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Lung Transplant Update
Hi Everyone... I wanted to share with you an update on my mums transplant listing 2 weeks ago we were devastated to be placed on hold on the list after Papworth team determined that my mother was too weak for surgery during review, yesterday we feared the worst but actually they placed mum back on the
Hi Everyone... I wanted to share with you an update on my mums transplant listing 2 weeks ago we were devastated to be placed on hold on the list after Papworth team determined that my mother was too weak for surgery during review, yesterday we feared the worst but actually they placed mum back on the
Queenbean
in
Lung Conditions Community Forum
5 years ago
EGFR mutations on exon 20 and exon 21
Hello, I'm 42M, and I've just been diagnosed with stage 4 lung cancer. My PD-L1 is between 30 and 40%, and I have EGFR S768I (exon 20) and EGFR L858R (exon 21) mutations. Is it normal to have more than one EGFR mutation? I'm starting treatment on osimertinib, how effective is this treatment?
Hello, I'm 42M, and I've just been diagnosed with stage 4 lung cancer. My PD-L1 is between 30 and 40%, and I have EGFR S768I (exon 20) and EGFR L858R (exon 21) mutations. Is it normal to have more than one EGFR mutation? I'm starting treatment on osimertinib, how effective is this treatment?
Ssbastos
in
Lung Cancer Support
5 years ago
Post RP No RT Allowed :(
I have looked at many posts but did not see anyone with similar story: Question: If no RT post RP, presumably ever to the pelvic region, then what? What is the "hit it hard early" treatment option? How worried should we be that he can't have radiation? Recap: 53 yo husband PSA in Dec 2018 was 33+, finally
I have looked at many posts but did not see anyone with similar story: Question: If no RT post RP, presumably ever to the pelvic region, then what? What is the "hit it hard early" treatment option? How worried should we be that he can't have radiation? Recap: 53 yo husband PSA in Dec 2018 was 33+, finally
HealThyb
in
Advanced Prostate Cancer
5 years ago
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Cancer Nurse Specialist and Thoracic Nurse Specialist
Hi all - I'm not sure if everybody likehere in Bristol (the Bristol Royal Infirmary to be exact) having already had curative resection of LLL lobectomy I, and all patients in a similar position attending the same hospital, are lucky to have access to both the above grade of nurses. The CSN is I think
Hi all - I'm not sure if everybody likehere in Bristol (the Bristol Royal Infirmary to be exact) having already had curative resection of LLL lobectomy I, and all patients in a similar position attending the same hospital, are lucky to have access to both the above grade of nurses. The CSN is I think
SunshineAhead
in
The Roy Castle Lung Cancer Foundation
5 years ago
Survival With Sirolimus Plus Tacrolimus Maintenance Without Induction Therapy Compared With Standard Immunosuppression After Lung Transplant
Question Which immunosuppressive strategy is associated with the highest survival in lung transplantation? Findings In this cohort study of US recipients of lung transplants, sirolimus plus tacrolimus was associated with significantly better conditional survival from 1 year after transplant compared
Question Which immunosuppressive strategy is associated with the highest survival in lung transplantation? Findings In this cohort study of US recipients of lung transplants, sirolimus plus tacrolimus was associated with significantly better conditional survival from 1 year after transplant compared
2greys
in
Lung Conditions Community Forum
5 years ago
Back pains
I had a lower left
lung
lobectomy
11 weeks ago with no real complication. I have now started chemo and had my first cycle 2 weeks ago. All was ok with that apart from feeling tired and fatigued.
I had a lower left
lung
lobectomy
11 weeks ago with no real complication. I have now started chemo and had my first cycle 2 weeks ago. All was ok with that apart from feeling tired and fatigued.
Happy64
in
The Roy Castle Lung Cancer Foundation
5 years ago
Living Room Thursday, August 29 in Washington DC
Please join us in person, facebook live or youtube for a special living room held in Washington DC. Topic:Navigating the Journey of Lung Cancer: From Diagnosis to Treatment and Beyond Speakers:Dr. Benjamin Levy – Johns Hopkins Sidney Kimmel Cancer Center at Sibley Memorial Hospital Rasheda Persinger
Please join us in person, facebook live or youtube for a special living room held in Washington DC. Topic:Navigating the Journey of Lung Cancer: From Diagnosis to Treatment and Beyond Speakers:Dr. Benjamin Levy – Johns Hopkins Sidney Kimmel Cancer Center at Sibley Memorial Hospital Rasheda Persinger
KimGO2
Administrator
in
Lung Cancer Support
5 years ago
New Drug Combination Shows Promising Activity in Non-Small Cell Lung Cancer Patients.
Patients with non-small cell lung cancer (NSCLC) now have more improved treatment options compared to standard of care with the addition of several new agents called immune-checkpoint inhibitors (ICI). Despite these changes, many patients still develop progressive disease after ICI treatment. In a new
Patients with non-small cell lung cancer (NSCLC) now have more improved treatment options compared to standard of care with the addition of several new agents called immune-checkpoint inhibitors (ICI). Despite these changes, many patients still develop progressive disease after ICI treatment. In a new
2greys
in
Lung Conditions Community Forum
5 years ago
Does Sugar and/or Carbs Feed lung cancer cells?
I've been scheduled for PET/CT scan Sept 9 (follow middle right-
lung
lobectomy
May 22, stage 1 adenocarcinoma) to check on 2 nodules in upper right lung & 1 in left lung.
I've been scheduled for PET/CT scan Sept 9 (follow middle right-
lung
lobectomy
May 22, stage 1 adenocarcinoma) to check on 2 nodules in upper right lung & 1 in left lung.
Lyubov
in
Lung Cancer Support
5 years ago
Protein Powder Supplements Now a Concern
Diagnosed Stage 1 adenocarcinoma & just post right
lung
middle
lobectomy
& with 2-3 other nodules being watched, I'm at the point of not knowing what, how to eat. And my BMI is too low & I'm trying to gain a few pounds. Whatever can I do?
Diagnosed Stage 1 adenocarcinoma & just post right
lung
middle
lobectomy
& with 2-3 other nodules being watched, I'm at the point of not knowing what, how to eat. And my BMI is too low & I'm trying to gain a few pounds. Whatever can I do?
Lyubov
in
Lung Conditions Community Forum
5 years ago
Any advice? 6 years with tumor?
Hi everyone, as previously mentioned I went to my mothers post op appointment. Doctor seemed very happy with the healing and everything. At that moment I was so nervous I forgot to ask so many questions and right now I am overthinking. But I am not sure of the whole diagnosis. He said the tumor was not
Hi everyone, as previously mentioned I went to my mothers post op appointment. Doctor seemed very happy with the healing and everything. At that moment I was so nervous I forgot to ask so many questions and right now I am overthinking. But I am not sure of the whole diagnosis. He said the tumor was not
janeths466
in
Lung Cancer Support
5 years ago
Don’t know where to turn
My dad has been diagnosed with terminal lung cancer he’s 90, he just sits in a chair all day because he can’t breathe but no one is helping us, we’ve asked for oxygen but they have said it won’t make any difference, surely this will help him breathe better. We don’t know where to turn it’s heartbreaking
My dad has been diagnosed with terminal lung cancer he’s 90, he just sits in a chair all day because he can’t breathe but no one is helping us, we’ve asked for oxygen but they have said it won’t make any difference, surely this will help him breathe better. We don’t know where to turn it’s heartbreaking
2703
in
The Roy Castle Lung Cancer Foundation
5 years ago
Good news from Tricity125
Hi, I’m a member of the NRAS group and we’ve 3 posts appeared from Tricity 125 about 10 hours ago - I think they are meant for you peeps as he’s never posted with us before. The post lung transplant op news from Tricity 125 is he’s alive and doing relatively well. Please do pop over to his posts on NRAS
Hi, I’m a member of the NRAS group and we’ve 3 posts appeared from Tricity 125 about 10 hours ago - I think they are meant for you peeps as he’s never posted with us before. The post lung transplant op news from Tricity 125 is he’s alive and doing relatively well. Please do pop over to his posts on NRAS
Ali_H
in
Lung Conditions Community Forum
5 years ago
back pain post op
hope you all have a happy sunday! My mom has been having a bit of back pain after her lobectomy. Is it normal? Not bad back pain, but after she walks and stands up the whole day for a long time, her back starts hurting a bit. Has been about a month since surgery. Her bed is also really uncomfortable
hope you all have a happy sunday! My mom has been having a bit of back pain after her lobectomy. Is it normal? Not bad back pain, but after she walks and stands up the whole day for a long time, her back starts hurting a bit. Has been about a month since surgery. Her bed is also really uncomfortable
janeths466
in
Lung Cancer Support
5 years ago
I’m disappointed at not having targeted therapy!
So I had the results back and Ive been scheduled to start chemo in 2 weeks. I must admit I’m a bit disappointed at not being able to have the targeted therapy. I’d almost pinned the hope on these newer drugs and so being told I didn’t have the right mutation was a bit of a blow. The newer drugs all seem
So I had the results back and Ive been scheduled to start chemo in 2 weeks. I must admit I’m a bit disappointed at not being able to have the targeted therapy. I’d almost pinned the hope on these newer drugs and so being told I didn’t have the right mutation was a bit of a blow. The newer drugs all seem
Llesing
in
The Roy Castle Lung Cancer Foundation
5 years ago
Vitamin D deficiency and Emphysema?
I am curious to know how many people with Emphysema also had a Vitamin D deficiency? And high cholesterol?
I am curious to know how many people with Emphysema also had a Vitamin D deficiency? And high cholesterol?
Hidden
in
Lung Conditions Community Forum
5 years ago
Adjuvant Chemotherapy
Hi all. I can't seem to find any real details about adjuvant chemotherapy in the UK online. I had a LLL lobectomy on 18th June and I am currently awaiting an appointment to see the oncologist to discuss adjuvant chemotherapy. Given my cancer is squamous cell stage 2B and the tumor was over 5cm and
Hi all. I can't seem to find any real details about adjuvant chemotherapy in the UK online. I had a LLL lobectomy on 18th June and I am currently awaiting an appointment to see the oncologist to discuss adjuvant chemotherapy. Given my cancer is squamous cell stage 2B and the tumor was over 5cm and
SunshineAhead
in
The Roy Castle Lung Cancer Foundation
5 years ago
Trying to stay positive
It's been 8 days since my lobectomy. Spent 5 of those in the hospital and am now home. Pain has changed over the past couple of days, with what feels more like nerve pain and numbness under my right breast. I also have a large water blister from the dressing tape. All I want to do is sleep. And when
It's been 8 days since my lobectomy. Spent 5 of those in the hospital and am now home. Pain has changed over the past couple of days, with what feels more like nerve pain and numbness under my right breast. I also have a large water blister from the dressing tape. All I want to do is sleep. And when
VerdeAzul
in
Lung Cancer Support
5 years ago
Nerve pain after vats Lobectomy
Hi folks- yes I have nerve pain and I’m back to the gp today to get meds to help with the pain. I tried to stop the dihydrocideine but I’m afraid I couldn’t cope with the pain. Lung nurse and consultant talked about taking Amitriptyline for this pain. I’m fit to fly in 3 weeks for a holiday but want
Hi folks- yes I have nerve pain and I’m back to the gp today to get meds to help with the pain. I tried to stop the dihydrocideine but I’m afraid I couldn’t cope with the pain. Lung nurse and consultant talked about taking Amitriptyline for this pain. I’m fit to fly in 3 weeks for a holiday but want
AlisonPK
in
The Roy Castle Lung Cancer Foundation
5 years ago
spireometer
how long do you need to use your spireometer for after lobectomy ?
how long do you need to use your spireometer for after lobectomy ?
dogsbody321
in
The Roy Castle Lung Cancer Foundation
5 years ago
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