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Kesimpta
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Help please
Hi all , if you have a high jcv is
kesimpta
ok to take? Anyone on
kesimpta
, would love dome feedback π 𧑠any symptoms? I'm terrified of getting heart pslps orvertigo honestly please xx worry wart over here
Hi all , if you have a high jcv is
kesimpta
ok to take? Anyone on
kesimpta
, would love dome feedback π 𧑠any symptoms? I'm terrified of getting heart pslps orvertigo honestly please xx worry wart over here
anetap4545
in
My MSAA Community
3 months ago
Kesimpta
I know that a weakened immune system is a consequence of taking
Kesimpta
, just wondering if your body adjusts over time, I've just been unlucky with the bugs or if this is it for the duration. I've had 3 viruses a cold and separate Sinusitis in about 8 weeks.
I know that a weakened immune system is a consequence of taking
Kesimpta
, just wondering if your body adjusts over time, I've just been unlucky with the bugs or if this is it for the duration. I've had 3 viruses a cold and separate Sinusitis in about 8 weeks.
Jasperdoo
in
My MSAA Community
4 months ago
Kesimpta Question
I alternate which leg I do my
Kesimpta
injection on, and this month (month 6) was my left leg's turn. Which is also my weaker, more painful leg. And it has been hurting more of late.
I alternate which leg I do my
Kesimpta
injection on, and this month (month 6) was my left leg's turn. Which is also my weaker, more painful leg. And it has been hurting more of late.
MSFlea
in
My MSAA Community
3 months ago
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Kesimpta and PML
I'm currently taking
Kesimpta
and was previously on Tysabri. The pamphlet for
Kesimpta
states PML could develop. My Doctor took me off Tysabri because my JCV number was almost 2. When I asked about it he stated no one on
Kesimpta
had developed PML. I wonder how they know it's a risk?
I'm currently taking
Kesimpta
and was previously on Tysabri. The pamphlet for
Kesimpta
states PML could develop. My Doctor took me off Tysabri because my JCV number was almost 2. When I asked about it he stated no one on
Kesimpta
had developed PML. I wonder how they know it's a risk?
Bamagal14
in
My MSAA Community
7 months ago
Kesimpta and IVIG?
I have been on
Kesimpta
for 2years. Anyone else have that problem? Any luck with immuno therapy? Thank you!
I have been on
Kesimpta
for 2years. Anyone else have that problem? Any luck with immuno therapy? Thank you!
pihokken
in
My MSAA Community
5 months ago
Hello ππΏ
Currently, I'm on
Kesimpta
for my treatment. I'm here looking for support and connection π
Currently, I'm on
Kesimpta
for my treatment. I'm here looking for support and connection π
RessieBare02
in
My MSAA Community
3 months ago
Been a while!
I think I spent most of last week on the phone trying to get my
Kesimpta
worked out, with the wrong specialty pharmacy! But, got all that fixed finally, huzzah!
I think I spent most of last week on the phone trying to get my
Kesimpta
worked out, with the wrong specialty pharmacy! But, got all that fixed finally, huzzah!
MSFlea
in
My MSAA Community
3 months ago
Kesimpta and Pregnancy
Neurologists recommend not becoming pregnant until six months after taking
Kesimpta
.
Neurologists recommend not becoming pregnant until six months after taking
Kesimpta
.
CatsandCars
in
My MSAA Community
5 months ago
Kesimpta
So I've made the decision to start the
Kesimpta
and I'm going in for my 3rd weekly start up dose.So far, the side effects are very mild. Almost non existent. However, I'm continuing to have that blurred sensation coming and going between both eyes.
So I've made the decision to start the
Kesimpta
and I'm going in for my 3rd weekly start up dose.So far, the side effects are very mild. Almost non existent. However, I'm continuing to have that blurred sensation coming and going between both eyes.
Jenjus
in
My MSAA Community
7 months ago
New Study for users of Ocrevus or Kesimpta
You may be eligible for this study if you: live in the United States have been diagnosed with relapsing MS, secondary progressive MS, or clinically isolated syndrome (CIS) are currently being treated with either
Kesimpta
or Ocrevus
Kesimpta
users: treatment start was at least 6 months ago Ocrevus
You may be eligible for this study if you: live in the United States have been diagnosed with relapsing MS, secondary progressive MS, or clinically isolated syndrome (CIS) are currently being treated with either
Kesimpta
or Ocrevus
Kesimpta
users: treatment start was at least 6 months ago Ocrevus
BettysMom
in
My MSAA Community
7 months ago
Great News! Any Tips?
I'm rather nervous now that it is really going to be here, and I was wondering if anyone else who is on or has been on
Kesimpta
would let me know of any tips for when I take it? Like, did you take a Tylenol before you gave yourself an injection? Did it help?
I'm rather nervous now that it is really going to be here, and I was wondering if anyone else who is on or has been on
Kesimpta
would let me know of any tips for when I take it? Like, did you take a Tylenol before you gave yourself an injection? Did it help?
MSFlea
in
My MSAA Community
7 months ago
The Never-ending Sinus Infection!
I know my immune system is really low from the
Kesimpta
. I saw the numbers from my lab test just this month. Wowπ¦. And my
Kesimpta
is due this upcoming week, but neuro says to delay it till the sinus and other infection are gone. I did get up and go to PT on Thursday..
I know my immune system is really low from the
Kesimpta
. I saw the numbers from my lab test just this month. Wowπ¦. And my
Kesimpta
is due this upcoming week, but neuro says to delay it till the sinus and other infection are gone. I did get up and go to PT on Thursday..
MSFlea
in
My MSAA Community
19 days ago
Smile, and you get through it...
So my next move is
Kesimpta
or back to Copaxone.... Any info on
Kesimpta
would be awesome! Missed you guys!, π€ππ
So my next move is
Kesimpta
or back to Copaxone.... Any info on
Kesimpta
would be awesome! Missed you guys!, π€ππ
Jesmcd2
CommunityAmbassador
in
My MSAA Community
8 months ago
My Tysabri experience
When it jumped to 1.71 my Neurologist took me off and 2 months later I started
Kesimpta
. It's very easy and convenient to use the injection pen just once a month and it is mailed to my house. I did well on Tysabri and I'm doing well on
Kesimpta
I think.
When it jumped to 1.71 my Neurologist took me off and 2 months later I started
Kesimpta
. It's very easy and convenient to use the injection pen just once a month and it is mailed to my house. I did well on Tysabri and I'm doing well on
Kesimpta
I think.
Bamagal14
in
My MSAA Community
7 months ago
CD20 Therapies (Ocrevus, Kesimpta, etc.) and potentially serious dental problems
This was an interesting post on the MS-blog. You have to get past the Dustin Hoffman in Marathon Man reference (which was a memorable scene!) to get down to the nitty gritty of why dental hygiene and regular checkups are so critical when when you're on certain MS therapies. https://multiple-sclerosis-research.org
This was an interesting post on the MS-blog. You have to get past the Dustin Hoffman in Marathon Man reference (which was a memorable scene!) to get down to the nitty gritty of why dental hygiene and regular checkups are so critical when when you're on certain MS therapies. https://multiple-sclerosis-research.org
CatsandCars
in
My MSAA Community
5 months ago
This is a day of winning πͺ
Promise I'm not proud of that π ).For the MS, I was on copaxone, tried on tysabri (couldn't continue, high JCV titre), so back on copaxone until the 1st of my status epilepticus events, then ocrevus, and I'm now on
kesimpta
. I don't think the
kesimpta
is working well for me.
Promise I'm not proud of that π ).For the MS, I was on copaxone, tried on tysabri (couldn't continue, high JCV titre), so back on copaxone until the 1st of my status epilepticus events, then ocrevus, and I'm now on
kesimpta
. I don't think the
kesimpta
is working well for me.
Cwright170994
in
My MSAA Community
8 months ago
Symptoms & coping mechanism
Instead he wants me to just start the
Kesimpta
. I'm beginning to wonder if I have RLS and want to know if there are any coping mechanics to the uncomfortable sensations. So far, I've been managing with meditation, stretching and baths.
Instead he wants me to just start the
Kesimpta
. I'm beginning to wonder if I have RLS and want to know if there are any coping mechanics to the uncomfortable sensations. So far, I've been managing with meditation, stretching and baths.
Jenjus
in
My MSAA Community
7 months ago
This week has been rough! Introducing...
I had my
Kesimpta
yesterday... it's still giving me flu like symptoms, but I must admit, not as bad as the loading doses. I barely slept a wink last night and I've only managed a short nap or two so far today, and have a fever. I'm taking stuff for it, but it is making my body temp go haywire.
I had my
Kesimpta
yesterday... it's still giving me flu like symptoms, but I must admit, not as bad as the loading doses. I barely slept a wink last night and I've only managed a short nap or two so far today, and have a fever. I'm taking stuff for it, but it is making my body temp go haywire.
MSFlea
in
My MSAA Community
5 months ago
Gilenya
I don't know what to do about the insurance denying the
Kesimpta
other than doing what they want, trying Gilenya and seeing if I do okay on it or not. The whole reason I'm starting a DMT is to slow progression and I've read that Gilenya is not very good at that...
I don't know what to do about the insurance denying the
Kesimpta
other than doing what they want, trying Gilenya and seeing if I do okay on it or not. The whole reason I'm starting a DMT is to slow progression and I've read that Gilenya is not very good at that...
MSFlea
in
My MSAA Community
7 months ago
Choices
My doctor has recommended
Kesimpta
(Ofatumumalb) and for me to start as soon as possible.
My doctor has recommended
Kesimpta
(Ofatumumalb) and for me to start as soon as possible.
Jenjus
in
My MSAA Community
8 months ago
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