Experiences with

Lung transplant

My doctor says that after a 2nd remission, meaning after ibrutinib and venetoclax have failed that a stem cell transplant is the next option. I have been on IB for 14 months and it has been amazing but I am terrified about doing a stem cell transplant. Can someone share their experiences if you have

Hello all, Had a transplant 13 years ago and slowly kidney function has decreased. Current creat is 3.4 and bun in 60's. Have started to feel some compression around heart this weak and wondering if others out there have also as well and if you have any suggestions on care for heart now that I am in

“I had no immune system for months after my bone marrow transplant. Here’s how I avoided viral illness, and how you can, too. It’s easier than you think.” A.M. Carter Mar 22 · 12 min read https://medium.com/@amcarter/i-had-no-immune-system-for-months-after-my-bone-marrow-transplant-1b097f16040c

My kidneys holding steady at stage 4 and renal function a little better. Getting AV fistula in my left upper arm next Monday. Started eval in November. US showed a suspicious mass in right kidney so just had an MRI last week and is a suspicious solid mass that could be renal cell carcinoma. Waiting

Hello 2 greys sorry for your news.I am new to this site but have been on the copd for sometime. Now Discovered by accident I have a 4 cm tumour on my left lung.Am waiting on a biopsy to confirm if cancerous.My lung doc thinks it is.I am 80 years young and have lung problems for years so didn't think

It has been 6 months now since my son had his kidney transplant. My son really wants to go and have some fun , does anyone have any ideas on where I can take him ? I am scared of all the germs but I can’t keep him from wanting to play he is only 5 years old . Any ideas anyone?

Finally the day arrived and he was great. He told us the the Child’s Pugh score was 10 and I can’t remember the name for,the other score but he said to be considered for Liver Transplant the score is 49 and my husband’s score was 51. He is putting him on to Rifaximin and wants him to reduce the amount

Calling all those who have had a transplant or are on the waiting list If you have had a liver transplant, or are waiting for one, please could you take a few moments to answer some questions to help us understand the kinds of issues you've faced and possible solutions. The views you give will help

My mother passed away from Myxedema Coma, my sister fell into a Myxedema Coma & thankfully saved as lived in France & they immediately recognised hypothyroidism even though TSH normal. The NHS ignore my history & my TSH normal although I have exact symptoms down to putting on 30kg of fluid. My body is

Went to see my Surgeon-Consultant last week, CT scan not good (attached). After my lung operation in October 2018, most recent CT scan shows a large nodule and a few scattered in the lung. I'm in on the 18th Feb, they will go into the lung and have a look, best outcome is biopsies then treatment, second

Hi there☕ I have no good news from the hospital, I'm afraid. I have breast cancer, it's small and treatable😊but a lung nodule has come back, 23mm, after they had disappeared 😔Because I'm getting a cold and my breathing is hopeless I was very dejected and angry. I just thought I had managed a to

my husband has been in hospital since the 31st of January day that he had kidney transplant! After a spike in creatinine of 30 valued he had 3 iv steroid treatment, calcium treatment and his Hemoglibin was low in need of a blood transfusion that was done 2 days ago. After a second biopsy they placed

Anyway, in 2012 and 2013 I was in Mayo Lung Transplant Center 13 times with gram negative infections....and at home on IV’s 5 times....tough battles! I was giving you background before asking my question but do want to comment that no one can predict how long you have “left on this earth”.

Waiting for an answer of yes or no to go on lung transplant list

Some of you will know of the two online liver courses that were run by FutureLearn. These were "Liver Disease: Looking after Your Liver" and "Liver Transplant". I, like so many have done both these courses, scoring 91% and 98% which surprised me at the time. I was therefore disappointed to learn

Allotment,j Had liver transplant 6yrs ago and have since suffered gastric problems Wind constipation bloating Any advice Allotment

Lung Transplant next

Hi there I’m guessing that a lot of people are in the same boat about Covid19. My husband recently underwent a stem cell transplant for ALL and is now taking immunosuppressant medication. I currently work part time in the retail sector and I’m really confused and anxious about what to do for the best

Hi all. Just a little update from me. 21.8 19 A very brave person lost there fight for live and gave hope to others. I am one of those . I cannot express how grateful me and my family are. Every day is a blessing for us Never give up hoping ..

After 3 day lung transplant accesment