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NICE approves venetoclax with obinutuzumab for patients with untreated CLL
You can read the full article and supportive information here: https://www.leukaemiacare.org.uk/support-and-information/latest-from-
leukaemia
-care/news/nice-approves-venetoclax-with-obinutuzumab-for-patients-with-untreated-chronic-lymphocytic-
leukaemia
-cll/ A good day for CLL Onwards and upwards
You can read the full article and supportive information here: https://www.leukaemiacare.org.uk/support-and-information/latest-from-
leukaemia
-care/news/nice-approves-venetoclax-with-obinutuzumab-for-patients-with-untreated-chronic-lymphocytic-
leukaemia
-cll/ A good day for CLL Onwards and upwards
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
Scottish Medicines Agency has decided in favour of Venetoclax plus Obintuzumab for some patients.
The NICE decision was possible thanks to the efforts of charities including CLL Support, Lymphoma Action,
Leukaemia
Care and clinical experts.
The NICE decision was possible thanks to the efforts of charities including CLL Support, Lymphoma Action,
Leukaemia
Care and clinical experts.
Jm954
Administrator
in
CLL Support
4 years ago
Vaccinate or not?
I have just spoken with my haematologists office and asked what is recommended for those taking Hydroxy etc. We are advised to have a vaccination, it doesn't matter which one. If you have Aplastic Anemia then he would speak with you first. So pleased I've been given the go ahead!
I have just spoken with my haematologists office and asked what is recommended for those taking Hydroxy etc. We are advised to have a vaccination, it doesn't matter which one. If you have Aplastic Anemia then he would speak with you first. So pleased I've been given the go ahead!
Jennytheb
in
MPN Voice
4 years ago
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Hi, I'm a 72-year-old USA male, no symptoms, but diagnosed a month ago with CLL through routine blood workup (plus the usual FISH-followup after high WBC noted). So I've been reading assiduously, and trying to figure out when/how to assemble a team. For me it's W&W, with another blood assay in 3 months
Hi, I'm a 72-year-old USA male, no symptoms, but diagnosed a month ago with CLL through routine blood workup (plus the usual FISH-followup after high WBC noted). So I've been reading assiduously, and trying to figure out when/how to assemble a team. For me it's W&W, with another blood assay in 3 months
Felixgratus
in
CLL Support
4 years ago
One for Prof Harrison via Maz?
While I was having my transfusion today I overheard a nurse telling a patient that if they were on any type of immunosuppressive treatment that that should be discontinued before receiving covid vaccine. I am taking 20mg Ruxolitinib twice daily and have a consistently low white count with neutrophils
While I was having my transfusion today I overheard a nurse telling a patient that if they were on any type of immunosuppressive treatment that that should be discontinued before receiving covid vaccine. I am taking 20mg Ruxolitinib twice daily and have a consistently low white count with neutrophils
beetle
in
MPN Voice
4 years ago
Surviving Covid
Hi everyone. I have PV and early MF. I take Ruxolitinib . I am 44. I have shielded as many of us have. As a family with 3 children, we have been very careful to avoid places and people but yet contracted Covid the week before Christmas. I am still recovering from terrible fatigue and also developed panic
Hi everyone. I have PV and early MF. I take Ruxolitinib . I am 44. I have shielded as many of us have. As a family with 3 children, we have been very careful to avoid places and people but yet contracted Covid the week before Christmas. I am still recovering from terrible fatigue and also developed panic
MamPRV
in
MPN Voice
4 years ago
Richter's Syndrome! One pill, Triple Combination Therapy is in clinical trial for Richter’s Transformation & De Novo Large B-Cell Lymphoma
Richter's Syndrome! One pill, Triple Combination Therapy is in clinical trial for Richter’s Transformation and De Novo Large B-Cell Lymphoma with impressive results. In this ASH 2020 In this video Dr. Mato tells us that his clinical trial introduces the concept of “synthetic lethality,” where multiple
Richter's Syndrome! One pill, Triple Combination Therapy is in clinical trial for Richter’s Transformation and De Novo Large B-Cell Lymphoma with impressive results. In this ASH 2020 In this video Dr. Mato tells us that his clinical trial introduces the concept of “synthetic lethality,” where multiple
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
Parp Inhibitors - what are the risks?
syndrome and acute myeloid
leukaemia
across PARP inhibitor groups was 0·73% (... 21 events out of 4533 patients) and across placebo groups was 0·47% (... three events out of 2774 patients)."
syndrome and acute myeloid
leukaemia
across PARP inhibitor groups was 0·73% (... 21 events out of 4533 patients) and across placebo groups was 0·47% (... three events out of 2774 patients)."
pjoshea13
in
Advanced Prostate Cancer
4 years ago
Bladder Cancer with CLL
CLL since 2012 ( Ibrutinib 5 years , Gayzva 6 months , Acalabrutinib 2 years ) now bladder cancer , high grade , no wall penetration .... advised to take BCG for 6 weeks every 3 months for a year ... anyone shed light on what I can physically expect from the BCG ?
CLL since 2012 ( Ibrutinib 5 years , Gayzva 6 months , Acalabrutinib 2 years ) now bladder cancer , high grade , no wall penetration .... advised to take BCG for 6 weeks every 3 months for a year ... anyone shed light on what I can physically expect from the BCG ?
fish61
in
CLL Support
4 years ago
Common questions about the approved Pfizer-BioNTech vaccine answered for blood cancer patients
We've put together a blog answering your most common questions on the COVID-19 vaccine > https://www.leukaemiacare.org.uk/support-and-information/latest-from-
leukaemia
-care/blog/covid-vaccine-faqs/
We've put together a blog answering your most common questions on the COVID-19 vaccine > https://www.leukaemiacare.org.uk/support-and-information/latest-from-
leukaemia
-care/blog/covid-vaccine-faqs/
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
Advice on Eye Drops Please (in UK)
My intro: I'm a CLL type
leukaemia
patient (happily post treatment), and CLL is form of NHL (which I think can link to Sjogren's) All I know at the moment is I get dry mouth (for years) and painful dry eyes at night, the eye problem started early last year. It comes and goes.
My intro: I'm a CLL type
leukaemia
patient (happily post treatment), and CLL is form of NHL (which I think can link to Sjogren's) All I know at the moment is I get dry mouth (for years) and painful dry eyes at night, the eye problem started early last year. It comes and goes.
Ernest2
in
Sjogren's Support
4 years ago
Updated shielding guidance for people with blood cancers – FAQs
This blog from the
Leukaemia
Care advocacy team looks at guidance in the different UK countries to aid with understanding in your area.
This blog from the
Leukaemia
Care advocacy team looks at guidance in the different UK countries to aid with understanding in your area.
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
myelofibrosis and headaches
hello everyone. i was diagnosed in sept. with myelofibrosis and am jak2 positive. i am 49. i have been having some pretty wicked headaches and was wondering what would be the best remedy. i have been on jakafi for 4 weeks and it has helped my bone pain tremendously and am less fatigued. i have gone
hello everyone. i was diagnosed in sept. with myelofibrosis and am jak2 positive. i am 49. i have been having some pretty wicked headaches and was wondering what would be the best remedy. i have been on jakafi for 4 weeks and it has helped my bone pain tremendously and am less fatigued. i have gone
runnerbird71
in
MPN Voice
4 years ago
Light up a star via our Make it Shine campaign to help support our work.
Whatever your reason, you can dedicate a star and at the same time support the ongoing work of
Leukaemia
Care here > https://visufund.com/make-it-shine-for-
leukaemia
-care Please spread the word
Whatever your reason, you can dedicate a star and at the same time support the ongoing work of
Leukaemia
Care here > https://visufund.com/make-it-shine-for-
leukaemia
-care Please spread the word
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
Interferon-Alpha Reduces Myelofibrosis Risk, Mortality Rate in Low- and High-Risk Polycythemia Vera
“In an intent-to-treat analysis, IFN was associated with improved OS in high-risk PV, with a 20-year OS probability of 66% in the IFN group, 40% in the HU group, and 14% in the phlebotomy-only group. The rate of myelofibrosis-free survival (MFS) of high-risk patients was similarly higher in patients
“In an intent-to-treat analysis, IFN was associated with improved OS in high-risk PV, with a 20-year OS probability of 66% in the IFN group, 40% in the HU group, and 14% in the phlebotomy-only group. The rate of myelofibrosis-free survival (MFS) of high-risk patients was similarly higher in patients
Manouche
in
MPN Voice
4 years ago
Richter Syndrome
Hello Everybody, My boyfriend was just diagnosed with Richter Syndrome about 2 hours ago. Those have been 2 hours where I have felt myself losing my mind! They told him not to google anything in regards to the diagnosis as they are doing more tests. Of course, I didn’t listen! Everything I have read
Hello Everybody, My boyfriend was just diagnosed with Richter Syndrome about 2 hours ago. Those have been 2 hours where I have felt myself losing my mind! They told him not to google anything in regards to the diagnosis as they are doing more tests. Of course, I didn’t listen! Everything I have read
Bee4028
in
CLL Support
4 years ago
Ropeginterferon-Treated Patients With Polycythemia Vera Significantly More Likely to Be Phlebotomy Free at 5 Years
« Additional results showed a pronounced difference in the molecular response (JAK2V617F burden) between the 2 treatment arms, with “striking superiority of ropeginterferon at month 60,” Gisslinger noted. Specifically, the median JAK2V617F allele burden at year 5 was 8.5 in the ropeginterferon arm vs
« Additional results showed a pronounced difference in the molecular response (JAK2V617F burden) between the 2 treatment arms, with “striking superiority of ropeginterferon at month 60,” Gisslinger noted. Specifically, the median JAK2V617F allele burden at year 5 was 8.5 in the ropeginterferon arm vs
Manouche
in
MPN Voice
4 years ago
CEV letter v2.0, NI edition.
So lots of posts on here from people getting CEV letters again. Mostly England I think however our wee country got to deal with the serious arguments about transfer tests (I guess they are, not if you're youngest is 20 though) before they issue the guidance and letters. Just yesterday, Friday 8th I received
So lots of posts on here from people getting CEV letters again. Mostly England I think however our wee country got to deal with the serious arguments about transfer tests (I guess they are, not if you're youngest is 20 though) before they issue the guidance and letters. Just yesterday, Friday 8th I received
Belfastbees
in
CLL Support
4 years ago
Fri, Nov 27, 2:00 PM - 3:00 PM GMT Getting the best out of your medical appointments - a joint Lymphoma Action and Leukaemia Care webinar
Hi all, you are invited to join us for this webinar hosted by Lymphoma Action and
Leukaemia
Care, We will be focussing on how you can get the most out of your appointments, however they are happening and at whatever stage they are at in their in your journey.
Hi all, you are invited to join us for this webinar hosted by Lymphoma Action and
Leukaemia
Care, We will be focussing on how you can get the most out of your appointments, however they are happening and at whatever stage they are at in their in your journey.
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
Expert Answers to Frequently Asked Questions About Chronic Lymphocytic Leukemia and COVID-19, including vaccination
Interesting 'conversation' with CLL experts on a variety of topics including: Do patients with CLL have worse outcomes if they develop COVID‑19? Are data available on COVID-19 outcomes in younger patients with CLL? Would it be possible for CLL-associated lymphocytosis to counteract COVID-19–associated
Interesting 'conversation' with CLL experts on a variety of topics including: Do patients with CLL have worse outcomes if they develop COVID‑19? Are data available on COVID-19 outcomes in younger patients with CLL? Would it be possible for CLL-associated lymphocytosis to counteract COVID-19–associated
Jm954
Administrator
in
CLL Support
4 years ago
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