Experiences with

Low Dose Naltrexone (LDN)

Has anyone tried this to help get off PREDNISONE?

I have an appointment to try to get low-dose naltrexone to see if it will help as well. I can’t take Actemra because I’ve had cancer. I don’t know what to do, except to ask for help from you experts. Thank you

I've researched both low-dose naltrexone and the magnetic field devices. They are expensive, so haven't been able to pull the trigger yet on one of those--especially since I don't know if it will help. Have started LDN (low-dose naltrexone), but so far, no results on a dose of 3.5 mg.

I’m going to try low dose naltrexone., and have an appointment at Johns Hopkins. I can’t keep going like this. My quality of life is pretty much nil. Can’t sleep…..sweat all the time. And can barely make it up the steps.

But more significantly, I feel fatigued much of the day (I've been very active) and a bit depressed (I'm usually optimistic) until my low-dose naltrexone sends an endorphin rush in the afternoon. Having read the entries on adrenals, I'm thinking something along those lines is happening.

Has anyone tried LDN for PMR? One of my doctors suggested it.

Almost three months into my use of low-dose naltrexone, in hopes of replacing prednisone eventually, I have learned that the power of LDN to combat inflammation, while real, is much less than prednisone, so that at 10mg of prednisone, LDN's ability to replace or even significantly supplement the steroid

I've written in the past about how useful I've found these in learning to control my blood sugar levels without having to take diabetes meds given the increases and spikes we get from steroids. You can just buy a Libre2 monitor directly from Abbott, the first is free then if you want to continue learning

I was so poorly and Yellow that at times i would happily away with the Grim Reaper came knocking@The Head Homcho reckond all the time it was HepA, eventualy proved by result of liver biopsy. At worst ALT 6 500 normal40. Bilirubin v high but both tests on dow ward trend. Problem was, I didnt fit the

Hello my friends, I’ve had PMR for just over 12 years now , currently taking 7.5mg Pred . Have started a very slow taper again, even though I don’t feel prepared mentally , with all the ongoing stress . I had a TIA early September , I’m still awaiting for a brain MRI scan and failed the tilt table tests

Thanks to the advice and information I got here I have now transferred to the rheumatology dept of my local hospital. I saw a young lady doctor who seems to understand PMR. She was very grateful for all the printouts of my blood tests and scans which I had printed and brought with me from the Private

I have been on pred for 2 yrs this month . Started at 15mg now down to 2.75mg. MY HbA1C is 39 , , once the steroids stop completely will it lessen ?? I know it’s classed as a “ normal” level below 41mmols but should I try to lower it by diet ?? I follow a low carb diet and am a normal weight for

thanks toDorsetLady’s excellent plan am tapering well, so far no flares However have started to get a few very small purple spots on arms and stomach, Otherwise feel ok with just one side effects, not sleeping well. Sticking to low carb diet. Anyone else experienced this please?

We bang on about cutting carbs when on pred and I thought you might be interested in this article about extremely low carb diets and reversing diabetes and weight gain. It isn't in pred patients but it does show how going low carb works and that it is sustainable on a relatively low income. The only

Hello friends! After a four year term of GCA, while doing a very slow taper of prednisone l have been off of prednisone for several months. Occasionally if I’m very fatigued I take a 1 mg. I have been very fatigued for the last few days and I’m wondering if I should maybe go back on a daily 1 mg

This is more on the helpful pre diabetic theme, currently running. I wonder if anyone has been offered this programme? I was called up, by my surgery, for a blood test, in Dec 23, l don’t know why, possibly my age- 88. The result showed l was pre diabetic and l was immediately offered a free 9 month

Im 2 years in on my PMR journey with a really bad flare last July. Which took me back to the beginning. After reading on here about eating a low carb diet. I got out my 800 fast keto book and started cooking from it. Where I don’t stick to 800 I do try to be no more than 1,200 calories. And no more

'Morning everyone! I am using DL's slow taper and have reduced to the dose which has caused flares in the past - between 5mg and 7mg. I have been on 6mg for over a week and have noticed feelings of hunger and the associated feelings of low blood sugar plus, this morning, tightness in the neck muscles

greetings lovely people. In to week 5 after confirmed PMR diagnosis. Feeling tons better. just started VERY slow tapering from 15mg Lots in today’s forum about diet. Thanks to this forum I started low carb immediate and have lost 10 pounds! Lots of internet ads about low carb bread etc. has anyone

I would welcome some advice. Been on prednisone since February 2023, also on tocilizumab injections. Currently taking 7mg prednisone. I am trying to lose some of my weight gain. I tried 1500 calories a day and lost nothing. Now doing low carb but weight not moving. My daughter gets married in August