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Coffee - links to autoimmune?
Dear PA members - there seems to be many articles about negative and positive impacts of coffee/caffeine on autoimmune diseases. Does anyone know /researched if coffee has a negative or positive impact on AG PA? Its not clear. Many thanks
Dear PA members - there seems to be many articles about negative and positive impacts of coffee/caffeine on autoimmune diseases. Does anyone know /researched if coffee has a negative or positive impact on AG PA? Its not clear. Many thanks
PAapr22
in
Pernicious Anaemia Society
3 months ago
Graves in couples
hi, I have recently been diagnosed with Graves (I’m 42) and my husband was diagnosed in 2008 (age 29) and relapsed in 2018 (currently in remission). I have discovered that George and Barbara Bush also both had Graves and although the cause was investigated, it was never found why both got it. Their dog
hi, I have recently been diagnosed with Graves (I’m 42) and my husband was diagnosed in 2008 (age 29) and relapsed in 2018 (currently in remission). I have discovered that George and Barbara Bush also both had Graves and although the cause was investigated, it was never found why both got it. Their dog
Kari55
in
Thyroid UK
6 months ago
Help with vitamins
My ferritin and B12 keep going down despite the fact that I take supplements. Since being diagnosed with Hypothyroidism, Coeliac and SIBO they were steadily going up - I got my ferritin from 2 to 75, but in the last year it’s gone down to 39. My B12 is at 318 and was almost 500 a year ago. Does anyone
My ferritin and B12 keep going down despite the fact that I take supplements. Since being diagnosed with Hypothyroidism, Coeliac and SIBO they were steadily going up - I got my ferritin from 2 to 75, but in the last year it’s gone down to 39. My B12 is at 318 and was almost 500 a year ago. Does anyone
Flossiewestie2020
in
Thyroid UK
3 months ago
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New experiences of diagnosis video for World Lupus Day
This World Lupus Day we're launching a new video with Khiry, Beth, and Maryann sharing their experiences of receiving a diagnosis of lupus. You can watch the video here: https://www.youtube.com/watch?v=7VxG2WbrsGI You can also read this blog article in which Khiry, Beth, and Maryann talk about their
This World Lupus Day we're launching a new video with Khiry, Beth, and Maryann sharing their experiences of receiving a diagnosis of lupus. You can watch the video here: https://www.youtube.com/watch?v=7VxG2WbrsGI You can also read this blog article in which Khiry, Beth, and Maryann talk about their
Debbie_kinsey
Administrator
in
LUPUS UK
3 months ago
CAP score of 299, diagnosed with Cirrhosis
I am a 60 yr old male, and was recently diagnosed with liver cirrhosis. My fibroscan showed 19.6 LSM score and 299 CAP, with a grade 4 fatty liver. I have recently started cleaning up my diet and taking some medicine to reduce insulin resistance. I am extremely disturbed and nervous as I struggle with
I am a 60 yr old male, and was recently diagnosed with liver cirrhosis. My fibroscan showed 19.6 LSM score and 299 CAP, with a grade 4 fatty liver. I have recently started cleaning up my diet and taking some medicine to reduce insulin resistance. I am extremely disturbed and nervous as I struggle with
Carblover8
in
British Liver Trust
6 months ago
Ultrasound
Hi All, So I have ulcerative colitis and have had 2 raised alt levels. I paid for a private ultrasound yesterday and the results are severe hepatosteatosis. could anybody advise what I should be eating or doing ? I have a drs appointment but it’s not for another 2 weeks. Also had anybody reversed
Hi All, So I have ulcerative colitis and have had 2 raised alt levels. I paid for a private ultrasound yesterday and the results are severe hepatosteatosis. could anybody advise what I should be eating or doing ? I have a drs appointment but it’s not for another 2 weeks. Also had anybody reversed
Chicob29
in
British Liver Trust
6 months ago
Article: Exciting time for biological use in Lupus
https://www.healio.com/news/rheumatology/20240425/exciting-time-biologic-use-in-moderate-to-severe-lupus-rose-45-since-2021?utm_source=selligent&utm_medium=email&utm_campaign=news
https://www.healio.com/news/rheumatology/20240425/exciting-time-biologic-use-in-moderate-to-severe-lupus-rose-45-since-2021?utm_source=selligent&utm_medium=email&utm_campaign=news
VeeWat
in
LUPUS UK
3 months ago
loop recorder
I am being asked by an EP/ cardiologist to have them implant a loop recorder to monitor my heart for an extended period of time. This recorder will be recording continuous EKG readings that is transmitted to the treating cardiologist . It is expected that this will allow for better diagnosis and treatment
I am being asked by an EP/ cardiologist to have them implant a loop recorder to monitor my heart for an extended period of time. This recorder will be recording continuous EKG readings that is transmitted to the treating cardiologist . It is expected that this will allow for better diagnosis and treatment
execz1
in
Atrial Fibrillation Support
2 months ago
PET Brain Scans Find ‘Smoldering’ Inflammation in Multiple Sclerosis Patients
A new study from Brigham and Women’s Hospital suggests PET brain scans could reveal hidden inflammation in patients with multiple sclerosis (MS) who are being treated with highly effective treatments. The findings were published in Clinical Nuclear Medicine.
https://appliedradiology.com/Articles
A new study from Brigham and Women’s Hospital suggests PET brain scans could reveal hidden inflammation in patients with multiple sclerosis (MS) who are being treated with highly effective treatments. The findings were published in Clinical Nuclear Medicine.
https://appliedradiology.com/Articles
BettysMom
in
My MSAA Community
3 months ago
"Impact of REM Sleep Behavior and Sleep Talking on Mortality in Parkinson's Disease" Rapid Eye Movement Behavior Disorder (RBD) & PD
Published January 19, 2024: "According to our study, frequent sleep talking (talking while asleep at least one night per week) is a risk factor for early mortality in PD. RBD with sleep talking (ST) was associated with increased mortality, while RBD without sleep talking was not. This too hints at the
Published January 19, 2024: "According to our study, frequent sleep talking (talking while asleep at least one night per week) is a risk factor for early mortality in PD. RBD with sleep talking (ST) was associated with increased mortality, while RBD without sleep talking was not. This too hints at the
JackBruce2024
in
Cure Parkinson's
6 months ago
Is a false-positive biopsy possible?
I have a history of prostate cancer in my family. My father had it, and my brother had it and he had his prostate removed. As a result, for the last 13 years, I've had my PSA checked every six months. I typically run a very low PSA, historically .5 or .6. About 18 months ago I noticed that my PSA was
I have a history of prostate cancer in my family. My father had it, and my brother had it and he had his prostate removed. As a result, for the last 13 years, I've had my PSA checked every six months. I typically run a very low PSA, historically .5 or .6. About 18 months ago I noticed that my PSA was
CBRD
in
Advanced Prostate Cancer
6 months ago
Atarax 25mg...has anyone used it?
It's an antihistamine with sedative effects. My pharmacy suggested it as I sleep very badly and I have hay fever. After checking with my Lupus Specialist it was OK to take with my other meds I also searched online and saw its also used to treat lupus rashes and itchy skin. I'm hoping it might help my
It's an antihistamine with sedative effects. My pharmacy suggested it as I sleep very badly and I have hay fever. After checking with my Lupus Specialist it was OK to take with my other meds I also searched online and saw its also used to treat lupus rashes and itchy skin. I'm hoping it might help my
AnonLupi
in
LUPUS UK
3 months ago
Help - trouble with diagnosis
Hi there, Looking for some help/guidance here as im at a bit of a loss with what to do next. Sorry for the rambling but I feel so defeated Im34 YO Female, and for about 2 years on and off I have had a number of lupus symptoms, Raynaud's in my hands, joint pain, horrendous fatigue that means I sleep
Hi there, Looking for some help/guidance here as im at a bit of a loss with what to do next. Sorry for the rambling but I feel so defeated Im34 YO Female, and for about 2 years on and off I have had a number of lupus symptoms, Raynaud's in my hands, joint pain, horrendous fatigue that means I sleep
Severusisismydog
in
LUPUS UK
3 months ago
Casadex, on and off
I was on Casadex close to 3 years. During the last part of going on 3 years my psa started rising. They took me off Casadex and put me on Orgovyx which did not work so they put me on injections of lupron once a month. My psa again started rising on lupron injections. Now They have put me on nubeqa to
I was on Casadex close to 3 years. During the last part of going on 3 years my psa started rising. They took me off Casadex and put me on Orgovyx which did not work so they put me on injections of lupron once a month. My psa again started rising on lupron injections. Now They have put me on nubeqa to
woppaho
in
Advanced Prostate Cancer
6 months ago
Living with lupus in 2024 survey - closing soon!
Lupus Europe is conducting a survey to gather insights into the experiences of individuals living with lupus across Europe. The survey is anonymous and should take approximately 10 minutes to complete. It is available in 19 different languages. To complete the survey, please click the following link
Lupus Europe is conducting a survey to gather insights into the experiences of individuals living with lupus across Europe. The survey is anonymous and should take approximately 10 minutes to complete. It is available in 19 different languages. To complete the survey, please click the following link
nakita_cambow
Moderator
in
LUPUS UK
3 months ago
Lupus Tumidus
Hi All - After months of burning and itching skin, intermittent exhaustion, irritability, on and off leg swelling and joint pain, I have been diagnosed with Lupus Tumidus. Rheumatologist has said it is not SLE and will likely never turn into SLE. (I am not convinced but one battle at a time). Does
Hi All - After months of burning and itching skin, intermittent exhaustion, irritability, on and off leg swelling and joint pain, I have been diagnosed with Lupus Tumidus. Rheumatologist has said it is not SLE and will likely never turn into SLE. (I am not convinced but one battle at a time). Does
TumidusG
in
LUPUS UK
3 months ago
Save a life with an AED
Arrhythmia Alliance supports and recognises the vital role an
AED
can play in saving lives For further details please follow the link below
What can I do about sudden cardiac arrest?
https://api.heartrhythmalliance.org/files/download/49bda8fa574082fedd9ee93e473182ea
Arrhythmia Alliance supports and recognises the vital role an
AED
can play in saving lives For further details please follow the link below
What can I do about sudden cardiac arrest?
https://api.heartrhythmalliance.org/files/download/49bda8fa574082fedd9ee93e473182ea
SamAdmin
Administrator
in
Sudden Cardiac Arrest & Heart Attack
2 months ago
Save a life with an AED
Arrhythmia Alliance supports and recognises the vital role an
AED
can play in saving lives For further details please follow the link below
What can I do about sudden cardiac arrest?
https://api.heartrhythmalliance.org/files/download/49bda8fa574082fedd9ee93e473182ea
Arrhythmia Alliance supports and recognises the vital role an
AED
can play in saving lives For further details please follow the link below
What can I do about sudden cardiac arrest?
https://api.heartrhythmalliance.org/files/download/49bda8fa574082fedd9ee93e473182ea
SamAdmin
Administrator
in
Heart Rhythm Disorders Support
2 months ago
Cardioversion and PVCs and PACs
Does a cardioversion help if you have PVCs and PACs or does it only help if you have Afib? I go in and out of Afib but my PVCs and PACs have been non-stop for 3 months. Flecainide did not work. I’m considering a cardioversion as I’m to the point I will try anything to get my heart back into NSR but
Does a cardioversion help if you have PVCs and PACs or does it only help if you have Afib? I go in and out of Afib but my PVCs and PACs have been non-stop for 3 months. Flecainide did not work. I’m considering a cardioversion as I’m to the point I will try anything to get my heart back into NSR but
Debjimmay
in
Atrial Fibrillation Support
2 months ago
angiography
Morning all Haven’t posted in ages been overdoing things have swollen hands but I suppose it could also be the heat. Due to have an angiogram just wondered if any of you warriors have had one and did RA cause any extra problems. Wishing you all a good day xx
Morning all Haven’t posted in ages been overdoing things have swollen hands but I suppose it could also be the heat. Due to have an angiogram just wondered if any of you warriors have had one and did RA cause any extra problems. Wishing you all a good day xx
Daffodil1958
in
NRAS
2 months ago
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