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CLL Treatment Advice/Recommendations/Etc For Newbie
After monitoring for 1 year, my doc has recommended that I participate in Trial #EA9161, a 19-month program using ibrutinib, obinutuzumab, & venetoclax. I am a 52-yr-old male with no experience in this arena and am seeking all the advice/info I can get (especially first-hand, or very close to it).
After monitoring for 1 year, my doc has recommended that I participate in Trial #EA9161, a 19-month program using ibrutinib, obinutuzumab, & venetoclax. I am a 52-yr-old male with no experience in this arena and am seeking all the advice/info I can get (especially first-hand, or very close to it).
username-the-dude
in
CLL Support
4 years ago
Mutated and unmutated cll for dummies
When told I had chronic lymphocytic leukemia (cll) four years ago, all I heard was "leukemia". Google soon became my best friend and worst enemy. I just wanted to find out how long I had to live. My travels on the learning curve of cll were slow with many wrong turns. I figured out chronic leukemia
When told I had chronic lymphocytic leukemia (cll) four years ago, all I heard was "leukemia". Google soon became my best friend and worst enemy. I just wanted to find out how long I had to live. My travels on the learning curve of cll were slow with many wrong turns. I figured out chronic leukemia
cajunjeff
in
CLL Support
4 years ago
Comparative analysis of targeted novel therapies (ibrutinib vs. venetoclax) in relapsed, refractory CLL (Feb 2020)
"To date, no prospective trials have directly compared ibrutinib with venetoclax as NA1 in R/R CLL. It remains a key unanswered question as to which of these two NAs optimises the balance of safety and efficacy when utilized as the NA1 in R/R CLL. To address this, we report a large, international study
"To date, no prospective trials have directly compared ibrutinib with venetoclax as NA1 in R/R CLL. It remains a key unanswered question as to which of these two NAs optimises the balance of safety and efficacy when utilized as the NA1 in R/R CLL. To address this, we report a large, international study
avzuclav
in
CLL Support
4 years ago
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Sarcomatoid SCCs and ruxolitinib BMB
Hi As I posted here, I had a BMB a couple of weeks ago. Unfortunately the first part of the sample that was analysed had been badly taken and couldn’t be fully analysed. What a bummer. So I’ll have to wait for the trephine ( bony core) part of the biopsy to be analysed. I’m still hoping that I can
Hi As I posted here, I had a BMB a couple of weeks ago. Unfortunately the first part of the sample that was analysed had been badly taken and couldn’t be fully analysed. What a bummer. So I’ll have to wait for the trephine ( bony core) part of the biopsy to be analysed. I’m still hoping that I can
Rachelthepotter
in
MPN Voice
4 years ago
Here are 6 cancer articles from the European Molecular Biology Laboratory.
Rather than clutter the forum I have lumped them altogether within the same post, as they are all from the same source
.
------------------------------------------------------------------------------
[u]Finding genetic cancer risks.[/u]
EMBL scientists describe how our genetic background
Rather than clutter the forum I have lumped them altogether within the same post, as they are all from the same source
.
------------------------------------------------------------------------------
[u]Finding genetic cancer risks.[/u]
EMBL scientists describe how our genetic background
2greys
in
Lung Conditions Community Forum
4 years ago
Life with cll. Another new concern.
Hi everyone, My last post was three weeks ago just after I had my tonsillectomy. And unfortunately today I got the results. It turns out my abnormal tonsils were full of cll cells. Or as my surgeon said loaded with cancer cells. Has anyone else here had the same experience or results? He recommended
Hi everyone, My last post was three weeks ago just after I had my tonsillectomy. And unfortunately today I got the results. It turns out my abnormal tonsils were full of cll cells. Or as my surgeon said loaded with cancer cells. Has anyone else here had the same experience or results? He recommended
Suzuki1000
in
CLL Support
4 years ago
March 7 2020 CLL PATIENT AND CAREGIVER EDUCATIONAL FORUM Saturday 8:00am - 12:30pm Rockefeller Auditorium 430 East 67th St Manhattan
To register: https://newyork2020.questionpro.com CLL Society Inc. • P. O. Box 1390 • Claremont CA 91711 • https://cllsociety.org 2019-2020 CLL PATIENT AND CAREGIVER EDUCATIONAL FORUM In partnership with Memorial Sloan Kettering Cancer Center, the CLL Society invites you to attend our informational CLL
To register: https://newyork2020.questionpro.com CLL Society Inc. • P. O. Box 1390 • Claremont CA 91711 • https://cllsociety.org 2019-2020 CLL PATIENT AND CAREGIVER EDUCATIONAL FORUM In partnership with Memorial Sloan Kettering Cancer Center, the CLL Society invites you to attend our informational CLL
lankisterguy
Volunteer
in
CLL Support
4 years ago
Essential thrombocytosis leg pain
I think I may have asked before i cant even remember. I have been having leg cramps/ pain around knee joints not severe my haematologist said it could be et related not sure? Should I push it with my gp. Does anyone else with et get this.
I think I may have asked before i cant even remember. I have been having leg cramps/ pain around knee joints not severe my haematologist said it could be et related not sure? Should I push it with my gp. Does anyone else with et get this.
Irishgal12
in
MPN Voice
4 years ago
SCIENCE WORKING TO PREVENT AML TRANSITION THROUGH BLOCKING GENE TALK
Potentially, it has discovered that two High Risk (HR) genes that already were bad enough on their own create a partnership of sorts that Might lead to transitional changes towards becoming Acute Myeloid
Leukaemia
(AML), and what's really exciting, is that they may have found a way to prevent that gene
Potentially, it has discovered that two High Risk (HR) genes that already were bad enough on their own create a partnership of sorts that Might lead to transitional changes towards becoming Acute Myeloid
Leukaemia
(AML), and what's really exciting, is that they may have found a way to prevent that gene
socrates_8
in
MPN Voice
4 years ago
Mutation's role in blood cancers revealed by ideal team-up
Post by MPN-MATE Admin » Sat Feb 01, 2020 4:35 am Hey everyone... :D Just thought that I would share this one with all of you... When we are diagnosed, our prognosis usually depends upon which MPN condition, (which are believed to be caused by our 'DRIVER' mutations), however what other more adverse
Post by MPN-MATE Admin » Sat Feb 01, 2020 4:35 am Hey everyone... :D Just thought that I would share this one with all of you... When we are diagnosed, our prognosis usually depends upon which MPN condition, (which are believed to be caused by our 'DRIVER' mutations), however what other more adverse
socrates_8
in
MPN Voice
4 years ago
What causes these horrific night sweats and does everyone get them ?
Hi All, 3 years on W&W and finally my time has arrived for treatment within the next 5 to 6 weeks. Chemo. Not really shocked just a bit numb really as just got used to the W&W scenario if you ever can. Positive about my treatment anxious about how it will feel. However I’ll be glad to get on with it
Hi All, 3 years on W&W and finally my time has arrived for treatment within the next 5 to 6 weeks. Chemo. Not really shocked just a bit numb really as just got used to the W&W scenario if you ever can. Positive about my treatment anxious about how it will feel. However I’ll be glad to get on with it
Roseneath69
in
CLL Support
4 years ago
Diagnosed essential thrombocytosis new
Hi guys so today I just got new am jak2 positive I am devastated crying o dont know what to think What does jak2 positive mean. An worrying about life expectancy and progression what life can I expect? Am 32
Hi guys so today I just got new am jak2 positive I am devastated crying o dont know what to think What does jak2 positive mean. An worrying about life expectancy and progression what life can I expect? Am 32
Irishgal12
in
MPN Voice
4 years ago
Help please !
Hi all , I really believe that I have fibromyalgia, How did you get your doctors to confirm this, I feel like I’m a hypochondriac every time I go to the docs , Most the symptoms I have are identical to fibromyalgia,I have been tested for
leukaemia
and lupus but my g p never mentions fibromyalgia I’ve
Hi all , I really believe that I have fibromyalgia, How did you get your doctors to confirm this, I feel like I’m a hypochondriac every time I go to the docs , Most the symptoms I have are identical to fibromyalgia,I have been tested for
leukaemia
and lupus but my g p never mentions fibromyalgia I’ve
JMJ42
in
Fibromyalgia Action UK
4 years ago
Ongoing Research Poised to Add Options for Myelofibrosis Treatment
Post by MPN-MATE Admin » Wed Jan 29, 2020 10:14 am Hey all... :D I simply found this an optimistic and encouraging from the perspective of MF sufferers, and especially if & when their Ruxolitinib (aka Jakafi), loses some of its efficacy, which it tends to do after circa 3.2 years... It talks a little
Post by MPN-MATE Admin » Wed Jan 29, 2020 10:14 am Hey all... :D I simply found this an optimistic and encouraging from the perspective of MF sufferers, and especially if & when their Ruxolitinib (aka Jakafi), loses some of its efficacy, which it tends to do after circa 3.2 years... It talks a little
socrates_8
in
MPN Voice
4 years ago
The Winter issue of Leukaemia Matters will soon be landing at your door or in your inbox!
[/i] http://bit.ly/LeukaemiaMattersWinter2019 [i]It’s been another busy year for
Leukaemia
Care as we celebrated our [/i][i]50th anniversary.
[/i] http://bit.ly/LeukaemiaMattersWinter2019 [i]It’s been another busy year for
Leukaemia
Care as we celebrated our [/i][i]50th anniversary.
HAIRBEAR_UK
in
Leukaemia Support
5 years ago
Video interviews; CLL 'Hot Topics and Maturing Data' ASH 2019: Prof John Gribben, Prof Pete Hillmen, Dr George Follows & Dr Renata Walewska
In December, the
Leukaemia
Care Patient Advocacy team attended the annual American Society of Hematology (ASH) conference in Florida, where the latest research in haematology was presented.
In December, the
Leukaemia
Care Patient Advocacy team attended the annual American Society of Hematology (ASH) conference in Florida, where the latest research in haematology was presented.
HAIRBEAR_UK
Administrator
in
CLL Support
4 years ago
Combined ruxolitinib and pegasys therapy for MF and PV gives great results. Danish phase 2 study Jan 2020 ( ruxopeg)
Hi I’ve pasted in the abstract of the Danish ruxopeg study instead of just the link, as it’s such an important result. The combination of ruxolitinib and pegasys does look to be worth trying.
Ruxolitinib And Interferon-Α2 Combination Therapy For Patients With Polycythemia Vera Or Myelofibrosis:
Hi I’ve pasted in the abstract of the Danish ruxopeg study instead of just the link, as it’s such an important result. The combination of ruxolitinib and pegasys does look to be worth trying.
Ruxolitinib And Interferon-Α2 Combination Therapy For Patients With Polycythemia Vera Or Myelofibrosis:
Rachelthepotter
in
MPN Voice
4 years ago
Can CLL treatment or CLL cause bladder cancer?
I had CLL (in remission) and was on IBR for 2 years. I recently have been treated for bladder cancer during the last 12 months or so and after treatment irradiated the cancer with one small reoccurrence . My question is has anybody experienced bladder cancer after getting treatment with Ibrutinib or
I had CLL (in remission) and was on IBR for 2 years. I recently have been treated for bladder cancer during the last 12 months or so and after treatment irradiated the cancer with one small reoccurrence . My question is has anybody experienced bladder cancer after getting treatment with Ibrutinib or
barger1951
in
CLL Support
4 years ago
MRD Testing after treatment. Help!
Is this good? Have to wait until tomorrow to actually speak to someone. Peripheral blood, flow cytometric immunophenotyping: Normal immunophenotyping results. No monotypic B-cell population identified. Comment: Minimal residual disease (MRD) analysis is intended to detect small clonal populations of
Is this good? Have to wait until tomorrow to actually speak to someone. Peripheral blood, flow cytometric immunophenotyping: Normal immunophenotyping results. No monotypic B-cell population identified. Comment: Minimal residual disease (MRD) analysis is intended to detect small clonal populations of
AuntHelen
in
CLL Support
4 years ago
Targeting cell death: helping push cancer cells over the edge
The BCL-2 family regulate one of the body’s apoptotic pathways. As scientists understand more about these proteins, they are able to push the boundaries of cancer research. The BCL-2 family is broadly divided into two types: pro-survival proteins, including BCL-2, BCL-XL, BCL-W and MCL-1, which help
The BCL-2 family regulate one of the body’s apoptotic pathways. As scientists understand more about these proteins, they are able to push the boundaries of cancer research. The BCL-2 family is broadly divided into two types: pro-survival proteins, including BCL-2, BCL-XL, BCL-W and MCL-1, which help
Jm954
Administrator
in
CLL Support
4 years ago
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