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Pancoast Tumor Survivor nearing 5 years!
Just want to help anyone with questions concerning a Pancoast Tumor with Horner's Syndrome. I might can be of some support. I've read where some find it hard to get much info on this rare form of Cancer.
Just want to help anyone with questions concerning a Pancoast Tumor with Horner's Syndrome. I might can be of some support. I've read where some find it hard to get much info on this rare form of Cancer.
Bama1971
in
The Roy Castle Lung Cancer Foundation
10 years ago
Follow up after initial course of chemotherapy.
Could anybody tell me what is the approximate time scale for follow up after initial duscharge after cgemotherapy for Stage 4 lung cancer, have date for scan ( and seeing oncologist 3 weeks after last scan but finding it difficukt to get an answer as to how many months after this is the next appointmnt
Could anybody tell me what is the approximate time scale for follow up after initial duscharge after cgemotherapy for Stage 4 lung cancer, have date for scan ( and seeing oncologist 3 weeks after last scan but finding it difficukt to get an answer as to how many months after this is the next appointmnt
1122334455321
in
The Roy Castle Lung Cancer Foundation
10 years ago
Share your story this Christmas
Would you like to share your story this Christmas? We’re looking for volunteers who’d be willing to share Christmassy stories and experiences of lung disease with the media. This might be anything from you receiving a lung transplant at Christmas to an experience you’ve had with a nurse or carer who’
Would you like to share your story this Christmas? We’re looking for volunteers who’d be willing to share Christmassy stories and experiences of lung disease with the media. This might be anything from you receiving a lung transplant at Christmas to an experience you’ve had with a nurse or carer who’
BLFCommsTeam
in
Lung Conditions Community Forum
10 years ago
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Cystoscopy - advise please
Good Morning! My husband has just received his letter calling him to hospital for the above procedure in a couple of weeks. He uses ambulatory oxygen so we will take that with us and I have noted it says that the "nurse will talk you for the procedure" - doubtful will get a wheelchair. Just wondered
Good Morning! My husband has just received his letter calling him to hospital for the above procedure in a couple of weeks. He uses ambulatory oxygen so we will take that with us and I have noted it says that the "nurse will talk you for the procedure" - doubtful will get a wheelchair. Just wondered
Hidden
in
Lung Conditions Community Forum
10 years ago
Inhalers and side effects
I have a question l hope someone help me put my mind at ease someone told me that inhalers can cause mouth cancer l have copd mild and take advair twice a day l use it properly and rinse my mouth right after and also l drink a glass of water she thinks l am crazy for taking the inhalers and maybe l just
I have a question l hope someone help me put my mind at ease someone told me that inhalers can cause mouth cancer l have copd mild and take advair twice a day l use it properly and rinse my mouth right after and also l drink a glass of water she thinks l am crazy for taking the inhalers and maybe l just
Petar28
in
Lung Conditions Community Forum
10 years ago
Good GP in London who will prescribe T3
I had a thyroid lobectomy 3 years ago and have been trying to manage my hypothyroidism since. No support from GP, but have seen Dr Peatfield and basically self managed myself. I am an Australian living here but currently spending 6 months of the year here and 6 months in Australia where I have medical
I had a thyroid lobectomy 3 years ago and have been trying to manage my hypothyroidism since. No support from GP, but have seen Dr Peatfield and basically self managed myself. I am an Australian living here but currently spending 6 months of the year here and 6 months in Australia where I have medical
Mortimermary
in
Thyroid UK
10 years ago
lung surgery
I'm having the top third of my right lung removed on 25th October.......I've got a holiday booked to Gambia on 14th January....will I be able to go?? Will I feel well enough?? Will I be allowed to fly for 6 hours??
I'm having the top third of my right lung removed on 25th October.......I've got a holiday booked to Gambia on 14th January....will I be able to go?? Will I feel well enough?? Will I be allowed to fly for 6 hours??
murphy88
in
The Roy Castle Lung Cancer Foundation
10 years ago
wobbily moments??
As some of you will know, because you have kindly supported and responded to me and my queries........ more............. my husband has now overcome shingles,(except for one 6mm lesion which has remained intact for over two weeks and a biopsy will be carried out next week). he will re-start ibrutinib
As some of you will know, because you have kindly supported and responded to me and my queries........ more............. my husband has now overcome shingles,(except for one 6mm lesion which has remained intact for over two weeks and a biopsy will be carried out next week). he will re-start ibrutinib
lartington
in
CLL Support
10 years ago
one of them days
to start this site didn't put my first and second logs up so am typing it again . this morning my mobility scooter battery is flat they fink charger is broke so are taking it away to fix it . then some idiot rings door bell and despite me yelling out im coming they have gone when I get there , and now
to start this site didn't put my first and second logs up so am typing it again . this morning my mobility scooter battery is flat they fink charger is broke so are taking it away to fix it . then some idiot rings door bell and despite me yelling out im coming they have gone when I get there , and now
billl
in
Lung Conditions Community Forum
10 years ago
Amiodarone can affect your lungs!
I was looking though some of my old and new drugs to see if there was any links to the many conditions and reactions I have and found this. Drugs such as nitrofurantoin, amiodarone, bleomycin, and many others can rarely cause interstitial lung disease. Do not panic if you are on them but worth talking
I was looking though some of my old and new drugs to see if there was any links to the many conditions and reactions I have and found this. Drugs such as nitrofurantoin, amiodarone, bleomycin, and many others can rarely cause interstitial lung disease. Do not panic if you are on them but worth talking
Offcut
in
Lung Conditions Community Forum
10 years ago
Approach to risk in liver and lung transplantation - NHSBT a call for your thoughts
Please could you help by spending 5 minutes to complete a survey. We are taking forward work to explore how NHSBT can help patients and their families reach their decisions about risks associated with the use of organs for transplantation. We would like to get the views of as many people as possible
Please could you help by spending 5 minutes to complete a survey. We are taking forward work to explore how NHSBT can help patients and their families reach their decisions about risks associated with the use of organs for transplantation. We would like to get the views of as many people as possible
BLTHollyDawson
Volunteer
in
British Liver Trust
10 years ago
Joyce: A lung transplant saved me from IPF
Now here's a feel-good story to start IPF Week. Joyce had IPF and was waiting for a lung transplant. Waiting... and waiting... and waiting.... until... "When the phone rang at 5.20am New Year’s Day I awoke and instantly knew it was the call I’d been waiting almost a year for." Read her story here:
Now here's a feel-good story to start IPF Week. Joyce had IPF and was waiting for a lung transplant. Waiting... and waiting... and waiting.... until... "When the phone rang at 5.20am New Year’s Day I awoke and instantly knew it was the call I’d been waiting almost a year for." Read her story here:
kevinrobinson
in
Lung Conditions Community Forum
10 years ago
ups and downs
hi ya . I got turned down for accessment for lung transplant . because I had had possible angina 10 years ago . I had first angiogram 10 years ago whitch said I had a servere to moderate narrowing of one of veins in front of heart , then I had one 8 months later witch said I had moderate to mild narrowing
hi ya . I got turned down for accessment for lung transplant . because I had had possible angina 10 years ago . I had first angiogram 10 years ago whitch said I had a servere to moderate narrowing of one of veins in front of heart , then I had one 8 months later witch said I had moderate to mild narrowing
billl
in
Lung Conditions Community Forum
10 years ago
Dads still fixing me :) + 2 short Video's (Birds and Hereford cows), not a swan in sight!
After a visit to my Dads today I returned home with a big bag of his home grown Tomatoes, cucumbers, and a bottle of a neighbors apple and ginger juice. He's building me up the best way he knows to give me a better chance of surviving the possible lung transplant operation in the future :) . While I
After a visit to my Dads today I returned home with a big bag of his home grown Tomatoes, cucumbers, and a bottle of a neighbors apple and ginger juice. He's building me up the best way he knows to give me a better chance of surviving the possible lung transplant operation in the future :) . While I
dall05
in
Lung Conditions Community Forum
10 years ago
IM SO SICK OF THIS EMOTIONAL ROLLER COASTER
Some of you guys in my hu family know i had my first assessment at harefield in September and they said i would be offered a double lung transplant. I was shocked they said that because everyone including the transplant coordinator told me i would not be given a definite answer on the first assessment
Some of you guys in my hu family know i had my first assessment at harefield in September and they said i would be offered a double lung transplant. I was shocked they said that because everyone including the transplant coordinator told me i would not be given a definite answer on the first assessment
Hidden
in
Lung Conditions Community Forum
10 years ago
Stigma of lung cancer.
After reading an american article on the web, I thought how similar America is to the UK. You may find this interesting. Being diagnosed with lung cancer carries a certain stigma. ”How long did you smoke?” “I didn’t know you were a closet smoker.” “Too bad he didn’t quit smoking sooner.” Unlike the
After reading an american article on the web, I thought how similar America is to the UK. You may find this interesting. Being diagnosed with lung cancer carries a certain stigma. ”How long did you smoke?” “I didn’t know you were a closet smoker.” “Too bad he didn’t quit smoking sooner.” Unlike the
jillygirl
in
The Roy Castle Lung Cancer Foundation
10 years ago
has anyone had a double lung transplant
has anyone on here actually had a double lung transplant.....i had an assessment at harefield and they said i would be offered one... i have to go back in january for a couple of days assessment but i was wondering if anyone has actually been through this because im scared to death
has anyone on here actually had a double lung transplant.....i had an assessment at harefield and they said i would be offered one... i have to go back in january for a couple of days assessment but i was wondering if anyone has actually been through this because im scared to death
Hidden
in
Lung Conditions Community Forum
10 years ago
Feeling confused
My dad (aged 72) was diagnosed with stage 2 lung cancer last February. The cancer hadn't spread, so surgery was a good option. He is very fit and healthy and has never smoked. He had a successful lobectomy in March and they took some nearby lymph nodes which came back clear. He was advised to have four
My dad (aged 72) was diagnosed with stage 2 lung cancer last February. The cancer hadn't spread, so surgery was a good option. He is very fit and healthy and has never smoked. He had a successful lobectomy in March and they took some nearby lymph nodes which came back clear. He was advised to have four
Mand001
in
The Roy Castle Lung Cancer Foundation
10 years ago
The Man at the QE, E' Say Yes!!!!!!! :)
Yesterday was a very big day for me, I was off to the QE to see my transplant consultant to see if my wound from an abscess removal operation had completely healed. I had the operation on April 3rd and have been suspended off the transplant list for a lot longer because of the high risk the abscess infection
Yesterday was a very big day for me, I was off to the QE to see my transplant consultant to see if my wound from an abscess removal operation had completely healed. I had the operation on April 3rd and have been suspended off the transplant list for a lot longer because of the high risk the abscess infection
dall05
in
Lung Conditions Community Forum
10 years ago
symptoms after lung surgery.
i had my full left lung removed due to nsclc 3 yrs ago.i had 4 months of chemo following op.in recent months,i am getting shaky episodes nearly every day.my full body goes weak and this last for about half hour.In the past weeks i have been waking in the night with ice cold feet and they are very painful.i
i had my full left lung removed due to nsclc 3 yrs ago.i had 4 months of chemo following op.in recent months,i am getting shaky episodes nearly every day.my full body goes weak and this last for about half hour.In the past weeks i have been waking in the night with ice cold feet and they are very painful.i
clarkejacks
in
The Roy Castle Lung Cancer Foundation
10 years ago
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