3 years ago
iwCLL video presentations available on vjheonc
The biennial International Workshop on Chronic
Lymphocytic
Leukemia
(XIX iwCLL 2021) was held from 17-20 September 2021 as a virtual meeting. The most recent iwCLL video presentations from the world's best CLL experts are now available to view on vjhemonc.
The biennial International Workshop on Chronic
Lymphocytic
Leukemia
(XIX iwCLL 2021) was held from 17-20 September 2021 as a virtual meeting. The most recent iwCLL video presentations from the world's best CLL experts are now available to view on vjhemonc.
Jm954
Administrator
in
CLL Support
3 years ago
Bispecific Antibodies and CLL
Last year Dr Brian Koffman https://healthunlocked.com/user/bkoffman wrote a succinct piece Bispecific Antibodies: what are they and are they the future of treatment for CLL (chronic
lymphocytic
leukemia
)?
Last year Dr Brian Koffman https://healthunlocked.com/user/bkoffman wrote a succinct piece Bispecific Antibodies: what are they and are they the future of treatment for CLL (chronic
lymphocytic
leukemia
)?
bennevisplace
in
CLL Support
3 years ago
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COVID-19 Mortality, Hospitalization Risk Higher in Patients With Blood Cancers
We've discussed this often here. This is the latest from ASH 2021. Of interest: <<Patients with MPN and plasma cell dyscrasia had less severe COVID-19 illness overall compared to patients with CLL, leukemia, MDS, or lymphoma.>> https://www.pharmacytimes.com/view/covid-19-mortality-hospitalization-risk-higher-in-patients-with-blood-cancers
We've discussed this often here. This is the latest from ASH 2021. Of interest: <<Patients with MPN and plasma cell dyscrasia had less severe COVID-19 illness overall compared to patients with CLL, leukemia, MDS, or lymphoma.>> https://www.pharmacytimes.com/view/covid-19-mortality-hospitalization-risk-higher-in-patients-with-blood-cancers
EPguy
in
MPN Voice
3 years ago
ASH 2021 -- cytopenic myelofibrosis
I've been checking out the Hematology conference. For cytopenic myelofibrosis a Phase 3 trial PERSIST-2 reports pacritinib has advantages over Rux. https://www.cancernetwork.com/view/treatment-with-tafasitamab-lenalidomide-and-r-chop-yields-promising-activity-in-untreated-dlbcl <<Among the 43 patients
I've been checking out the Hematology conference. For cytopenic myelofibrosis a Phase 3 trial PERSIST-2 reports pacritinib has advantages over Rux. https://www.cancernetwork.com/view/treatment-with-tafasitamab-lenalidomide-and-r-chop-yields-promising-activity-in-untreated-dlbcl <<Among the 43 patients
EPguy
in
MPN Voice
3 years ago
Please Help with the Global Leukaemia Patient Experience Survey 2021
The CLL Advocates Network (CLLAN) in partnership with Acute Leukemia Advocates Network (ALAN) and the CML Advocates Network (CMLAN) are running a Global Leukemia Patient Experience Survey 2021 to create a global picture of the key issues, experiences and unmet needs of leukaemia patients. The survey
The CLL Advocates Network (CLLAN) in partnership with Acute Leukemia Advocates Network (ALAN) and the CML Advocates Network (CMLAN) are running a Global Leukemia Patient Experience Survey 2021 to create a global picture of the key issues, experiences and unmet needs of leukaemia patients. The survey
Jm954
Administrator
in
CLL Support
3 years ago
Is inositol, hexaphosphate form, bad for CLL?
Hi, all. IP6 (a form of inositol called inositol hexaphosphate readily available as a supplement) has been shown to be very anti-cancer, including at least one blood cancer, AML I think. However, as I read about how it works, it seems to indicate that it increases or activates Bruton Tyrosine Kinase
Hi, all. IP6 (a form of inositol called inositol hexaphosphate readily available as a supplement) has been shown to be very anti-cancer, including at least one blood cancer, AML I think. However, as I read about how it works, it seems to indicate that it increases or activates Bruton Tyrosine Kinase
Vlaminck
in
CLL Support
3 years ago
Vulnerable Americans are desperate to find this Covid-19 drug ( Evusheld ) Thousands of boxes are sitting around unused
https://covid-19-therapeutics-locator-dhhs.hub.arcgis.com/
- "It's almost like we are in a game and competing," said Michele Nadeem-Baker, who has chronic
lymphocytic
leukemia
and has not been able to get Evusheld from her doctors in Boston.
https://covid-19-therapeutics-locator-dhhs.hub.arcgis.com/
- "It's almost like we are in a game and competing," said Michele Nadeem-Baker, who has chronic
lymphocytic
leukemia
and has not been able to get Evusheld from her doctors in Boston.
lankisterguy
Volunteer
in
CLL Support
2 years ago
Summary Paper from Drs, Claire N. Harrison and Donal P. McLornan
Nice summary I just came across from some of the experts. I've included some outtakes I found notable. Lots more in there on R&D for MF. https://onlinelibrary.wiley.com/doi/pdf/10.1111/bjh.16573 From chart, HCT control matters. This was discovered ~2011 and is likely a big part of what we've discussed
Nice summary I just came across from some of the experts. I've included some outtakes I found notable. Lots more in there on R&D for MF. https://onlinelibrary.wiley.com/doi/pdf/10.1111/bjh.16573 From chart, HCT control matters. This was discovered ~2011 and is likely a big part of what we've discussed
EPguy
in
MPN Voice
3 years ago
Venetoclax and calquence combo for Cll
Anyone have experience with V and Calquence together? My husband has been on calquence 4 months but Haemotolgist states his bone marrow still 80 to 90% full of cancerous lymphocytes. Doc wants V and R but husband has had no issues with Calquence and would prefer to stay on it along with Venetoclax. Lymphocytes
Anyone have experience with V and Calquence together? My husband has been on calquence 4 months but Haemotolgist states his bone marrow still 80 to 90% full of cancerous lymphocytes. Doc wants V and R but husband has had no issues with Calquence and would prefer to stay on it along with Venetoclax. Lymphocytes
smirnof
in
CLL Support
3 years ago
Chronic Lymphocytic Leukemia/Leukaemia (CLL) Patients: Shingles, Antivirals, Antibiotics, and the new Shingrix Vaccine (Please read first)
Dear CLL Support Healthunlocked (HU) Readers, First, for those new to this forum, please have a read of: https://healthunlocked.com/cllsupport/posts/141151813/newly-diagnosed-with-chronic-
lymphocytic
-
leukemia
-or-small-
lymphocytic
-lymphoma-cll-sll-or-just-found-us-this-post-is-for-you If you are new to
Dear CLL Support Healthunlocked (HU) Readers, First, for those new to this forum, please have a read of: https://healthunlocked.com/cllsupport/posts/141151813/newly-diagnosed-with-chronic-
lymphocytic
-
leukemia
-or-small-
lymphocytic
-lymphoma-cll-sll-or-just-found-us-this-post-is-for-you If you are new to
Ernest2
in
CLL Support
3 years ago
Mutations in MPNs to “interfere-on »
IFNα therapy has been shown to deplete the MPN HSPC pool through activation and exit from a quiescent state and induction of differentiation. These biological effects seem to be influenced by driver mutation status, JAK2V617F homozygosity, and dosing approach. The clinical implication of the findings
IFNα therapy has been shown to deplete the MPN HSPC pool through activation and exit from a quiescent state and induction of differentiation. These biological effects seem to be influenced by driver mutation status, JAK2V617F homozygosity, and dosing approach. The clinical implication of the findings
Manouche
in
MPN Voice
3 years ago
How do majority of CLL patients respond to Rituximab and venetoclax and what are common side effects?
Calquence not working to clear cll from bone marrow. Can person continue to do rather heavy work while on V and R?
Calquence not working to clear cll from bone marrow. Can person continue to do rather heavy work while on V and R?
smirnof
in
CLL Support
3 years ago
Shopping on AmazonSmile helps your CLL Charity!!!
I just received this for my CLL Society Charity: This is the quarterly notification to inform you that AmazonSmile has made a charitable donation to the charity you’ve selected, Leukemia & Lymphoma Society, in the amount of $79,087.73 as a result of qualifying purchases made by you and other customers
I just received this for my CLL Society Charity: This is the quarterly notification to inform you that AmazonSmile has made a charitable donation to the charity you’ve selected, Leukemia & Lymphoma Society, in the amount of $79,087.73 as a result of qualifying purchases made by you and other customers
WinJ3
in
CLL Support
3 years ago
Leukemia and Lymphoma Society 3 D models help improve our understanding of Chronic Lymphocytic Leukemia (CLL/SLL)
https://www.lls.org/3d-model-library/lymph-node-anatomy-3d-model Blood cell development (hematopoeisis) - https://www.lls.org/3d-model-library/blood-cell-development-3d-model CLL 3D Models, showing Proliferation Cells and the Crowding Out of Normal Cells - https://www.lls.org/3d-model-library/chronic-
lymphocytic
-
leukemia
https://www.lls.org/3d-model-library/lymph-node-anatomy-3d-model Blood cell development (hematopoeisis) - https://www.lls.org/3d-model-library/blood-cell-development-3d-model CLL 3D Models, showing Proliferation Cells and the Crowding Out of Normal Cells - https://www.lls.org/3d-model-library/chronic-
lymphocytic
-
leukemia
AussieNeil
Partner
in
CLL Support
3 years ago
Frontline treatment of Chronic Lymphocytic Leukemia (CLL/SLL) in 2021
Please reply to this locked post: https://healthunlocked.com/cllsupport/posts/private/146751881/frontline-treatment-of-chronic-
lymphocytic
-
leukemia
-cll-sll-in-2021[/i]
Please reply to this locked post: https://healthunlocked.com/cllsupport/posts/private/146751881/frontline-treatment-of-chronic-
lymphocytic
-
leukemia
-cll-sll-in-2021[/i]
CLLerinOz
Administrator
in
CLL Support
3 years ago
Myelofibrosis and nausea
Hi everyone. I was diagnosed with Prefibrotic Myelofibrosis 3 years ago and current take asprin and 500mg Hu 8 times a week. I take the medication in the mornings with breakfast. The last few weeks I have been waking feeling nauseous- once I have eaten it eases but if I am late having lunch it returns
Hi everyone. I was diagnosed with Prefibrotic Myelofibrosis 3 years ago and current take asprin and 500mg Hu 8 times a week. I take the medication in the mornings with breakfast. The last few weeks I have been waking feeling nauseous- once I have eaten it eases but if I am late having lunch it returns
kiwitraveller
in
MPN Voice
3 years ago
HELP—Positive COVID test
Hi all, I’m thankful for this community, I’m a long time reader, I don’t comment often but I need some advice tonight. My mom was diagnosed with CLL in Spring 2019. She is on ibrutinib and her lymphocytes have come down from 711 (!) in May 2019 to 98 a few months ago at her last appointment. She developed
Hi all, I’m thankful for this community, I’m a long time reader, I don’t comment often but I need some advice tonight. My mom was diagnosed with CLL in Spring 2019. She is on ibrutinib and her lymphocytes have come down from 711 (!) in May 2019 to 98 a few months ago at her last appointment. She developed
DaughterofCLLfighter
in
CLL Support
3 years ago
Which monoclonal antibody would work with omicron covid 19?
Which monoclonal antibody would work with omicron covid 19? Reposted from CLLSLL@groups.io : https://groups.io/g/CLLSLL/message/32338 with permission from the author - [i] From: Rick Furman Date: Sat, 18 Dec 2021 19:29:29 EST Right now, the majority of variants isolated in the US are still delta
Which monoclonal antibody would work with omicron covid 19? Reposted from CLLSLL@groups.io : https://groups.io/g/CLLSLL/message/32338 with permission from the author - [i] From: Rick Furman Date: Sat, 18 Dec 2021 19:29:29 EST Right now, the majority of variants isolated in the US are still delta
lankisterguy
Volunteer
in
CLL Support
3 years ago
Night Sweats
I was diagnosed in March 2020 and have had treatment with both Ibrutinib and Venetoclax. I am currently on no chemo drugs and may restart Venetoclax late January 2022. My blood counts have been continuously low and particulary in 2021 I had to spend time in hospital while I received anti-biotics and
I was diagnosed in March 2020 and have had treatment with both Ibrutinib and Venetoclax. I am currently on no chemo drugs and may restart Venetoclax late January 2022. My blood counts have been continuously low and particulary in 2021 I had to spend time in hospital while I received anti-biotics and
Dym230109
in
CLL Support
3 years ago
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