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"Becoming Your Own (CLL)Project Manager" by Doreen Zetterlund is part of CLL Society & Huntsman Cancer Institute's Monday Nov. 8th CLL Forum
Tuesday Nov. 9th! Still time to register! Patients who manage their own CLL strategies without the help of a caregiver are in for a rare treat as CLL patient Doreen Zetterlund leads us through her amazing "how to" video Becoming Your Own Project Manager. Doreen's presentation is part of Huntsman Cancer
Tuesday Nov. 9th! Still time to register! Patients who manage their own CLL strategies without the help of a caregiver are in for a rare treat as CLL patient Doreen Zetterlund leads us through her amazing "how to" video Becoming Your Own Project Manager. Doreen's presentation is part of Huntsman Cancer
bkoffman
CLL CURE Hero
in
CLL Support
3 years ago
Webinar 11th August 12.30pm, CAR - T therapy update
Luminita Keating, CAR-T Clinical Nurse Specialist, Addenbrooke's, Cambridge University Hospitals NHS Foundation Trust Deborah Sims, CAR-T treated chronic lymphocytic
leukaemia
(CLL) patient Sophie Wheldon, CAR-T treated acute lymphoblastic
leukaemia
(ALL) patient
Luminita Keating, CAR-T Clinical Nurse Specialist, Addenbrooke's, Cambridge University Hospitals NHS Foundation Trust Deborah Sims, CAR-T treated chronic lymphocytic
leukaemia
(CLL) patient Sophie Wheldon, CAR-T treated acute lymphoblastic
leukaemia
(ALL) patient
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
CD38 In CLL
Went for my annual checkup yesterday, WBC at 19.1 from 15.1 last year. Not enough WBC to know if mutated or not. The doctor did confirm I'm don't have 17p but I do have CD38.. according to Goggle I may see God sooner! What's the deal?
Went for my annual checkup yesterday, WBC at 19.1 from 15.1 last year. Not enough WBC to know if mutated or not. The doctor did confirm I'm don't have 17p but I do have CD38.. according to Goggle I may see God sooner! What's the deal?
Laura3mini
in
CLL Support
3 years ago
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Webinar 3.30pm Thursday 29th July - Use of blood products for the care of leukaemia patients
The aim of this webinar is to discuss the importance of blood product transfusions and infusions during the care of
leukaemia
patients.
The aim of this webinar is to discuss the importance of blood product transfusions and infusions during the care of
leukaemia
patients.
HAIRBEAR_UK
Founder Admin
in
CLL Support
3 years ago
Webinar 3.30pm Thursday 29th July - Use of blood products for the care of leukaemia patients
The aim of this webinar is to discuss the importance of blood product transfusions and infusions during the care of
leukaemia
patients.
The aim of this webinar is to discuss the importance of blood product transfusions and infusions during the care of
leukaemia
patients.
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
Spot leukaemia early
You may or may not have seen the latest video on Facebook about this. I am one of those speaking. Hopefully here is the link https://fb.watch/7TzNrF-v7-/
You may or may not have seen the latest video on Facebook about this. I am one of those speaking. Hopefully here is the link https://fb.watch/7TzNrF-v7-/
kitchengardener2
in
Lung Conditions Community Forum
3 years ago
Australia and booster Covid Vaccines
A very disheartening piece in newspaper this morning - https://www.theguardian.com/australia-news/2021/sep/08/sydney-man-with-
leukaemia
-refused-covid-vaccine-booster-shot-his-specialist-recommended
A very disheartening piece in newspaper this morning - https://www.theguardian.com/australia-news/2021/sep/08/sydney-man-with-
leukaemia
-refused-covid-vaccine-booster-shot-his-specialist-recommended
YelvertonDevon
in
CLL Support
3 years ago
Campaigns corner: To improve support and understanding of safety needs of blood cancer patients as lockdown lifts
To improve the experience of employed
patients as the COVID-19 pandemic restrictions lift.
To improve the experience of employed
patients as the COVID-19 pandemic restrictions lift.
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
CAR-T post 9 months
Here’s a more detailed update shared with the
Leukaemia
Foundation for those who may end up on a similar path.
Here’s a more detailed update shared with the
Leukaemia
Foundation for those who may end up on a similar path.
Debinoz
in
CLL Support
3 years ago
Treatment option with del 17 positive but IGHV mutated
I am CLL since 2003 on wait and watch. Now my count has increased to 80000 and platlets fallen to 1 Lakhs. RBC is normal.My spleen is 16.5 cms My FISH report indicates del17 positive but IGHV is mutated. Is my CLL agressive and needs special treatment especially because I am del17 positive . But IGHV
I am CLL since 2003 on wait and watch. Now my count has increased to 80000 and platlets fallen to 1 Lakhs. RBC is normal.My spleen is 16.5 cms My FISH report indicates del17 positive but IGHV is mutated. Is my CLL agressive and needs special treatment especially because I am del17 positive . But IGHV
Ashwas
in
CLL Support
3 years ago
3rd Covid Vaccine
So I got my letter from Haematology today about the 3rd primary covid vaccine. Moment of excitement, then read through frantically trying to find MPNs or PV on the list of eligible criteria. It wasn't there. Re-read the three page letter a little more frantically and finally found the word hydroxycarbamide
So I got my letter from Haematology today about the 3rd primary covid vaccine. Moment of excitement, then read through frantically trying to find MPNs or PV on the list of eligible criteria. It wasn't there. Re-read the three page letter a little more frantically and finally found the word hydroxycarbamide
MWxxxx
in
MPN Voice
3 years ago
UK National COVID cancer test survey - Any results
Hi. I have just had a negative antibody test result after taking the National COVID cancer survey test. Obviously disappointed after having the 3rd dose of the Pfizer vaccine on the 2 Oct. Not sure if it makes a difference to me only waiting 17 day between the Jab and the test, perhaps I should have
Hi. I have just had a negative antibody test result after taking the National COVID cancer survey test. Obviously disappointed after having the 3rd dose of the Pfizer vaccine on the 2 Oct. Not sure if it makes a difference to me only waiting 17 day between the Jab and the test, perhaps I should have
Strech51
in
CLL Support
3 years ago
Turmeric and Ruxolitinib
I have been taking Turmeric Shots for sometime and found them a tremendous benefit in easing the inflammation for my OA. However in March I started taking Ruxolitinib and Pharmacy at Guys said I must stop taking the Turmeric. I'm gutted. I stopped about a month ago and the pain has returned big time
I have been taking Turmeric Shots for sometime and found them a tremendous benefit in easing the inflammation for my OA. However in March I started taking Ruxolitinib and Pharmacy at Guys said I must stop taking the Turmeric. I'm gutted. I stopped about a month ago and the pain has returned big time
Heather270240
in
MPN Voice
3 years ago
Wednesday 1st of September is WORLD CLL DAY when the global community comes together for Blood Cancer Awareness Month to raise awareness
With CLL being the most common
leukaemia
, the number 1 and first day of Blood Cancer Awareness Month, 1st September was chosen by the international CLL community for World CLL Day.
With CLL being the most common
leukaemia
, the number 1 and first day of Blood Cancer Awareness Month, 1st September was chosen by the international CLL community for World CLL Day.
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
Intense exercise
I have early stage CLL diagnosed about a year ago. I am a regular marathon runner and just a week ago ran my first 50 mile run. My hematologist told me not to change anything I was doing including my ultra running. So far I don’t think I have had any adverse effects from this passion of mine which is
I have early stage CLL diagnosed about a year ago. I am a regular marathon runner and just a week ago ran my first 50 mile run. My hematologist told me not to change anything I was doing including my ultra running. So far I don’t think I have had any adverse effects from this passion of mine which is
celticfan
in
CLL Support
3 years ago
Anyone know who is delivering the third primary Covid vaccine?
I took the letter from MPN voice to my surgery yesterday to be told that they are only doing boosters. I have left it with a letter for my GP to see what happens, but it appears locally that they have not taken this into account as yet. Is anyone else getting a similar reaction?
I took the letter from MPN voice to my surgery yesterday to be told that they are only doing boosters. I have left it with a letter for my GP to see what happens, but it appears locally that they have not taken this into account as yet. Is anyone else getting a similar reaction?
gset
in
MPN Voice
3 years ago
Chronic Lymphocytic Leukemia/Leukaemia (CLL) Patients: Shingles, Antivirals, Antibiotics, and the new Shingrix Vaccine (Please read first)
Dear CLL Support Healthunlocked (HU) Readers, First, for those new to this forum, please have a read of: https://healthunlocked.com/cllsupport/posts/141151813/newly-diagnosed-with-chronic-lymphocytic-leukemia-or-small-lymphocytic-lymphoma-cll-sll-or-just-found-us-this-post-is-for-you If you are new to
Dear CLL Support Healthunlocked (HU) Readers, First, for those new to this forum, please have a read of: https://healthunlocked.com/cllsupport/posts/141151813/newly-diagnosed-with-chronic-lymphocytic-leukemia-or-small-lymphocytic-lymphoma-cll-sll-or-just-found-us-this-post-is-for-you If you are new to
Ernest2
in
CLL Support
3 years ago
Waiting for diagnosis
Hello I'm 61 and haven't yet been diagnosed with CLL although my GP has suggested I have it. I'm waiting for my haematology appointment but have been triaged as on the 12 week list. That's all very well for them to say - they don't have to lie awake thinking about whether or not I have a blood cancer
Hello I'm 61 and haven't yet been diagnosed with CLL although my GP has suggested I have it. I'm waiting for my haematology appointment but have been triaged as on the 12 week list. That's all very well for them to say - they don't have to lie awake thinking about whether or not I have a blood cancer
Stitcher100
in
CLL Support
3 years ago
Pruritus and peginterferon
Does anyone feel their pruritus has worsened while using peginterferon? Also if the itching becomes more bothersome does it mean the illness is getting worse? I am on weekly injections 90mcg for primary myelofibrosis for about 2 years and do not have a lot of itching, just occasional.
Does anyone feel their pruritus has worsened while using peginterferon? Also if the itching becomes more bothersome does it mean the illness is getting worse? I am on weekly injections 90mcg for primary myelofibrosis for about 2 years and do not have a lot of itching, just occasional.
caroline_284
in
MPN Voice
3 years ago
My HCT was low for me..help.
I have PV. Not taking any meds for it yet. I had a phlebotomy on 8-10. I normally don't get a CBC for 2-3 months after a PB to allow my HCT to get above 42 which is when I get a PB. By on 9-22 I was at the doctor so I got a CBC. It was about 40 days after my phlebotomy. My hemo just emailed that he
I have PV. Not taking any meds for it yet. I had a phlebotomy on 8-10. I normally don't get a CBC for 2-3 months after a PB to allow my HCT to get above 42 which is when I get a PB. By on 9-22 I was at the doctor so I got a CBC. It was about 40 days after my phlebotomy. My hemo just emailed that he
Elizka
in
MPN Voice
3 years ago
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