Lung Transplant Update

[Queenbean]

Hi Everyone...

I wanted to share with you an update on my mums transplant listing 2 weeks ago we were devastated to be placed on hold on the list after Papworth team determined that my mother was too weak for surgery during review, yesterday we feared the worst but actually they placed mum back on the list with a review in 6 weeks again.... so pleased to be back on the list ... to illustrate our journey so far ...

Key Transplant Dates

6th and 7th August right heart catheterisation before transplant referral can proceed- results are good

10th August 18 - referral sent to Royal Papworth Hospital for transplant assessment

22nd October Initial Appointment for transplant - good candidate for assessment

3rd and 4th December - Transplant Assessment days - good candidate for transplant requires Angiogram before listing

25th January 19 - Angiogram completed

26th Feb 19 signed papers to be on the transplant list

22nd March 19 - listed for transplant

July 19 suspended from the list for a week due to infection

August 19 suspended from the list between 16th August 19 to 30th August 19 due to infection

31st August back on the transplant list to be reviewed in 6 weeks

Hoping for the best ....

Happy Saturday everyone!

[Damon1864 Volunteer]

So pleased your mam is back on the list. Wishing you both well, have a lovely weekend and take care of yourself 😊 Bernadette xx

[Gingerboy1960]

That’s great news. Good luck and let us know how things are progressing!

[Hacienda]

Keeping my Fingers Crossed for your Mum, Queenbean. I remember the days Leading up to The Transplant Assessment. Stay calm and strong for your Mum, Give her our Love and let her Know we are all thinking of her. Love n Gentle Hugs. C. XXX

[Dedalus]

Good news. Fingers crossed won't belong now. May I ask how old your mum is? x

[Queenbean in reply to Dedalus]

Hi she’s 61

[Dedalus in reply to Queenbean]

Thank you. All very best wishes for her operation x

[SquirrelsHolt]

Good news to learn your dear Mum is back on the tx list Queenbean . Wishing her all the best!💞

[Thomac]

I have everything crossed for your mum xxx

[Fleurbaby in reply to Thomac]

I hope that isn't true, a certain thing will die & drop off! Lol

[Thomac in reply to Fleurbaby]

😂😂

[Fleurbaby]

Good news, I hope she has absolute success! Long time on list! Whew! Is she in hospital all the time? Or is it back & forth?

General request!

How is Caspiana?

[illawarra]

Glad your mum is back on the list and may it happen soon. Thank you for sharing.

[Cazaliza]

Hi my mum was on the list at Birmingham but the last visit she had there she appeared to have picked up a germ and got an infection. She has to gain weight and try to get her strength back in order to go back on. Do you mind me asking if your mum is walking as well as she was before? The last 2 chest infections my mum has had have really knocked her strength but fingers crossed she will get back to how she was, she’s very determined and amazingly strong mentally -much more than me thank goodness!

[Queenbean in reply to Cazaliza]

It was the walking they were most concerned about so that’s what we focused on rather then pulmonary rehab ... we did walking down the stairs and if we were out shopping mum would walk one isle then rest to build up ...

[ross-35_]

This may sound mad but despite being very weak prior to transplant, I made myself do exercises to gain strength back,twice a week pulmonary rehab, dragging my oxygen around, it was so hard but I know it helped me mentally and physically after transplant. I hope your Mum does well and I was 65 for my transplant at Wythenshawe.

[Queenbean in reply to ross-35_]

Ross that’s very encouraging my mother previously was an aerobics instructor and personal trainer she normally is the one pushing us all to exercise! We are now going back to muscular strength exercises she knows will help her at home every day and the rehab at the hospital twice a week

[ross-35_ in reply to Queenbean]

Thats wonderful, and its also the main reason I got onto the list, will all be worth it for her. Take care and good luck.

[simplesprout]

Wishing you all the luck, had mine 3 months ago. If you have any questions just ask.

[Meg52]

Sending love and gentle hugs to you and your mum, I hope your mum stays well enough for the transplant. Xxx

[Izb1]

Sending you all the very best wishes and keeping fingers crossed for your Mum x

[Louiss]

Oh dear that's been a right roller coaster, hope next review is positive and gets op soon.

[Sharp5Flat13]

All the best for your mum. If I go one more year cancer free (bladder) I can get on the list...stateside.

[Caspiana]

Very, very good news. Sending love to you and your mum. xx 🌼🌱☕