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Lung lobectomy
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Keytruda
Hi, i have been reading the reviews on KEYTRUDA and some of the stories are scary. People say that it made their lives worse or shortened the life. It is hard to say whether it trully works , i see very mixed reviews and scared. My dad has lung cancer IV stage but his symptoms are not that bad now. If
Hi, i have been reading the reviews on KEYTRUDA and some of the stories are scary. People say that it made their lives worse or shortened the life. It is hard to say whether it trully works , i see very mixed reviews and scared. My dad has lung cancer IV stage but his symptoms are not that bad now. If
Ina3
in
Lung Cancer Support
6 years ago
DVLA and insurance
My husband has been diagnosed with NSCLC lung cancer with a malignant effusion and has started immunotherapy. The car insurance is now due to be renewed. My questions are : does he have to tell the insurance company about his diagnosis, does he need to tell the DVLA, will the DVLA say he can't drive
My husband has been diagnosed with NSCLC lung cancer with a malignant effusion and has started immunotherapy. The car insurance is now due to be renewed. My questions are : does he have to tell the insurance company about his diagnosis, does he need to tell the DVLA, will the DVLA say he can't drive
Goingcuckoo
in
The Roy Castle Lung Cancer Foundation
6 years ago
Another surprising visit
Hi everyone, Went to the respiratory specialist in Lausanne. Had my pfts done he said I lost a little of my volume capacity, thought it was because of my cough. He heard wheezing and crackling. I thought that’s it, someone is going to believe, give me antibiotics, make me feel better, well no. I had
Hi everyone, Went to the respiratory specialist in Lausanne. Had my pfts done he said I lost a little of my volume capacity, thought it was because of my cough. He heard wheezing and crackling. I thought that’s it, someone is going to believe, give me antibiotics, make me feel better, well no. I had
Hidden
in
Lung Conditions Community Forum
6 years ago
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How do you get considered for a lung transplant?
I am stage 4 copd but not yet on oxygen. How do you go about being considered for a lung teansplant? Does anyone know the criteria? I am in Scotland Hugh
I am stage 4 copd but not yet on oxygen. How do you go about being considered for a lung teansplant? Does anyone know the criteria? I am in Scotland Hugh
Hidden
in
Lung Conditions Community Forum
6 years ago
Whole brain radiation experiences?
Since my dad is declining neurologically, I am faced with a tough, tough decision and wondered if anyone had thoughts or experiences themselves with whole brain radiation, good or bad? My dad is currently doing focal radiation to the brain stem. Moffitts treatment protocol for lepto is craniospinal radiation
Since my dad is declining neurologically, I am faced with a tough, tough decision and wondered if anyone had thoughts or experiences themselves with whole brain radiation, good or bad? My dad is currently doing focal radiation to the brain stem. Moffitts treatment protocol for lepto is craniospinal radiation
Lisam81
in
Lung Cancer Support
6 years ago
Lung Transplant Assessment Waiting times
Would anyone like to share their experience of waiting for Lung Transplant assessment, we are waiting for the 3 days of assessment and wondering on average how long we should be waiting and if we should check with people ....
Would anyone like to share their experience of waiting for Lung Transplant assessment, we are waiting for the 3 days of assessment and wondering on average how long we should be waiting and if we should check with people ....
Queenbean
in
Lung Conditions Community Forum
6 years ago
Is it normal???? 🤔
OK so I'm coming up to my 2 year lungaversary! I had a single lung transplant and my other lung completely removed. I am suffering extreme pain in both sides today to the point it has brought tears to my eyes. I want to know if this sort of pain is normal so long after a transplant?
OK so I'm coming up to my 2 year lungaversary! I had a single lung transplant and my other lung completely removed. I am suffering extreme pain in both sides today to the point it has brought tears to my eyes. I want to know if this sort of pain is normal so long after a transplant?
Hidden
in
Lung Conditions Community Forum
6 years ago
Lung Transplant outcomes differences between Transplant Centers
Hello I would like to ask if when being referred for transplant did the respiratory consultant offer a choice in the transplant center. The reason I ask is there appear to be large differences in transplant outcomes particularly 5 and 10 year survival rates between centers. I was researching on the NHS
Hello I would like to ask if when being referred for transplant did the respiratory consultant offer a choice in the transplant center. The reason I ask is there appear to be large differences in transplant outcomes particularly 5 and 10 year survival rates between centers. I was researching on the NHS
Queenbean
in
Lung Conditions Community Forum
6 years ago
About me
Hi I work 20 hrs per wk but my man is due to have open lung surgery I am going to be her carer I lbw you can work 12 hrs but do I need to go to 12 hrs before I make the claim x
Hi I work 20 hrs per wk but my man is due to have open lung surgery I am going to be her carer I lbw you can work 12 hrs but do I need to go to 12 hrs before I make the claim x
Hartlepool
in
Care Community
6 years ago
Hi I'm New
Hi everyone, I've been diagnosed with Alpha-1. Anti trypsim deficiency which has lead to me having Emphysema/COPD Gold stage 4 MRC breathless score 4 my FEV1 is 0.48, 20% predicted. I was a smoker but I've now stopped 8 months ago. My consultant was going to put me forward for a lung transplant but
Hi everyone, I've been diagnosed with Alpha-1. Anti trypsim deficiency which has lead to me having Emphysema/COPD Gold stage 4 MRC breathless score 4 my FEV1 is 0.48, 20% predicted. I was a smoker but I've now stopped 8 months ago. My consultant was going to put me forward for a lung transplant but
Diddy2017
in
Lung Conditions Community Forum
6 years ago
Not sure how to feel!
15 months ago I was rejected by Papworth for a lung transplant as they said my oesophagus was too damaged and I wouldn’t survive the operation!!! Obviously, this initially felt like a death sentence as I felt that was it. Although the thought of going through a lung transplant scares the **** out of
15 months ago I was rejected by Papworth for a lung transplant as they said my oesophagus was too damaged and I wouldn’t survive the operation!!! Obviously, this initially felt like a death sentence as I felt that was it. Although the thought of going through a lung transplant scares the **** out of
Lynnelovessunshine
in
Lung Conditions Community Forum
6 years ago
lung cancer in soft tissue
My husband had kung cancer four years ago. It is back in the other lung and also in what the doctor says is in soft tissue. He said he didn't know what that meant. He has severe emphysema and his oxygen needs are very high. He will have a pet scan to determent if the cancer is anywhere else. The Doctor
My husband had kung cancer four years ago. It is back in the other lung and also in what the doctor says is in soft tissue. He said he didn't know what that meant. He has severe emphysema and his oxygen needs are very high. He will have a pet scan to determent if the cancer is anywhere else. The Doctor
jan422
in
Lung Conditions Community Forum
6 years ago
Pet scan results.
Good morning peeps! I know I said I would share my pet results but I’ve had to take a little time to absorb it all myself. We were expecting bad news but sometimes you’re just not prepared for what you’re going to hear. That was the case here when they told me I was 100% CANCER FREE! Holy moly I wasn
Good morning peeps! I know I said I would share my pet results but I’ve had to take a little time to absorb it all myself. We were expecting bad news but sometimes you’re just not prepared for what you’re going to hear. That was the case here when they told me I was 100% CANCER FREE! Holy moly I wasn
ynkefan08753
in
Lung Cancer Support
6 years ago
Levator Ani spasms
I had a sigmoid colectomy in March of 2011 and exactly one week to the day I came home from the hospita,l I started having severe rectal pressure, as if to have a bowel movement. For the following year, my colorectal doctor tried all kinds of medicines and therapies and said in his 20 years of practice
I had a sigmoid colectomy in March of 2011 and exactly one week to the day I came home from the hospita,l I started having severe rectal pressure, as if to have a bowel movement. For the following year, my colorectal doctor tried all kinds of medicines and therapies and said in his 20 years of practice
Onegirl1
in
Pelvic Pain Support Network
6 years ago
Paraneoplastic syndrome with NSCLC???
Has anyone had, have, or heard of paraneoplastic syndrome with lung cancer? Today my dad’s radiation oncologist, who spoke with the neuro oncologist about my dad’s abnormal brain MRI, and they feel he may have a paraneoplastic syndrome from the lung cancer that is mimicking Multiple sclerosis in his
Has anyone had, have, or heard of paraneoplastic syndrome with lung cancer? Today my dad’s radiation oncologist, who spoke with the neuro oncologist about my dad’s abnormal brain MRI, and they feel he may have a paraneoplastic syndrome from the lung cancer that is mimicking Multiple sclerosis in his
Lisam81
in
Lung Cancer Support
6 years ago
Some advice please
Hello, I'm looking for some advice. 3 weeks ago, my dad of 66 went into hospital for an elective lobectomy. He had only one day's notice for the procedure following a few weeks worth of preliminary tests. Following the surgery, he was moved to HDU and then to the ward and was set to come home. The
Hello, I'm looking for some advice. 3 weeks ago, my dad of 66 went into hospital for an elective lobectomy. He had only one day's notice for the procedure following a few weeks worth of preliminary tests. Following the surgery, he was moved to HDU and then to the ward and was set to come home. The
AJFinch
in
ICUsteps
6 years ago
Clavical lymph node suspect on PET done on the 7 th- waiting on biopsy results done on the 13 th —
gonna pick up where I left off my last post,, Stage 111a non small cell squaumos carcinoma diagnosed early March 2018 - triple star patient I was considered having aggressive treatments both radiation and chemotherapy followed by 1 month break to build up strength before surgery June 8 th R upper
lobectomy
gonna pick up where I left off my last post,, Stage 111a non small cell squaumos carcinoma diagnosed early March 2018 - triple star patient I was considered having aggressive treatments both radiation and chemotherapy followed by 1 month break to build up strength before surgery June 8 th R upper
lobectomy
Getoutofme1239
in
Lung Cancer Support
6 years ago
Lung Cancer
Hi recently diagnosed with lung cancer and pleural infusion, this is slowly reducing via a drain. Have started immunotherapy as cancer is not curable but treatment will hopefully give more time. The amount of emotions racing through your mind are hard to cope with at times, I must admit.
Hi recently diagnosed with lung cancer and pleural infusion, this is slowly reducing via a drain. Have started immunotherapy as cancer is not curable but treatment will hopefully give more time. The amount of emotions racing through your mind are hard to cope with at times, I must admit.
Ha22
in
Lung Conditions Community Forum
6 years ago
Lobectomy
Had lobectomy 4weeks 4dys ago. In hospital 2weeks come home with drain in for air leak had drain out 2weeks ago . Went to get stitches out on 10th sept nurse took swab and i have an infection. Finishing antibiotics today but green mucus still coming out of scar when redressed. Going to surgery every
Had lobectomy 4weeks 4dys ago. In hospital 2weeks come home with drain in for air leak had drain out 2weeks ago . Went to get stitches out on 10th sept nurse took swab and i have an infection. Finishing antibiotics today but green mucus still coming out of scar when redressed. Going to surgery every
jckjanetrosalin
in
The Roy Castle Lung Cancer Foundation
6 years ago
Monitoring post lobectomy
I had a lobectomy in April 2017. Please can someone advise how often I should be monitored by way of CT scan? I last had a scan 6 months ago and am now under the care of The Brompton after a difficult journey of mis diagnosis at a previous hospital. They have decided to change my scan due in October
I had a lobectomy in April 2017. Please can someone advise how often I should be monitored by way of CT scan? I last had a scan 6 months ago and am now under the care of The Brompton after a difficult journey of mis diagnosis at a previous hospital. They have decided to change my scan due in October
Benjy2018
in
The Roy Castle Lung Cancer Foundation
6 years ago
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