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My story...general advice please, feeling very low
Hi there I've been reading the posts and looking on this community for many months but not actually had the courage to write my story yet. I thank all you ladies for your posts and your bravery, I truly believe only fellow endo sufferers can truly understand what it's like to live with this debilitating
Hi there I've been reading the posts and looking on this community for many months but not actually had the courage to write my story yet. I thank all you ladies for your posts and your bravery, I truly believe only fellow endo sufferers can truly understand what it's like to live with this debilitating
Vincentcat
in
Endometriosis UK
5 years ago
Livial HRT advice
I’ve just been put on livial I’m only 21, I have heard bad things about it has anyone been on it it and can give me insight? Thank you
I’ve just been put on livial I’m only 21, I have heard bad things about it has anyone been on it it and can give me insight? Thank you
Levi_jazz
in
Endometriosis UK
5 years ago
Bowel endo
Hi Just want some advice before I call gp. How do you know if you have endo on bowel? Have been diagnosed with endo and am having a hysterectomy soon but recently noticed pain in other areas back passage bum lower back and kidney area in my back when I go too toilet I bleed from my bum and I'm continuously
Hi Just want some advice before I call gp. How do you know if you have endo on bowel? Have been diagnosed with endo and am having a hysterectomy soon but recently noticed pain in other areas back passage bum lower back and kidney area in my back when I go too toilet I bleed from my bum and I'm continuously
Trudie22
in
Endometriosis UK
6 years ago
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Hi I have the mirena coil am having zoladex injection and just started livial hrt just wanting feedback on livial what does it do? Does it help? What too expect? When I opened the pack it was alot like the contraceptive pill. Am having a full hysterectomy in 3 mths just wondering if all the medication
Hi I have the mirena coil am having zoladex injection and just started livial hrt just wanting feedback on livial what does it do? Does it help? What too expect? When I opened the pack it was alot like the contraceptive pill. Am having a full hysterectomy in 3 mths just wondering if all the medication
Trudie22
in
Endometriosis UK
6 years ago
Priolia injection & side effects
I’m a 56 white female in menopause from 45 My gynecologist prescribed Priolia as I had advanced Osteopenia My first injection was in Oct 2016 Everthing seemed alright Plus my density levels stayed stable so had second injection April 2017 In May 2017 my nightmare started All of a sudden my whole
I’m a 56 white female in menopause from 45 My gynecologist prescribed Priolia as I had advanced Osteopenia My first injection was in Oct 2016 Everthing seemed alright Plus my density levels stayed stable so had second injection April 2017 In May 2017 my nightmare started All of a sudden my whole
Bupi
in
Bone Health and Osteoporosis UK
6 years ago
Prostap Hell
Hi I recently chose to have the prostap injection after years of living with endo and a failed operation to try and resolve my pain. I read many articles about prostap both negative and positive and thought hopefully my experience will be positive. I have the hrt Livial which I’m sure is keeping the
Hi I recently chose to have the prostap injection after years of living with endo and a failed operation to try and resolve my pain. I read many articles about prostap both negative and positive and thought hopefully my experience will be positive. I have the hrt Livial which I’m sure is keeping the
Sunflower1968
in
Endometriosis UK
6 years ago
GnRH side effects
I wondered how long the hot flush side effect of zoladex/gonapeptal subsided? I’m 8 weeks post my last injection, and this is just becoming a bit of a joke. I haven’t had a period yet but the pain side of endo came back around 4 weeks ago, no where near as extreme as it was so I’m expecting it to get
I wondered how long the hot flush side effect of zoladex/gonapeptal subsided? I’m 8 weeks post my last injection, and this is just becoming a bit of a joke. I haven’t had a period yet but the pain side of endo came back around 4 weeks ago, no where near as extreme as it was so I’m expecting it to get
A2207
in
Endometriosis UK
6 years ago
Change from Decapeptyl & livial onto Mirena Coil
Hi all, Just had my surgery to remove endometriosis cyst, ovary & fallopian tube. Full hysterectomy not possible due to bowel & womb being stuck together. Consultant has stated that he is hopeful that being on the marina coil should help with bowel symptoms and mean that more complex colorectal surgery
Hi all, Just had my surgery to remove endometriosis cyst, ovary & fallopian tube. Full hysterectomy not possible due to bowel & womb being stuck together. Consultant has stated that he is hopeful that being on the marina coil should help with bowel symptoms and mean that more complex colorectal surgery
KJB1971
in
Endometriosis UK
6 years ago
Zoladex and adeno pain
Zoladex - does it help adeno pain ? Hi I’ve just been diagnosed with Adenomyosis . Been in constant pain in abdomen , groin, pubic bone and inner thighs for three years I’ve had one monthly shot of Zoladex . The idea is to have 3 mo this Zoladex treatment , of otbhelps with the pain, then have a hysterectomy
Zoladex - does it help adeno pain ? Hi I’ve just been diagnosed with Adenomyosis . Been in constant pain in abdomen , groin, pubic bone and inner thighs for three years I’ve had one monthly shot of Zoladex . The idea is to have 3 mo this Zoladex treatment , of otbhelps with the pain, then have a hysterectomy
Fayed
in
Endometriosis UK
6 years ago
Zoladex ending, what to expect
Hi ladies, I wondered if anyone could help. I am coming to the end of 6 months of zoladex (that has been a journey I won’t be taking again) I’m on livial hrt. I just wondered when people’s periods returned and also when they could start the contraceptive pill again? Do I have to wait for a period or
Hi ladies, I wondered if anyone could help. I am coming to the end of 6 months of zoladex (that has been a journey I won’t be taking again) I’m on livial hrt. I just wondered when people’s periods returned and also when they could start the contraceptive pill again? Do I have to wait for a period or
A2207
in
Endometriosis UK
6 years ago
Bleeding on prostap and livial
Hiya.. I had my first prostap injection nearly 2 weeks ago and started livial the same day. I've had a few side effects, insomnia, pain, and generally achy but started to bleed today.. Is this normal? I had thought that bleeding stopped for the whole treatment. Thanks in advance.
Hiya.. I had my first prostap injection nearly 2 weeks ago and started livial the same day. I've had a few side effects, insomnia, pain, and generally achy but started to bleed today.. Is this normal? I had thought that bleeding stopped for the whole treatment. Thanks in advance.
roobiedoobie
in
Endometriosis UK
6 years ago
Menapouse - Decapeptyl 3.5 sleep deprived not sure what to do 😞😞😞😞
Omg where do I start I’ve accepted the injections and my mood is grand 😉 but by god can’t I sleep I’m surviving on 4 hrs broken sleep & feel like I don’t need any once I’m up & about 🤪 sometimes I have a good sleep feels like hours look at clock it’s proberly an hr tops 😩 any advice I’m on livial
Omg where do I start I’ve accepted the injections and my mood is grand 😉 but by god can’t I sleep I’m surviving on 4 hrs broken sleep & feel like I don’t need any once I’m up & about 🤪 sometimes I have a good sleep feels like hours look at clock it’s proberly an hr tops 😩 any advice I’m on livial
Candys75
in
Endometriosis UK
6 years ago
Prostap =periods but no pain!!
My Endo is being treated with Prostap and Livial HRT. Side effects have been minimal ( I'm 2months into the injection) I was told that the prostap would close my ovaries and stop my periods 🤔. Well, I am still having my period, it is much lighter than my normal heavy flow, but now they are totally pain
My Endo is being treated with Prostap and Livial HRT. Side effects have been minimal ( I'm 2months into the injection) I was told that the prostap would close my ovaries and stop my periods 🤔. Well, I am still having my period, it is much lighter than my normal heavy flow, but now they are totally pain
TiredTay
in
Endometriosis UK
6 years ago
Should I continue taking zoladex?
Hi I’m new to the site and would welcome any advice from women who have taken or are taking zoladex ...I’m 50 and have endometriosis and fibroids resulting in unbearably heavy and painful periods. My consultant has prescribed zoladex with Livial HRT for a period of 12 months and I’m about 6 months in
Hi I’m new to the site and would welcome any advice from women who have taken or are taking zoladex ...I’m 50 and have endometriosis and fibroids resulting in unbearably heavy and painful periods. My consultant has prescribed zoladex with Livial HRT for a period of 12 months and I’m about 6 months in
Juliak
in
Endometriosis UK
6 years ago
What next after Prostap? About to have 4th injection. Also taking Livial. Can only use these for 6 months though.... so what then?
For me treatment is as much to help with mood and fatigue as it is pain. The moods are better but not "normal". Pain has all but gone completely and I feel fatigue less often and less severely. So hot flushes and night sweats aside its been a step in the right direction. But what can I do after? Terrified
For me treatment is as much to help with mood and fatigue as it is pain. The moods are better but not "normal". Pain has all but gone completely and I feel fatigue less often and less severely. So hot flushes and night sweats aside its been a step in the right direction. But what can I do after? Terrified
KernowMelissa
in
Endometriosis UK
6 years ago
Endometriosis Feel like I've not had a proper diagnois
I've been suffering for at least 10 years, with terrible pains. I have visited the Gyno and he has decided to treat me with endometriosis without having a laposcopy. I'm please that I am being treated but I feel like I would rather know for sure that this is the case. Anyway, I have had to have a Prostap
I've been suffering for at least 10 years, with terrible pains. I have visited the Gyno and he has decided to treat me with endometriosis without having a laposcopy. I'm please that I am being treated but I feel like I would rather know for sure that this is the case. Anyway, I have had to have a Prostap
TiredTay
in
Endometriosis UK
6 years ago
Tibolone/ Livial -Advice and Experience Wanted!!
Hi all, looking for some general opinion and advice. Have now been taking HRT alongside Zoladex injections for 2 months, and I’ve noticed that I get a dull, persistent abdomen pain around 2 hours after taking the tablet, and generally bloat out like I’ve never seen, I couldn’t even hide my stomach protruding
Hi all, looking for some general opinion and advice. Have now been taking HRT alongside Zoladex injections for 2 months, and I’ve noticed that I get a dull, persistent abdomen pain around 2 hours after taking the tablet, and generally bloat out like I’ve never seen, I couldn’t even hide my stomach protruding
milly89
in
Endometriosis UK
6 years ago
Spotting after 2 weeks on Livial / tibolone, and period cramps normal??
Is the above normal. I'm in chemical menopause with prostap injections. Been on livial for 2 weeks and started to spot. Very worried it will turn proper proper bleeding, is this likely or will it settle and how long till it does? Also have period cramps. Is this normal also?
Is the above normal. I'm in chemical menopause with prostap injections. Been on livial for 2 weeks and started to spot. Very worried it will turn proper proper bleeding, is this likely or will it settle and how long till it does? Also have period cramps. Is this normal also?
Boodie
in
Endometriosis UK
6 years ago
Newly diagnosed
I was diagnosed with Endometriosis on 6/2/18 after having an emergency laparoscopy. I am having monthly Prostap injections and also have Tibolone Livial tablets. I am 38 years old. I feel I have taken a long time to get over the surgery, I’m still not back to work. I know, like myself before being
I was diagnosed with Endometriosis on 6/2/18 after having an emergency laparoscopy. I am having monthly Prostap injections and also have Tibolone Livial tablets. I am 38 years old. I feel I have taken a long time to get over the surgery, I’m still not back to work. I know, like myself before being
Rae253
in
Endometriosis UK
6 years ago
Help, Livial and funny sensation in arm and hand??????
Is there any connection to the above and how do i stop it? It's scaring me x
Is there any connection to the above and how do i stop it? It's scaring me x
Boodie
in
Endometriosis UK
6 years ago
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