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Leflunomide
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Sick Day rules and Adrenal Insufficiency
We have a Rheumatology Helpline in Worcs and she is monitoring my bloods now that I'm on
Leflunomide
which seems to be working for me. They think that my PMR may have morphed into RA, because of my swelling knee. Anyone else had this diagnosis? Take care everyone.
We have a Rheumatology Helpline in Worcs and she is monitoring my bloods now that I'm on
Leflunomide
which seems to be working for me. They think that my PMR may have morphed into RA, because of my swelling knee. Anyone else had this diagnosis? Take care everyone.
Roltuba
in
PMRGCAuk
2 years ago
Triple treatment adding Sulfasalazine
My current meds are Humira,
Leflunomide
10 mg, prednisone 6 mg and Celebrex 200 mg 2x a day. I started having more flares. My rheumy wants to add Sulfasalazine. He would like to get the ra more controlled and me off prednisone. I have been using higher does up to 20 mg for the flares.
My current meds are Humira,
Leflunomide
10 mg, prednisone 6 mg and Celebrex 200 mg 2x a day. I started having more flares. My rheumy wants to add Sulfasalazine. He would like to get the ra more controlled and me off prednisone. I have been using higher does up to 20 mg for the flares.
ragurl
in
NRAS
2 years ago
Raynaud's Dr.'s Appt. Outcome Am I Expecting Too Much
Then I mentioned the I thought the
leflunomide
was helping some with pain. He increased that and said to stop the methotrexate and 2 weeks before the next visit taper to 5 mg. of prednisone.
Then I mentioned the I thought the
leflunomide
was helping some with pain. He increased that and said to stop the methotrexate and 2 weeks before the next visit taper to 5 mg. of prednisone.
Pumpkin2009
in
LUPUS UK
2 years ago
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Fatigue??
Nurse suggested I try
leflunomide
, which I agreed to, but having read side effects I think I’ll be no better off….. any advice please? I’ve been tearful since getting home as it just feels like the cruelest vicious circle - sorry, feeling rather sorry for myself today!
Nurse suggested I try
leflunomide
, which I agreed to, but having read side effects I think I’ll be no better off….. any advice please? I’ve been tearful since getting home as it just feels like the cruelest vicious circle - sorry, feeling rather sorry for myself today!
girli1111
in
NRAS
2 years ago
Covid & RA
I’ve took my DMARDS -
Leflunomide
& hydroxy as I work like clockwork with My meds …. I’ve tested negative again . Hubby says you could have it but it’s not showing in the test yet ? Anyone else been like this ?
I’ve took my DMARDS -
Leflunomide
& hydroxy as I work like clockwork with My meds …. I’ve tested negative again . Hubby says you could have it but it’s not showing in the test yet ? Anyone else been like this ?
Hidden
in
NRAS
2 years ago
Touching base 2 years after joining this community.
I found a successful treatment in
Leflunomide
in November 2020 along with the prednisone I could not taper off. I managed to get to 4mg but couldn't get any lower in early 2021 and the rheumatologist was happy with that.
I found a successful treatment in
Leflunomide
in November 2020 along with the prednisone I could not taper off. I managed to get to 4mg but couldn't get any lower in early 2021 and the rheumatologist was happy with that.
Surami2020
in
PMRGCAuk
2 years ago
Rituximab stopped in NI
I personally find I’m doing quite well on
leflunomide
. Good luck with alternatives🤗
I personally find I’m doing quite well on
leflunomide
. Good luck with alternatives🤗
Maverick77
in
LUPUS UK
3 years ago
Rituximab or Leflunomide
Having stopped rituximab in October after being informed there was no immunity for patients on it, I started
leflunomide
in the meantime until I got all my vaccines and I find I’m feeling really well on it. Has anyone else tried
Leflunomide
and what are your thoughts on it.
Having stopped rituximab in October after being informed there was no immunity for patients on it, I started
leflunomide
in the meantime until I got all my vaccines and I find I’m feeling really well on it. Has anyone else tried
Leflunomide
and what are your thoughts on it.
Maverick77
in
LUPUS UK
3 years ago
Chickenpox and rituximab
Hi, I have RA and being treated with rituximab and
leflunomide
. I am a children's nanny and one of the children possible has chickenpox. I had it as a child but I'm not sure if I should avoid being near it or not.
Hi, I have RA and being treated with rituximab and
leflunomide
. I am a children's nanny and one of the children possible has chickenpox. I had it as a child but I'm not sure if I should avoid being near it or not.
Juliesb
in
NRAS
3 years ago
4th booster
My body is tired of stop starting my
Leflunomide
and Prednisolone.
My body is tired of stop starting my
Leflunomide
and Prednisolone.
Kaziecat
in
LUPUS UK
3 years ago
Can't get on top of this flare
Mackie has mentioned
Leflunomide
, but people on HU have reported unpleasant side effects, so I'm not sure about that - yet. Sorry about this long ramble, but I wanted to put in all the facts. Thanks for reading!
Mackie has mentioned
Leflunomide
, but people on HU have reported unpleasant side effects, so I'm not sure about that - yet. Sorry about this long ramble, but I wanted to put in all the facts. Thanks for reading!
PastelsinArt
in
PMRGCAuk
3 years ago
Leflunomide - side effects continue
Am awaiting results on an ultra sound but I strongly suspect it is the
Leflunomide
as my PSA and urine were both fine. Will see a new rheumatologist on February 3 and am seriously considering stopping this evil drug.
Am awaiting results on an ultra sound but I strongly suspect it is the
Leflunomide
as my PSA and urine were both fine. Will see a new rheumatologist on February 3 and am seriously considering stopping this evil drug.
Alebeau
in
PMRGCAuk
3 years ago
Sjogrens Syndrome
The consultant has put me on a
Leflunomide
and Hydroxychloroquine as a combined attack.
The consultant has put me on a
Leflunomide
and Hydroxychloroquine as a combined attack.
Golfer5418
in
NRAS
3 years ago
Leflunomide
I have no direction from a rheumatologist yet so I am curious about the procedure for weaning prednisone after two months of
Leflunomide
. Currently at 8.5 MG prednisone and 20 MG
Leflunomide
.
I have no direction from a rheumatologist yet so I am curious about the procedure for weaning prednisone after two months of
Leflunomide
. Currently at 8.5 MG prednisone and 20 MG
Leflunomide
.
Alebeau
in
PMRGCAuk
3 years ago
Any experience with methotrexate alternatives?
Is it just my rheumatologist, or are sulfasalazine and
leflunomide
rarely used, and if so, does anyone know why?
Is it just my rheumatologist, or are sulfasalazine and
leflunomide
rarely used, and if so, does anyone know why?
DrJJ
in
NRAS
3 years ago
Loose bowels
Rituximab and
leflunomide
I actually called the doc …I was diagnosed with diticuitious a few years back . Anyone have any advice ? Thank you
Rituximab and
leflunomide
I actually called the doc …I was diagnosed with diticuitious a few years back . Anyone have any advice ? Thank you
Fifi2
in
NRAS
3 years ago
Elevated markers without symptoms
Rheumy wants me to up my pred and maybe switch from my current drug (
leflunomide
) to something else. I know it's not uncommon to have symptoms without elevated markers. How about the opposite?
Rheumy wants me to up my pred and maybe switch from my current drug (
leflunomide
) to something else. I know it's not uncommon to have symptoms without elevated markers. How about the opposite?
winfong
in
PMRGCAuk
3 years ago
Other peoples experience of Leflunomide please?
I started
leflunomide
14 weeks ago and my RA seems to be increasing with many more joints being involved. It feels like one long flare ,my quality of life is very poor, pain ,fatigue and limited mobility.
I started
leflunomide
14 weeks ago and my RA seems to be increasing with many more joints being involved. It feels like one long flare ,my quality of life is very poor, pain ,fatigue and limited mobility.
meadow-mogs
in
NRAS
3 years ago
Peculiar electrical experience
My Rheumy put me onto
Leflunomide
instead of Prednisolone a few years ago. During Lock-down I had a sudden recurrence of PMR symptoms but couldn't obtain help from my Rheumy. Then the symptoms started to disappear and a most peculiar thing happened.
My Rheumy put me onto
Leflunomide
instead of Prednisolone a few years ago. During Lock-down I had a sudden recurrence of PMR symptoms but couldn't obtain help from my Rheumy. Then the symptoms started to disappear and a most peculiar thing happened.
43tripandskip
in
PMRGCAuk
3 years ago
Leflunomide concern
Anyone taking
Leflunomide
and experiencing extreme weakness? I have had weakness and dizziness a couple of times now and I have notified my GP and Rheumatologist. Started this drug Sept 25 so been about 6+ weeks. Not liking this at all. Thanks in advance for any feedback.
Anyone taking
Leflunomide
and experiencing extreme weakness? I have had weakness and dizziness a couple of times now and I have notified my GP and Rheumatologist. Started this drug Sept 25 so been about 6+ weeks. Not liking this at all. Thanks in advance for any feedback.
Alebeau
in
PMRGCAuk
3 years ago
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