lupus chilblains

[magictotty38]

Does anyone have experience of lupus chilblains ? I have had them severely for the past 3 winters , and they always end up cracked ulcerated , bleeding ,and infected as they are currently .My chiropodist has been wonderful , but now feels that however much she tends to them ,and dresses them ,they feel comfortable for a short while , but ultimately they don't improve. She has suggested I ask my gp for a referral to a Podiatrist ; I saw him today ,and he is going to do that , but he doesn't hold out much hope ,as they will generally only treat Diabetics. I have Lupus ,I have neuropathy in my feet, I have Raynauds , I have a long history of leg ulcers ,from my 20's onwards ,and I am pre -diabetic., and currently haveI ulcerated and bleeding toes. If I'm not accepted ,then I honestly don't' know where to turn for help .Has anyone seen a podiatrist privately ,and received good care .?I Iive in the East of England ; if anyone has any helpful suggestions I would be really grateful ,thank you

[vitalspark]

I’ve had SLE for more than 30 years and have had plenty of Lupus symptoms from osteoarthritis heart issues and gastric issues currently being investigated, however one of the most painful has been the Raynaud's Syndrome. Currently trying VIAGRA at my GP’s advice, not sure if it’s doing very well but you have to try. I have not found that anything that works very well, mainly my hands affected which get very sensitive fingertips and at this time of year susceptible to splits that don’t want to heal, I have found plastic skin made by Germoline, stings a fair that and plenty of E45 helps.

[Occasion99]

I had lupus chilblains for the first time ever last Christmas .in my 40 year history of lupus!

I was started on viagra but then parts of my toes were developing necrosis so I was hospitalised. I was given Iloprost infusions overa week.

I have to admit it’s not pleasant but my toes improved in a couple of days and by the end of the infusion my toes loooked almost normal and the chilblains nearly healed.

I’m now on nifedipine as the viagra made me feel unwell and no more chilblains!

Might be worth mentioning?

Take care x

[Barbara17]

Hello. I have suffered from really painful chilblains all my life, long before I was diagnosed with lupus. Nothing seems to help but at one dermatologist appointment I mentioned them to my consultant and she confirmed they were lupus chilblains - something I didn’t know existed! However she recommended I use dermovate ointment on them and it does help. It even calms down the mad, painful itch.

[Renu]

Hi, I found that using Dermovate cream at night really helps with lupus chilblains. My rheumatologist prescribed Dermovate and has also given me low dose Amlodopine for the chilblains. These two combined have helped but my fingers and toes become very sore too.