Livial HRT advice : I’ve just been put on... - Endometriosis UK

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Livial HRT advice

Levi_jazz profile image
9 Replies

I’ve just been put on livial I’m only 21, I have heard bad things about it has anyone been on it it and can give me insight? Thank you

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Levi_jazz
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9 Replies
Levi_jazz profile image
Levi_jazz

Because I’m on my second 6 months of zoladex and because I’m so weak and suffering with the hormones on zoladex they want me on this but a lot of people appear shocked they’ve put me on livial

Laura_T profile image
Laura_T in reply toLevi_jazz

I requested them as my first lot of prostap injections I struggled with side effects. I had no issues, really helped with the side effects. I was able to sleep well, less flushes and less aching x

Levi_jazz profile image
Levi_jazz in reply toLaura_T

Oh that’s good to here! I’m struggling with the flushes so bad and my hormones I’ve turned into an old lady I don’t like going out and I’m so grumpy so I’m praying this will help x

Laura_T profile image
Laura_T in reply toLevi_jazz

I was still a tad grumpy. It didn’t stop all the side effects but it helped. If I had prostap again I would defiantly take hrt due to the fact I slept. On the first lot of injections last year I hardly slept it was awful 😔 x

Moses82 profile image
Moses82

I was on them for 3 months after having Decapactal injection in was absolutely great on them no flushings and my mood didn't alter. I had decapeptyl last year and didn't have the HRT it was tough with the flushings and not being able to sleep. I came off the livial last week onto combined hormone patches and the side effects are terrible. Have had 8 hours sleep in the past 6 days I have migraines and constant nausea. Unfortunately I don't have a choice I need the combined ones now due to having ovaries removed and my age.

JenniferM36 profile image
JenniferM36

I was on Decapeptyl injections for six months, during the first two months I was suicidal, feeling terrible etc. My

Doctor prescribed livial and it was a godsend! I’m currently about to start another six month course of decapeptyl and have a prescription for the livial to start straight away! I hope it works for you as it has for me 😊

Kateth profile image
Kateth

I was on Livial for six months or so aged 25 or so, as add-back therapy while I was on zoladex. It was absolutely fine - no side effects.

EndoHeidi profile image
EndoHeidi

Hi,

Livial is not bad, but off course every body should not use it. Normally they only give it to older persons in menopauze + endo patients prior to the endo operation : both suffering from severe hot flashes day-in-day-out.

For example : They gave it to me, before my operation at my ovaries : I had a bad endometrioses stage 4, during the operation left ovaries were completely taken away, as well as 15 cm of intestins. Livial was given to me, as a counter-medicin for those hot flashes and to counter other medication. Temporary : after the opeartion (1 year ago), i feel just fine and have a better way-of-living than before.

If you have endometriosis, I however suggest you go to a specialised clinic with their own "endometriosis department". Since this invisible illness (as they called endometriosis) is getting more and more attention lately, specialiased hospitals/department will be better equiped to help you + they take good care of "us, endo sufferers". You will see that you are absolutely not alone in this "endo case".

However as endometriosis touches 10% of all women, but only 0.01% of the women does something about it, try to reach out yourself as well to those hospitals: before endo was recognized at my side, I had to have a CT scan and an X ray. This is off course only in case, if the ultrasound has not shown any abnormals cysts or abnormalities.

Good luck.

From a now "pain free" ex patient,

Heidi.

Levi_jazz profile image
Levi_jazz

Thank you for all your comments girls so helpful to read everyone’s experiences, yes I have endo I have a specialist been under him for 5 years but it seems to have got worse as my bowels and bladder are no longer working without the aid of laxatives but they don’t want to operate again so just been left experimenting all these medications which they already know doesn’t work 😂 x

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