clueless rheumo

[GivenUp24]

I started off on 40 mg of prednisone and my CRP was 39. Every time I get below 25, I feel my inflammation creeping up so the CRP was redone and my numbers are now 19. my rheumatologist acts like he doesn’t have any clue why my i lamination is going up as my comes down. I don’t either since I’ve never had this before, is this normal.?? I’m trying to get a referral to go to Johns Hopkins. I have an appointment to try to get low-dose naltrexone to see if it will help as well. I can’t take Actemra because I’ve had cancer. I don’t know what to do, except to ask for help from you experts. Thank you

[piglette]

It is not just the PMR that can affect your CRP, even having a cold can make it go up. The important thing is how do you feel? I always have high markers and my doctor does not know why and has decided it is just me!

[GivenUp24 in reply to piglette]

I feel better now that I’m on a beta blocker. I’m just afraid of GCA symptoms coming back… not 100% sure I have GCA. But I had some symptoms that he attributed to it.